Chemo Ice Caps for Triple Negative IDC - Should I try it?

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Sunsetbreeze30
Sunsetbreeze30 Member Posts: 1
edited March 2017 in Triple-Negative Breast Cancer

Hi All,

Just had a recent recurrence of IDC, and completed surgery. As I consider chemotherapy options, my Oncologist offered Elastogel Chemo Helmets while I sit in treatment (3 hours per treatment). I am having AC dose- dense chemo.

I'd LOVE to know anyone's thoughts or experiences with the ice caps. I am hoping to save at least SOME of my hair this time around, if possible.

Thanks, light and love.

Sunsetbreeze




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  • KJ17
    KJ17 Member Posts: 7
    edited March 2017

    hi Sunset Breeze, I used the Penguin Cold caps for 4 months last year during chemo and kept at least 60% of my hair. It was worth the frozen head for me; I'd do it again! This pic was taken just before my last chemo; much thinner than normal but it was hair! Let me know if I can answer any other questions image

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  • Meow13
    Meow13 Member Posts: 4,859
    edited March 2017

    Kelly, you look great, happy it worked.

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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2017

    Sunsetbreeze30 and Kelly, welcome to Breastcancer.org! We're sorry we have to meet here for a reason like this, but glad you've found us!

    Sunset, you may want to join also the following thread: Cold Cap Users Past and Present, to Save Hair

    Kelly, thank you for posting, you look awesome! If you need any help navigating the boards or the main site, please don't hesitate to reach out to us.

    Best wishes,

    The Mods

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  • phaila
    phaila Member Posts: 279
    edited March 2017

    I used them. It saved my hair all through chemo although I lost like 80% of it in gradual sheds What's left is crap but it just looks like I have curly out of control hair. My hair had been blond and straight thick and down to my butt. The thing it does is it keeps you from ever being bald. Which I just didn't want

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  • phaila
    phaila Member Posts: 279
    edited March 2017

    also if they're offering I'd totally do it!!!

    The biggest stress Is getting the caps the ice thencoolers and having someone come do it for you.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited March 2017

    I just saw Beth Israel in Boston news article. They have machines that keep the cap cold no dry ice. I think is much less labor intensive. Getting the word out, the article I saw was dated 2017.

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