Starting Rads in January 2017
Comments
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Contgrats SuprSurvivr for finishing, what a great feeling.
Caligirl55 - feeling pretty great. Burn on my neck has cleared up wonderfully, now dealing with one under my arm. It's not in the crease but below it. Smearing the Silvadene on to get it cleared up before my vacation. How are you doing?
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🎉Congrats to you too, kshorten!! Good job and here's to a speedy recovery! 🎉
I ended up with some red rashes in the crease under my breast and on the bottom part of my arm pit. They haven't blistered or split but are a bit uncomfortable. I've been cutting off aloe leaves and liquefying the pulp for slathering on during the day, then still use the aquaphor at night. No bras until they go away and no sweaty exercise. Keeping up with weights, stairs, and stretches at home.
Take care and happy healing to you all! Way to go January 2017 Rads!!
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kshorten... That Silvadene cream was wonderful for my burnt split skin. I am keeping that stuff for any emergency burns any of us may have one day.
I'm doing good my burns have healed really well. I'm just still very tired after my work day.
Hope y'all are doing well
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Glad to hear your doing well Caligirl55. The fatigue will get better quickly! Hand in there.
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hi girls I was wondering if anyone had se after rads I finished on 1st February, I found the whole thing very tough. I have on and off a burning sensation in my upper back on left side which was the radiated side do you think this might be lung damage??, I also have pain across my chest when I lift up my arm I didn't have lymph nodes removed, you can't get lymphoma if you don't get nodes removed can you
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Hi Lorri-sounds more like the skin and muscle trying to tighten up. The odds of lymphedema are very low without having a lymph nodes removed. I do try to stretch and massage when I put on my lotion and can feel things wanting to tighten up. I was told by my RO that I would have scarring on my lungs but that it would have zero impact on their function. I don't think that is necessarily the same for everyone though (the scarring that is). We had a difficult first meeting and she redid my radiation treatment plan to further minimize the chance of damage. I don't think you should be experiencing any significant pain at this stage. Do you have a follow up scheduled with the RO?
And hi to everyone else I have been meaning to check in. So now I am 2 months since finishing rads give or take. I continue to use shea butter and coconut oil 2 x per day (1 morning/1 night). It keep my skin smooth and I do a light massage and stretch through the process to keep everything moving around.
i would say my breast looks and feels pretty normal. I still have a very small patch of tan colour that looks like it is here to stay. My treated breast is now somewhat smaller than the other one. Not sure if it is from the 2 biopsies and lumpectomy or the radiation- probably a combination of the two. At first glance you wouldn't notice it but if you look more carefully it is easy to see. So this is the "new me" I am still coming to terms with. And my nipple is larger than the untreated one but otherwise fine.
My breathing is good although I am still watchful for any fibrosis. I have increased my exercise a bit to try to push my breathing to capacity more. I signed up for something called d'action that monitors your vitamin d levels over a 5 year period. I haven't gotten my levels yet but I suspect they may be low. Nothing else for now although from reading these boards I see there are about 100 other things I could be taking or doing. One thing at a time for me...
I have moved on to stressing about the Tamoxifen which I have started although only a partial 5 mg dose (decided on my own-not authorized by MO!). I'll save that for another discussion though.
How is everyone else???
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thanks for reply Brigid, I had a check up with the radiation dr s month after rads finished I literally went in he looked at my breast said you did NOT have cancer now get on with your life, I didn't have these symptoms then, I will go to my doctor I think i
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Hi Ladies.
Lung scarring is a fact of life with whole breast radiation. My RO said it would be 10%. As a singer, I freaked. I was told it would just mean that I would not be able to hold a note as long as I had before. So far I have not seen a problem. To help with lung function there is an exercise for singers.. Lay on the floor and blow up a balloon without puffing out your cheeks. This builds up the diaphragm.
My GP put me on extra vitamin D, because it is necessary for calcium absorption. I also take extra B-12 and B-6 to try to help with energy and the neuropathy I have from the Taxol. I also take calcium/magnesium supplements to try to combat osteoporosis as I was already osteopina when I started cancer treatment.
My Rad treatment tanned a good portion of my underarm and chest. The tan is slowly fading, but I am also having intermittent shock like pains. I have been told these are the nerves healing. After the lumpectomy, I did not notice much change in the size of the affected breast. After Rads, it does appear a bit smaller.
Glad everyone is doing well.
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Hi Checking in -now ~ 4 months out from finishing radiation. I had what I thought was my last appt with my RO this past week. Appt went well. I did point out some tightness in my shoulder/armpit area. The RO response will be familiar to anyone who has gone through this treatment. "no that can't be from the radiation".
She suggested a 1 year final followup appt which I am ok with.
Other than that tightness I don't have any ongoing side effects to report. I continue to use the shea butter and coconut oil to moisturize/massage. I also stretch and do some light weight lifting. My right (treated) breast is about 1/3-1/4 smaller than the left. Probably some from the lumpectomy and some from the radiation. It is manageable and I don't think that noticeable?
I run 3x a week and have increased my distance since diagnosis. I have not noticed any breathing difficulties-knock wood.
I gave the Tamoxifen a try and ended up stopping after 5 weeks. Lots of side effects that left me exhausted and not functioning at anywhere near normal. Now contemplating trying again with a different manufacturer to see if that helps. I did discuss recently with MO who again was supportive/lukewarm as to whether I should try again. She would be fine with me calling it a day with any anti-hormonal. So still thinking it over.
I have a few other things I am trying. Don't want to overload as this is clearly a long marathon and not a sprint. There are so many things that may be helpful to avoid reoccurrence. I am part of D*Action and have increased my Vitamin D intake, eat lots of broccoli sprouts (Sulforophane) and now have only a very occasional bit of sugar or alcohol. I am dipping my toe into the world of time restricted eating and may post elsewhere in the forum about my experience with that so far.
How is everyone else managing?
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Doing great as can be ... Had my 2 month check in with MO. Most of my questions were kind of dismissed as its a slow process. Proud of you brigid running since I am still so tired after working all day I can hardly walk down the block...but I keep moving. I am still so blessed to be cancer free!!
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hi haven't posted here in ages, I went to my own doctor last month she examined my chest listened to my breathing said nothing. I'm still getting burning in my back I'm fed up of it so I called the radiation clinic and I'm going in there tomorrow to see the dr and I'm hoping an X-ray or something cause IRS going on a long time now I'll let you know how I get on
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Lorri70 - I had pain in my back, middle, top, like under my bra. It was intermittent pain and would stop at night. Went to PT, I was just anxiety/tension. She gave some exercises, and I feel tons better. The stretches also help with all the scar tissue and post radiation tightness in my treated breast! Hope you get some resolution!
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thanks for reply, I saw the radiation dr yesterday he said it's not damage from radiation he said he didn't go near that area showed me where the beam does go in he suggested it's from the Tamixofen, I dunno about that now but I'm happy enough if my lung isn't damaged
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Lorri....it's so frustrating at times isn't it? I am happy your lung is not a damaged. I have had a pain in my right upper shoulder since radiation when I had to grip that bar over my head. My left side which was my treatment side has been fine. No one seems concerned so PT has been my best help
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