Hi Im having radiotherapy in a couple of weeks

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Hi there, thankyou for letting me join in the forum, I haven't done one before. im having radiotherapy in a couple of weeks and really frightened, any help out there would be appreciated,

any advice for me what to expect and do I REALLY have to have it, thankyou all so much

Comments

  • ceanna
    ceanna Member Posts: 5,270
    edited March 2017

    amandalynne, sorry no one has responded so far. You don't give a lot of details, or whether you're scheduled for full breast or brachytherapy, so maybe your best place to start here is reading the organization's webpage about radiation therapy http://www.breastcancer.org/treatment/radiation

    That may answer some of your questions, otherwise you might want to read some of the "starting rads" threads listed in the "Active Topics" pages and get connected there. Or just click on the "Search" icon in the upper left column and type in the topic you want more info on.

    All the best.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited March 2017

    Amandalynne, radiation was really easy for me. Because I had a shorter protocol (19 rounds) I didn't have any skin problems. Loved my radiologist and all the people at radiation.

    What type of radiation are you scheduled for?



  • amandalynne
    amandalynne Member Posts: 8
    edited March 2017

    Hi Cowgirl13. thank you so much for replying. and so good to hear you didn't have any problems, that's brilliant. its made me feel abit better already bless you..

    im due to start it in a few weeks. dates not been sorted yet, still waiting for next week to start my plan, its for the left breast and ive read some nasty things about it affecting your heart etc so I think ive worried myself stupid, im having 3 weeks worth so I guess that's 15 rounds but maybe a booster at the end but I don't really understand why I need the booster and am thinking of refusing this as they think it will be a higher level... im just a bit mixed up, I guess I will ask more questions at the planning day...

    but I just wanted to hear from someone who understands how frightened I am... a big baby I know....

    Thankyou again for your lovely response... I wish you all the best Cowgirl13... x

  • gb2115
    gb2115 Member Posts: 1,894
    edited March 2017

    The boost is aimed at the surgical cavity (lumpectomy) or the scar line or chest wall, depending on what surgery you had and where your tumor was. That is because more often than not, that's where recurrences are, so they really blast the area, or as my oncologist put it "sanitize the area." I didn't find my boosts to be more particularly difficult than the regular radiation--I think I had 7 boosts. I had troubles with radiation, but only because I had a bad allergic reaction to the lotion they had me using. If that hadn't happened it would have been physically fine, though draining from having to go so often. I had a bit of nausea throughout (not enough to be medicated for), and a bit of a sore throat at the beginning. I had 6 weeks of radiation to the breast, as well as axillary and subclavicular lymph nodes.

    They will take steps to protect your heart as much as they can. There are ways they can do that.

  • ceanna
    ceanna Member Posts: 5,270
    edited March 2017

    Amandalynne, you may want to see if you qualify for brachytherapy based on location of LX, breast size, your age, and other qualifiers. Brachytherapy is radiation delivered twice a day for one week right to the lump area and not the full breast which can reach too near the heart. Also, there is little or no burning of the skin. It can be either SAVI or Mammosite and other device manufacturers. You can read more here http://www.breastcancer.org/treatment/radiation/types/internal There have been several recent threads and the people have had very good outcomes with brachytherapy. Just read the later postings on this thread Post brachytherapy radiation and surgery effects

  • Shaz1970
    Shaz1970 Member Posts: 42
    edited March 2017

    Hi amadalynne, I start rads on April 18th, I'm nervous too, if that helps. I'm having 20 sessions. Had my CT scan and tattoos done yesterday, so I'm ready to start 👍

    Im having it on left breast, have been told the heart is protected, but my lung will catch it at the top, but it shouldn't affect me unless I'm climbing mountains!! 😆 so I've stopped smoking, to help matters, that's another challenge in itself.

    Shaz

  • Wildplaces
    Wildplaces Member Posts: 864
    edited March 2017

    Mepitel - dressing see below has shown some good results for skin dressing but it needs to be kept dry.

    http://www.flemingmedical.ie/LatestNewsBlog/Study-shows-that-Mepitel-Dressing-prevents-radiotherapy-skin-reactions

    In rads to your left breast - breath holding techniques are used to get the lungs inflated to protect your heart.

  • amandalynne
    amandalynne Member Posts: 8
    edited March 2017

    Hi Shaz oh bless you, it is scary stuff isn't it.. I have been reading so much on the subject so I don't really know if that's a good thing or a bad one.. every site is different isn't it, I guess I just got to go with the flow and be brave as you are, ive not had my tattoos yet, told there will be three... oh the best of luck ... if we are strong we will get through this. xx

  • amandalynne
    amandalynne Member Posts: 8
    edited March 2017

    Hi wildplaces. how you doing?..

    Thankyou for the link and I have looked up on it,looks amazing with the stats doesn't it... please can you tell me how you are getting on with arimidex as I have been prescribed that. I have decided to take it AFTER rads . I have read the side effects and it has frightened me even more than the radiation, I know I know im a big baby, I had two lymph nodes removed as well as partial mastectomy ... are you getting on ok with the meds..sounds like you have been through the mill and back. I wish you all the best I really do, thankyou for sharing with me, it means a lot to me

  • Shaz1970
    Shaz1970 Member Posts: 42
    edited March 2017

    Amandalynne

    Don't be fooled, I'm not brave!! I'm a mess 😆😆. Get so anxious over every little thing, am planning on returning to work next week, for 3 weeks till my radiotherapy starts, and I'm terrified 😩😩. Would rather stay hidden away at home, painting my nails every day to keep me busy, and my hands out of a fag packet, of course! But I can't, I am a manager in a supermarket and Easter is our 2nd busiest time of the year, so they want me back, and physically, there's no reason why I can't be there, but mentally....oh god, and my job is very high pressure, everyone brings their problems to me, I struggle with anxiety when things are going ok, let alone dealing with cancer at the same time 😩😩😩. And, really, they expect me to care how much we are spending on wages, they want me to care if we overspend by £100??? Derr, I don't think I have the necessary brain matter to deal with the cr*p that goes on every day in there 😔😔😔.

    So, no, I'm not brave, I'm 46 yrs old and feel more like a scared 10 yr old 😰😰


  • Wildplaces
    Wildplaces Member Posts: 864
    edited March 2017
    Hey,

    It is what it is - but thank you :)

    rads can be tiring (especially by mid afternoon) but manageable

    Mepitel works well for me - you can not get it wet - partial showers only and you are best not to sweat under it - the plan being to keep it on as much as possible and for 2weeks after the rads finish ( it's hot where I am and not being to push my exercise is annoying ...) it does not stick as well under your arm/breast so a product called Mepiflex will help with friction there.

    How much of a reaction women get varies - I am at 19 (6 to go) and have very mild redness only - not hot etc - I have fair skin.

    Arimidex ( yes most wait until the rads to take it) - there was some heated discussion on the benefit/risk of my rads (finished chemo end Dec) finally....so Arimidex and rads.
    I get muscle and joint pain. I also get some frequency with urination (under reported in my view - but keeping up fluid during the day helps a lot)
    I don't like it but I can manage for now - exercise and moving constantly helps (thankfully I am not returning to a desk job so I can move a bit in my work).
    Some women use bioperine curmerin supp. others loratidine (Claratine - antihistamine)
    I take a Vit D daily and some calcium. I also take Aspirin enteric coated 100 mg a day (not for joint for cardiac protection from early menopause - it can have some GI effects but usually fine in under 70 with no previous ulcer/oesophagitis etc)

    I try not think too much about the side effects that cause me "discomfort".
    I wait for them to bug me.
    I Do think about the long term side effects of antihormonal and keep up as much as possible with the literature on them - at present this 5 moved to 10 year plus is of concern but hopefully will know a bit more by the time I get to 5...

    Wishing you well - hope the rads fly by 😊
  • Wildplaces
    Wildplaces Member Posts: 864
    edited March 2017

    lingered on this thread ladies :) do not underestimate the effect of exercise

    Dana Faber link as a summary

    http://www.dana-farber.org/uploadedFiles/Library/survivors/information-sheets/exercise-and-breast-cancer.pdf

    American Cancer Council recommends 150 minutes of moderate activity

    There is a wonderful post that starts the thread on Stage 5 Fitbit Community - and a set of 12 Yoga poses that help increase bone density.
  • pupmom
    pupmom Member Posts: 5,068
    edited March 2017

    It was very easy for me. I went through the entire protocol, plus boosts. My skin got red and itchy toward the end, but that was manageable. Best wishes!

  • Marine20
    Marine20 Member Posts: 5
    edited March 2017

    radiotherapy is easy to get

    I did have very painful redness but you get that with radiotherapy as it's like sunburn

    If it gets unmanageable the dept will give you cream

    But doing radiotherapy is honestly so easy as all you have to do is lie on the hard table

    They do all the work and after they have you lined up it takes seconds to fire the beams

    All you have to remember is don't move at all.

    The table you lie on can be a little uncomfortable but it's over before you know it

    Good luck


  • mothpowder
    mothpowder Member Posts: 6
    edited March 2017

    Zinc and Castor oil ointment has relieved my itching, phew

  • amandalynne
    amandalynne Member Posts: 8
    edited March 2017

    Hey Shaz. thanks again for reply. and all the very very best of luck with going back to work, I also work in retail in a book shop but lucky for me its not too pressure as im only a part time assistant, so I can imagine the pressure you must be on and I agree that now about what your saying. that what used to be important in the work doesn't compare anymore, was thinking maybe you could go in 2 days a week to start with to get you back into it, working keeps you so occupied and you will have your friends around you and you may find after the first few hours of being back in control etc that you will feel normal and back to reality... You are already on this forum which is one big help in the healing process isn't it... and I am sure that working will be another big step.. huge step. so well done you... all the very best x

  • amandalynne
    amandalynne Member Posts: 8
    edited March 2017

    thank you Mothflower. I do have caster oil but not ointment, I will have to get some, thanks for that ..all the best

  • amandalynne
    amandalynne Member Posts: 8
    edited March 2017

    Thanks marine 20, so good to have positive feed back, we are all in this together and just by being on here this past week has helped more than I can say, thanks and all the best

  • amandalynne
    amandalynne Member Posts: 8
    edited March 2017

    Thanks wildplaces. I will try the vit d and calcium . thanks for all your advice. not too good at yoga lol but worth giving it a go, its prob good for the mind as well as body. thanks again, will do that. all thev ery best

  • Wildplaces
    Wildplaces Member Posts: 864
    edited March 2017

    image

    I'd never done anything like before...I am a walker but no flexibility whatsoever.

    Source: Columbia University physiatrist Dr. Loren M. Fisher

    This was posted on one of the Stage 4 threads a few times and the wise ladies of that thread had super positive comments - I am doing the top row standing and the middle row flat on the floor and unless those magnificent men and their "zapping" machines are shooting at my head too - I think it works for me, feel great after - it might just be that I am forced to lie down deep breathing for 10 minutes but it might be worth a shot.

  • CeliaC
    CeliaC Member Posts: 1,320
    edited March 2017

    Hello, all. Wanted to let you know my experiences with Rads. I was very worried and in a bad place at the beginning. Completed 16 "regular" rads + 4 boosts to tumor bed (so 20 total) on 3/21/17. Very fair skin, but no severe effects. The boost gives a bit of a break to the rest of the boob. Check out the Feb 2017 and March 2017 rad topics - lots of info there, about creams, etc., including what worked for me. Or, if you want, let me know what else you may like to hear about. Happy to share and help out fellow BC sisters. My rads were to left breast & they did "deep breath hold technique" which helps move heart/lungs out of the rad field as much as possible. Healing thoughts and best wishes to all. You can do this!

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