ER/PR-, Her2+ Recurrence Rates

Options
2»

Comments

  • KathyL
    KathyL Member Posts: 534
    edited December 2009

    I was also told by my onc and breast surgeon that a bilateral mx was not necessary as I had the genetic testing done and was negative.  They explained that if BC appeared in the contralateral breast, it was most likely a new BC and not a recurrence of the first as BC does not travel from one breast to the other... if it metastasizes, it's to lung, liver, brain, or bone.

    · Share on FacebookShare on Twitter
  • Gayleebug
    Gayleebug Member Posts: 166
    edited December 2009

    Even though I'm not BRCA+, I went ahead with a prophy MX on my good side primarily to (1) eliminate my lifetime risk of a new cancer in that breast, and (2) because I was getting DIEP reconstruction and had enough belly fat to create two breasts.  As far as I know, the only way I can get a local recurrence is if it occurs in the chest wall of the area where I had my cancer (mod rad MX took everything else on that side).  I'm more likely to get distant recurrence (mets) from the original cancer I had.

    · Share on FacebookShare on Twitter
  • Macc
    Macc Member Posts: 23
    edited December 2009

    I'm er/pr- and her2+. 2cm 5/14 nodes, gr 3. I was told 70% chance of recurrence systemically without treatment, reduced by at least 50% with chemo and Herceptin.

    · Share on FacebookShare on Twitter
  • Gayleebug
    Gayleebug Member Posts: 166
    edited December 2009

    Macc

     My onc told me about the same ... with chemo & herceptin, about a 30% chance of recurrence.  Stats should be a bit better than that because I had a full (complete) pathological response, as confirmed by the MX and full lymph node removal.  I was STUNNED at the time that it's that high (ok, yes, I freaked) but TRY not to think about it....

    · Share on FacebookShare on Twitter
  • IsThisForReal
    IsThisForReal Member Posts: 384
    edited January 2010

    Another question here - what about ER/PR+ & HER+ BC...would a uni-lateral or bilateral decrease risk of recurrance there also?  Even if chemo, radiation, tamoxifin, and hecerptin is given?  Would it be worth it to go to such extremes?  Sorry - new to all this and just trying to understand HER+ and the harmone thing.

    · Share on FacebookShare on Twitter
  • lexislove
    lexislove Member Posts: 2,645
    edited January 2010

    IsThisForReal,

    Understand that if a woman is diagnosed with BC, she does have an increased risk of getting a NEW BC in the opposite breast. It will depend on you age when you are diagnosed with the first BC. My onc told me, at 30 yrs old, MY risk of a NEW breast cancer in my healthy breast is about 20-30% LIFETIME risk. So, 70-80% it wont happen. Certain BC's have a tendancy to have higher incidences of getting a BC in the healthy breast....ILC and Triple Negative. This isnt you...

    If you were to decide on a bilateral, you would be  reducing your risk huge, but also, surgeons can remove most breast tissue, just not all. So there is still a slight risk. Woman usually do a bilateral because they just dont want the anxiety of mammograms ect...or for symmentry purposes.

    I decided NOT to. My personal decision, I dont like the idea of not being able to feel my breast to feel for lumps. I already worry about the cancer breast having an implant and looking for signs of recurrence, never mind a new BC growing in the other breast. Implant or not.

    Also, Tamoxifen reduces your risk of getting a new BC in the healthy breast!

    I would ask your oncologist about YOUR chance of developing BC in your healthy breast. What is your personal risk. They are the ones that can give you a clear your head, so you are able to make the decision for yourself. There is not rush, take your time when trying to decide.

    Be well. 

    · Share on FacebookShare on Twitter
  • MsBrompton
    MsBrompton Member Posts: 357
    edited March 2017

    Friends

    The latest evidence is much more positive. Stage 1 breast cancer, whether HER+ or HER-, has a 99% 10-year disease-free survival rate (i.e. fewer than 1% of one will get a recurrence in 10 years). If you take the treatment that is!

    http://www.bmj.com/content/351/bmj.h4901

    · Share on FacebookShare on Twitter
  • Cath78
    Cath78 Member Posts: 15
    edited March 2017

    Well said. Don't attach yourself to a statistic. Research nutritional advice and lifestyle changes. Live now and be as healthy as possible. Allthe very best 🌻

    · Share on FacebookShare on Twitter
  • Jaimieh
    Jaimieh Member Posts: 2,373
    edited March 2017

    well I took it for the team. Am the 1% BUT I am doing well after a local recurrence. My best recommendation is to try and live instead of worrying. After I was rediagnosed I was pissed at all the time I sat worrying. In 3 days it been 3 years since my recurrence.

    · Share on FacebookShare on Twitter
  • Treefrog-smiles
    Treefrog-smiles Member Posts: 1
    edited March 2017

    I'm new to this forum. I am currently undergoing treatment for a local recurrence. I haven't found much info and not able to connect with others in a similar situation. Is there a particular thread for this?

    Thanks in advance..#abitstressed

    Just realized this is for ER/PR-, Her2+

    First diagnosis was 1/2009: ER+,PR-, Her2+

    This time dx 11/2016: ER+,PR-, Her2-

    · Share on FacebookShare on Twitter

Categories