DCIS, what to do

hi there I had triple negative/ multifocal tumours on the right so mastectomy was a clear decision, but they found dcis on the left after biopsy & a wide local the margins were not clear so that information helped the decision to have a further mastectomy on the left particularly as triple negative has a high reoccurring rate.. I would list your Qs & concerns and talk with your consultant for the information on options and then decide. There are so many factors and everyone is individual in their case so keep your details key to the decision.i wouldn't google too much either as it often leaves more Qs than answers! .... support from family & friends and folks on here will help too .... I hope everything goes well for you best wishes x

Hi Bebe,

I was diagnosed with DCIS after a diagnostic lumpectomy in July 2016. I had no lump....just architectural distortion that showed up on a screening mammogram. The biopsy showed atypical ductal hyperplasia so they proceeded with the lumpectomy to rule out cancer. Low grade, solid DCIS showed up in the pathology. I was referred to the local cancer centre....to a radiation oncologist, who stated that it was up to me: 90% chance it won't return without radiation and 96% chance it won't return with radiation. I opted not to do the radiation as there are side effects, particularly if the DCIS is in the left breast (closer to the heart). The treatment they suggest depends completely on the grade, size and whether they are confident they got good margins when they did the lumpectomy. As far as lumpectomy goes I would definitely not skip that.....but a mastectomy would depend on your family history, the grade and size of the lesion. My lumpectomy was no biggie....I was in and out and I had zero pain.

i did 5 days of targeted radiation which i recommend if you have to do xrt once path comes in - check out the article i posted under the feb rads group. now im on tamoxifen - just started friday and so far so good!! best of luck for good path results - the waiting IS the hardest part!!! happy healing! xxoo

bebe, so glad you got good path news and are well on your way to recovery. Pamper yourself!! ((hugs))

Hi everyone,

I'm not sure where to start....I had Lumpectomy with Bilateral Reconstruction and Reduction on 2/27 for IDC and have been home recovering. Received  phone call from my Breast surgeon on Wednesday- knew something was wrong when she called me personally and early in the morning. She called me to come in and discuss my pathology. The tissue removed during my reconstruction showed areas of DCIS scattered over 15 cm. None of this showed on any of my mammograms and no one had any idea. So, now I am going to have mastectomy on the right side. I am in total shock.

I'm so very sorry you're enduring more. I have not been diagnosed but BC is suspected. I am waiting for my MRI. Hang in there, I know easier said than done. ((HUGS))

did u have lumpectomy already? I'm still waiting for my gene testing results, 3-4 weeks. Then they said if positive mastectomy, if not implant removal with lumpectomy then radiation. With tamoxifen for either. I have a 3.3 cm high grade (-) on left and 1cm on Rt, (+). Dcis . I wonder if I will be making the right decision too.