starting rads feb 2017

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  • annoyingboob
    annoyingboob Member Posts: 558
    edited March 2017

    thanks mamasha!!! It was very anticlimactic - no bell to ring or big party. Now on to tamoxifen for 5 years!!!

    If anyone else with low grade tumors is reading this, I highly recommend my 5 session partial breast imrt. Was a bit tired Wednesday but I think it was just from waking up early. No skin changes. No redness. Amazing. Fingers crossed it worked and I'm not back here with a recurrence.

    Here is the article:

    image

  • Elem
    Elem Member Posts: 327
    edited March 2017

    mamasha.. i have never used it in front .. ouch is right, but I do lay bare back on my mine all the time . It is very effective on a hard surface, but I use it in bed . It does hurt and little when you are not used to it, but then ahhh it feels so wonderful . 15 mins is all you need to start . It is like a natural analgesic . You have to be patient. Itcwill not poke holes in your back . I promise!! There are several you tube demos of the use of the mat . Let me know if you need any help . ❤💗👍

  • Elem
    Elem Member Posts: 327
    edited March 2017

    yay Aboob .. you did it ! I am starting to get skin changes with a little pain .. yikes! I am just 13/20 . I hope I have that right because I booked a trip to Legoland Ca. With my grandkids for the 15 . The day after my 20th. I have had BC brain for a couple of minths now, with no clear end in sight just yet. Next stop .. Aromatase Inhibitor-ville! Still not feeling it! But we'll see . Have an awesome weekend.

    💗👍

  • Elem
    Elem Member Posts: 327
    edited March 2017

    Thank you 3bears and Beachbabyk , I am so in awe of these gals who do these rounds of chemo with such courage and conviction. I hope that everyones rounds go quickly and we never have to revisit BC again . Love you all .. Have a great weekend everyone .

  • Pamela23
    Pamela23 Member Posts: 510
    edited March 2017

    I am having 30 sessions, 5 weeks laying on my front with my breast hanging through a hole in the table to minimize zapping the chest wall/organd and the last will be on my back and will be a boost. I've done 9 so far. The first few days they x-rayed first to make sure they were't getting anything except breast tissue, no chest wall. They say they retake X-rays each Friday. So yesterday it was taking longer than usual and the said they superimposed the images from last Friday and the previous Friday and I'm a mm off my marks. I asked if it was because my breast is swollen, definitely bigger than the other one. They said it may be the case and they'll redo the images on Monday and may need to readjust the parkings .Anyone else having this done?

  • Oasis2016
    Oasis2016 Member Posts: 52
    edited March 2017

    Did #6/25 today. Yesterday felt some pain around the tissue expander. RO said probably due to skin contraction. No redness yet but a bit of skin roughness around the collarbone.

  • Elem
    Elem Member Posts: 327
    edited March 2017

    I do not have TE's but 12/20 rads and I feel some pain in the breast and by the lymph incision. It feels like a stabbing pain that I felt shortly after surgery on the sentinel node area. The skin is also probably a little burnt by now . I will ask about it tomorrow which is the day I see the RO during tx.

  • Patti1746
    Patti1746 Member Posts: 49
    edited March 2017

    Today is 14/23. My breast is bright pink and nipple is sore but manageable. Keep slathering on that lotion and drink that water ladies!

  • Elem
    Elem Member Posts: 327
    edited March 2017

    I just did #14 of 20 . My boob aches occassionally and It is reddish . Sometimes it feels sore at the sentinel node incision and radiates into the surrounding muscle tissue. I felt this after surgery as well . Maybe it is just still healing and rads doesnt help that.But yes slathering the lotion and water it whatI am doing as well . Looking forward to the end of rads👍

  • Cowboy-Up
    Cowboy-Up Member Posts: 211
    edited March 2017

    Pamela23, I will be in the same position as you for 25 zaps and then 6 on my back to the tumor spot. I have my dry run on Wednesday and start on Thursday.

  • Patti1746
    Patti1746 Member Posts: 49
    edited March 2017

    Cowboy-Up - Have you started on Tamoxifen yet? Good luck on Wednesday.

    Elem - how many boosts are you scheduled for?

  • Elem
    Elem Member Posts: 327
    edited March 2017

    HiPatti1746 ,

    They never mentioned the word boost to me so I am not sure. Just know from asking today that the 14th will be my last tx.

    Wed. I will see the MO again .Probably to discuss the AI's . My bone density test was within the proper range for my age . No osteoporosis or osteopenia.

    CowboyUp , your hair looks beautiful . The color is lovely as well . You are gorgeous.

    Thanks for the encouragement ABoob , I know we are rounding the final turn . But it's still very much a mind blowing experience at every phase. I just hope we all are preventing recurrence as planned. Then we can put it completely behind us for good! Yes!! Love and hugs

  • Mamasha
    Mamasha Member Posts: 104
    edited March 2017

    note to self-never look in the mirror in dressing room after rads. I was like omg I'm red but the lighting in there is terrible. I didn't look as bad at home. So I don't know if this is tmi but nipple is probably the reddest part of breast. Only good news is that boob always looks perky!

  • Cowboy-Up
    Cowboy-Up Member Posts: 211
    edited March 2017

    Patti1476, no Tamoxifen yet. MO wants me to wait until after Radiation.

  • Patti1746
    Patti1746 Member Posts: 49
    edited March 2017

    Mamasha - there is no mirror in the dressing room (actually, I change in the exam room). My rad boob is perky too and swollen, BUT it doesn't look bad except for the color.

    Elem - I thought everyone received boosts but what do I know. I was scheduled for a week of boosts but the RO changed it to 7 saying although my margins were clear they weren't as wide as they would like (if I'm understanding correctly). When I met with my Surgeon she said I only needed 3 weeks of radiation therapy but that all changed when I met with my MO and RO. We are on the same schedule, I see my RO today as well.


  • Mamasha
    Mamasha Member Posts: 104
    edited March 2017

    so I did my 19/20 this morning (yay)....however I found myself very emotional when the techs left the room. I could feel tears run down my face but I made sure to stay still. I said my prayers, that included all if you, but still can't believe this crazy sad journey.

  • annoyingboob
    annoyingboob Member Posts: 558
    edited March 2017

    mamasha - you can do it - one more and then time to rebuild your life back to the new normal!! it certainly is a crazy journey, but thelight at the end of the tunnel is getting brighter and brighter!! follow it!!

    I totally get the emotional surge. big hugs - you did it!!!!!!!

    xxoo


  • CeliaC
    CeliaC Member Posts: 1,320
    edited March 2017

    mamasha - You are almost there - yeah! Also have somewhat irritated nipple - talked to rad nurse - got a prescrip lidocaine ointment - has worked well, along with using miaderm cream 3 - 4x daily. Have had several emotional moments in rad room, especially at the start. You are totally entitled to express your emotions - believe most of the rad techs have seen it all and are generally sympathetic. Best wishes for your continued healing.

  • Elem
    Elem Member Posts: 327
    edited March 2017

    iI just wrote a very long response and it disappeared! Ugh. Anyway, 15/20 done, nipple and skin sore and irritated. Been using vanicream , hemp oil and fractionated coconut oil. It seems to soothe and ease the irritation .

    Patti1746, today I was told the last 3 are boosts for me . I had never heard that from the RO before. But he says he told me a lot when we first met and that , because of my anxiety throughout this experience , I probably did not process the information well at first.

    Cowboyup , good luck with your rads . The first couple of weeks were unremarkable for me as skin irritation just started happening this week for me. It is somewhat sore, and my nipple looks very dark .

    Mamasha, congrats , you are at the finish line! Great job . Moving on from this experience is awesome and bittersweet in re: to leaving the group. I love you all . I am grateful for these friendships formed over the past few months. It has been a Godsend .I hope that somehow we can stay connected in some way . I truly love you all .

    Xoxo 🌸💗💪🏻

  • annoyingboob
    annoyingboob Member Posts: 558
    edited March 2017

    elem, im not leaving this group until you are all done and healed - you can do it!! lube up every few hours - I am thinking of you everyday and I know you can get through this!!!

    xxoo

  • Elem
    Elem Member Posts: 327
    edited March 2017

    Thank You Aboob, you are the best and have been such an amazing cheerleader to us all throughout our BC ordeals. I never want to push myself out of the nest and hope maybe I won't have to anytime soon, but I know a lot of the girls have resumed their lives and must move on . I am hoping to stay tuned with our ladies moving forward somehow. But again, thank you for always being such an encouraging force for us all . You have always made this journey bearable with your positivity .. you truly Rock ! ❤

  • Mamasha
    Mamasha Member Posts: 104
    edited March 2017

    Thanks AB, Celia and Elem for the pep talk! Elem you are right behind me sprinting to the end!! Yes, it is bittersweet because now we're are left on our own but guess what we don't have go anywhere!!

    Cowboyup good luck as you begin xo and continued hugs to all

  • Patti1746
    Patti1746 Member Posts: 49
    edited March 2017

    Mamasha - was today your last day? If so, congratulations. Did you ring a bell? (just heard about this recently...hoping there is no bell where I am). I can see myself getting very emotional on the last day, how did you hold up?

    Elem - I'm sure there were many things the RO said to me that I don't remember. I chose to go by myself, maybe I shouldn't have.

  • Fightingirl
    Fightingirl Member Posts: 409
    edited March 2017

    Patti1746, I just posted on this very thing on the January 2017 surgery group. I was emotional and still am...I finished radiation on 2/15 and my husband kept saying "aren't you so happy?" I was happy but it was also strange...I am still doing physical therapy (for cording in my left arm) and this morning, they told me they are cutting me loose after a few more visits and again I got emotional. I was trying to explain to the other group this feeling because I was not prepared for how I felt and hoping to help others. I think the best way to put it is while you are in treatment, you have this team of doctors and the whole process is filled with stages/decisions/options/research...at each stage you feel like you are doing something to get rid of the cancer and then suddenly it's all over and they say, "See you in 6 months"! I want to move forward and get back to life but the last 4 months of everything was so huge made such an impact that it's a little difficult to get going again and not worry about cancer anymore. I am alone without my team of docs hoping and praying I did everything I could and I made the best decisions along the way to wipe out all the cancer. Then many of us have been so fortunate to have developed amazing friendships here and I feel a little strange posting sometimes because I don't really have much to contribute except "normal" life stuff and that makes me feel bad because so many of my new friends are still way deep in the fight.

    Congratulations to all those wrapping up rads and may you find a peaceful and easy re-entry to "normal" life.

  • annoyingboob
    annoyingboob Member Posts: 558
    edited March 2017

    yay mamasha!!!! You finished!!! I am ringing a bell loud and clear here!!!

    Xxoo


  • Mamasha
    Mamasha Member Posts: 104
    edited March 2017

    HI everyone!

    • Yes, I was done at 925 this morning! Yay. I didn't know if I should take an ativan before I left home and let my sister drive but I decided that I would be OK without it:) Patti, there is a bell but I knew on day one I wasn't going to ring it....I wanted to slip out like I slipped in. Every time I heard that bell during the past 20 visits, I would feel happy for the person but then really sad that any of us has to ring it. Seems so unfair and surreal. Fightingirl, I think the same thing about not having a place tomorrow. It's like I'm so happy that I can come home after I drop off my kids to school but it will be weird being "done". I keep thinking what if......and I have to catch myself. How come my brain doesn'the think "what if i live to 99"? Still in the back of my brain is the question is it really gone? When I catch up on bco main page, I scroll down and always take a peek of the latest post on stage IV. I get so nervous about mine returning like these brave women and men. I guess that we have to believe that we are done. My tech said don't get stuck in that for too long. She said love your kids and husband and be happy. I know that she's right. I got to move on from that terrible phone call on December 16th and focus on the applause from my team on March 8th. You my friends are the only ones that understand the significance of both. Let's keep the good reports going while we cheer on our friends that are finishing.
  • Elem
    Elem Member Posts: 327
    edited March 2017

    congratulations Mamasha . Yes I start the boosts tomorrow and will finish up on Tues the 14th. There is a bell and some hoopla at my clinic. I am excited to be finished . Frying myself has always been unappealing and frankly the feeling in rhe cancer center for me is sort of melancholy. The artwork is of gardens that look biblical and without any people or wildlife. I don't know , but for me , it seems funeral parlorish ! The team who work there are nice and pleasant , but it is a very solemn place.

    Went to meet with MO . I really like him , but I ended up with a script for tomaxifen . Even though I am post meno , my bones and heart condition were considered to be too risky, when chances are , my cancer is cured already. But if I want to lower the chances further of recurrence, he said I could try tamox. Just because with inhibitors , the risk outweighed the benefit in my case.The side effect aspect of clots and endometrial issues according to him was extremely low. Omg .. head spin again . Anyway , I am going on my beach outing next week and then pick up the script the following week and try ! In June we'll see if the blood tests and things are wherevthey should be as well as know if I am tolerating it by how I feel . image

  • Patti1746
    Patti1746 Member Posts: 49
    edited March 2017

    Hi Fighting Girl - nice to hear from you. What you wrote is exactly what I've been thinking! For the past four months my life, my thoughts have all been about breast cancer and that will end next week. That should be a happy moment, a big relief, time to move on. But I feel as though I will be on my own, alone. It's a very strange feeling and crazy since there are people in worse situations who want it all to end.

  • Patti1746
    Patti1746 Member Posts: 49
    edited March 2017

    LOL Mamasha - that will be me running out the door.

    Elem - let us know how it goes with Tamoxiflen. Great you are going on a beach outing... thinking I should have some definite plans for the weekend following the end of treatment and lots of plans for the week following.

    Tomorrow is my first boost.


  • kshorten
    kshorten Member Posts: 102
    edited March 2017

    Ok I've developed blisters on my neck that have now popped and are oozing. My RO is calling in Silvadene. Who used this and what can I expect? Any help would be appreciated.

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