LCIS response to chemo

hopeandfuture72
hopeandfuture72 Member Posts: 2

I was diagnosed with 1.2 cm ILC with LCIS originally. The day before schedueled lumpectomy I had an MRI. BS called me that night and said I had a large (5 cm) non-mass close to the muscle. She recommended neoad. chemo to shrink back the non-mass. This was before it was biopsied. I had the biopsy the next day and it was originally diagnosed as DCIS. My BS and the oncologist read the MRI report in a way that did not seem correct to me. I asked for a second opinion and I was correct. The Dr. wrote an addendum to the MRI to clarify that the non-mass was NOT in the muscle. They still wanted to do chemo even though I questioned them since I knew DCIS was not treated with chemo. I had 3 rounds of dose-dense AC. I was still not feeling great about this treatment plan. I went to another cancer treatment center to get a second opinion. They re-read the MRI and confirmed again that it was NOT in the muscle. They also re-diagnosed the DCIS as LCIS! They said no more chemo (I was still supposed to do 4 rounds of T based on first oncologist's treatment plan)

So after months of questions and uncertainty, this is what I was confirmed to have...

1.2 cm ILC with LCIS ER/PR +, HER2 -, Magee score 11, intermediate grade/2

5 cm LCIS

HERE IS MY QUESTION? I had 4 rounds of AC. I had an MRI 9 days after the last chemo treatment. My BS called me and said it is ALL gone. No signs of either area. I was happy beyond belief. She said she was not expecting that and was very surprised to see LCIS respond so quickly and completely to chemo. Because LCIS is not treated with chemo, she can't check studies etc.

Has anyone ever heard of LCIS respond completely to chemo if a patient was given chemo for another reason (like invasive cancer)?

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2017

    hopeandfuture72, we're just bumping your post so someone can hopefully help you.

    Best wishes,

    The Mods

  • cucumber
    cucumber Member Posts: 3
    edited March 2017

    They said my ILC (7cm) had responded to chemo, but on the biopsy it was all still there. ILC is hard to see on MRIs and mammography. ILC almost never responds to chemo (only 2% benefit from it). You were likely given needless chemo and the MRI failed to show LCIS. I had lots of LCIS found on mastectomy and none of it showed on any scan. The ILC only showed on 50% of MRIs and 50% of mammos, despite being 7 cm. The extensive LCIS never showed on any scan. Hope this is useful.

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