Adjuvent Her2 Er/Pr- survivor stories

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SusanV123
SusanV123 Member Posts: 3
edited March 2017 in HER2+ (Positive) Breast Cancer

Hi All,

I am a 36yrs diagnosed in September 2016- I had surgery first clear on the sentinel lymph nodes and in the midst of TCH chemo - not sure about radiation yet. I did get what they call "clear but close" margins with a skin and nipple sparing mastectomy left side.

Would love to hear long term survivor stories that did chemo after surgery?


Thank you in advance

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  • Daisy16
    Daisy16 Member Posts: 16
    edited March 2017

    HI Susan,

    I'm not sure if I can say I'm a long term survivor yet but I'm certainly getting there ! I was diagnosed Oct 2014 , I had Paget's disease ( misdiagnosed as dermatitis for over a year ) my biopsy also said I had DCIS , however , after a double mastectomy a 5cm tumour was found that hadn't shown up my mammogram or ultrasound ! I too had clear but close margins . I had chemo 6 weeks after my mastectomy followed by radiation . This is actually my first post on here . My tumour was her 2 positive est neg . Hope this helps a little xx

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  • JCS28
    JCS28 Member Posts: 153
    edited February 2017

    My treatment is slightly different, but I think it's worth sharing here. I was in a trial where I got herceptin and perjeta ONLY before surgery. And it totally shrunk my tumor! Then I had BMX. Then I had chemo -- taxotere, herceptin, perjeta every 3 weeks for 6 rounds. Then herceptin to finish a year. I am almost 1 year past chemo, and SO FAR, SO GOOD. I was 39 at diagnosis.

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  • lkc
    lkc Member Posts: 1,203
    edited March 2017

    almost 12 years from a stage IIIC . And gloriously wel

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  • Daisy16
    Daisy16 Member Posts: 16
    edited March 2017

    HI Susan,

    I'm not sure if I can say I'm a long term survivor yet but I'm certainly getting there ! I was diagnosed Oct 2014 , I had Paget's disease ( misdiagnosed as dermatitis for over a year ) my biopsy also said I had DCIS , however , after a double mastectomy a 5cm tumour was found that hadn't shown up my mammogram or ultrasound ! I too had clear but close margins . I had chemo 6 weeks after my mastectomy followed by radiation . This is actually my first post on here . My tumour was her 2 positive est neg . Hope this helps a little xx

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2017

    Susan - someone else started a thread that is almost the exact same question. ER/PR - and HER2 +. You might want to "search" because many of us have posted there. That way you will see a bunch of answers.

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