New Lump 4.5 years after Mastectomy and chemo...

Options

I recently found a small bb sized lump right above my mastectomy scar. This is almost four and a half years after my mastectomy and chemo. I was ER-/PR-, HER2+. My original diagnosis was IDC, stage I. My tumor was 1.1 cm and all nodes were clear. I am scheduled to see both my surgical and medical oncologists next Tuesday and they have gone ahead and scheduled a ultrasound for the chest wall beneath my mastectomy.

I don't want to put the cart before the horse, but I am very worried about this... I am looking for any insight, advice or stories related to local recurrance, particular with HER2 BC.

«1

Comments

  • Emily2008
    Emily2008 Member Posts: 605
    edited February 2017

    Ugh, I'm sorry that you even have to post about this!

    I recurred 8 1/2 years after my first dx, but both times was Her2neg. The median amount of time for recurrences is 4.7 years, so there is some debate as to whether I recurred or actually had a new primary. Regardless, I found the lump myself. Had an US, then stereotactic biopsy, which confirmed bc again.

    I had a breast resection, which is basically a lumpectomy. My reconstruction on that side is a TRAM flap, but the surgery to remove the second cancer didn't affect the recon too much. There's a slight divet in the side of the breast, but not too bad. I met with several oncologists, and the consensus was to forego chemo (had it last time), and have 30 sessions of rads (just finished my 15th one today), followed by 5 years on an AI (was on Tamoxifen for 6.5 years the first time).

    There's probably no way you can not be worried about this, because you've been through it once before. I would just say to try to stay busy this weekend because Tuesday will be here before you know it. I really, really hope your lump is nothing! It could easily be a little scar tissue. I hope that's all it is. Good luck!

  • Denise-G
    Denise-G Member Posts: 1,777
    edited February 2017

    Of course you are so worried...

    I have strange scar tissue on my mastectomy breast scar. I am now 5 years out and whenever I feel it, it scares me to death. Sometimes it feels differently than other times. It has been checked and it is in fact scar tissue. If I lie on my opposite side, it really feels bad. Hoping and praying this is what is going on with you!

  • micruble
    micruble Member Posts: 13
    edited February 2017

    Thanks Emily and Denice for your encouragement. I hope that it is necrosis or scar tissue, but it feels like my original lump, only smaller. The thought of going through the treatments again (and possibly more) is pretty overwhelming right now. The first time around I didn't know what to expect and just had to take things day to day... now I know how hard it is and that just fills me with dread

  • Emily2008
    Emily2008 Member Posts: 605
    edited February 2017

    That's the tough part...you know what to expect this time around. It's like being in labor with that second baby, except at least with a baby you get a reward at the end!

    Let us know what you find out on Tuesday. Prayers that it's nothing and you can go on with your cancer-free life!

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2017

    Hping all looks ok on Tuesday, let us know

  • micruble
    micruble Member Posts: 13
    edited February 2017

    I feel much better. I met with my surgical oncologist and medical oncologist this morning. Neither felt that my lump was concerning. I followed up with an ultrasound and mammogram. The radiologist thinks that it is fat necrosis... he recommends reimaging in 6 months, but my surgical oncologist is agreeable to remove it next week. I would feel much better just having it removed

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2017

    Sounds like great news

  • Kayla250
    Kayla250 Member Posts: 201
    edited February 2017

    I think that would be a good idea too. It's nice knowing it may only be fat necrosis, but if there's a chance it's not, why wait 6 months, is my thought, too. Good luck!

  • SSInUK
    SSInUK Member Posts: 245
    edited February 2017

    same thing happened to me - small lump in mastectomy scar. They took it out - just scar. Really good luck praying for that for you to

  • Jennjdance
    Jennjdance Member Posts: 130
    edited March 2017

    Going through the same thing. I'm 39 years old. In 2010 I had stage 2A triple negative breast cancer, double mastectomy, tram flap surgery, and chemo. Four years later, I got a new primary on the other breast. Also stage 2A triple negative. This time chemo and radiation. It's been 2.5 years.

    So 7 years ago right after my mastectomy I developed a fat necrosis in the breast where the cancer was originally. We kept watch on it and it seemed to disappear. But a few weeks ago I felt it again in the exact same spot. Since I hadn't felt it in a while I went to see my dr. Now unfortunately my regular oncologist just moved so this is a dr I've never seen before (a breast surgeon). I was discouraged because he had no knowledge of what the original lump felt like compared to this one. But he was nice. He said that it felt like scar tissue or necrosis to him and that it might have been the original lump and since my weight has fluctuated a lot in the last few years that it's harder to feel when there's more fat and easier to feel with less fat- I recently lost 17 lbs. He told me to relax, he felt it was very low risk, but he wanted me to get an ultrasound just to be sure.

    Today I went for the US. The tech told me at first that it looked like scar tissue to her. Then the dr came in. He said that the mass exhibited characteristics of both scar tissue or fat necrosis as well as cancer. He noted that there was shadowing but scar tissue can have that too. He told me he wanted me to get a biopsy. However they looked at my last ultrasound on that breast which was 3 years ago and there was a cyst but no mass. Now there is a mass but no cyst.

    Then my dr (the breast surgeon) called me after getting the results. He agreed we needed to biopsy. I pinned him down for an answer this time- does it look like cancer or not?? The last two times I was diagnosed, the drs seemed to know right away that it was. He told me that he's still leaning towards not cancer, but the mass has characteristics that could be either. Like- there's shadowing. It's irregular shaped. (Drs told me both characteristics of cancer or necrosis/scar tissue) Then he said that on ultrasounds, cancer usually shows up really dark. But this is showing up very bright, much brighter than the tissue. So I'm hoping that's a good sign, though I'm wondering if that's bc the tissue in my breast isn't breast tissue. I have no clue.

    The breast surgeon told me that it's so unlikely to develop a new cancer after a double mastectomy, but even more unlikely to develop one after that. Is this true? Has anyone been through this? Can one develop scar tissue or fat necrosis after 7 years??? Does any of this sound familiar to anyone? Please help!

  • micruble
    micruble Member Posts: 13
    edited March 2017

    I'm so sorry that you are having to deal with this worry. I had my "lump" removed yesterday. Although my Drs feel certain that this is a fat necrosis, my surgeon agreed that it was better to remove it and test it to be absolutely certain... one of my Drs said that it is not unusual for a necrosis to form even after several years. I had fat transfer with my reconstruction and that is likely the source. I'll know the results for sure later this week. I know how quickly our minds jump to scary thoughts. It is easy for someone to advise us to try not to dwell, but much more difficult to follow that advice:-)Hopefully you can get your biopsy and results quickly and that your issue is benign. Keep us posted. I'll keep you in my thoughts and prayers.

  • Jennjdance
    Jennjdance Member Posts: 130
    edited March 2017

    micruble- did yours show up in a scan?

  • micruble
    micruble Member Posts: 13
    edited March 2017

    Mine did not show on my MRI last March, but it did show on the ultrasound and mammogram.

  • Jennjdance
    Jennjdance Member Posts: 130
    edited March 2017

    ok that makes me feel a little better. Did you notice any characteristics of it? Mine had shadowing and irregular shaped. Mine showed up brightly though instead of dark on the ultrasound so I'm hanging onto hope because of that.

  • micruble
    micruble Member Posts: 13
    edited March 2017

    Mine was oval and regularly shaped. It seemed darker in the center with a lighter ring. The Radiologist said that there was no sign of "vascular flow". He said it appeared to be an "oil cyst" that formed as a result of fat necrosis. My surgical oncologist removed it yesterday and said that it looked like fatty tissue. She sent it to be tested; however, to be sure. I wonder if fat necrosis and scar tissue would look the same on ultrasound?

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2017

    For what it's worth, I have a fat necrosis oval shaped "lump," about 3 inches by 1 inch, on the upper inner aspect of my DIEP recon breast. It's the prophylactic side, not the side with the BC. My PS would have removed it if I wanted, but it provides a bit more fullness and breast-shape there, so I chose to keep it. The texture is firmer than the rest of the breast, but not pebble-hard like my tiny lump of carcinoma was.

    Every time my onc palpates it I can tell she begins to think, "wait, what's this?" until she remembers it's just a lump of hardened fat.

  • micruble
    micruble Member Posts: 13
    edited March 2017

    I just got a call from my Dr and the lump was just fat. No cancer! I am so happy and relieved:-

  • Jennjdance
    Jennjdance Member Posts: 130
    edited March 2017

    that is great news!!!!

  • Jennjdance
    Jennjdance Member Posts: 130
    edited March 2017

    I'm mostly scared bc of the imaging I saw yesterday and the fact that it's irregular shaped and has shadowing. When my breast surgeon felt it, he said it didn't feel like cancer and more like a fat necrosis. But the imaging I think worried him a little more, although I know necrosis can mimic cancer.

  • KBeee
    KBeee Member Posts: 5,109
    edited March 2017

    micruble, Great news!

    Jennjdance, When will you have the biopsy? Hoping it's benign. Waiting is always hard, but waiting after a recurrence is exponentially harder. I have had cancer, a recurrence, and biopsies on suspicious lumps since then. The wait is excruciating. Let us know how it goes.

  • Jennjdance
    Jennjdance Member Posts: 130
    edited March 2017

    biopsy is tomorrow morning. My doctor told me that it was showing up as bright on the ultrasound, and I've been researching so much, which I know I shouldn't do. But from everything I'm reading bright is good! So I'm holding onto hope for that! But you're right....after already having a recurrence, makes it even scarier because I know it can happen again.

  • KBeee
    KBeee Member Posts: 5,109
    edited March 2017

    Keep us posted. Hoping it's benign.

  • micruble
    micruble Member Posts: 13
    edited March 2017

    I hope your biopsy went well today and that you get your results soon. I know the waiting is hard.

  • Jennjdance
    Jennjdance Member Posts: 130
    edited March 2017

    Thx ladies. I'm ok. In some pain. Results early next week. The dr still said it felt like scar tissue but there's still a chance of cancer because of the similarities on the ultrasound. That's just a known fact that they both look the same. I've been researching it. But I'm still petrified. I cried the whole time. :

  • Jennjdance
    Jennjdance Member Posts: 130
    edited March 2017

    Just heard from the dr! NOT CANCER!!! Fat necrosis!!! I literally had convinced myself it was cancer again, even though all signs pointed towards necrosis. Thanks for all of your support!

  • micruble
    micruble Member Posts: 13
    edited March 2017

    Wonderful news!! Who knew that fat necrosis was such a common thing!

  • groucho2
    groucho2 Member Posts: 51
    edited March 2017

    That is great news! Thanks for coming back to tell us!

  • swimmersmom94
    swimmersmom94 Member Posts: 38
    edited June 2017

    so I'm 2 years out from a dmx w a fat transfer a little over a year ago and felt a "pebble" on the same side where my cancer was. Plastic surgeon thinks it's scar tissue but ordering an ultrasound in 2 days. The waiting is terrible

  • micruble
    micruble Member Posts: 13
    edited June 2017

    I'm so sorry that you are having to worry about this. Hopefully you will get the ultrasound results right away. When I had an ultrasound, the radiologist met with me right afterwards. He felt pretty confident that it was fat necrosis but I opted to have it removed for good measure. BTW the "lump" showed after about a year after a fat transfer too. Apparently this is not uncommon.

    Sending prayers your way for peace of mind and good news.

  • Onedayatthetime
    Onedayatthetime Member Posts: 1
    edited July 2017

    So sorry to hear about your situation. I had BC...Intraductal papillary carcinoma in situ....in 1991. Had double mastectomy with back flap reconstruction, cancer in right breast only, no node involvement found, no chemo or radiation needed. Cancer free, or so I thought. Last week I felt a small lump in my right breast....keep in mind this is 26 yrs. later. Had saline implants for 10 yrs. and had them replaced in 2007 with silicone implants. Never had mammograms after reconstruction but had chest X-rays for 10 yrs. after having implants. I will see my plastic surgeon tomorrow to see what's going on. Needless to say, as a person that has panic/anxiety attacks on a regular basis, this has made everything even worse. I'm hoping for good news but, then again, I was positive in 1991 that it was not going to be cancer....nobody in my family ever had it. I just turned 71 and thought my breast cancer days were certainly behind me. Give me a large, personal break. This disease just keeps on giving! I hope all of you warrior ladies are doing good.....let's keep up the fight against this horrible disease.


Categories