For those who had BMX with no recon or with implant recon
Did you continue to see your surgeon(s) after the surgery? Not just for a follow-up or two, but later on? If so, how long and often did you see the surgeon and for what purpose?
I'm wondering because I saw my surgeons for the surgery and follow-up, and the plastic surgeon until the reconstruction was finished. That was it. I met a woman at work who is over a year out from surgery, no recon, and still sees her surgeon every 3 months. I asked why and she said that the surgeon, "Just wants to check and make sure things are okay..." I asked her if her MO does an exam and if it's different from what the surgeon does and she said it's the same.
Comments
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I stayed flat, and, aside from usual follow up visits, I did see my PS about revisions as there was too much fat (not breast tissue) left behind and it looked like:
- On the left: A super flat pancake AA cup, which made the bra roll look huge, and it looked like I had this long "cake roll" style breast on that side. It was super visible under t-shirts and I hated it.
- On the right, there had been some fat necrosis so I had...waves where the breast used to be. The outside of each former breast was slightly raised, and the center was flat. I also had a small dog ear on that side. Both were visible under t-shirts.
Those were revised/removed 4 weeks ago now.
My PS does followups at the following intervals for breast procedures (mastectomy, recon with implants--she doesn't do flap surgeries--or recon on flat which is just meant to make you less or not concave if possible): 1 week, 3 weeks, 6 weeks, 3 months, and 6 months.
She's told me the 3 and 6 month ones are just to see if you're having any issues, want to talk about revisions, etc...and that if everything is going well and you're happy with your results you can feel free to cancel those. -
I see the BS once per year. She does a clinical exam to check for lumps. For example, recently I identified a palpable lump that was slightly visible. She was able to confirm it was just a ripple in the implant. I'm supposed to see the PS once/year. I have an aesthetic issue with one implant that he's keeping an eye on. I'd need to have more surgery in order to address it and at this time I'm not willing to do that. If it should ever become an actual medical concern, I'd have to re-evaluate and so he keeps an eye on how the implant looks and feels.
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Thanks for replying. Do you also see an MO and does s/he also do a clinical exam? I guess that was my main question: Why would someone go to appointments with a BS and an MO if the MO takes care of all cancer-related medical checkups, INCLUDING a physical exam? That's what my colleague does, and basically uses two different doctors for exactly the same purpose. The doctors know this because they're in the same medical group but continue to have her see both of them.
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My first surgery was a BMX, followed 5 weeks later by ALND. I saw the BS quarterly for the first year, then moved to annual exams, mainly due to the reconstruction issues I was having and bi-lat lymphedema. I now only see the BS when I have a need, I did see him about six months ago because of an abnormal PET and my MO and PS wanted his expertise - he was previously a department head at an NCI center, now in private practice. He does an exam each time I see him. I saw my MO quarterly for the first few years, then moved to every six months for 2 years, and I have just moved to annual appointments. My MO does exams at each appointment also. I have seen a lot of the PS due to an inordinate number of recon complications and have been examined at those appts also, but I am finally able to move on, having had my final recon surgery in Nov. I will see my PS annually if I have no further recon issues, so that she can monitor and order any imaging I may need to check implant integrity. I think some people take comfort in being examined more frequently, and some docs also take advantage of the willingness of insurance companies to cover those appointments and exams. Unless your colleague had a very high risk situation the frequency and repetitiveness of her exams seems like overkill to me.
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I stopped seeing my PS but continue seeing my BS for two reasons: first, I think BS does a better manual exam than my oncologist. Second, someone told me it is a good idea to see somebody for manual exam every six months.
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Had bmx w/ te placed on 8/6/15. Once I was "off the radar" from the po watch, bs now sees me every 6 mo for 5 years. After that it's annually for life. Since there are no breasts I can't do mammo so he's my mammo as he feels the neck, under arms, chest, etc for any lumps. My PS was keeping tabs on me making sure the te's were ok and all. Had my exchange sx Dec 9 and a couple of weeks ago I'm now on a every 2 mo plan until 6 mo out and then lifetime thereafter to make sure the implants are holding up ok. My MO sees me every 3 mo then it will be every 6 mo in 5 years then annually forever.
All 3 of them do the same feeling around. What someone can miss, another may pick up. I feel comforted that they all keep me on for life at least annually once I'm far enough out and doing fine. This group are very much into prevention.
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I understand that some may be comforted by the repetitive exams, I guess I just think it's overkill and part of why the healthcare in America is ridiculously expensive. My colleague was definitely overtreated as well (if following the NCCN guidelines), so I guess I shouldn't be surprised.
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SummerAngel, in response to your query, I don't need to see an MO. The BMX was for LCIS. No meds involved.
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I saw the BS and the PS for a post surgery check, then at 6 mos and at 1 year - then done. I now see the MO every 6 months and he says "we" will maybe go to once a year after 5 years. My fantastic original MO checked at 6 weeks & 3 months & 3 more months & then retired. Luckily both my BS and my RO asked me if I would like them to extend for two more 6 month periods. I certainly did because they knew the complications and feel of my particular breasts by manual exam & were sitting in on the initial & continuing tumor boards discussing my recurrence. The new MO is really just about blood tests every 6 months. He also did CT scans every 6 months for 2 years - but I'm over that by my choice. His comment was - well my predecessor did the heavy lifting. Frankly I have no incentive to find another MO, so I can't complain.
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Being evaluated at the rate I am by the providers still left in the picture, eventually becoming once a year for life I think is a good thing. I am prone to infection it seems as I had issues both sxs. My PS only looks at his work. My BS doesn't do the deep feel/pressure thing on my abdomen. MO does it all. And it's not all 3 in a given month or I'd be like that's way too much. They spread it so max is 1 a month. Hardly a problem to go for a quick office check. I also have my pcp seeing me more frequently now since I am on Letrozole. MO doesn't do all the labs and with all the side effects with increase in LDL and other things that can happen on this, she wants to be on top of it since I am way overweight and even higher risk than someone who is healthier than I. I'm not for scans and hope my MO forgets about the lung nodule that is now 1.5 years out from having been found in May. The real $s in the follow ups are scans, not office visits.
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I was seeing my MO every 6 months until he recently retired. I finished 5 years of Tamoxifen & decided not to continue for another 5. I spoke to my BS about this & asked her if I really needed to find another MO since I won't need him/her to write a prescription anymore. Her suggestion was for me to continue to see her once a year & she'd refer me back to oncology if needed. I'm very much OK with this.
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