Who has started herceptin and taxol regemin in October 2016?
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KB870, finished #12, woo-hoo! Things will just keep getting better!
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KB870 - Congratulations! What is this Brachytherapy? Is that common?
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KB870 - Thanks for the information, I had no idea there was anything other than the outside beam. Yes, I remember your saying that you had to drive a long way for chemo, so I can see how shortening treatment from 6 to 1 week can make a huge difference. I don't think I'd be a candidate since I was multifocal and spread over a larger area, but in any case, I don't think I could handle another surgery. It's been a month since the port placement and it finally stopped hurting.
By the way, I think my hair is starting to fall out. I was wondering what that was going to be like; if I run my hand along my pony tail 5-10 full strands will come out.
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Hi ladies. I was wondering if anyone here has been having irregular menstrual cycles? Im spotting constantly and just feeling so tired. Thinking of calling my oncologist triage nurse
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Hi Camarillomom - You started chemo Jan 31? And you were born 1978? I started chemo on Feb 1 and was born 1970. And you're on TH? I am just now on my cycle and it's exactly the same as usual, so no irregularities for me. I'm having more reaction to the steroids as I'm too stimulated and eating constantly. I think I've gained about 8 lbs in the last 2 weeks! Yeah, I agree that you might want to check in with the triage nurse. Good luck.
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Just a post on being bald!
https://metastaticbreastcancernowwhat.wordpress.com/2016/05/03/baldies-of-the-world-unite/
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Just an update to let everyone know that today was my last radiation treatment, woo-hoo!
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Congratulations Germangirl16!
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Congrats Germangirl16 and KB870 on completing radiation and chemo! Camarillomom, I had some menstrual spotting in between my usual cycle a couple of weeks ago, but it was minimal. I asked my nurse, and she said it wasn't uncommon. But tinyfrog is right, you should probably ask just to be sure. I didn't have any extra fatigue associated with my spotting.
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🙌🙌🙌awesome! How was radiation? To be honest I'm more anxious to start that than I was to start chemo
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I was anxious at start of rads too, but I had no problems with it, besides feeling like I had a part-time job going everyday! Never had any skin issues, no burns, no dryness, no pain or itching. Dr gave me a script for mometasone cream to use twice a day everyday, and I also applied cere ve healing ointment or aquaphor.
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Germangirl16, how was your fatigue with the radiation? I'm worried about that part of it.
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Never got really fatigued. Continued to exercise most days, and kept up all my usual activities. Really felt pretty good throughout all 6 weeks.
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Great to hear! Glad it went well.
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I'm glad I found this group. I get my port on March 7 and am starting taxol & herceptin on 3/9. I'm most concerned about neuropathy and having it remain permanent. Did anyone in this group have that problem? I know I can't even attempt the cold mitts/ slippers, but I was wondering it anyone tried acupuncture or anything else? I'm thrilled to be doing this protocol vs the original TCH I was scheduled for. My MO said this is a much easier protocol to deal with. I have fine hair, so I'm going to pick up my wig and I have headcoverings. Did anyone have much nausea? metallic taste? I thought I read somewhere about a weird smell/taste when the chemo first enters your body? MO said she hadn't heard any compliants about this?
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I just started weekly Taxol and Herceptin last Monday 27th. No digestive problems thankfully but I feel achy in my muscles and have lost power generally throughout my body. I walk and do a small exercise routine every day but I feel really sore/stiff afterwards. Did anyone have this problem and is it from the Taxol or Herceptin. Will it improve - will I get used to the drugs.
E
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Hi Alert and Elizabeth. I'm having my #11 of 12 tomorrow (Taxol/Herceptin). My side effects were almost complete hair loss and a mild infusion reaction from the first infusion of the Taxol. As for peripheral neuropathy, I've been taking Vit B6 daily, and occasionally glutamine, and I've been lucky with not having any side effects until this week. I have a very slight tingling in my fingers, but it might also be swelling from the decadron. I've had just as many side effects from the decadron (steroid) as the chemo- acne, trouble sleeping the night of chemo, and folliculitis on my scalp. These were all treatable things, though, and overall, I would say my treatment has gone as well as chemo can go. I'm hopeful the same happens for you. Good luck to you both!
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HI All, I finished my taxol/herceptin 12 week regiment on February 16th. I think my last entry in this blog was about two weeks before that. To be honest, I just felt really depressed at the end - I was anxious for it to be over. The last week was the worst. I felt like stomping my feet and saying I'm not going! And just one week later I had to go back for the first herceptin without taxol that will continue all year, every 3 weeks. Again, it was hard to drag myself back to the chemo "suite."
Overall, I had a reasonable reaction to the treatment. My fatigue was cumulative and I was exhausted the last two weeks. I had neuropathy in my fingertips and I had some pressure weirdly in my teeth. But I continued with the glutamene and vitamin B6. It never got too bad. The hospital where I was treated offers free breast cancer reiki and massages. The masseuse literally massaged the neuropathy out of my fingertips! It may have been a coincidence but she was incredible.
I start radiation in two weeks. They told me I could come in earlier but I needed a break! The radiologist said it's a 4 week treatment but because our bodies are beat up after the chemotherapy, they give it over 6 weeks.
Germangirl16 - Congratulations on being done the worst of it - the surgery, the chemo, the radiation woo hoo!! Did you have radiation over 6 week period? How soon after chemo did you start? I am relieved to hear you had minimal symptoms. I pray for the same.
Tinyfrog - I hope you are doing well! I gained some weight during treatments (about 7 pounds) but it's better than losing it. The nurses kept telling me this is one time in your life you should put on a few pounds. I am working hard now to take it off but trying not to be too hard on myself.
KB870 - We are one week apart in our treatments. I finished on February 16th and I think you finished one week after me.
kmk40 - I am not a clinical pharmacist - but I am a patient who over researches, and I read the same reports. My oncologist also told me I might not lose my hair and we discussed the hairloss was not a part of the Dana Farber study. I actually did NOT lose my hair - it shed starting in week 5. I had a tingly head most of the time after that. And I lost a lot of body hair - but nothing noticeable (at least not yet) I remember someone in this blog lost her eyebrows and eyelashes after 5 or 6 weeks, so I won't be overly confident until another month has passed. But my head hair is definitely not shedding as much and I feel confident brushing it. You are almost done so congratulations!
Danix5 - I got a wig and a baseball cap with hair - and ended up not needing them. I was so anxious about it so I can relate to how you are feeling. I only washed my hair once a week -- and actually my hair stylist convinced me not to cut it all off. I have very thick hair, sometimes difficult to manage. If I had cut it too short, I wouldn't have known how to style it since I didn't want to pull on it too much. It's easy to style now because it's thinner! But I don't know what it will look like when it starts growing in again.
Thank you for sharing your personal stories with me and with all of us. They are so much appreciated.
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ksolo11, I had 33 rads over 61/2 weeks. The last 8 were boosts targeted at the tumor site. I started about 3 weeks after chemo. So happy to hear you kept most of your hair, luckey you! I also gained about 8 lbs, and nurses would tell me that's a good thing. I am slowly losing a few pounds, but staying focused on eating very very healthy and exercising. I feel really good, so that's important part!
KB870, glad you're doing well with herceptin. I had 1st 2 infused over 1 hour, but now do it in 30 min with no problem.
Seeing light at the end of this longgggg tunnel!
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Feeling blessed (again!). Have had 4 of my triple dose herceptin and echo had ejection fraction of 66%, so my heart is tolerating this very well. One less thing to worry about. Hope everyone has a good weekend!
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yeah germangirl!!
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I'm done with Taxol and Herceptin--- woo hoo!!! It felt good to ring that bell. I had my first Herceptin only infusion today and so far, so good. A little anxious about radiation, but hopeful the fatigue won't be too bad. I hope everyone has a great week.
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Yeah kmk40!!! You'll do fine in radiation, you got this!
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Awesome! Congratulations!
Daniell
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KB870, oh no, not you too! Crazy how they hang in there all through chemo, then it's adios! And it seems like it's taking forever to grow back. Good luck with yours!
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Hello! I did weekly Taxol and Herceptin ending in November 2016. Then I had three weeks of radiation and continue with the Herceptin every three weeks until next September. I managed the Taxol well with fairly mild side effects and have only a bit of fatigue now that I'm on only Herceptin. The radiation was a breeze except for having to hold my breath for 35 seconds! It seems like a marathon that will never come to an end. Of course, I will likely be nervous when the treatments stop
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Maggieroe1- radiation for three weeks? Are you doing standard? I had two radio onco's tell me 6.5 weeks every week day!😩
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My lashes and brows fell out too, about 4-5 weeks after my last Taxol! I thought it was strange it hung on the entire time until then. My hair is starting to grow. It started at 4 weeks PFC.
I'm in the middle of radiation, which is 3 weeks of M-F, then 4 treatments of high dose intensive radiation- 19 treatments total, then I'm done. Except for Herceptin of course.
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Germangirl - I am having the same radiation doses you had (the last 8 are targeted) and have tolerated the radiation well so far - the last one is May 9th. Did you or has anyone had a bone density scan? Mine came back that I have mild osteopenia. If anyone else has had this, let me know what your doctor prescribed.
Also, I am looking for input on taximoxifen versus an AI - and if an AI, which did you prefer?
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Wow, good for you! Mine are still shorter than normal!
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