4 weeks post double mastectomy

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edaniel1975
edaniel1975 Member Posts: 2

I'm 4 weeks today post double mastectomy surgery. My chest is very stiff from the expanders and I'm feeling horribly limited. My arms only reach about high enough to give a high five but I can't reach them up to their highest point. I started stretching only just yesterday. I'm not close to being able to drive. I can wash my hair and buckle my own seat belt in the car. How far am I behind on stretching and movement? What could you do at 4 weeks post double mastectomy surgery?

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  • Artista928
    Artista928 Member Posts: 2,753
    edited February 2017

    I wouldn't fret about the 4 weeks. Many take longer. We are all different. Keep with the arm exercises they tell you to do 3 times a day (is what I was told). TEs are tough for many, even months out, esp if you naturally have tight pecs. I had mine placed 8/6/15 and it still felt tight until finally had them swapped out on 12/9/16. I'm still recovering. I can't raise my arm all the way up like the touch down signal. I'm 2/3 there. I do my arm and breast exercises but my left radiated side is tighter than the other and it may be that's what I will be left with, but still I work at it. Try not to fret. Healing takes time. If you feel you are behind in movement you can talk to your MO about maybe getting PT, but again I'd give it another month of doing what your told. GL :)


  • candles1
    candles1 Member Posts: 77
    edited February 2017

    My double mastectomy is scheduled for next week. It's undetermined if I will end up with tissue expanders or not; PS will make that decision at the time of surgery, but I need to be prepared for TEs. I am planning to take a lengthy international trip two months after my surgery. I'm sure hoping I will be able to do so comfortably.

  • Artista928
    Artista928 Member Posts: 2,753
    edited February 2017

    candles1- Why are you getting a double mastectomy? My mother has your stats except 2.5 cm. Had a lumpectomy, rads and is on AIs now. Is it genetic or?

  • GAMomma
    GAMomma Member Posts: 197
    edited February 2017

    Good Morning.. I think I am one week ahead of you as far as recovery. I did not put expander in. I will have reconstruction,but not for another few months. Anyway recovery for me is slow also. I do exercises but my right arm is still limited,right and just uncomfortable. I have had the problem of fluid building up. I have needed to be tightly wrapped with an ace bandage. This has made recovery a little slower also. I can shower,dress,reach for the shampoo on the rack,but it is difficult. I have to stretch for everything,because I'm only 4'11. I cannot sleep on my right without discomfort. I agree with some other advice,in everyone is different. This took me a while to except. I read and asked a few people the "expectation" of recovery. I heard so many say 4-6 weeks. In my mind 4-6 weeks I would be "normal". Back to my crazy life. I have 5 kids,ages 21,17,16,9,7. In a normal day I make breakfast,pack lunches,empty the dishwasher,sweep.make beds and head to work. After I get the littlest from daycare,prepare dinner,homework,studying,baths. Then some laundry,clean up the kitchen,prepare what I can force the next day.. Now... Just getting a shower and making it til 2 without a nap is a goal. I get sore when even changing the laundry.. dinner is happening,but I am so tired. I'm going back to work on Monday,part time,but I'm scared it will be really really rough.

    Give yourself the time you need. Healing is happening,just slow.

  • edaniel1975
    edaniel1975 Member Posts: 2
    edited February 2017

    Thank you for your advice. Yesterday was a very hard day for me and I cried all day :( My limitations are becoming a reality for me and it's hard as previously I was at 100 miles per hr and now at at about a slow 10-15 mile. I'm getting some housework done like diswasher uploads and putting dishes away, sweeping and making beds and light laundry. It just gets done really slow. I can't drive, I can't wear regular shirts (only button down), no driving yet, we had to cancel our spring break trip for March because of my arm limitations. I need to be more patient. My body has been through alot and my husband reminds me that it will take time, patience, baby steps and love and being well.

    Thank you!

  • GAMomma
    GAMomma Member Posts: 197
    edited February 2017

    I understand completely. I am a horrible patient. I suck as laying. I suck at stopping. It's a lot easier now with pain involved. are you still taking pain meds? I never r had them since they make me.sick,which is why I'm little slower. I do k.ow stopping them is helpful. Right now you may be accustomed to no pain or lessened.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited February 2017

    edaniel, I can only speak for myself, GAMomma is correct in that we're all different. I only had UMX, and I was 38 with no children - completely different situation. However, what I found helped the absolute most, was slow gentle stretches. The wall walk changed everything for me. Can't stress that enough. As soon as I started walking up the wall with my fingers, gently and slowly as it was really uncomfortable at first, I was able to stop pain meds except at night. The tightness and discomfort often causes us to guard that whole shoulder/arm/side of our bodies, and that leads to MORE tightness and discomfort. The only way to ease the discomfort is to gently and slowly get those muscles moving. Now, that being said, you need to follow YOUR doctor's orders. If you've been directed "no x or y" then that is what you should do. I can only relay my own experiences.

    Just know that you'll get through it. Every day will get a little bit better. And we're all in your pocket! ((hugs))

  • candles1
    candles1 Member Posts: 77
    edited February 2017

    Artista- numerous surgical ("open") biopsies, stereotactic biopsies, and lumpectomies over the past 15 years, on both sides, have left me scarred and wonky-looking. Callback mammos almost every year. Always benign despite Birads 4s and 5s...until now. Then this time, DCIS- but the margins were not clean after the lx. Put me in the "enough is enough" category of DCIS patients choosing BMX.

  • Artista928
    Artista928 Member Posts: 2,753
    edited February 2017

    candles1- Gotcha. Best wishes. :)

  • Felloco1
    Felloco1 Member Posts: 22
    edited February 2017

    hi I am 10 wks post surgery for a double mastectomy. My experience is stick with the exercises they get easier and you will see progress. Warm bath , moisturiser helped . I couldn't get comfortable with ' softies' for wks so bought post surgery bras that faked it for me ( M&S) and still feel they are the most comfortable now and look fine I will think about reconstruction after chemo finishes . ... I lost a little weight too so some tightening from that but just take it steady try to keep moving as it will become more easy as time goes on. Best wishes to you

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2017

    candles - I had your same diagnosis with continual call backs so I had a double mastectomy, Very dense breasts & several questionable spots. So glad I did.

    GAMomma - "I have 5 kids,ages 21,17,16,9,7". Sounds like it's time to make a chart for the wall of all the jobs all those children can help with. They can certainly make their own lunches, and lunches for the little ones. They can take turns making dinner AND clean up the kitchen. They can load & empty the dishwasher & do much of the laundry. So that you're not stretching too much, especially let them make the beds & change the sheets. And make sure they are carrying the groceries in from the car. If you're like me and want everything done just exactly right - time to let it go girl and put yourself first.

  • GAMomma
    GAMomma Member Posts: 197
    edited February 2017

    Thanks MT..they do have chores. In the morning it's crazy. All of my kids are out of the house by 6:45.. since my biopsy,the first one, the chore list has increased for everyone. When my little guys do things,they do it as little kids.lol I have been good about making others do for me and pitch in. I just thought by now if I wanted to do it,I should be able to without discomfort or exhaustion. I didn't realize that many people meant 4-6 weeks would be more personal care,back to an easy desk job or something. So it was my falsification of what most people referred to 😑

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2017

    GAMomma - I was moving around & doing things at 4-6 weeks, but I would never have been able to get out of bed charging at 6:45 every morning. Take care of yourself.

  • Ithinkican4me
    Ithinkican4me Member Posts: 2
    edited February 2017

    I am also 4 weeks post mastectomy. I actually had my surgery dec 8 but had a staph infection so had to have it redone on Jan 23. I was told by the breast surgeon to start stretching by leaning against the wall. I've been doing it for about a week but oday I noticed some yellow fluid on my shirt. My last little scab is now opened up and leaking. Im going to call my dr tomorrow. I think I maybe have overdone it. Ugh! It's hard for me to know what is "too much". I've been back to work for 2 weeks. I hope you recover quickly!

  • GAMomma
    GAMomma Member Posts: 197
    edited February 2017

    Thank you MT.. I appreciate you. I have been adding daily things to my goal.list. I had to change the way I thought I would be by now and except everyday for what it is. I have always been a "do everything" person. Full throttle all the time. My house is clean,food is in abundance,grades are always in check. My days begin at 5 and end at 10-11. Not so much now. My body demands so much more rest and less abuse. Sometimes you don't realize how hard you worked yourself until you can no longer meet those expectations. The new me is definitely hard to accommodate. I'm doing it. My kids and husband have all stepped up,the inner me is dying excepting it.. gggrrrr cancer effects you everywhere,more so mentally.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2017

    GAMomma - I too was always a perfect super-achiever; wife, mom, sister, daughter, mgr at work, gardener, cook, lawn & garden expert, student, PTA room mother, church teacher, boy scout coach, chief cook & bottle washer, etc (because I know I forgot hundreds of things). When I had a recurrence and the first 6 rounds of chemo did not give me a complete response, I had to do another batch of different ugly chemo after surgery. And then Rads, combined with Herceptin for the rest of a year. I ended up with breast & truncal lymphadema and dead feet because of CIPN (chemo induced peripheral neuropathy). So I finally had to learn to let things go. Not easy.

    But even now 2 years after the final treatments, I've kept my resolve to scale back. I make sure the sinks & toilets are clean, but I don't worry so much about the floors. I use more disposable plates. I bought extra underwear so I don't have to wash as often. I hired someone to mow the lawn. I kept my hair short so I don't have fuss with it. I actually bought a recliner for the first time in my life so I can sit with my feet up - and I do. It still is not easy to look around and see dust on the tables at times, but I'm learning to laugh and write my name in the dust.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited February 2017

    MinusTwo, Inspirational. Slowing down, scaling down, letting go. These lessons are sometimes hard ones, but really good for the soul. So glad you are learning to laugh at your name in the dust! Laughter is also good medicine. ((hugs))

  • candles1
    candles1 Member Posts: 77
    edited February 2017

    MinusTwo, I like your post a lot. Nice reminder to slow down.

  • GAMomma
    GAMomma Member Posts: 197
    edited February 2017

    thank you Minus Two.. I was replying to you earlier,I forgot there is a MTwoman.. Everyday is a learning curve for me. I've had a rough few days. A terrible headache ,then more fluid getting drained just set for up for not feeling so great. So my goals were,showering,making dinner and checking homework.. that's it.

  • farmdream
    farmdream Member Posts: 84
    edited February 2017

    edaniel - I am 7 weeks post BMX. I only started opening/closing the car door about a week ago. I just started driving too. I have had a lot of pain and tightness (I am not sure if you have TEs but I can't sleep at night after a fill from the pain). I had my first PT session and it seemed to help. You are doing more than I was at 4 weeks Take care of yourself.

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