Radiation to start soon and I'm a mess.

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I'm due to start radiation soon and I feel like I am literally making myself sick. I am so anxious, I can't sleep and my life is on hold. I am not doing anything - I can't do anything. This has nothing to do with the radiation treatment. I like and trust my doctors and want to move forward with it. Something happened about 2 weeks back that turned my head around. Someone very close to me (female family member) betrayed me... said something that left me shocked (I'd rather not go into detail). Is it true? I don't know, that is not the point. For her to tell me this knowing I have breast cancer and currently going through treatment stunned me. She should have my back but she stabbed me instead. I confided in her (careful who you confide in) and she used the information for her own benefit.. I saw a therapist through my oncology group and she told me that I need to take care of myself and and health now (I know), that I am going to make myself sick (I know) and that I should tell myself, "I will revisit this after my therapy".

I'd rather not visit the therapist again since I did not feel comfortable with her (nothing against therapists). I also told her I didn't want to go back into my childhood and talk about my parents etc etc. What I need is to be calm and not a nervous wreck when I start radiation treatment. How do I get these thoughts out of my head? Is it true? Not true? How could she betray me??

I don't want to go on meds but I can't live like this and don't want to have radiation therapy like this. Find another therapist? Breast cancer group? Valium.

any ideas would be so appreciated.

Comments

  • MTwoman
    MTwoman Member Posts: 2,704
    edited February 2017

    Patti, So sorry you're going through this on top of BC. Can I ask if the therapist that you saw (that you weren't comfortable with) actually ASKED you to go back into your childhood and talk about your parents? The reason I ask this is that I AM a therapist and would NEVER think that this was an appropriate topic to start with in someone struggling with BC (unless they themselves brought it up and wanted to work on that). Therapists are not one-size-fits-all, and are not for even for everyone. That being said, I have not only provided therapy to others (so I am biased on this) but also have been in therapy off and on over the years. I found being in therapy very helpful when I was going through treatment. Overwhelming anxiety can be common, and having somewhere you can 'dump out' what worries you the most (in a safe and completely confidential environment) as well as help you figure out ways to deal with it can be super helpful. So I encourage you to think about another therapist (but remember, I'm biased). However, there are some things that you can do for yourself that can be very effective in helping reduce your feelings of anxiety (and anger? at being betrayed). Some examples: warm bath, massage, yoga, aroma therapy (oils or candles with lavender), nice walk, soothing music, meditation/breathing, binge-watching tv/movies (for distraction), animal therapy (play with and pet your own or someone else's), chamomile tea, hot/tub or sauna.

    Again, I am so sorry you are having to deal with this right now, but since it seems to come from a relationship place and not so much a I-have-cancer place (" This has nothing to do with the radiation treatment. I like and trust my doctors and want to move forward with it."), I would recommend therapy to help you sort out what is going on for you and how it is affecting you. Sending you bright light and hugs!

  • Patti1746
    Patti1746 Member Posts: 49
    edited February 2017

    Thank you for your reply.

    No, the therapist didn't ask me about my parents etc., I told her I didn't want to spend time exploring my past. What I needed was something fast to help me with my upcoming radiation. Practicing "letting go" and mindfulness helps but when the thought pops into my head in the middle of the night, it is horrible.

    I dread going to sleep.


  • labelle
    labelle Member Posts: 721
    edited February 2017

    I've found therapy to be very helpful at various times in my life, but it is important to find a therapist you are comfortable with. Just because one wasn't a good fit for you, doesn't mean another won't be. Freudian therapy, where you explore your childhood in depth, is not very popular these days, so I wouldn't worry much about any other therapist, counselor, or psychologist wanting to go there. It does sound like this therapist gave you good advice about focusing on your treatment and getting well and going back to work thru this betrayal when you are stronger and have less pressing things happening in your life.

    That said, I also found Xanax to be very helpful in getting thru my active treatment of surgery and rads. I relied on it heavily for a few months, but then had no trouble cutting back-I have used it for years to travel since most modes of travel, especially flying, cause me a great deal of anxiety-to my pre-BC levels of Xanax use. Sometimes a little chemical help is just what we need.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited February 2017

    Everyone handles things differently, there is not a 'right' or 'wrong' way; for me, I had no desire to explore my emotions about everything until a LONG time after treatment was over. I did my homework, I trusted my team, and then I just had to DO it and get it over with. I asked for a prescription sleeping pill while going through treatment (which, for me, included both radiation and chemo), I bought some relaxation and hypnosis DVDs (which worked surprisingly well), I walked and did whatever other exercises I was up too throughout, I worked, did family things.....whatever I could to keep busy and not have time to dwell on things. It wasn't until about a year later that I felt I had the emotional energy to start to sort through everything. I went to a formal support group once, and found it was not for me. I have some local friends who have gone through treatment, and we used to get together about once a month and just talk (happily now when we get together the topic rarely comes up), and finding my way to these discussion boards has been very helpful to me. Just do what makes the most sense to you to get through this time and sort out the rest of it later. Best of luck!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2017

    I asked for a prescription for Sonata to help me sleep. Turns out I didn't use it more than 3 or 4 times in that year. I also had Xanax that I took when I had scans - MRI or PET/CT. Don't rule out a mild drugs for awhile. You're really up against a wall here.

    But I also agree that therapy can be good. I just never had the energy or the trust to find someone.

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited February 2017

    I too have used Xanax on/off. It took awhile to find a therapist I felt comfortable with. Betrayal hurts. Nights are the worst. I listen to piano music on a timer or play the abc game. Apples, bananas, cantaloupe. You pick the topic.

    I also do Jin shin Jyustu holds. They have really improved my life since chemo. Good luck! There's always somebody awake in these boards.


    https://www.youtube.com/embed/videoseries?list=PL3R1sIQwcvVdQKSwXHjiKu9p_LtKyVFKs

  • Artista928
    Artista928 Member Posts: 2,753
    edited February 2017

    Do you have a nurse navigator? These are RNs who guide you through your journey and can give advice or refer you as to what to do. Support group works for many. Meds are a must for me. I had depression and anxiety going in and had to bump it up with meds to get through active txs.

    Second. Therapists are different. You want to get a cognitive behavioural therapist. They are the ones that teach you how to change your thoughts and cope with stresses. The one you saw sounds like a psychotherapist. They love digging in your past. They are good if you want to try and understand why you are the way you are. So I'd call different therapists and find out what type they are. Or you can buy cognitive behavioral therapy self help books. Those are just as good if you don't mind not having direct communication. I've been in a psych ward before for debilitating depression and anxiety, suicidal a couple times (before cancer) and the therapy we got was cognitive behavioural- coping skils to deal with the world once we are released.

    So for the quickest I'd explore the self help cognitive behavioural books and start practicing the techniques. Also things like meditation, yoga---relaxation stuff helps.

    Good luck!

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited February 2017

    Hi - I'd second everything MTwoman said, and the therapist's advise to revisit the issue after you've finished treatment is solid.

    However, I'd take it a step further and make an appointment, on your calendar, to worry about it at a specific date and time in the future. I know that sounds ridiculous but I've used that technique with varying time frames, and widely varying issues, numerous times over the years. If you start to go back to worrying over the issue, remind yourself that it's not on your calendar for today and that when it is, you will spend 45 minutes (or whatever) stewing about it. Maybe schedule something else to take the time slot (lying in bed at night) such as what do I want to do for vacation this year? What do I need to do around the garden/house before summer arrives? What movies do I want to see this next month? If I were going to re-arrange the furniture what would I move to where? (I like to conjugate verbs in foreign languages in my head as a distraction but that's just me. ;) )

    Sometimes telling your mind that you've got the issue under control - on your calendar for August 13th, for example, helps it loosen its hold on the topic.

    Good luck as you finish up your active treatment.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2017

    Hopeful - I LOVE the calendar idea. People think I'm nuts for scheduling doc appointments 6-9 months out, but it does just what you said. It's not on my calendar today or this month and I don't have to worry because it's scheduled down the road.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited February 2017

    Thanks, MinusTwo! I'm glad to know I'm not the only one who takes that approach to appointments, either. :)

  • ruthbru
    ruthbru Member Posts: 57,235
    edited February 2017

    I absolutely have the appointments made as I walk out the door from the last one. That way I can cross it off my worry list.....until the week before anyway.......and I try to keep that week super busy. I also have 'breast exam' written on my calendar for the 1st of every month; otherwise I'd be poking around 'looking for' lumps 24 hours a day Shocked

  • Patti1746
    Patti1746 Member Posts: 49
    edited February 2017

    Thank you for all your responses. It has helped and I feel I'm able to block these thoughts from my head for most of the time. I am certainly much better than I was 2 weeks ago. So I marked the date when I will revisit this situation - March 12, 2017. Also I agree cognitive behavioral therapy is what I would be looking for if that is the route I want to take. Maybe a therapist, maybe a lawyer, maybe a private investigator. But I don't want to go there yet.

    I've been going to bed pretty early every evening because I'm so tired during the day. Last night I force myself to stay up until 9pm but woke up at 1. I scream at myself to "STOP THINKING" which doesn't work and I was up until 2:30. I then made the big mistake of taking NyQuil. Quite a bit so this morning I feel as though I'm coming out of anesthesia and I'm like a zombie. Tomorrow the radiation "dry run" begins and I hope I feel somewhat better. The NyQuil put me to sleep quickly but I'm paying the price. I'm apprehensive about radiation so I think once that starts, I'll calm down a bit. But the NyQuil !! omg it's 4PM and I still feel like death

    Thanks again


  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited February 2017

    I'm glad to know you're doing better (except for the NyQuil episode!). I suspect that once you do your radiation simulation and start your treatments it will help, too. Did they advise you that there will (probably) be a wait between the simulation and the start of treatments? I think in my case they said 2 weeks but it turned out to be much less. Once I had the date on the calendar I just wanted to get started, because the sooner I started the sooner it would be over with!

    If you do have some down time in between, I hope you can use it to pamper yourself a bit, even if in small ways. Hang in there!

  • Patti1746
    Patti1746 Member Posts: 49
    edited February 2017

    I was told the treatment would start the next day. I already had the scan and the marks were placed (no tattoos). There was a one week wait and i start the dry run on Monday.

    Artista - I do not have a nurse navigator and have never heard that term. Who recommends the nurse navigator? The oncologist? Primary physician?

    What really helps are my friends who call and check up on me.


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2017

    Artista - I'm at a major medical center and I did not have a nurse navigator either. There are places that still don't have that marvelous invention.

    Patti - You'll just have to ask lots of questions from all the docs & nurses. Good luck. Do report back.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited February 2017

    Hi, Patti - It's great that you were given a firm start date; the less uncertainty the better, right? I hope your dry run today was helpful. Are you doing the short (Canadian) protocol or the longer course? Either way, I think you'll be surprised at how brief each session is. I hope it all goes well and does what it's supposed to.

  • Patti1746
    Patti1746 Member Posts: 49
    edited February 2017

    Hopeful - I had my first rads today and went very well. As others have said, it was fast and uneventful although I know it may be different in a few weeks. I was scheduled for 3 weeks and 1 week of boosts, but that has been changed to 8 days of boosts. A little surprised with my early stage dx.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited February 2017

    Hi, Patti - One down! Let's hope for an easy course of treatment. You're lucky to be able to do the short course.

    My total number of boosts was tweaked after planning, too. I think sometimes once they've done the simulation they can see what might get you the most bang for your buck, so to speak. And since it's focused on the tumor bed it's probably targeting the area most vulnerable to recurrence.

    I found the boosts really, really easy. The skin turned pink with the first one (in a very defined pattern) but didn't get much pinker after that. And the rest of my skin started fading during that time so that it was almost pale again by the time I finished the boosts. That was pretty encouraging. Your mileage may vary, as they say, but I hope the whole thing goes fast and does what it needs to.

  • Patti1746
    Patti1746 Member Posts: 49
    edited February 2017

    I came down with a bad case of food poisoning or stomach bug and missed one radiation appt. Still not feeling well after 3 days but could be ME making myself sick. Having said that, I have been better emotionally, keeping my revisit date of March 20 in my head (changed from March 12 since additional boosts were added). I'm sleeping better.

    thanks for all of your help.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited February 2017

    It seems like forever now, but really it is just a short blip in the rest of your life

  • Patti1746
    Patti1746 Member Posts: 49
    edited February 2017

    Ruth - true. But I have a feeling this situation, actually both of my situations -cancer and betrayal- will be with me for a long time.

    thanks

  • ruthbru
    ruthbru Member Posts: 57,235
    edited February 2017

    They'll be with you forever; but if you make new friends, have new experiences, make new (happier) memories, they will recede into the background.

  • Patti1746
    Patti1746 Member Posts: 49
    edited February 2017

    You are right.

  • Artista928
    Artista928 Member Posts: 2,753
    edited February 2017

    The further out you get from ending active treatments, the less you think about cancer. You go from appts/treatments every week for what seems like forever, but now that I'm on the every 2 mo visit with ps, 3 mo visit with MO & pcp, every 6 mo with bs it's not as much on my mind in between. Before there wasn't enough time to get it off your mind because you are off to another appt, esp when doing rads every day. I was done with rads end of June 2016 and it's been easier on my mind and stress than during. Hang in there. Keep up with your hobbies and interests, it helps. X

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