Calling all TNs

Hi Phoenix-

Welcome to BCO! If you're concerned or have questions about mets, you might find this forum helpful: https://community.breastcancer.org/forum/105

Hope you find the info and support you're looking for!

The Mods

Hi Mandy/Annie,

Thank you for your update on your Mum's condition. It is so nice to hear from you again after a long while. We've been anxious about your mum's condition and it's great to hear that she's improving. It's still a bit sad though, that your whole family has to go through all of these everyday challenges. She certainly doesn't deserve this nor does anyone. All the TN ladies and gents on this thread are rooting for Annie. We will continue to pray for your entire family.

Take care,

Gina

So glad to hear about Annie. So happy she and her lovely family loved the cards.

Thanks for the update anotherNYCGirl

LoveMyVizsia, what a great report! I've never heard a mamo called "beautiful" before! And good bone density, too, double good news.

ScotBird, Do you think the sciatica is related to your treatment? Did it start when you were doing your chemo rounds? Have you done a search on the site to see if others have experienced sciatica?

inspiredbyDolce- thank you for your response on metformin (2pages ago). Glad to hear your docs still support it. I have had no side effects at all either. I guess I'll stay on it but I'm also wondering for how long, maybe till 5 yrs.

Cocker-Mandy, so glad to hear from you on your mom. I've been thinking about her a lot. Glad to hear she is tolerating the treatment fairly well. Hope she can still make all of you smile as she has done for us here on this board so many times. Looks like some good results so far. Hugs from across the globe.

Thinking of you DiV and meadow and hope you are feeling better. DiV, think of seeing an Occupational therapist after your surgery. They can teach you and give suggestions on one handed use. People can do anything and everything with one hand. There are some cool devices and tricks. I am an OT and have worked with many stroke pts that had lost the use of one arm.

Thinking of everyone and wishing a restful weekend

Annie/Mandy! So good to hear from you and that treatments are moving along!

Lovemyviz, - another terrific update!

Lisa, - Blond or platinum, - either way you look great!

Meadow, Shari, Scotbird, Aterry, Gina, Val, Ally, and everyone that I didnt name, - may you be feeling well and enjoying the weekend.

It is like spring today here in NYC and the snow is melting. Although I am very concerned about climate change and global warming, I must admit that this weather is very welcome today!

Lisaj514 I believe the clinical trial has people on Metformin for 6 years. But inspired is the resident metformin expert, so maybe she can double check me.

Thanks, Angtee. I thought it said IIB. I may look into it further. Please keep us posted on any side effects. Thanks!

Lyn

Hi all,

Sending wishes to everyone for good times. And amw5, congrats!

Angtee, I'm also interested in your trial (I was stage 2A without a pCR. I did Xeloda afterwards, but remain curious about other adjuvant treatments). I have a question, if you don't mind. I see that 2 arms of the trial include an infusion of Cytoxin along with the vaccine, and 2 arms are just the vaccine. Is it a blind trial? In other words, does everyone sit through the infusions, and half of them are getting placebo? Also, is the vaccine a shot? I'm just curious if it feels like you are still going through chemo, or if the experience is less chemo-like, if that makes any sense. I'm kind of happy to be done with the infusion center. Xeloda was nice that way in that it was a pill you took at home. But this does sound like a promising trial! I'd love to hear anything else you have to say about it.

Good luck everyone!

Tulips

Hi amw5, congratulations!

I had my last chemo about 3 hours ago.Yay!

I know many of our fellow November 2016 Chemo warriors are done with their treatments too. I hope and pray that we will all achieve NED for the rest of the journey.

Happy Dance for us!!!

Dear Mandy - Thank you for sending us the update on your sweet Mum. Improvement is such good news!! I will continue to keep her & your family in my prayers.

Hugs & love to all of you great ladies on your triumphs!

Paula

Well, shoot, Angtee15, I reviewed the trial again and, as Tulipsanddaffodils noted, it looks like you have a 50% chance of getting Cytoxan. Although most of my adverse side effects may well have been related to the Adriamyicin rather than the Cytoxan, I probably should have been in assisted living for 3-4 weeks I was so debilitated. I was also neutropenic after 3 of my 4 AC treatments. Further, another six months of exposure to a drug that might give me leukemia and will probably keep me bald for many more months has little appeal. I really wish they'd confined the trial to the alpha peptide vaccine. Very disappointing.

Lyn

Congrats Amw and gmmiph on finishing chemo. I did my last Taxol on Tuesday. Yay! Feels so great after two months of A/C and three months of Taxol.

Now just have to meet with my surgeon tomorrow to schedule a date for surgery. Probably sometime late in March.

I left you a reply about nail problems in the Taxol thread, VLH. Hope yours don't get any worse.

Trish

Thanks Trish and wishing youthe best of luck on your surgery!

Glad yo hear you're finally able to eat solid food again, DiV. You've already been through so much, with so much more to come, that every small improvement must be something to celebrate.

Sending gentle hugs and wishes for a relaxing and healing next four weeks before your surgery.

Trish