Xgeva

cliff
cliff Member Posts: 290
edited June 2017 in Pain

I have searched around and not found any others with the strange side effect from exgiva that I have, PAIN! two hours after a shot of exgiva, I was taking a nap when I dreamed I was in a car wreck where the left side of my body was crushed. I woke up with the pain from that accident (which I didn't have) and it lasted for 6 days. I have another shot today, and really don't want to go through that kind of pain again. each shot, the pain is in a different part of my body, I don't know if it is cramping, or just phantom pain. it feels real.

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  • cliff
    cliff Member Posts: 290
    edited February 2017

    I am trying the same as last month, lots of liquids and a load of ibuprofin before the shot. it is now three hours after and no problem yet. I started on ibuprofin 2 200 pills at 5 this morning and two every 6 hours since. lots of water.

    I will let you know if there is any change. ibuprofin didnt work on the last big pain episode. maybe the trick is to start sooner.

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  • cliff
    cliff Member Posts: 290
    edited February 2017

    success so far, a little scare last night, going to have to remember to get some Beno for my wifes burritos.

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  • cliff
    cliff Member Posts: 290
    edited February 2017

    bEEN OVER 24 HOURS AND THE PAIN STILL HASNT SHOWN UP. I might be on to something, for me at least. I still havent heard from anyone else with the same side effect.

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  • cive
    cive Member Posts: 709
    edited February 2017

    I've had absolutely no side effects from my Xgeva, in fact it seems to me that they give me energy.  Energy is not a noted side effect so maybe it's just in my head.  I have them only every other month, my MO is of the less is more school and will change it to once every three months once I've finished my first year.  I look forward to the little puppies, sorry it hasn't been easier for you.

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  • cliff
    cliff Member Posts: 290
    edited February 2017

    even if the pain showed up, I have 4 more years of treatments left, while not exactly a fun thought, If I have to do it with the pain, so be it. I have to beat this @#%%^ cancer to stick around long enough to properly spoil my first grandchild, a baby girl.

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  • cliff
    cliff Member Posts: 290
    edited February 2017

    lunch on Monday, still no pain (other than the usual) from shot. this seems to work on my side effect anyway.

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  • cliff
    cliff Member Posts: 290
    edited February 2017

    4 days now, guess pain isnt coming back this month.

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  • cliff
    cliff Member Posts: 290
    edited February 2017

    the seventh day, and the pain hasn't shown up yet. might have the way to prevent it. I would guess that some pain killers just take time to build up enough to work.

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  • cliff
    cliff Member Posts: 290
    edited June 2017

    it didnht work. and please check with your doctor about ibuprophin, my kidney doctor says irs hard on kidneys.

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