Calling all TNs

jc, hello back at you!

Nan, grinning from ear to ear!

Adapt, congrats!

Hi everyone! Occasional lurker here😁 I noticed there was some posts about options for us non pCR gals. My onc said no to Xeloda, but happily I found my way into a vaccine trial. I am three injections in with the Tapimmune folate receptor vaccine trial which *hopefully* can prevent recurrence of TNBC. Just a little redness and swelling at the injection site, otherwise zero side effects so far!

Here's is a link to the study:

https://clinicaltrials.gov/ct2/show/NCT02593227?te...

(edited to include link)

Angtee, they let you in even though you are stage IIA?

I have my next follow up on Thursday. Bone density scan, hormone level check, usually blood tests, right side mammo. I've been having pain in and raond my breast since the week before Christmas. RO says it is due to swelling, but it feels like swollen lymph nodes in my axillary area. I'm betting MO agrees with RO, but I'm slightly worried because my original lumps didn't show up on a mammo.

Congrats to those finishing treatment!

Cathytoo,

Thanks for the feedback! I saw PT yesterday and she examined me and said that she thinks it's the ulna nerve from work we've been doing as I am transitioning from PT to Live Well program they have so she has been pushing me harde

DIV sorry about your rad side effects. I ended my rads in august, and as some here know i had a horrific time, but it didn't start until they were almost over. (sorry for the run on sentence). I had the very bad sore throat as well. My RO prescribed Magic mouthwash. Though it's for your mouth and sores it really soothed my throat.

DIV: The cream and pain relievers helped. Then one day about 2 weeks after the worst of the open sores, they started healing. I mean it was sudden. The "My Girls" radiation cream helped a lot. PM me and depending on where you are located I can send the tiny samples they gave me.

Angtee15, welcome. We were on other threads together. I qualified for that trial due to being a stage 3B, but I declined. No more treatment for me unless I progress. I made that choice due to this is my 2nd rodeo with this beast, and come what may, I'm done for now.

I'm happy you got in, like lovemyvisla said I am surprised due to your stage.

Lovemyvisla, hoping for clean mammo, and clean scans. Always something to worry about.

I had put a worry on here that I had some random spotting. 4 years ago, prior to this bc dx, I had 8 days of bleeding, post menopause. Did all the tests and it was nothing. This time it was very scant and short. Having ultrasound later today. I then went back in my journals. During an intense does of taxol, they gave me not only injections of steroids during the infusion, and massive amounts the day before, and guess what? I had spotting. So 3 weeks ago i had a double steroid shot for my knees. I think that's where the bleeding came from. OB agrees, but doing the ultrasound and then I'm done .

Trishla, lots of folks don't get a pcr. Those who had surgery first have no way of knowing either. It sucks, but is common. The idea is for chemo to shrink, surgery to cut out and rads if needed do the mop up work.

Thanks for letting me vent. i"m tired of tests and treatments. Done for now

Thanks so much for all your replies about my sore throat and radiation treatment. Saw my radiologist and oncologist yesterday. They prescribed liquid morphine for the sore throat. It helps but still can only eat creamed soup.

Valstim52 I'm with you on the treatment. If after all this and the surgery i'm due to have if my cancer comes back i'm not doing any more treatment. Like you this is my second go round. Treatment drains you so much.

Praying my surgery puts cancer in remission.

Cathytoo - right back atcha! *BIG, GENTLE HUGS* to everyone in treatment/suffering right now.

Annie, Cocker Spaniel & DD Mandy,

Just a little poke from a friend. Hi and How are you?

Thanks for checking on me, CassieLou, I am hanging in there. I still have an open wound for drainage, and will for 3 more weeks. Yesterday my PS told me he would not attempt another implant there, my options are to be flat, or a latissimus dorsi flap...AnotherNY, I think you had this recon? I am a bit down, so thanks again

Thanks Cathy, hugs!

I got a good report back for the genetic testing. All tests in the 20 panel test were negative. (most of the genes tested relate to breast cancer but some relate to ovarian cancer). It is especially good news that it was all negative since the geneticist had warned that 3 or 4 would probably come back as variants (variants are basically inconclusive).

Here are the tests: ATM, BARD1, BRCA1, BRCA2, BRIP1, CHEK2, EPCAM, FANCC, MLH1, MLH1, MSH2, MSH6, NBN, PALB2, PTEN, RAD51C, RAD51D, TP53, XRCC2

thank you Val, and supr.

Aterry, so glad you have good news!

Meadow and aterry,

Sending love and prayers!

Had my first 6 month follow up today since the end of treatments/surgeries. The radiologist said my mammogram images looked beautiful (ha), my bone density scan was great-no osteopenia. MO says my pain ps are normal and from rads. My white count and neutrophils are low, which I should normal due to my lupus, but they were lower than my husband I were wagering on while we were bored between appointments.

Meadow, I hope that wound isn't causing you any pain. My PS wanted to a lat-flap on me, but since I just had a two lumpectomies, I don't really need reconstruction.

((Annie))

Great news aterry. Hang in there Meadow and DiV. Spring is in the air here, it was a beautiful day. I've been struggling with sciatica and generally achiness in my hips for about a year now, and I'm determined to get rid of it. Does anyone have any good tips? Sending good thoughts and loving kindness to you all.