B/C in your 40's, newly diagnosed

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BebeZF
BebeZF Member Posts: 67
edited June 2017 in Just Diagnosed

Newly dx with DCIS and in shock of how many of us have to deal with it. It makes me so sad to see all the forums and discussions. And at the same time, strength is in numbers so if we unite, we can beat it, right? Just interested to hear from you ladies who got diagnosed in their 40's. What are the decisions you have made? What are you facing? How are you dealing with it all?

Anyone out there prepping for a surgery in February or March

xoxo

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Comments

  • Cowboy-Up
    Cowboy-Up Member Posts: 211
    edited February 2017

    I was diagnosed in November at the age of 46. I had my surgery January 27th.I had a long wait while waiting on genetic testing, the holidays and trying to get a date that the BS and the PS could do surgery together. I opted for a reduction with my lumpectomy. Friday I find out about chemo which I don't believe I will be having and starting the process of radiation. Best of luck on your journey through treatment. So many great supportive ladies on these boards.

  • BG46TN
    BG46TN Member Posts: 286
    edited February 2017

    HI! I am 46, I was diagnosed in Oct, started chemo in Nov...i have 2 more taxotere left then I will have a double mastectomy, and possibly radiation...then reconstruction.

    I have 3 young children, and I am still working...its tough, but not unbearable....I try to keep everything as "normal" as possible...it keeps me mentally with it and sane LOL

    I feel that I have been pretty "lucky" that my SE have not been too bad, I do have a few bad days but overall nothing that a few advil or a nap can't solve :-)

    good luck! we are all here for you!!

  • GAMomma
    GAMomma Member Posts: 197
    edited February 2017

    Hello Bebe... I am 42,I was diagnosed with dcis New Years Day.. YIPEE for me,what a way to begin the new year,right? I had a double mastectomy January 17. It has been a pretty easy journey so far. A few snags along the way but liveable. I will not need chemo or rads since my BS said my pathology from my sentinel biopsy was clear. I still have a lot of pressure and discomfort due to fluid that keep building up on my right side. It is improving,just slow. This is one of my snags..

    I have 5 kids and it has rocked their world. They are finding courage they never knew they had or wanted.

  • kae_md99
    kae_md99 Member Posts: 621
    edited February 2017

    i was diagnosed Jan,2017. 44 y/o, mother of 8 y/o twins, working but now on leave.will start TCHP as soon as 2 d echo is done( praying that auth will be approved today). hope i can also make it as normal as possible for my kids' sake...

  • CELinVA
    CELinVA Member Posts: 25
    edited February 2017

    I was diagnosed at 43. I had lumpectomy, radiation, and waited one year and took tamoxifen for 5 years. I just finished in January. It was so scary at the time. I had no side effects of the tamoxifen so really, once I recovered from the radiation, my life was back to normal. I was lucky to have radiation just about 10 minutes from my house, and a short work commute, so was able to work full time during those 6-7 weeks. I had some skin burning, and rashes, and stopped wearing bras, although exercise bras were fine. I walked every day during the radiation and I think that helped, and went to bed early every night. I got a lot more serious about my health after it and eat better and exercise more. I don't want another breast cancer, so I hope the diet and exercise help me, and I want to sail through menopause...still at 50, no sign of it. I do have second thoughts about the radiation. Radiation can have long term side effect, and I do know now, but didn't at the time, that if I get cancer in the same breast that was radiated, you can't have radiation twice, so it would be immediate mastectomy. Good luck!

  • Lisey
    Lisey Member Posts: 1,053
    edited February 2017

    I was diagnosed on my 41st birthday. I wanted my 34DDs gone! They were trying to kill me and they were heavy and hurt from cysts anyway.

    I initially thought I'd do tiny implants, but after getting the TEs in, realized that I didn't want alien implants in my butchered PEC muscles and I actually look decent and slender being flat and fabulous. I had the TEs removed about 2 weeks after they were put in, and feel 100% like myself again. There is a woman I greatly admired, and- honestly, if you've youtubed drain care you can't miss her - mop of curly gray hair and darling. (Chiara D'Agnostino), who had 2 rounds of implants, and tons of pain with both (even though they looked great), and now she's rocking being flat and fabulous too.. https://www.facebook.com/chiara.dagostino.509/videos/10212165022387538/?pnref=story

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited February 2017

    I was diagnosed nearly two years ago now at 45. I had grade 1 tumors, no positive nodes, and a low oncotype so I just had a BMX and implant reconstruction and was done. I'm doing great now, no problems. I don't tend to be very emotional and kept my diagnosis and treatment very matter-of-fact to my children (older teens) and we all handled things just fine. I do occasionally think about the possibility of recurrence but remind myself that the majority of women never experience another issue and don't let it linger. My life is very much back to normal.

  • Falconer
    Falconer Member Posts: 1,192
    edited February 2017

    Hi all,

    DX at 45. Bebe- lots of decisions, I think. Lately I'm trying to figure out adjuvant therapy of the hormonal kind. Started Aromasin today after four rounds of Lupron shots. But I already said to my DH today, when my PS takes out the TE and I have DIEP Flap surgery, I'll go off the AI. Maybe switch to something else. I don't know. Reading a lot about options and research. A lot to think about! And all these abbreviations are making me crazy...

    SummerAngel- thanks for the positive encouragement. We are all looking forward to being in your place- return to normal

  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    Hi Falconer,

    Yes! The abbreviations! I am still learning some of them. Why didn't you try Tamoxifen? I thought Aromasin is only recommended for after the menapause.

    Best of luck with all the decisions. I am still not sure what's ahead of me. Just hoping for the best and pretending all is fine until my LX in two weeks. The anxiety will set in late next week....


    Talk soon, xx



  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    Cowboy-up, thank you for sharing your story and good luck to you too.

    Two weeks count down to my surgery, opted for LX and one step at a time

    xx

  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    BG46TN,

    You are amazing with all you do and fighting through it. Thank you for sharing your story. I wish you all the best and will be checking in to see how you are doing. Keep me posted. I have my LX in two weeks and will go from there.

    Have a great Thursday and talk soon

    xx

  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    Amapola36

    Thank you so much, hug was very much needed. I am sending one back. So sweet of you

    XX

  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    GaMomma,

    Thank you for your reply. What was your reason to go with double MX? I was battling with that decision and wasn't comfortable. For now I have scheduled LX and go from there. Just wondering about the reasons why women chose to go that route for DCIS stage 0

    Thank you and it sounds like you are amzingly strong. Kudos to you and keep at it. Stay in touch :)

    xx

  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    kae_md99

    What does TCHP stand for? Also, are you having any surgeries? I was diagnosed in January as well and lost some time while trying to get in for MRI, meeting with docs, etc. Anxious about getting this DCIS removed so it doesn't get worse. LX scheduled in 2 weeks and it can't come soon enough.

    xx


  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    CELinVA

    Yay for you! And don't think about getting the second cancer, chance of that is very small with both radiation and Tamoxifen. You will be fine. I am so glad to hear that Tamoxifen was not too bad. That's one of the fears I have as I am very sensitive to meds and SE scare the crap out of me. So does everything else really, but now I am facing the reality and ready to fight for my 12 year old daughter who needs me for years to come.

    Stay in touch and keep me posted, loved meeting you here

    XX

  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    Lisey,

    How are you doing on Tamoxifen? Are you experiencing any SE?

    Thank you for sharing your story, I opted for LX because although my boobs are small, they are mine so I am hoping to keep them.

    xx

  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    SummerAngel

    Thank you for your comment! It's good to know that life can be back to normal. Why did you decide to go BMX route? can you share your thoughts? I initially was leaning that way, but couldn't sleep at night and once decided for LX first, feel better and can;t wait to get that DCIS out. Still wonder about radiation and tamoxifen so it's still a toss up, but need to get the pathology report for LX first and decide after.

    Just wonder about why women chose BMX, if you don't mind sharing

    XX

  • djmammo
    djmammo Member Posts: 2,939
    edited February 2017

    To All in BC in your 40s

    One quick question that can be answered in one word so I won't take up much of your time.

    The USPSTF has recommended that screening mammography begin at 50 y/o instead of 40.

    Which of you had your BC picked up on a screening mammogram and how many as a lump?

    For the sake of convenience you can just respond MAMMO or LUMP

    thanks!



  • GAMomma
    GAMomma Member Posts: 197
    edited February 2017

    my reasons were.. I had gastric bypass in 2003. I do not absorb meds very well. We were concerned that being on Tamoxifen would be a problem. Plus my boobs were already sorry looking ladies. I thought that if I had to see my unaffected breast and this new perky breast it would be harder. I know that I would have a lift also but by the pictures I saw it would still be a problem. Prior to surg my BS was not so sure my sentinel biopsy would be clear. The largest of the group was right up against my chest wall.. he had a feeling I would be upgraded to a different cancer. This was wrong ,thankfully. Not to mention I happen to be one of those people that fall in that little percentages of problems. Such as pregnancy while have the IUD Mirena inserted.. yes this sister right here,he is now 7.. that was not the only time. So with my exquisite reputation I decided why screw with odds,they really do not like me. So with all of that it made me confident with my decision. If I kept my left I would have needed prophylactic meds,such as Tamoxifen. I have never doubted my choice,so I knew it was right. We did find out post op that cancer was also in my left. Extremely low,he said he didn't think a Mammo would have picked it up. I don't know what type was found,I pick up the paperwork today.

    I will need hormone therapy of some sort. I still have all my lady parts,but would happily hand them over if they my Oncologist recommends it. I am through with my uterus, I have 5 kids. I have had my cycles since I was 9 yrs old,I'm now 42,go away already. I see her next week.

    Wow that was kinda winded,sorry 😁

  • Lisey
    Lisey Member Posts: 1,053
    edited February 2017

    Bebe, Tamoxifen is great, not one side effect 9 months in for me. It feels like a sugar pill, so I had my endoxifen tested to make sure it's working and it was in therapeutic levels. My doctor told me that about 70% of her patients have no side effects with Tamoxifen, and 30% do have side effects, so the odds are in your favor in trying it. I'll probably switch to an AI in about 4 more years. I'm on a 10 year hormonal program at this point. As long as my uterine lining is fine, Tamox is the best for me.

  • Lisey
    Lisey Member Posts: 1,053
    edited February 2017

    DJmammo, I felt mine first and saw symptoms... Mammo didnt' even see it, but US did. Mammo was pointless for me.

  • Annette47
    Annette47 Member Posts: 957
    edited February 2017

    I was diagnosed a little over 4 years ago at the age of 45 with a small area of DCIS with micro invasion. I chose a lumpectomy, radiation, and Tamoxifen and have tolerated all treatments well.

    I know it seems overwhelming at first, but it really does get better.

  • Annette47
    Annette47 Member Posts: 957
    edited February 2017

    djmammo - mine was found on a regular screening mammogram at age 45.

  • melmcbee
    melmcbee Member Posts: 1,119
    edited February 2017
  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited February 2017

    Bebe7F, I consider myself lucky in a way because I didn't have to make the decision between lumpectomies or BMX. When the first tumor was found (djmammo, I felt the lump, and mammo showed nothing in the right breast) and I discussed my options with my surgeon she gave me both options but mentioned that because I have connective tissue disease radiation can cause a "late side effect" of tissue death. She sent me to an oncologist and out for a breast MRI, which found the second tumor and many other "areas of concern". The tumor board as a whole decided I should have a mastectomy, even before the second tumor was biopsied. After completing the right-side biopsy the radiologist pulled me into his office and showed me the many other areas in both of my breasts that would need a biopsy if I were to go with lumpectomies. He said he had rarely seen so many areas of concern before. So that was that, and I never had to think about it again!

  • BebeZF
    BebeZF Member Posts: 67
    edited February 2017

    djmammo,

    Routine Mammo

    I didn't feel a thing

  • kae_md99
    kae_md99 Member Posts: 621
    edited February 2017

    djmammo,

    lump and mammo at age 44

  • HuskerFan
    HuskerFan Member Posts: 85
    edited February 2017

    djmammo, I had a clear mammogram in January 2016. A month later at my yearly exam with my Dr, she referred me to a breast clinic just as a precaution because of dense tissue and family history. That led to an MRI which showed a tumor. The mammogram didn't pick up a thing. I was 43 at time of diagnosis

  • Kath1228
    Kath1228 Member Posts: 76
    edited February 2017

    diagnosed at 49. Went every single year without fail for mammo and ultrasound. When I was diagnosed, they told me the mammo looked fine, went in for my ultrasound - not fine. Mammo didn't pick it up at all. Still not sure how it got to be 2.1cm all those years with no one seeing it before then - really makes you wonder....

  • momand2kids
    momand2kids Member Posts: 1,508
    edited February 2017

    Hi there

    dx in my 40's- 8.5 years ago--- lumpectomy, chemo, radiation--- I think more people in their 40's started to be dx around then- and they thought my lump had been there for 8 years!!! All is well now-- you are at the hardest part!!!


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