Starting Chemo in Nov 2016

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  • aterry
    aterry Member Posts: 290
    edited February 2017

    Hope88, I think there are several approaches to icing that have been mentioned in this thread. I do icing during the Taxol treatment--with my fingers in an ice bath (I alternate my hands so my fingers don't get too uncomfortable and the nurse offers thin gloves--to keep the skin off the ice--but I don't like those). For my feet/toes, I take in my own ice packs and the nurse uses the medical self-stick wrap to secure them to my feet. The evening after the infusion I do my own icing with an ice bath on both fingers and toes for about 20 minutes--up to an hour. I've been doing one ice bath per day during the week. Some people do more. I trust the nurses on this--my nurse says it helps and her unit treats120 breast cancer patients per week.

  • amw5
    amw5 Member Posts: 189
    edited February 2017

    Thx pmevans50.

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited February 2017

    Hope88: I'm getting my 6th (and final) chemo on V-day. So far, I haven't had any neuropathy or darkened nails. And I never iced. The only difference I see with my nails is that my nails seem much stronger during chemo and my cuticles shrunk a little bit so I haven't needed to push them back since I started chemo.

    I've also had lots of diarrhea and constipation issues. I can go from diarrhea to constipation (and vice versa) during the same day. I try not to take Imodium for diarrhea cause I'm afraid it will cause constipation, but constipation occurs anyway. When I know I'm getting constipated, "Smooth Move" tea helps. ("Smooth Move" was recommended by my MO. It taste like dirt, but it's bearable.) I tried prune juice but that doesn't seem to help me, or I may not be drinking enough. I also take a stool softener on a daily basis -- it doesn't cause me to go, just makes it easier to go.

  • Hope88
    Hope88 Member Posts: 55
    edited February 2017

    Thanks all for the advice. I had an ice pack on my feet during treatment and am icing my hands and feet now. I really hope it works. Last night I had to take Tylonel for neuropathy pain last night.

    Bella's, I am with you on the constipation. My PA suggested magnesium (like1500 mg) for constipation. I have taken it since Monday, and I have noticed no change. In addition those pills are huge. I am also going to take a stool softener every day to try to get regular.

    I will let you all know how the icing works

  • BG46TN
    BG46TN Member Posts: 286
    edited February 2017

    I iced for the first time during my taxotere this past Friday....so far so good....I used the gel mitts, and I wore fingerless gloves under them. I didn't do my feet during treatment (too hard when I have to get up to pee nonstop from the IV fluids lol) I also iced again that night at home and once the next day....I also sucked on ice chips the whole time, I really hope I can keep my taste buds this time around...*fingers crossed*

    My place is very small and doesn't really ever mention icing, but I just brought all my own stuff, my nurse told me to let him know how it works out, he was curious about it.

    I have to say for taxotere #2 I have been feeling pretty good...(#1 was not so fun) I haven't really had any side effects (yet) the only wierd thing is hiccups! starting the day after, on and off all day and still going on 3 days later...but I'll take that over any kind of pain any day! Even my Neulasta didn't give me the pains I usually get the day after it goes off...today my skin feels a little tender but nothing too bad.

    I was hoping to avoid Rads since my breast surgeon and plastic surgeon both thought I shouldn't need it since I"m having a double mastectomy and have no lymph node involvement..but my MO still thinks I need it (ugh) So i am going to consult with the RO and see what he says, and hope for just a short amount.

    I'm upset by the fact that I can't have the exchange from expanders to implants until 6 months after radiation is done...I feel like everything is just getting dragged out longer and longer....I was so hoping to be "Done" by the end of summer and be able to move on...now I'll have to add in another surgery, miss more work during the next school year :-(

    oh well....It is what it is..and I"m trying really hard to just deal with all this as it comes my way...

    Becky

  • aterry
    aterry Member Posts: 290
    edited February 2017

    DBear & pmevans50 This is my little Blue Apron report. So far I'm happy with the service. DD had complained that DH and I were cooking the same boring meals, over and over. I don't have the energy or mental sharpness to do creative meal planning (during AC I ate Chobani yogurt & mashed sweet potatoes more than anything else). The thing I like about Blue Apron is that you end up making things that are not part of your routine (or used in a different way in the recipes) but really tasty. Last night we had a potato salad with a lemon & olive oil dressing with celery, onions & capers and breaded chicken breasts with a fig condiment. This has solved the problem of not including different tastes. The shipments have arrived on time. The ingredients have been of good quality. The instructions are helpful and easy to follow and their site has videos that show techniques. Today I'm taking the packing to the post office to ship back to Blue Apron (free & per their instructions). I plan to continue 2 meals/week until I'm done with chemo. After that I may not feel the need. I think this service would be good for a person who is learning to cook. What is your experience, DBear?

  • BG46TN
    BG46TN Member Posts: 286
    edited February 2017

    I have such heartburn what is the best thing to take? I usually would take Pepcid AC and it worked great, but you can only take 2 a day...and I feel like i need something more/longer/

    Does Prilosec do the same thing? I have some at home but haven't been taking it because I wasn't really sure what it was "for" kwim? :-)

    Thanks!

    Becky

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited February 2017

    I take Prilosec every AM and 1 Pepcid AC in the evening (but my MO said I can take 2 Pepcid ACs a day) . This is what my MO recommended. Prilosec is an "Omeprazole delayed-release tablet 20mg".

  • Pamela23
    Pamela23 Member Posts: 510
    edited February 2017

    I bought Prilosec and read on the bottle that it can take a few days to work, it's not an immediate response like I think Pepcid may be.

  • BG46TN
    BG46TN Member Posts: 286
    edited February 2017

    Thanks Pam, yea I saw that too, I took one this morning, so far I feel better...I couldn't do just Pepcid since I was getting it more then 2 times and couldn't keep popping those LOL

    Becky

  • pmevans50
    pmevans50 Member Posts: 54
    edited February 2017

    Aterry - I'm glad you like it. I just might have to try it or something similar. :-)

  • DBear
    DBear Member Posts: 9
    edited February 2017

    our third delivery will arrive tomorrow and we have only made 1 of the three that were delivered last Friday. The one we made was one of my favorites..Pan fried chicken breast with kale over potato and apple hash

    It was really tasty! I like that the ingredients arrive very fresh and the recipes are out of of routine menues. Life is just so complicated that even with all the ingredients available, too many nights I don't feel like cooking.image

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited February 2017

    Last chemo done. Pain has set in. Last time for this.....

  • aterry
    aterry Member Posts: 290
    edited February 2017

    Leslie, congratulations on your last chemo!

    Nice photo, DBear.

  • Hopfull2
    Hopfull2 Member Posts: 418
    edited February 2017

    Leslie. Congrats on your last chemo. You did it.

  • Annie16
    Annie16 Member Posts: 24
    edited February 2017

    Congratulations, Leslie! It doesn't really feel like it is over right away, but so good to know you don't have to do it again!

  • Pamela23
    Pamela23 Member Posts: 510
    edited February 2017

    Hooray Leslie!!

    DBear---that looks delish!

  • Pamela23
    Pamela23 Member Posts: 510
    edited February 2017

    If anyone is starting rads soon, I just came across this article on natural creams for preventing preventing burns:

    https://thetruthaboutcancer.com/prevent-radiation-...

  • aterry
    aterry Member Posts: 290
    edited February 2017

    Thank you Pamela. I won't have radiation until April but I'm looking into it a bit in advance. I already have 3 of the 4 components mentioned so that's reassuring.

  • Daisy613
    Daisy613 Member Posts: 3
    edited February 2017

    Hi, I am kind of jumping in late but better late than never!

    Short version: found a large lump in my right breast last spring and had an ultrasound done but was told my breast tissue is dense and they didn't think it was anything to worry about and to come back in 6 months. I did. It had not changed but they decided to biopsy the lump and discovered IDC. Further testing showed it is ER/PR negative, HER2 positive and is now Stage 4, it spread to my lymph nodes including some in inoperable places. The treatment plan is 6 chemo treatments, lumpectomy and radiation.

    At this point, I have completed 5 chemo treatments, last one is March 2nd. I have getting sicker every time. I have body aches and pains, diarrhea, disgusting chemical taste in my mouth at all times, nausea (3 meds and marijuana haven't helped) and a general nasty sour stomach. Recently I have become really sensitive to smells as well. I'm just trying to crawl though the last month or so of this and day dreaming about eating all my favorite food (or any food that taste normal) at some point soon.

    I am using cold caps and have retained the majority of my hair, I think psychologically this has really helped me, my daughter and my mom. We all suffer from depression and anxiety so any little thing that keeps life "normal" is helpful. My mom also has OCD and my daughter (25 and not living at home) has Borderline Personality Disorder. They both love me and want to help but often their own issues paralyze them.

    I'm considering getting a double mastectomy instead of a lumpectomy. I feel like I need to minimize the chance of ever going through this again. I look down at my breasts and think, you've been great but it's time for you to go! I'm nervous about the recovery though. I think I'm going to need someone to actually stay with me.

    Anyway, I just wanted to say hi and join the conversation instead of just reading it. :)

    Thanks, Carrie

  • Pamela23
    Pamela23 Member Posts: 510
    edited February 2017

    Daisy613, I'm glad you reached out. You sound like you have a lot on your plate. Like you, many of us have found each round to be tougher to get through. We are here for you! It's nice to have place to come to vent, bitch, question, complain and eventually celebrate. I hope you chime in more often when you need to. I also encourage you to join the cold cap group too if you haven't already.

  • amw5
    amw5 Member Posts: 189
    edited February 2017

    Today was my last chemotherapy treatment.

  • Nanpop
    Nanpop Member Posts: 75
    edited February 2017

    daisy613,

    I am so sorry to hear that you are going through this. If you can go to a National Cancer Institute. If you are stage 4 they will tell you not to operate. its is important that you go to a knowledgeable institution.

  • Hopfull2
    Hopfull2 Member Posts: 418
    edited February 2017

    amw5, congrats on your last treatment. Yay. You got through this. Now time to go celebrate.

    Hugs.

  • Pamela23
    Pamela23 Member Posts: 510
    edited February 2017

    amw5--Congrats--hooray!!! hoping for smooth sailing through the SEs

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2017

    Amw5,

    We both finished today! Yay!


  • amw5
    amw5 Member Posts: 189
    edited February 2017

    Thx for the congrats ladies. Hubby and I celebrated and went out to dinner. I hadn't had any alcohol since way before my diagnosis (not a big drinker at all), but I did have a light fruity drink, and it was yummy.

    gmmiph - Congratulations dear. (((hugs)))

  • Hopfull2
    Hopfull2 Member Posts: 418
    edited February 2017

    gmmiph, congrats on finishing.

  • Pamela23
    Pamela23 Member Posts: 510
    edited February 2017

    Congrats gmmiph!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2017

    Thanks for the congrats amw, hopfull and pamela. I wish all of us would be totally successful in our own journeys. Time for a little celebration and then try to go back to my normal life one day at a time.

    Love you all Sisters and may the Good Lord continue to guide and protect us.

    Hugs,

    Gina


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