Suddenly one breast is larger

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Hi all! Im abput 1.5 yrs in remission from a tnbc grade 3 stage 2a idc in my right breast. I had chemo then lumpectomy followed by radiation. Im doin good but have the post cancer anxiety. Every little pain or lump i notice scares me but so far so good (there is just a complex ovarian cyst that im keepong an eye on). About 2 days ago i noticed my left breast- the one that did not have cancer- had grown about 2 cup sizes seemingly over night! This is prob just a cosmetic issue im thinking, like maybe the treated breast is not storing fat or something? I did read about imflamatory breast cancer and am a little nervous about that too...i have an appointment on thurs. Anyone have a similar situation?

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  • KBeee
    KBeee Member Posts: 5,109
    edited February 2017

    Any change should be checked. You can get Lymphedema in your breast, so that may be what's happening. Please update

  • pajim
    pajim Member Posts: 2,785
    edited February 2017

    Agree with KBeee that you should have it checked. If it seemed to change overnight and hasn't resolved in a couple of days someone needs to look.

    Assume you haven't gained weight lately?

    I doubt it's cancer -- lymphadema is a possibility.

  • MargaritaMS
    MargaritaMS Member Posts: 199
    edited February 2017

    Hi Tressy. I just saw your thread so by looks of things, you had your appointment today. How'd it go? I hope you found out that it was something other than inflammatory BC but as your initial symptom sounds like mine (not to freak you out), I wanted to make sure that your doctor covered the bases. Many doctors like to take a "wait and see" approach to early IBC symptoms because they (and we) are all aware it is "rare" so statistically it's unlikely that you have it. Unfortunately, some of us do have it and waiting to see is a bad idea.Hoping you don't but if you have questions or further concerns, I'm happy to discuss/answer whatever I can. Cheers!

  • Tressy
    Tressy Member Posts: 13
    edited February 2017

    hello! Thank you all for reading and your advice. I had my appointment yesterday. The doctor I saw wasn't on my original team but I have seen her in the past and I really like her. Anyway, I asked if I was just exaggerating as I feel like sometimes I find issues where there are none. She said it's def bigger, and side questions like if my cycle was back and regular-it has been back for about a yr and regular for 3 months. I last had it about two weeks ago. She did an exam and could feel anything but the size difference was enough to order a sonogram. Also, I know it grew within at least the last month bc I did a bra fitting mid January and the difference wasn't very noticeable then. She didn't think it was lymphadenopathy since I only had 3 nodes removed and said it's not likely that the radiation would effect weight gain in the other breast. Also I've only gained 7 lbs since aug, the last time I was at her office. So...I had my sonogram today. However, I went to the imaging center and the tech called me back and said the radiologist wanted to do a mammogram first. They took 2 images and then said the radiologist said it looked fine and they didn't need to do a sonogram. I was confused since the dr specificly ordered a sonogram because I had mammogram in Nov. I went next door to her office and she was so nice to make time for me and said she would talk to the radiologist and her colleagues and call me this afternoon. So long story short(er) I have to go back and get a sonogram on Tuesday! I honestly think the rad took a look at my age and saw I just had a mammo and it was very busy in the waiting room so he kinda wrote me off. My doc on the other hand is being very cautious and I'm glad bc I usually do hear the "wait and see" thing, in fact I heard that when I found my original Cancerlump too! I'll let you know when I get the sono results. I don't think it's anything but much rather be on the safe side. I noticed that there is a bit of heaviness to the enlarged breast, too. Does anyone know if IBC can a form of mets? Or would it be a recurrence if in the small chance it is that? Thanks

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited February 2017

    A mammogram would reveal a seroma if you have one (and radiation treatments can make one bigger—I had to go up a cup size for nearly a year before my seroma began resorbing). And as to lymphedema, you would not believe how ignorant most doctors—even some breast surgeons(!)—are about it. If you are otherwise susceptible (especially even mildly obese), had any kind of infection (even a zit) in the area “downstream" of the removed nodes, or depending on from where those nodes were removed, you are at lifetime risk even if only one node was removed. It used to be thought (even by LE specialists) that only those who had ALND rather than SNB—or had more than 4 nodes removed via SNB—were at any significant risk. But since awareness of LE has increased, more patients are noticing symptoms and their doctors are “putting 2 & 2 together" and correctly diagnosing it.

    BTW, most medical students get less than 30 minutes of instruction about LE over their 4 years in school—and the average is about 4-10 minutes. Some get none!

  • Tressy
    Tressy Member Posts: 13
    edited February 2017

    The weird thing is that the enlargement is on the breast that didn't have cancer- I thought that maybe the rad swelling had gone done and created the illusion of the other breast growing, but it feels different-it's more then a handful and I've always been under a handful : /

    You know, I have def noticed a slowing down of my lymph system in general- and a major increase in cellulite, which I believe is somewhat related to the release of toxins. So, maybe I shouldn't rule out lymphoma then?You know those new cosmetic procedures like Kybella and a Cool Sculptin- they eliminate fat through the lymphatic system. I wonder if it is less effective if you have nodes removed? Not that I could afford it, but I would love to have some fat frozen off!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited February 2017

    Cellulite has nothing to do with toxins or the lymph system. In women, fat cells tend to be surrounded by a sort of mesh of soft tissue, giving our subcutaneous fat cells in certain areas a dimpled “cottage cheese” appearance. It is often hereditary. Men very rarely get cellulite, even if seriously obese. Nature isn’t always fair. There are now anti-cellulite treatments that a skilled dermatologist can administer that are less invasive than surgery (such as excision aka “nip & tuck" or liposuction) and less painful than CoolSculpting.

    Lymphedema is not lymphoma—the latter is a type of cancer, the former (to which I assume you refer) is the swelling of body parts downstream of nodes that have been removed or otherwise disturbed. Anything that dramatically increases or decreases the temperature of one of those body parts increases lymphedema risk, as does any temperature change that can cause skin damage (burns or frostbite). That’s why LE patients are advised to avoid frostbite, hot tubs, saunas, and going outside on hot days without wearing compression. If you had nodes removed from your armpit, and from nowhere else, CoolSculpting your abdomen, butt or thighs shouldn’t cause or affect LE. (From friends who’ve had the procedure, they report it is very, very uncomfortable & expensive but it works only on mildly fatty areas (e.g., slight love-handles or mild-to-moderate saddlebags. It won’t remove a beer belly or change an “apple” body shape). Kybella is different—it is an injection of a substance that dissolves fat cells in that area. So if you haven’t had nodes removed (or don’t have swollen nodes at the time you get the shots) in the sides of your jaw or behind your ears, Kybella shots shouldn’t cause LE unless the needle hits your submaxillary nodes. (But they are also expensive, work only on a moderate to severe double chin, and can cause residual pain, a lopsided face and even difficulty in swallowing).

    If the enlargement is of the non-cancer breast it’s more likely to be an infection than any kind of tumor. But a mammo or ultrasound is a good idea.


  • Tressy
    Tressy Member Posts: 13
    edited February 2017

    oh yes, i meant lymphedema! That is interesting, i hope i wont get it but i did have 3 under arm nodes removed. And no hot tubs? Thats a real drag. Isnt there something about plane rides, too, or am i thinking of something else? Check out this article on the lymphatic system and cellulite production in women:

    https://www.womentowomen.com/detoxification/the-ly...

  • djmammo
    djmammo Member Posts: 2,939
    edited February 2017

    Tressy

    You mentioned weight gain. Depending upon how much scarring and fibrosis there is on the treated side from surgery and radiation, weight gain may only be reflected in the other breast. I have seen this on occasion.

    For a global process such as "enlargement of an entire breast" getting an overview of the whole breast with a mammogram first is not unreasonable. If there is no change in its appearance from your prior mammogram then forgoing the ultrasound is also reasonable. An ultrasound alone however would not detect a small group or groups of calcifications if they had developed since your prior mammogram on that side.

  • MargaritaMS
    MargaritaMS Member Posts: 199
    edited February 2017

    Hi Tressy, glad that you have an oncologist that is taking your symptoms seriously. It's seems strange to me that the radiologist didn't do the ultrasound that was ordered but instead did only a mammogram. It's not a bad thing that they ordered a mammogram as well but I hope that you do also get an ultrasound. IBC doesn't form a typical tumor mass so it isn't always as palpable or visible as other forms of breast cancer and is diagnosed based on simultaneous presence of a number of symptoms - swollen breast being just one of them. Other things to pay attention to are whether the affected breast feels hot, whether there are changes to the skin (color or texture) or to the nipple. Again, hoping that there is another explanation for your increased breast size but you do need to keep pushing to ensure that it is fully investigated. It sounds like you are in good hands.

  • Tressy
    Tressy Member Posts: 13
    edited February 2017

    Thank you all! My dr. said she would compare the 2 images (nov. mammo with yesterday's mammo) to see exactly how much it has changed. I have very dense breasts but the larger one feels more "fatty" then it used too plus I luckily have not had any other noticeable changes like on the skin or nipple. It does have some pain but pretty sure that's from the mammo. Thank you again, I'll post what I find out when I have the ultrasound on Tuesday.

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