March 2017 Surgery

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  • chickensandgoats
    chickensandgoats Member Posts: 64
    edited February 2017

    Hi everyone!

    My MO asked today if my surgeon placed a pin on the tumor when he did the biopsy. I have no idea if he did or not. Is this a standard procedure? Anyway, the MO said since the tumor has shrunk, without a pin it will be difficult to find during surgery. It is no longer felt by touch, but I assume perhaps it will still show on ultrasound. I haven't had any follow-up scans yet. Does anyone have any similar experiences? I don't know what to think.

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited February 2017

    Yes, my Dr. placed a titanium chip in my breast when she did my biopsy. I thought that was standard procedure. My tumor also shrunk -- my MO can't feel it at all. I haven't had any follow-up scans -- I don't think my MO is authorizing any.

  • PeaceAndStrength
    PeaceAndStrength Member Posts: 6
    edited February 2017

    My surgeons and radiologists have always placed a marker after both core and excision biopsy, for benign and malignant findings. Are you sure they did place one? I'm sorry

  • plantchild
    plantchild Member Posts: 37
    edited February 2017

    I had a clip placed when i had the core biopsy. I don't have any scheduled scans either. That scares me. My PET before chemo showed no other involvement beyond the two tumors in my right breast. So for now I wont know if any of the lymph nodes are now involved until after surgery. I wish they would do a scan, I think I would like to know before hand.

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2017

    Hi LIz!

    Welcome! You may want to check out our forum on Breast Reconstruction for answers to some of your questions regarding DIEP. Lots of good info there, and members who can offer some insight: https://community.breastcancer.org/forum/44.

    Best of luck on your upcoming surgery!

    The Mods

  • PeaceAndStrength
    PeaceAndStrength Member Posts: 6
    edited February 2017

    Thanks! It is certainly my reconstruction of choice, if I am a candidate. I'll check that out!

  • Trishyla
    Trishyla Member Posts: 1,005
    edited February 2017

    I'm going to be finishing my final chemo on 2/21, and looking at BMX with DIEP reconstruction sometime in late March. That is, if I can "persuade" my plastic surgeon to perform the DIEP surgery.

    For some reason, even though I'm a great candidate for the procedure, she is doing everything in her power to disuade me from it, and trying to get me to go with implants. She doesn't seem to understand how much I despise the thought of implants. The only reason I can think of is that she looks at my triple negative status, and (wrongly) thinks I'm a dead woman walking. She seemed shocked when I told her I wanted my port removed before surgery. She seemed to think (again wrongly) that I'm destined to have a reoccurrence. Even if I was, it's not her call to make as to which surgery I "get" to choose. As long as I'm medically qualified I am the one who chooses which surgery I want for my body.

    I'd switch surgeons, but she's one of only two plastic surgeons at my major cancer center who perform the procedure and will accept my very good private insurance. Urghhh. Not what I need to be dealing with right now.

    As far as having the surgery goes, I was always more afraid of the chemo. I figure if I can do twenty weeks of vile chemo I can do twelve hours of surgery, five days in the hospital, and four plus weeks of recovery. I just want it done, so I can try to get on with my life.

    Sorry for the long rant. I just needed to get it off my chest.

    Good luck to everyone having their surgery next month. It's one more step on the road to recovery from this horrible disease.

    Trish

  • PeaceAndStrength
    PeaceAndStrength Member Posts: 6
    edited February 2017

    Trish -

    I'm also looking at DIEP flap reconstruction for the end of March. Saw the plastic surgeon today. I also don't want implants (I have autoimmune disease and take immunosuppressants and have read they are really contraindicated for that). I wonder if she is just trying to dissuade you because implants typically look better? I kind of wish I could get them for that reason, but I'm pretty set. And my plastic guy loves doing DIEP and didn't try to talk me into adding the implants (which, apparently, they can do in conjunction).

    They really need two surgeons performing the procedure at the same time, so if only two of them do it, they will both be in on the surgery. Maybe she doesn't like the length of the surgery (takes up too much of her schedule - that would be wrong, but I'm curious why she would be so discouraging of it).

    As long as you are a candidate, she shouldn't be trying to dissuade you and don't be discouraged by the triple negative. I have several friends who are many years past a triple negative dx.

    I would rather have a one and done myself (vs putting in expanders and waiting for another surgery). My doc did say that there are probably other tweaks on the horizon though (if they can't get enough far from my stomach to achieve a decent sized breast, we may have to go back later and take from my thighs; I have to decide if I want nipple reconstruction and I think that is a second surgery; if there are complications, they may have to go back and fix them, etc). It is a slightly longer recovery at first, but I've had own friend who did it and she said she was showering by herself before she left the hospital and walking upright after a week. And no issues with not being able to use her arms, like expanders can sometimes cause - I guess because of the tightness, I don't know. I guess we will all recover differently, but I'm hoping for a recovery like hers!!

    Anyway, we can do this!!

    Liz


  • Romers143
    Romers143 Member Posts: 8
    edited February 2017

    We're a lot a like!! I'm also doing the DIEP Flap too. Mines scheduled for March 8. I finished my last round of chemo on 1/19/16. I came back to work this week and I'll go back out March 7 for surgery prep. Not sure why your surgeon would try to get you to do something you don't want to do but you're right it's your body and your decisions! Peace is right I'd rather have a one and done vs going back again and again for expanders. I want it all over with as fast as I can!

  • botzey
    botzey Member Posts: 10
    edited February 2017

    Hello,

    I will be having a prophylactic bilateral mastectomy and DIEP reconstruction on March 3 due to PALB2 genetic mutation. I did not think I would be a candidate for DIEP since I am at 35 BMI, but the PS says it should be fine. I am a bit nervous to be under anesthesia for so long but I rather not have implants.

    I pray everyone's surgery goes well this month and we all have a speedy recovery.

  • gently
    gently Member Posts: 28
    edited February 2017

    Plantchild and all, thank you for being here. I am scheduled for a March 10 lumpectomy & sentinel node ectomy. Really appreciate everyone's input. This is a new land for me.

  • BellasMomToo
    BellasMomToo Member Posts: 305
    edited February 2017

    I finally have my surgery date: March 27. I'm going to have a mastectomy w/o reconstruction. The surgeon will also do a sentinel node biopsy.

    I do not want breast implants. I was so tempted to have the DIEP reconstruction, mainly because of the tummy tuck. But I decided to go w/o reconstruction for now because I want to do more research first. I can always do reconstruction later.

  • DiV
    DiV Member Posts: 231
    edited February 2017

    Hi, I will be having surgery too March 20th. When I was first diagnosed in 2013 I had a mastectomy with immediate reconstruction tissue expander then implant and nipple reconstruction. Everything went well. Had a pain ball inserted in mastectomy to administer pain medication. Did AC+T chemo. Got through it all just fine. Fast forward to Sept 2016 cancer is back in the chest wall. Just finished radiation today. Finish chemo on Monday. My case is not typical in fact it is really rare. My tumor is wrapped around the brachial plexus nerve that controls your arm and shoulder. The only way to remove my tumor is to remove parts of ribs #2-5 and amputate my arm at shoulder. I will have a petscan March 14 and mri March 16 if cancer is still contained and hasn't spread my surgery will be March 20th. Needless to say I'm scared to death but staying positive that the surgery eradicates the disease.

    I wish you all good luck in the decisions you choose for reconstruction and a fast recovery.

  • goldie63
    goldie63 Member Posts: 117
    edited February 2017

    DiV I hope you get good pet scan and MRI results. I wish you good luck in your surgery as well, you've had extra difficult decisions to make. I'm sure it's hard to stay positive but hang in there. I really hope everything turns out well. Hugs

  • cse70
    cse70 Member Posts: 43
    edited February 2017

    BellasMomToo, I am having my unilateral mastectomy on 3/27 without reconstruction, too. I am also in Ca. This is my second fight with BC. The radiologists say cancer but 3 biopsies show nothing, so I say "get rid off it!, don't need it! How are you coping

  • gently
    gently Member Posts: 28
    edited February 2017

    Grande, how are you doing now? Do you have any more advice about what to have on hand for the days immediately following surgery? For some reason I am fixated on what sort of sleeping clothes will be the most comfortable/least annoying.

    Thank you all for having these conversations. I am swinging a little wildly between calm & composed and overwhelmed. In my head a lot right now.

  • raven4mi
    raven4mi Member Posts: 562
    edited February 2017

    Hello, all.

    I will be joining you all for a March surgery on 3/17 for re-insertion of TE on the right side subsequent to removal due to infection. My original NSBMX was done in April, 2016 and through a series of Lemony Snickett Unfortunate Events, the right TE was removed at the end of May, 2016 due to a fairly rare infection (and I do mean RARE, so please don't let my situation freak you out.) I will also be having a salpingo-oophorectomy to remove my ovaries and fallopian tubes due to a positive genetic marker for an increase risk of ovarian cancer.

    By my 3/17 surgery it will be over 11 months since my original surgery date so hopefully I'll be able to breeze through this re-insertion and then eventual implant replacement and have this all behind me.

    DiV, I'm so sorry to hear of your rare occurrence. Is there any chance that the petscan on 3/16 will show that the surgery does not need to be so extensive?? Please know you'll be in my thoughts.

  • Amandab1234
    Amandab1234 Member Posts: 6
    edited February 2017

    Hi everyone. I'm new to this group also. Tentative surgery date for a unilateral mastectomy 3/2. I still have to meet with plastics and radiation to assess my options for reconstruction. Chemo will be assessed with a mamoprint test after surgery. I'm highly er+ so he was not sure if chemo would shrink my tumor. I apparently have 4 all together. They consider it a 7cm area, although the MO focuses on the largest which is 2cm. BS thinks I will need radiation. This scares me greatly. I'm hoping for a skin sparing mastectomy and a diep reconstruction. If PS says yes then my date will be moved. My BS thinks I may be too thin. Two kids left me with a nice donut of fat around my belly button that I think would make a great new breast. Any advice on possible radiation with the diep? Wish you all luck. I'm also still waiting genetic test

  • ShannaM
    ShannaM Member Posts: 22
    edited February 2017

    Hi Peace-

    It sounds like you have a lot of decisions coming up. I had a bmx in December, with spacer put in place while I do radiation. I'm not sure about the DIEP flap, that wasn't something my plastic surgeon talked about. He said we would only look at that possibility if my skin doesn't do well during radiation. So far so good. I am thinking about the nippple reconstruction also. I was talking to my husband and I think we've decided that the tattoo is the best option. It's one less time to go under for a surgery. Plus you will not have any sensation in the reconstructed nipple, so I think it would be a weird skin tag kind of. IDK just my opinion. The 3D tattoos look pretty outstanding!

  • Yvonne_M
    Yvonne_M Member Posts: 72
    edited February 2017

    Hi all, I was originally scheduled for Mx yesterday on Valentine's Day, but moved it to the next available date, March 7th, things were happening too fast and I was sick to my stomach, literally. So, I have IDC. I am trying to learn all the new and wonderful vocabulary. Getting the mast done and node removal, then the waiting on those results for the next steps. It's nice to meet you all!

    Would there be a way to add everyone's surgeries and dates in the original post?

  • Reginac
    Reginac Member Posts: 6
    edited February 2017

    I am having bmx 2/28. I am going to the hospital to me fitted for a mastectomy camisole. They said insurance will pay for two. It will have pockets for the drains. My hospital has a shop in the cancer wing that sells them. You may try asking at hospital or your surgeon. You can also by online. I have also purchased some inexpensive bras that have front closures.

    I am having the DIEP as well. Good luck.

  • Reginac
    Reginac Member Posts: 6
    edited February 2017

    gently I have read that satin or silky pjs help you slide out of bed. I am having DIEP so I bought a size big that button up. Amazon had some Vanity Fair ones that were inexpensive.
  • LisbethS
    LisbethS Member Posts: 145
    edited February 2017

    Hi ladies,

    I'm getting my LMX and bi-recon March 10th. So happy to finally have a date. It was supposed to be in January, but got pushed out due to complications from my hysterectomy. I already had an RMX back in July, and finished chemo November 4th. Sorry you have to be in the BC club but glad I have you ladies for support and to learn from. I was a pro with the chemo (researched it like crazy) but I still have so much to learn about this upcoming surgery.

  • cdv4251992
    cdv4251992 Member Posts: 158
    edited February 2017

    Had my pre op today. They didn't actually do anything, said they didn't need anything. The nurse who checked me in said she is actually scheduled on my floor the 3rd and 4th days after my surgery. She was really nice. Although she did tell me no caffeine for a while after surgery. Hadn't gotten that info from the plastic surgeon. Anyone know how long that lasts for? I'm pretty attached to my coffee. That will be an adjustment.

  • NormaJ
    NormaJ Member Posts: 4
    edited February 2017

    Diagnosed 8/29/16 with IDC, Triple Negative. Did 4 rounds of AC and 12 weeks Taxol..completed my last chemo 2/6/17...will have surgery on Mar 2nd...lumpectomy and lymph node removal. Little anxious about surgery but more worried about pathology results, just gotta stay positive and pray for good news.



  • NormaJ
    NormaJ Member Posts: 4
    edited February 2017

    chickensandgoats .... when I had my biospy, they did place a marker inside breast...I was told that before surgery, I will go to radiology and will locate marker and attach a wire to it, to help guide the surgeon.




  • NormaJ
    NormaJ Member Posts: 4
    edited February 2017

    Chickensandgoats ...When I.had my biopsy, they did place a marker inside my breast. I will.have surgery Mar 2nd and was told that I will go to radiology first, they will locate marker and attach a wire to it...this will help in guiding the surgeon.

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited February 2017

    Marker placed for me at biopsy as well. ;)

  • CME3
    CME3 Member Posts: 1
    edited February 2017

    Thanks so much for creating this post. I'm having a mastectomy on March 1st and go back and forth from feeling okay to overwhelmed with emotion. This is my first post and also looking for support. I found out about the diagnosis about a month ago and have not had other treatment. Just gearing up for getting all loose ends tied up before being out of work, etc. I have three kids and getting them all situated to be overnight elsewhere the night before the surgery. Finally settled that last night and feel a bit of weight lifted.

  • Yvonne_M
    Yvonne_M Member Posts: 72
    edited February 2017

    Hi all!

    CME3, welcome to the community! My Mast is a few days after you and I am getting things in order as well, taking advantage of feeling good, etc. I don't have children, so I can't imagine the added stress of that. But glad to hear you got them situated for surgery. We've got furry kids and I'm sure they will all be laying all around me post surgery.

    Been praying for all you ladies! I have been talking God's ear off!

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