Anyone has the lump for a long time before dx?

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Mine had been there for over 2 years before dx. It was kind of slow-growing and due to my age, I did not pay enough attention.

Now I just can't convince myself there weren't any stray cancer cells sneaked over to other organs and it is just about time to wake up.

Does anyone have similar experience?

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2017

    Mine was there for a long time also, due to two factors. Mammography was not an effective screening tool and there was a large cyst adjacent - as well as other scattered cysts, normal for me - so self exam was not useful either. I was also node positive, but am thankful to be here with no evidence of disease more than 6 years past diagnosis. It is totally normal to feel worried, particularly this close to diagnosis, but it gets better with time.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited February 2017

    My surgeon told me that my cancer had probably been there at least five years before I noticed something. I also was node positive, but neoadjuvant chemo cleared that out, as well as the cancer in my breast. I should have been getting mammograms, but did not. At this point, that's all water under the bridge. What's done is done, and we can't re-do the past. We just have to move forward, and not be consumed by regrets. ((Hugs))

  • stephilosphy00
    stephilosphy00 Member Posts: 386
    edited February 2017

    Thank you ladies for all those encouraging words! I feel kind of tired of dealing with all these now. It is hard to put myself together to feel positive again.

  • vlnrph
    vlnrph Member Posts: 1,632
    edited February 2017

    Film mammography of dense tissue did not work well for me: I was getting reports of 'architectural distortion' with follow-up ultrasounds for years before the lesion was large enough to be seen on a digital scan.

    Worries about tumor dormancy are certainly understandable. Is there a counselor or support group you could contact? It can help to know you're not alone! Some areas might have special services for young survivors...

  • stephilosphy00
    stephilosphy00 Member Posts: 386
    edited February 2017

    Thank you ladies for all your input! I just started AC chemo today, it hit me so hard, but I know I need it to survive!

  • Cuetang
    Cuetang Member Posts: 575
    edited February 2017

    stephilosophy -- thinking of you after seeing this post! I am also one of those where my surgeon had said that mine was slow-growing and had to have been there at least 5+ years before it was found. Let's just say this whole experience seriously messes with your head. We all have those days, whether we'd like to admit it or not. Here for you if you need and the gals on the chemo boards will give you all the advice you need to get through craptasm! Personally, I'm convinced that everyone has some sort of stray cancer cells lurking, it's just a matter of either or not our body's system's caught it before it moved forward. For us, unfortunately, they decided to throw a party in our boobs. HUGS!

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2017

    Hoping you've come out of hte AC fog and have several good days before your next one.

  • SusanRachel
    SusanRachel Member Posts: 68
    edited March 2017

    Mine was there for a year. I got lumps all the time and they were always cysts, so I customarily waited for two menstrual cycles and then would get them checked if they weren't gone by then. When I went to get checked with what turned out to be cancer, the mammogram and ultrasound were both normal - an ordinary cyst like every other ordinary cyst. I went away satisfied that I was fine. I didn't worry when the lump didn't go away right away. Ten months later, I got it checked again and it was stage III grade 3 cancer. I wish I hadn't been so conscientious. If I'd waited another month or two before getting it checked initially, It would have been visible on the ultrasound.

  • ParisParis
    ParisParis Member Posts: 32
    edited May 2017

    My lump was there for years, it was missed on a mammography I had in 2010. I was in my early 40s, with very dense breasts, so it was hard to make out. It grew so slowly that I attributed the slight change in the shape of my breast to age, it was a light flattening of the contour only visible from the side when lifting my arm over my head. It was definitely there for a few years! No doctor ever found anything on a clinical exam. Six years later, almost to the day, they eventually found the lump with a digital scan, it did not show up on the regular mammography. Knowing it was there, it was possible to identify it on the mammography from 2010! The lump was in an awkward place, only just palpable, when I bent over backwards with my arm over my head. When I had it taken out, it still only measured 12mm.

  • stephilosphy00
    stephilosphy00 Member Posts: 386
    edited May 2017

    Hi ParisParis,

    Wow ... Does your mass have a low ki67?


  • ParisParis
    ParisParis Member Posts: 32
    edited May 2017

    Ki67 at 5%, mitotic index was weak - there was only one mitosis per square millimetre. I count myself very lucky!

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