Post brachytherapy radiation and surgery effects

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  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    dotter95, sounds very similiar to what I will get tomorrow morning. Do you have little "buttons" where they hook the tubes into? I wonder why you only have 8 treatments? I have to get 10. Wahh! 😂

    Did it hurt at all when they were doing the procedure? Where did they put the 3 rows

  • Dotter95
    Dotter95 Member Posts: 14
    edited February 2017

    Hi - my affected breast is the left one and the buttons are on the side closest to my midline. The open part of the tubes are on the side closest to my arm. The breast looks kind of squished, but really there isn't a lot of discomfort. Absolutely no pain when they did the first treatment this morning ( I am waiting for the second treatment now). They also decided two of the tubes were unnecessary so they were removed. I was worried it would hurt, but didn't at all! I dint have any bruising yet according to the technicians, and where the two tubes were taken out are only little red marks - nothing really. I had no problem sleeping last night, and find taking a tylenol3 occasionally is all I need for pain management. So far so good! Hope your treatment today goes well. Let me know!

  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    looks like we have the exact same set up! Just got home and long day but trying to stay ahead of pain and took pain pill for good measure when I got home. They said today and tomorrow will be the worst of it. I've got 24 catheters also on my left and how you described. May we both fly through this and kill those cancer cells! I'll write more of my experience after a nap

  • Pyrrh
    Pyrrh Member Posts: 119
    edited February 2017

    Wow, the Interstitial method sounds intense! Although I don't know if a series of tiny tubes is really going to ultimately be any different than one grouped up bunch of tiny tubes really. Totally interested in how Fightingirl and Dotter's experience differs!

    Me, breast is still redder than the other one, and still a tiny bit swollen. The incision sealed right up, hasn't leaked anything really. I keep putting neosporin on the fresh gauze pads inside my sports bra. Arm is still moving just fine, almost dangerously so (I teach TKD, and I find myself moving more than I probably should be. Hopefully that won't come back to bite me!)

    Post-Therapy instructions said "no heavy lifting, pushing or pulling until the followup appointment" (which is next week). Probably I've broken that rule a million times ... Uh oh!

  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    I just realized in my drug fog I typed 24 catheters buts it's actually 14! Like you pyrrh I am very red on that breast and it is interesting the different brachytherapy techniques. My RO does the savi technique but he is the pioneer of the interstitial technique so I'm guessing that is why this was offered to me and I have breast implants so not sure if that was part of it too. He is the only doctor in the world to do that technique on patients with implants. Luckily he didn't give me a flat tire yesterday!

    Hope treatment is going well for you guts, I start tomorrow! I'm going to copy and paste my experience yesterday from what I put on our Jan 2017 group yesterday...don't feel like typing it all again

  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    On the way to appt I look at my phone calendar and realize that my cancer brain screwed up again and thought my appt was at 10 but really it's at 11. Call the office because now I've taken all of the above 2 hours early but they tell me to just come and doc will probably be ahead of schedule anyways! Whew!

    First I go into the CT for quick scan. They sterilize the area. Doctor comes in and massages my breast to pull the skin away from my implant. He says I have good bunchibilty which I don't even know if it's a word but made me laugh! They then take a template and squeeze that skin between two clear plates (kind of like a mammogram it it stays squeezed in there throughout) They numbed up certain areas and stuck I'm guessing hollow needles through from one side to the other. They do more numbing and repeat until I have 14 needles going through. Then they take the catheters (long but very thin plastic like tubes) and put those through the needles and tug out the needle leaving the catheter. I did feel tugging but no pain. I go back into the CT so they can make sure everything Is placed well. I go with a nurse to get cleaned and bandaged. At this point I still have very long piece so of catheter that they wrap and fold towards my back and under my new fancy surgical bra I will wear until treatment ends. Went to lunch with the hubby an to had to back 2 hours later. They clipped off the extra catheter sticking out and used some sort of heat gun type thing to seal the catheter. Another CT and a lesson for hubby to clean the areas on non radiation days and done. The physicist also came in at end and not sure what she as doing but she isn't in charge of getting me dosage etc right with radiation. So now I have what looks like 14 buttons on my breast in 3 rows on the right and another 14 on the left. They are about the size of an Advil pill.

    Nothing was terribly painful...some pressure and the tugging but overall pretty easy. The numbness I'd wearing off and I definitely feel it but going to be good about keeping the pain meds in on schedule. So there you have it in case brachytherapy is offered to any of you!

    I left with a calendar print out of my radiation treatments which will be twice daily exactly 6 hours apart and bless the girl who changed Thursday's schedule so I can make my oncologist appt after all. I will pin that calendar to my shirt since I can't be trusted with appt times!


  • ceanna
    ceanna Member Posts: 5,270
    edited February 2017

    Wow! Interstitial brachytherapy sounds so much different than SAVI which just goes in one wound and does not come out the other side. It would be interesting to know why your RO, fightingirl, moved to interstitial from SAVI technique. Keep us updated. Thanks!

  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    I was never getting the savi technique...I just didn't understand previously that there were multiple brachytherapy options! I don't know if savi is done on patients with breast implants? Maybe that was it...could also be that my doctor pioneered the multi catheter technique so that is his favorite? I am not sure really

  • Dotter95
    Dotter95 Member Posts: 14
    edited February 2017

    hi - the SAVI device is not approved for use in Canada, so I guess I didn't have as much choice as those of you in the States! Anyway, I have completed 6 of 8 treatments and am doing really well. Minimal swelling and bruising, and no pain to speak of. I have the last two treatments tomorrow and then tubes out, and all my treatments completed. Hooray!! Now if only my hair would grow faster!

  • ceanna
    ceanna Member Posts: 5,270
    edited February 2017

    Dotter, glad your treatment is going well. What a relief to have the tubes taken out tomorrow!

    Fightingirl, how is it going?

  • Pyrrh
    Pyrrh Member Posts: 119
    edited February 2017

    Here's my milestone - Wednesday night my back was getting all sore (bras do that to me, and this whole 24x7 bra wearing thing is finally catching up to me...) so my husband offered to use our back massager on me. Just to test ... I laid on my STOMACH and it was totally comfortable! I was very excited. I typically sleep on my back but with breaks on one side or the other and I can lay on both sides now :) All within a week of SAVI removal.

    #babysteps

  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    hi friends! I had high hopes of documenting my days with the intestinal brachy but I've been from one doctor to the next these last couple of days!

    By now, you are don't dotter95 and how thrilled you must be! I've had these catheters for 4 days and 5 to go and I'm ready!

    Pyrrh, amazing and bonus you got a back massage...I could use one of those! I am not a back sleeper so I'm stuck to my right side and after a couple nights I feel it in my shoulder and hips and I feel like I'm 100 years old when I get up in the morning. Thank goodness for the Valium my doc prescribed bit only enough for the first for nights after procedure so I'm saving the last one in case of emergency!

    I already commented on the procedure and each day of treatment is pretty much the same. I check in and go back to dressing room and put on the pretty pink open in the front top! Then I sit until my tech comes to get me. She inserts all the coordinating wires by number (I have 14 catheters) The physicist comes in and checks the wires and then a triple check by my RO. They dim the lights and close me in the room and the machine with all my wires starts pushing radiation seeds through each catheter one at a time. My treatments have all been 8 and 1/2 minutes. No pain just feel tapping on the catheters. Then the tech Comes back and unhookes all the wires and I go off to an exam room where another tech cleans all around the catheters, stuffs my beautiful surgical bra with padding and off I go until I come back for round 2 six hours later.

    I too am going nuts in this 24/7 bra. I would never wear one if I didn't have too. Very cruel invention!! What was that person thinking???

  • ceanna
    ceanna Member Posts: 5,270
    edited February 2017

    Ooooh! The massage sounds wonderful! Dotter, I hope you're all done! Let us know how you're doing. Pyrrh and Fightingirl, I'm so sorry you're stuck in surgical bras. Sounds uncomfortable. I, thankfully, was given, and bought another, cozy, firm but soft textured breast binder (much like a tube top with Velcro opening). I wore one 24/7 during rads to hold everything in place and for another week or two, and it was handy when I went in for rads. I wore it under a jacket as a top and could just zip open the fleece jacket and undo the Velcro on the table--no cute little pink front-opening top for me!! Best wishes as you finish up next week Fightingirl.

  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    thanks ceanna! Have a great weekend

  • Dotter95
    Dotter95 Member Posts: 14
    edited February 2017

    hi all - well, I'm all finished - EVERYTHING! So I was doing the happy dance this past weekend!

    My last Day of brachytherapy was uneventful - the best kind! When the tubes were removed, there was no pain - actually couldn't even feel it. There was just a sense of relief as the pressure caused by the squishing of the breast was released. Now, three days later, there is minimal swelling of the breast, and the entrance and exit points have healed and are small round red spots. No redness around or signs of infection. During my treatment, I didn't wear a surgical bra, just a stretchy tank top with a Guaze pad between it and my breast. I can't tolerate tape of any kind. This worked even as I slept, and I certainly recommend it as it was comfy. Guess it would only work if you have smallish breasts, though. Each treatment, the radiation techs applied polysporin around each button to prevent infection and to keep the tubes lubricated and loose so removal would be easy.

    I have found brachytherapy to be a great choice for me and I am really thankful I fit into the criteria. The surgery aspect was a bit scary, but in retrospect not so bad. The short treatment time and no skin issues plus the benefit of still having rads in my arsenal should I ever develop BC again has far outweighed the surgery issue. I would do this again in a heartbeat.!

    Fighting girl - you will be finished tomorrow I think. Hope all goes well for you - please let me know!

    Pyrrh, so you are able to sleep on your stomach again?! I'm not quite there yet but it sure will be nice to be normal again!

  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    that's great Dotter95!!!! I'm so happy for you and I'm glad it doesn't hurt to get the tubes out because I'm already worried about that. Unfortunately. I did get an infection but I've been on antibiotics since day 1 of radiation and mine is actually finished on Wednesday! I cannot wait for that relief as I am stuck in a surgical bra and I miss showering!!! I've got 4 down and six to go! I will be 1/2 way done at my morning treatment today so just trying to focus on that

    Congratulations my friend! I hope you have a wonderful week!

  • Pyrrh
    Pyrrh Member Posts: 119
    edited February 2017

    Hi Dotter - I didn't sleep on my stomach, although I suspect I could. I did lay there for a good 20 minutes as my husband ran that vibrating back massage thing up and down my back. Ahhhh! I do concur with your summary regarding brachytherapy (thankful to have the option, thankful to have the potential for radiation in the future if needed, and the whole thing was not nearly as creepy as it seemed like it would be.

    Fightingirl - you are so close! It will be over and done before you know it - even with the weekend in the middle of treatment.

    As for me, I have my surgery followup today, and radiology followup on Wednesday. The swelling seems to have completely left the building last night (although there is still a tough seroma or something at the tumor location). Biggest problem is that my nipple is extra sensitive right now (not in the good way either!). Thought I'd try sleeping bra-less but the rubbing of the t-shirt going by was a bit much, so I put it back on. I'm sure I'll be there soon enough!

  • Dotter95
    Dotter95 Member Posts: 14
    edited February 2017

    hi - I was really sorry to hear that you did have infection. Thank goodness for antibiotics! Hooray on you being half done now, and 6/10 by the end of the day! Wednesday will be a great day - you should plan your party!

    Joan

  • kroop73
    kroop73 Member Posts: 22
    edited February 2017

    Hi ladies,

    I hope all had a good day today with all your treatments and recovery. I got good news today from my surgery last Friday. My margin and lymph node is negative for cancer. Praise the Lord! Now we are ready to begin brachytherapy.... and we start the process tomorrow! My surgeon is going to place the balloon/catheter inside my breast where the lump was tomorrow morning at 7am. I will go to the Oncology radiologist on Thursday for ct scan and test to get me ready to begin. I will start on Monday 02/20 thru Friday 20/24. This is all happening so quickly! No time to slow up now.... I'm ready for this to be done! Hang in there ladies, we are survivors.... we will come out victorious! Thoughts and prayers with you all!

  • Pyrrh
    Pyrrh Member Posts: 119
    edited February 2017

    Kroop, so glad you came over to the thread! It is interesting to hear about all of the different brachytherapy methods! Congratulations on the good pathology report as well.

    Hey Fightingirl you are OVER HALFWAY DONE! Your treatment hump day is past! I'm already thinking ahead to your wonderful Wednesday evening to come when this phase of treatment is DONE!!!!

  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    yay kroop73! You will rock this and be done before you know it!

    Thanks pyrrh, it feels good just thinking 2 more days now. The weekend was the hardest having these catheters in but no treatments happening! I'm so ready to get it done. Eye of the tiger now.

    Now if I can only decide if I am up to taking tomoxifen for 5-10 years? Part of me wants to say this is it. I'm done and not putting anything else in my body but I just don't know.

    Will any of you be on tomoxifen?

  • kroop73
    kroop73 Member Posts: 22
    edited February 2017

    Thanks Fightingirl! Hang in there, you are so close!

    Thanks Pyrrh! I am pleased with my results!

    Fightingirl and Pyrrh I did find out the name of my brachytherapy is "Mammosite" which is the balloon therapy. I should be able to give a better description after tomorrows placement.

    Fightingirl, I will be taking tamoxifen for 5 years I think. :-)

  • Pyrrh
    Pyrrh Member Posts: 119
    edited February 2017

    Oh yes, Tamoxifen and I will be "best friends" for between 5-10 years, yet to be determined.:)

  • Dotter95
    Dotter95 Member Posts: 14
    edited February 2017

    I'm also starting tamoxifen for 5 years.

    Fighting girl - almost done! Hang in there!

    Kroop73 - glad you have joined the group. Keep us posted on how it goes!

    Happy Valentines Day to all of you!

  • annoyingboob
    annoyingboob Member Posts: 558
    edited February 2017

    dotter, congrats on being DONE! I start tamoxifen in early March, so keep us posted on your experience with that!

    Happy Valentine's to all of you RADiant beings!!!!

    Xx


  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    okay ladies! 8 down and 2 to go! 1 more night sleeping with these tubes, and 1 more day until a real shower! Can you tell I'm excited? 😁

    It has been uneventful but I've been extremely tired. I napped for 2 hours between appointments today and yesterday I think I slept for over an hour and woke up thankfully in time to brush my teeth and jet out for round 2. There will be no time for napping tomorrow as it's a full day...radiation, physical therapy, MO appt, then FINAL round of radiation. I may have to drag myself to the finish line but I will do it!!

    Best of luck to all and annoyingboob, ❤️ The RADiant beings and you!

    Happy Valentine's Day my friends

  • ceanna
    ceanna Member Posts: 5,270
    edited February 2017

    Happy Valentine's Day everyone!

    Heart

    Fightingirl, glad you're almost done!! That shower will feel so good!

    Smile

    I choose not to take tamoxifen due to contraindications with genetic heart problem. Only time will tell if that was a good choice.

    Loopy

  • Fightingirl
    Fightingirl Member Posts: 409
    edited February 2017

    ceanna, I'm very much considering not t.aking it but going to discuss with MO tomorrow and see

  • ceanna
    ceanna Member Posts: 5,270
    edited February 2017

    Fightingirl, I found the MO I saw pushed the tamoxifen, but I then saw a specialist who helped me weigh the odds. One question I never did get answered (and I also asked it here on BCO) was whether or not it was better to not have started tamoxifen or to start it and then stop after a short period if things turned south with my heart. You may want to skim the tamoxifen threads although it appears to be a mix of experiences when members have taken or passed on taking tamoxifen. I'm almost 2 1/2 years since diagnosis--so far, so good.

  • kroop73
    kroop73 Member Posts: 22
    edited February 2017

    Happy Valentine's Day, ladies! Just thinking of all you brave, beautiful souls tonight.

    Hang in the fightingirl, the finish line is in sight!

    I had my balloon catheter implanted today. My type of catheter is called a mammo site. They made an incision, inserted the balloon and inflated it. I was put to sleep for the procedure. My BS said she left it open to drain. She gave me Levaquin to take for the duration of the rads. She also prescribed more pain meds. I have a surgical bra that zips and hooks in the front. I have one tube protruding from the incision with about 5 lead wires and 2 tubes (sorta like IV tubing) inside that tube. I go to the onco radiologist on thursday to have the placement checked and who knows what else. I will wear this bra for 10 days. I start the rads next week, Mon-Fri 20-24th. Now the interesting part begins..... how to sleep and sponge bathe. I will admit its tight, uncomfortable, itchy, and I'm in some pain.

    Thanks ladies for the encouragement. I will do my best to share my experience everyday. I encourage all of you as well to keep fighting the good fight! We will conquer! God Bless you all!


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