Radioactive Injection into Nipple NOT TERRIBLE

124»

Comments

  • stingraysusan
    stingraysusan Member Posts: 9
    edited January 2015

    Wish this option had been available to me the morning of my mastectomy for Stage 0 DCIS in July, 2013.  Checking into outpatient, they wheeled me to nuclear medicine and gave me the four shots to the nipple with no sedative, no deadening. The pain was more intense that anything I have ever experienced, but the pain did not last a long time afterwards. I was able to have the simple mastectomy done under IV sedation (since I have severe reactions to general anesthesia) in outpatient and was home by 3PM same day.  The mastectomy did not hurt as bad as these injections and I was driving 5 days after the surgery.  Luckily, the nodes were clear, so no further treatments.  I have MRI's/mammograms every six months now and so far all is okay.  Wish they would do this injection part while we are sedated during the surgery somehow.  Thanks for your post.

  • mom2threeboys
    mom2threeboys Member Posts: 100
    edited January 2015

    I'll chime in with my experience with the "nipple injections". I'm sorry to hear so many have had such bad experiences. Reading all of your stories helped me to prepare and made me experience much more bearable. I went on a fact finding mission of sorts, asking lots of questions of the mid level providers (NPs and PAs). They would not prescribe numbing cream and the nuclear techs would not use separate shots of xylocaine to numb prior to injection. They did say nuclear med would give numbing cream 10 min in advance.

    I knew from reading on here as well as the pharmaceutical website that the cream's optimum numbing capability would take more than 10 min so I checked in early and nuclear med was fine with me putting the cream on in advance. I also had pain and anxiety meds for ongoing pain from fracturing my spine and 2 ribs several months ago and my surgeon's office cleared me to take those. Finally, for me I had 2 injections around my tumor site and two around the nipple.

    I felt no pain, but only because my BC sisters had prepared me :-) I was very careful to check with medical professionals before doing any of this, especially since we are only 24 hrs pre surgery. Don't want to cause complications or delays there!

    So prepare in advance, ask questions and double heck everything with your doctor's staff. Good luck to everyone!

  • greenae
    greenae Member Posts: 540
    edited February 2015

    Hi Shari and friends

    My injection is wednesday...and reading this entire thread has Scared me. I Hope to have an experience like yours. What do you think if I take a vicodin an hour before and a xanax a half hour before. I know my anxiety levels can skyrocket. I am usually ok with pain but awful with anxiety (The MRI-lol). I just want to not being worrying about this for the next 5 days. My step-son's graduation party is tomorrow, and I Have to be normal. I thank you again for all your great advice. How are you doing? Sending you HugS!

    love, arlene

  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    Hi Arlene! I take an Ativan for the MRI- I find that it relaxes me enough to stop the reality of being sucked Into a round coffin! So I understand the anxiety. I found one Ativan before the nipple injection was great! It totally relaxed me and I didn't feel pain. I didn't care! I would talk to your BS and explain your anxiety and request something- they will know what and how much to give you. Don't accept them trying to tell you it's no big deal, it's your body and anxiety and just let them know that you tend to work yourself up and you feel that with meds nowadays there's no need to go through with procedures under duress! You'll be fine and have funat the party and celebrate!

    Shari

  • trailrose
    trailrose Member Posts: 219
    edited February 2015

    On the morning before my BMX I had the radioactive dye injected around my nipple. They first gave me an injection of a numbing agent then the dye. I felt no pain! I hope others will have the same experience.

  • slv58
    slv58 Member Posts: 1,216
    edited February 2015

    I think the problem lies in the fact that there are such varying degrees of reaction and if you happen to be one of the unfortunate ones who does have a negative experience it's too late to ask for RX to reduce anxiety/pain. I asked the nurse about the numbing injections and she said it would then be like having twice as many injections and said that after the Ativan if I felt anything she would stop and give me the lidocaine injections. I just looked away (so did my hubby!) and was fine. Thank you Ativan

  • greenae
    greenae Member Posts: 540
    edited February 2015

    Thanks, Shari

    My BS said it's 30 seconds of pain. I say why? Why any pain at all, when there are ways to avoid it? I am going to call and see if I can take a vicodin and/or xanax. She already told me, "No lidocaine." And if she says no to the meds, I just may take 'em anyway. lol

    arlene

  • downdog
    downdog Member Posts: 1,432
    edited February 2015

    Arlene, if you think a xanax will help you, others have taken them, so do what it takes to help yourself. I had a SNB last month and my personal experience was that it wasn't that bad. My hospital does one injection at the edge of the areola. It is performed by a nuclear tech. I received mine 2 1/2 hrs prior to surgery and did not receive the blue dye during surgery. No numbing cream was offered, but the female tech was so nice and very gentle. I could feel the radioactive tracer as it entered and it was very uncomfortable. Not sure if anyone mentioned this earlier, but if your hospital wants you to come in the afternoon prior to your surgery for your radioactive tracer injection, you will receive a larger quantity of the isotope. Depending on the half life of the specific isotope your hospital uses, you have to receive the quantity that will ensure that there will be a sufficient amount at the time of surgery. For example, the tracer I received had a half life of 6 hours, so if I had gone in at 4:00 the previous afternoon, I would have received about 6x the volume that I received the next morning. If you are scheduled for the first surgery of the day, you will likely be scheduled to have the injection the day before.

    Just to clarify about half lives of radioisotopes. With mine having a 6 hour half life, this means after 6 hours it is 1/2 strength, after 12 hours it is 1/4 strength and after 18 hours it is 1/8 strength, which is why they need to give you a greater volume if you receive it the day before.

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited February 2015

    It's ridiculous not to include the lidocaine. There are studies showing much less pain and trauma when lidocaine is provided as part of the procedure. Whether or not women are anxious about the procedure, they have a right to know that everything possible will be done to minimize pain and discomfort.

  • greenae
    greenae Member Posts: 540
    edited February 2015

    I agree! It is barbaric. And I am going in the day before because they won't have a surgery time for me until that day. I don't want to have to go to the hospital thursday am for tracer and then have to sit around all day waiting for the surgery. ugh. Do you think the vicodin would matter?


  • ironmagnolia
    ironmagnolia Member Posts: 85
    edited February 2015

    After reading on this site about this painful procedure, I asked my BS prescribe Emla cream to deaden my nipples. I had bilateral MX so both sides were injected. I felt the Emla cream really helped. I felt the injections but they were bearable and the discomfort was not nearly what I had expected. I applied it at home about 1 hr before the procedure.

    I was more scared of the injections than of the BMX and DIEP, as I had had my first breast biopsy done without full anesthetic effect. Apparently I need more Lidocaine then most folks so the usual amount did nothing for me. At my first biopsy, I felt like a nail gun had been shot into my chest. Twice. I ended up sobbing uncontrollably on the table, upset everyone in the room, including the radiologist performing the biopsy who apologized profusely over and over. I am normally pretty stoic, so this was not a common response for me. She immediately gave me more Lidocaine, waited for it to take effect and the rest of the biopsy was very tolerable.

    This experience made me very skittish regarding the nipple injections. But the Emla was very helpful.

  • greenae
    greenae Member Posts: 540
    edited February 2015

    Thank you, ironmagnolia...I am going to ask my PMD for some EMLA

  • trailrose
    trailrose Member Posts: 219
    edited February 2015

    They gave me an injectable numbing agent prior to injecting the radioactive dye. I did ask if it would hurt and they said the worst you should feel is a bee sting type of feeling.

  • jjsquire
    jjsquire Member Posts: 1
    edited January 2017

    I had this procedure done yesterday and it didnt hurt at all. The needle is very thin. I felt a tiny burn that lasted a few seconds. That was it. After that they sent me down to mamography to insert a wire. My mass was about a centimeter and they had left a marker when they biopsied it. The most uncomfortable part of it was the mammogram. Other than that, it was no big deal. I am a wimp by nature, hate needles and have a low tolerance for pain. Try not to feed into the negative. I made it through both procedures and then went on to have the "mass" removed.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2017

    jjsquir, welcome to our Community and thank you so much for sharing your experiences with this procedure. It's always helpful for our members to read this kind of posts!

    We're super glad that you've found us and hope the forums are helpful and easy to navigate.

    Let us know if you need help with anything.

    Kind wishes to you,

    The Mods


  • Shaz1970
    Shaz1970 Member Posts: 42
    edited February 2017

    Thanks for sharing jjsquire. It was good to see a recent log of how it is. Mine is on Monday, and was feeling quite anxious reading some of the 'horror stories'

  • cliff
    cliff Member Posts: 290
    edited February 2017

    the sentinel node injection. enough for me to barely survive. even on men, that HURTS. seemed enough to bring someone straight upoff the table ready to kill. fortunately I didn't, but did to my embarrassment start cussing. no "numbing cream" was used.

  • Tpralph
    Tpralph Member Posts: 487
    edited May 2017

    i had two injections close together and the first certainly felt like a wasp sting for maybe 5 seconds the second one was maybe 1/3rd of the pain. I used emla but don't think it helped at all as I still felt the alcohol swab. Only stings when they inject. Better than I thought but did make me wince

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2017

    I'm anxious about this. I am scheduled for surgery next week. My surgery is very early in the morning (I will arrive when the surgery center opens), so they are having me get the radioactive injection the afternoon prior. (The surgeon will also do the blue dye the day of surgery, but after I'm sedated)

    I'm worried because my breasts are small, dense, painful, and full of cysts. They are sensitive on their best days. I call them my "autistic breasts" because of their sensitivity to everything.

    I've had a lot of fine needle aspirations over the past decade and the only one that hurt was the most recent one just last month on this breast near the nipple. I was cussing and crying on the table. Previous aspirations were painless or virtually painless.

    I also sometimes get a vasovagal reaction. The fact I'm stressed, haven't been sleeping, I think makes it more likely to happen. Also if the procedure is painful it happens. So of course now I'm also anxious that I'll have that (extremely unpleasant, I feel somewhat traumatized for a couple hours after it happens)

    This breast has been through a lot this year including a surgical excision. (I had pain in this breast in January and there's so much benign stuff going on in it, the cancer wasn't diagnosed until this month) I haven't been sleeping since cancer diagnosis. I'm crying every day. I can't work. I just feel like I can't take any more.. and the cancer treatments are just starting. All this, combined with the fact I'm having it the day before (so more volume of dye I'm afraid means more pain) I'm stressed out.

    I called the surgeons office today to ask how this procedure is done. She said it is is near but not in the nipple, it is one injection, and it is numbed. That sounds good I think but I'm still anxious about it.

    I also told her I'm having a hard time sleeping and they recommended Benadryl or melatonin.

    Some moments I feel ok but other times I feel like my anxiety/stress isn't being handled. I've never been on any drugs for anxiety or depression. I've never felt like this before. I don't have a psychiatrist or anything. I don't know what i need or how to ask for what I need.



  • gb2115
    gb2115 Member Posts: 1,894
    edited May 2017

    hey Epic...My radioactive injection didn't hurt any worse than a flu shot, really. And only the shot hurt...i thought the radioactive isotope in there felt weird but it didn't hurt. And you won't feel the blue dye they give you during surgery. Be prepared for a bright blue breast and blue pee when you wake up though!

    I was anxious too though. Maybe think about asking your surgeon for an anxiety med...my surgeon gave me a 6 pill Ativan prescription for moments just like that. It's not like you would take it all the time. And if you need to then it's time to talk with someone. There are excellent therapists out there (I have a super helpful one that I adore), and anxiety can be successfully treated. Cancer sucks and will make you anxious, but if you can take steps to ease that it's worth it for your own emotional comfort.

    Incidentally, I barely slept for a month after diagnosis...Sat up most nights watching movies. It eventually got better. This is a horrible season but you will get through it. Think of it like a season...Seasons come and go like waves on the beach. Please keep us updated!

  • dp1
    dp1 Member Posts: 21
    edited May 2017

    I had my injections done yesterday before the surgery. The nurse put a numbing cream beforehand and later the doctor did 4 injections around the nipple. He said the solution was half Lidocaine mixed with the dye. This made the injection very bearable. I was so nervous, but it was not that bad and I was relieved when it was over (within seconds). Try not to stress out about this too much. Oh, they did give me a Xanax beforehand to relax

  • sunnyjay
    sunnyjay Member Posts: 238
    edited May 2017

    I had 4 injections a week ago, the afternoon before my surgery. My nurse navigator explained the procedure prior, and said it would feel like a tiny sting. Then I read other experiences on here and made me prepare for the worst. Right before the injections took place, the technician sat me down and explained the procedure. Since it was going next to the nipple, I needed to be aware that that is a very sensitive area. They could not put any creams beforehand and didn't want to inject anything prior because they didn't want to stick me 8 times. but there would be lidocaine on the needle. This whole dialogue didn't make me feel at ease. Before the radiologist came in to do the procedure, she put a stress ball in one hand and said she would hold my other hand. I was really anxious by this time! The radiologist came in and explained what he was going to do, and said it would be really quick and I would just feel a tiny sting. And he was right! I was stressed over something really minor. The first 3 were like a tiny pinch, and the last one was more painful than the others, but felt more like a deep needle poke during a blood draw. Good luck to those who are undergoing surgery soon!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2017

    I just had this done (today, in advance of surgery tomorrow morning) I was very nervous about it and my breast is very sensitive -- I've had two very painful core needle biopsies, a fine needle aspiration and mammograms on this breast this year, all painful due to fibrocystic breasts, cysts and inflammation.

    THIS was not painful. Here is how it went for me:

    The technique they used was a single injection that included lidocaine in the injection, mixed in with the tracer. The injection was given at the edge of the areola. I said I was nervous and my breast is sensitive, so they sprayed a cold numbing spray on a few minutes prior.

    They said I would feel a prick and that I might feel the fluid going in, there might be a little burning but not too bad. I didn't feel any burning or pain. The prick was really nothing.

    It did take a solid couple of minutes for the shot, for it to all go in (if you have this done the afternoon prior, they have to use more of it, and the lidocaine adds volume as well) Mostly I felt NOTHING after the initial prick. Twice I did feel kind of pressure for a second or two, like it was GOING to hurt, but then it didn't.

    My breast now, about an hour later, feels a little weird.. hard to explain, but definitely not painful.

    Call ahead and ask what technique they use and see if you can find a place that uses this technique of the lidocaine mixed into the tracer.

  • skelly
    skelly Member Posts: 8
    edited June 2017

    Hello. I was recently diagnosed with BC, stage 1, and had a lumpectomy 3 weeks ago. Waiting for results of my oncotype, before further treatment. I am so glad to have found you folks! I have been reading up a storm, here. You all seem so supportive. I hadn't read about injections, prior to surgery. The surgeon explained it all but to be honest, I was pretty shell shocked in those first few weeks, and didn't hear most of it. I didn't get numbing cream, and my injections hurt. The first two were not that bad, but the third hurt, and then the dr. said, "Now, this one is going to hurt!". Oh. My. If I had a choice, I would definitely ask for cream. The irony is that they were unable to trace my sentinel lymph node, so I still had the dye injection after being put to under, and got to pee blue for the next 24 hours.

  • SoniaL
    SoniaL Member Posts: 131
    edited September 2017

    What is the placement of the wire I keep reading about in this procedure? What is the wire for and does it stick out of your breast?

  • Motherofall6
    Motherofall6 Member Posts: 65
    edited November 2017

    I hope Friday I have your exper

Categories