Post brachytherapy radiation and surgery effects
Comments
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I use aqua for on my lips like a thousand times a day pyrrh! It can always be your lipgloss! I don't really like lipstick and I'm weird about my hands and lips being dry so aquafor is in my purse, my desk at work, and in my bathroom! I don't leave home without it.
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Day 3, visit one is done. I am much more tired today, but that could totally be due to the fact that my cough kept me up all night. LOL. 5/10! Half done! HUMP DAY!
Nothing special happened today, but I am trying to think of something I didn't tell you yet. Oh, after treatment is done (which is behind a HUGE THICK door that is electronically controlled for opening and closing) the physicist comes in with this yellow sensor thing. It sort of looks like a mini-vac. It's their 3rd check for loose/rampant radiation I think. The machine checks, there's a box on the wall with a blinking light that checks, and then they wave the mini-vac around.
They also take my blood pressure and heart rate once a day. Rather uneventful.
I had them sign my form for a program called "Cleaning for a Cause" - they try to hook up a cleaning crew with a cancer patient for a cleaning (maybe more than one? A girl can dream...). I hope they can schedule something. I am totally able to clean my house, but it would be real nice to not have to and to use that energy for my family
EDIT TO ADD:
Okay, finished the 2nd treatment of today. Nothing notable, except for them being horribly behind schedule. Ahh, if that's the worst thing to happen in this whole thing.
I took a selfie of the catheter poking out for posterity. The nurse walked in (he's a man) and laughed and asked if I wanted him to take the photo. Turns out my selfie was fine. I asked him if I was the only lady taking boob selfies around here and he said it is pretty common. Anyhow, two more days.
2nd EDIT:
I just remembered my new factoid for the day - I guess my treatments are short not only due to the new "source", but also because my catheter is a mini. They told me the lady after me has a large sized catheter and her treatment is 4x as long (which is still pretty short, but nothing like my 3:45...)
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yay for minis!!!! Thanks so much for the play by play pyrrh!!
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love it pyrrh! Only 6 days until I get my catheter and you my dear are easing my mind so much about this whole bit. I don't know if mine will be the same type but close enough and I'm grateful for the detail of what to expext
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Home from Day 4, Part 1. Easy Peasy.
Thoughts for the day, which I don't yet have answers for: Do the bigger catheters have more channels? How many different size catheters are there? The nurse and I were chatting, and those were questions we came up with.
I'm less tired than yesterday, although perhaps ever so slightly light headed. I slept great last night, which probably is helping the feelings of tiredness. Three more treatments and out it comes!
EDIT: OK I found a SAVI training slideset (sheesh, you can research almost anything these days online...). It appears there are 4 sizes of SAVI. A 10-1 (11 channels), an 8-1 (9 channels), and both a 6-1 and a 6-1 mini (7 channels). The biggest one is 7.5 cm long (referencing the bulb part) and 5cm diameter, going down to 5cm long and 2.4 cm diameter for the mini. For those who want to know more than the average person probably ever wanted to know about setup, here's the link to the slideset.
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Pyrrh and fightingirl, I was told the size of the device was based on the size of the breast and the location of the LX. I don't remember the size of the SAVI device I had but it had 7 channels and seemed big. It ran along the top of my breast from the right side of my right breast to the 2 o'clock position. I didn't have pain but just an uncomfortable feeling while it was in. Pyrrh, I'm sure others will find your day-by-day account of the treatment helpful. I wish I had known as much before my treatment but still very glad I choose brachytherapy. There are other threads on this sight that also provide helpful info about brachytherapy and beyond. I'll come back and cut and paste the links shortly when I'm on a device where I can do that.
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Ceanna - thanks for chiming in
Everyone (and I mean everyone) comments on how mine is in a great location, which probably is a huge contributor to why I am so comfortable. The tumor was in the 6:00 position, so the "tail" location that protrudes from me comes out under my arm and tucks neatly in the side of the sports bra I purchased.
The slideset I linked has a chart which determines which of the devices you get. It's based on the length and diameter of your cavity.
I have been taking Tylenol all week, not that it has been hugely uncomfortable (I only really notice it occasionally) ... but I take it before I sleep (theory there, the more sleep I get the better healing I go through), and before each appointment (just in case I get an air pocket and have to be "massaged" LOL). Since it's a 6 hour medicine (my Tylenol) I'm covered most of the day. it does wear off in the evening and then again during the night, but I don't notice a significant change in how things feel.
Will look forward to links to other good threads!
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Okay, Day 4 is officially history. I had an air bubble again (sigh) but I think the Doctor did her best to be more gentle this time and it didn't hurt AT ALL. She probably didn't like it when I jokingly said that she was no longer my friend as she reached for the gloves. LOL.
I asked about the catheters, and whether the majority of my radiation is going in that center catheter (true) with a very small amount running up and down one of the side catheters. (On my SAVI, there are 6 channels around the edge of the space, and one that goes right smack dab down the middle.)
they told me about removal tomorrow - they will put a lidocaine gel in the hole, and then about 10 minutes later reduce the size of the "whisk" part and pull it out. They will leave it open rather than stitch it closed, so the liquid and junk can drain out. Said I can shower mid-day Saturday and that every time I am in the shower I should massage that part of my breast to encourage the junk to run out while I am in the shower. Sounds gross!
8/10 in the books
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Pyrrh!!! Almost done!!! By this time tomorrow you will be free of the device and feeling relieved! That first full shower will feel so good, trust me!!! I'm glad they are doing the lidocaine for you. I had a little rush of pain when they removed my SAVI device--but they hadn't told me what to expect (I think on purpose) and I was not numbed so it was a surprise, but over very quickly, and no lasting pain. Remember, too, my device had been in 10 days instead of your 5 so was probably a little more embedded!
Yes, they do not stitch wound closed and it must close by itself. I'm a slow healer and mine took a few weeks to fully close but only minimal drainage so a gauze pad in my bra did the trick to contain the liquid. After 2 years I still have a slight scar but I didn't try any scar removal cream either after wound healded so maybe it could be less noticeable if I had tried. Just make sure you keep the wound clean until it closes to avoid any chance of infection. I had been on antibiotics while having the device in as a preventative measure and had prescribed antibiotic ointment on gauze pad after. Not sure everyone is put on antibiotics.
Earlier today I had promised you links to other SAVI/brachytherapy threads and after re-reading through some of them, some of the info seems too old or too negative so I'll just add links to the most recent two. As you read you will see some people did not have as good as an experience as you have had, but overall, I think most people were glad they chose this form of rads.
https://community.breastcancer.org/forum/70/topics/783640
https://community.breastcancer.org/forum/70/topics/842473
Keep up your daily reports of treatment and tomorrow's removal--I'm sure others will benefit. Even after 2 years, I still try to pop in to any new threads or questions newbies have able brachytherapy to answer questions and encourage. BC stinks, but having information helps! Thanks.
Edited to get 2nd link to work!
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almost to the finish line pyrrh! How excited you must be! Thank you again for the day to day.. it is very helpful and like I said I'm much less nervous about my treatment in a few days. The only thing I'm worried about now is the fact that they are closely wat hung ,e for the lymphedema so I cannot get an infection and I know there is a considerable risk of that. I will have to be very careful but I still think 5 days is the way to do if you can do it
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yes pyrrh!! So proud of you!!! You are like a souped up jeep driving over rocky terrain, just bulldozing through - go girl!! I'm curious how your energy level has been through this? Any new exhaustion or status quo?
Thanks for the dailies! You put a big smile on my face and if you can do it, so can the rest of us!!! Enjoy your shower!!!!!!! Xx
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Hey Annoyingboob (btw, I giggle everytime I read your screen name here. I find this whole situation on my boob to be super annoying as well)
Energy has mostly been fine. I was most tired on Wednesday, but at this point I am going to blame that on the fact that my cough kept me up a lot of the night. I felt fairly normal today. We'll see how tomorrow goes!
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Back from my morning treatment on my LAST DAY! I showed up a little early and they invited me right back (LOVE it when that happens!). No air bubbles today, even though the dog pounced that side of me last night. phew! Slept well, didn't even wake up with my cough.
They told me that one time a lady wanted to keep their SAVI - since I want to also, I asked if that was allowed and the technician said "sure, whatever you want". LOL. Sort of a fun souvenir to show people what it is all about. Even though mine is a mini it's much bigger than I initially imagined. What do you guys think, gross or cool?
The shower tomorrow will feel great, but I haven't had too hard of a time of it - washed my hair in the sink (the techncian thought that was a bit much on the movement, but I really didn't move much...) daily, and did thorough sponge baths. Except for the part under the sports bra I am as clean as I usually am. The mesh tube top is getting a bit itchy though. I can imagine it would have been worse with tape coming on and off my skin on that side, so I'll deal with a bit of itching.
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yay pyrrh!!! You did it!!! For sure keep your catheter. I would prolly frame mine but I wouldn't want to look at a constant reminder of tough times. In no time this will all be a faint memory! Maybe have a special box of BC memorabilia and put it there? Maybe get the techs and ro to sign it too!!!
Congratulations! Super proud of you and thank you for walking us through your days!!!
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Napping away the day until my afternoon appointment. I think I will ask for the device.
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ONE MORE!!!!!!!!!!!!!!!!!!! Wahoo Pyrrh! Thanks for being our radiation warrior! Why not keep the device...kinda cool, I think! Enjoy your nap and next Thursday I will start accounting for how mine goes because I think mine device is different...not SAVI. Plus I think normally people don't get as lucky as you to have it done in 5 days. Mine will span 10 days so I will do my best to document for others as you did!
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pyrrh, almost there!!! I had thought about asking for my device, but when I saw it after being taken out, I changed my mind. Kind of gross! Naps are good! Best wishes for the removal and let us know how it went!!
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I am **all done**!!!!!
No air pockets, fast treatment (yay for minis and new sources) then I went in my normal "get bandaged up" room. The nurse put lidocaine gel in the hole using a syringe and a very very tiny rubber "not a needle" (it was flexible) then I waited about 10 minutes. The doctor came in, we chatted for about 30 seconds, he collapsed the catheter and just pulled it out lickity split. Didn't even sort of kind of hurt. Just a pulling sensation.
Some of that seroma fluid came out (which is normal) and when that stopped they put neosporin on it and a pile of bandages. I get to use the tube top for one more night to hold bandages (it was that or use tape). Said it would probably close up in 3-4 days, and I can shower tomorrow. Massaging it in the shower will allow the goop to run out which is a good thing.
They also gave me my SAVI SISTERS pin.
I did ask for it, and they cleaned it off real good then put it in a biohazard bag. The mini is so much smaller than the example ones they showed me! It's way tinier than I thought it would be.
Now I just get to wait for the repeat Oncotype test, and hope that it also comes back super extra low (the first one scored a 2, but the MO doesn't believe it... LOL)
Good luck with your rads next week Fightingirl - can't wait to hear about how it goes with your system. I am sure it will go great! <hugs>
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you did it!!!! Congratulations!!! Here's hoping test comes back at a 2 or a 1 - wouldn't that be super??!! Have a great weekend with a nice long hot shower!xx
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yay!!! Celebrating with you!!! That shower is going to be amazing! Glad you got a couple souvenirs to remember this battle! Thank you for sharing and I will definitely document my journey as well! ❤❤
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Just found this thread, thanks for sharing your treatment days with us. You are a warrior, Pyrrh! I too will probably be undergoing this type radiation. Its very helpful and encouraging hearing your experiences pyrrh and ceanna. Now we will support fightingirl on her journey through this next phase. God bless you all!
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Pyrrh - What a trooper! Thank you so much for the play-by-pIay...it really helps to know what I might be looking forward to. I ended up calling my MO and asking for a referral to an RO that does brachytherapy. I should have it tomorrow and be able to make an appt. Good thoughts are greatly appreciated! I am really hoping this works out! A shorter treatment plan would be heavenly! I wouldn't have the hair washing issues that you did :-) My hair is just starting to grow though and I am tickled pink about that!
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Awesome, kroop and BeachBaby
I can't wait to hear how it goes. I suspect I was on the extreme end of "it was a non issue" ... and hope you are also there as well!
BeachBaby - no issues with washing hair, just bent over the kitchen sink and washed it right up. I actually felt pretty clean all week except for the itchy part under the bra.
All - so after yesterdays shower I got a good look at my two breasts side by side ... the radiated one is a bit swollen, and pinker than the other. There was a seroma on the bottom where the device was, but even though I was told that massaging it would cause the liquid to run out the incision it did not. Just a tiny seroma though, so I wasn't too worried.
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Pyrrh, glad you're doing good, but sorry for the seroma. I had a seroma after the lymph node biopsy which bothered me for 3 weeks but finally started healing within two days of starting the brachytherapy!! I didn't get a SAVI sisters pin--they look cool!!
Fightingirl, best wishes as you start the procedure this week. Keep us updated. To kroop, beachbaby, and anyone else looking at brachytherapy, good thoughts for you all. I hope you qualify and have great results. I have always been glad I choose this route. I think more would choose the brachytherapy option if it were offered in their breast centers.
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thanks ceanna! Just one more day and 3 glorious showers until I get started! I'm going to take a really long shower tomorrow night since tues morning I have to be there somewhat early! I'm ready to rock the brachy!
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Fightingirl. You rock! Good attitude. It will go a long way to make it the best it can be. I found some large cleaning wipes used for bedbound patients and used those to feel more refreshed without showers, but also cheated a little by leaving on my top and using a handheld shower very carefully on my nether regions! I've heard of someone who used a beautician's cape too and a handheld shower. Just don't get the area wet. All the best this week.
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Hi all - I'm so glad to have found this site. I have been trying to find out how easily this type of radiation is tolerated. I decided on brachytherapy for a couple of reasons - the short treatment time, minimal burning and the fact that you can have radiation again if (God forbid) you have BC again. I live in Ontario, Canada, and there is a Brachytherapy specialist at the breast cancer center. He does interstitial brachytherapy, where small flexible tubes are inserted into the breast one at a time under a general anesthetic. The end result is much like a SAVI, but all the tubes can be tailored to fit your particular tumor confirmation. I will have the tubes placed tomorrow morning, then 9 treatments beginning tomorrow afternoon and ending on Friday. I am pretty nervous (don't feel much like sleeping😕 But will be really glad to be FINISHED on Friday!
Thanks, Pyrrh, for all your posts. It's so helpful to hear of other people's experiences. I will post too. Fighting girl, we start so close together! Hope you have an uneventful time! Looking forward to reading your posts!
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Dotter95, sounds like we are having the same...I do believe mine is the interstitial as well. You will finish before me...lucky girl! I get mine catheter tomorrow but won't begin rads until Thursday so I will go over the weekend and get it out next Wednesday afternoon after 10 rounds! Best of luck to you today...I will be anxious to hear how it goes for you!
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Oh ... new tip for you all (as I kick myself...)
Don't forget, if you are given antibiotics, that those often cause yeast infections. If you are me, they ALWAYS cause yeast infections. However I was so caught up in other stuff I neglected to buy and eat yogurt to counteract it..... argh. As if I needed to deal with that too!
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Well, brachytherapy surgery day went well. There aren't many women who choose brachytherapy here, so I was very well treated with lots of attention - a bit of an anomaly I guess! The only glitch is that I couldn't get started on the radiation today for some reason, so treatments go until late Friday aftrnoon ( and I was wrong - only 8 treatments, not 9). Anyway, breast is feeling swollen a bit and not too happy, but the pain meds (tylenol3) are doing the trick. I think the hard part is past - I am feeling great about choosing this route. I just have a dressing held in place by a stretchy tank top as my skin does not deal well with tape.
The surgery lasted about 2 hours, then I had a CT to make sure the tubes were all in the right location. I have 11 tubes in 3 rows. The physicists were making the treatment plan this afternoon, so the RO said that if any of the tubes were not really necessary, they would be removed tomorrow.
They did a simulation of the radiation treatment. When the radiation is done, little "hoses" are connected to each of the tubes in my breast. They screw on - it's like I am a human meccano set! (This dates me btw) and it wasn't painful at all. Apparently the radioactive seeds are almost at the end of their useable life ( being replaced next week) so my treatments will be a long time comparatively - about 20 minutes (5 min or so for fresh ones). Oh well, I'll sing to myself or something!
I asked my RO why the SAVI device was not used, and he said it was not available in Canada as it has not received approval from Health Canada. Interesting
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