Can we have a forum for "older" people with bc?

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2017

    Another day of not being quite sure what weather we will have, and I'm still hoping rain won't be a part of it. I'm feeling fairly good now with the sinus issues, but I'll be taking the meds ( Loratidine ) for a bit to hopefully not turn around and flare. Still a little shocked by getting hit so late in the season. Actually, in a fairly short while ( not really quite soon enough for me though ) Spring will be here and I'll be dosing again for sure. Our cars when sitting out in Spring just get a greenish/yellow haze from all the pollen drifting through the air -- but glad it is not smog I'm complaining about as I can do more about the pollen.

    I hope you all have a fantastic day.

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited February 2017

    The weather here in sunny Fl today is the reason so many people choose to live here. Absolutely gorgeous.

    My three babies officially moved last night, I think. I'm pretty sure I heard Jamie tell her them they were sleeping in Lake Placid last night. No official notice, and she got here right as the older one got home from school and was gone in less than 10 minutes. Didn't even get to hug them, which was probably the best for all of us. We would have been one major mess. I am holding it together because she left a lot of laundry here. I told her if my brother doesn't come down tomorrow, I would head up to her and help sort through the mess and help her get settled. She was very adamant that she wasn't ready for that- that every room was filled, but not with stuff that should be. I had to laugh- this is not her first move. Her idea of packing is to put boxes in the living room and as you pass the boxes, anything in your hand, or in your sight goes in a box. Any one box could have clothes, towels, pots, canned goods, toys, etc. She has probably 25 boxes like that. ThAts why I waNt to help. Left to her, it means the boxes will move around the apartment without ever getting unpacked. They'll grab stuff out of them as they either see or need a specific item, but it it's an item they need, 10 boxes will be moved and mixed up until they find what they are looking for.

    Been doing a lot of the Serenity prayer n my mind. God help me to change what I can, leave what I can't and the wisdom to know the difference. Sure hope my brother comes tomorrow. The busier I am, the better I'll be. Yesterday, I was looking for seasonal rentals in a Lake Placid. If they are successful there, I may just move her myself. That's a year away from even thinking about.

    Anne

  • carolehalston
    carolehalston Member Posts: 6,887
    edited February 2017

    A beautiful day here,too, Anne.

    I played golf and wasn't tired when the round was over. That speaks to the nice course conditions.

    The rest of the week is supposed to be just as pleasant. Tomorrow my younger sister and I plan to go out to lunch with my mother. I will pick up my mother at the nursing home and we'll meet my sister at the restaurant. This will be my mother's first outing (other than a doctor's appointment) since Christmas Day.

    Jackie, my little car badly needs washing. I would have to pay $25 to take it to the car wash place that used to charge $13, then $15, then $25. They priced themselves out of my business. Now I wash it and clean the interior myself but not often

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited February 2017

    Threatening to storm here all day—deep gray clouds hovering over the lake, with snow flurries despite the dashboard thermometer reading “41.” That explains what my sinuses have been doing to me since midnight: like someone trying to blow up a balloon inside my nose and behind my eyes. Little-to-no dripping, through. I have a call into North Shore’s Center for Voice Disorders to get an appt. with a singer-specific ENT; I have the pitches in my range back but the quality is muffled (no resonance) and I can’t sustain a note. I want to get laryngoscopy to rule out any damage my coughing may have done to my vocal cords.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2017

    Hopes it goes well for you Sandy -- just yikes. I have had a bit of slight ( not too bad ) raspy feeling back of the throat. Not increasing though so I think it will be fine with some patience on my part.

  • Wren44
    Wren44 Member Posts: 8,585
    edited February 2017

    Carole, If you're patient long enough some group will be washing cars for money. I'm too claustrophobic for car washes. Can't stand it when the machine is right on me.

    Sandy, hope your throat is just tired, not damaged. I mixed up a saline solution and put it in a spray bottle. It does a good job of loosening everything up in the morning. It's cold and dry which always bothers my nose.

  • munnybunni
    munnybunni Member Posts: 156
    edited February 2017

    Just wanted to let everyone know thatthe reseult came back from the stereotactic biopsy and I went to dr and it showed as necrosis and everything they said is ok.

  • carolehalston
    carolehalston Member Posts: 6,887
    edited February 2017

    Good news, MBunnie!!

  • bonnets
    bonnets Member Posts: 769
    edited February 2017

    Happy for you. Waiting is always the worst!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2017

    Your worth is not measured by what you do. Nor can you calculate the degree of your worthiness by what you possess. Your worth is a function of your being. Your being is colorless, genderless, and believe it or not, ageless. Your being is worthy of honor, admiration, and respect.It is a vessel of love and light. It is a beacon of inspiration. - Iyanla Vanzant

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2017

    Munnybunni, what good news. I'm happy that this has turned out well for you. Now back to your regularly scheduled life.

    It is a lot cooler today, but thank goodness the sun is out much stronger and the sky looks pretty clear. Hope that means sun all day long. I need my Vit. D from that big yellow orb along with the totally mood enhancing as a greatly needed side effect. So, I'm happy. My car is clean, there was news of positive biopsy and so I say --- let the high notes take place.

    Thinking of Sandra and Mike and hoping you are both hanging in there.

    See you all later.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2017

    Yes, I think of Sandra & Mike often too.

  • Wren44
    Wren44 Member Posts: 8,585
    edited February 2017

    MunnyBunny, I'm go happy you got good news. Happy dance!

  • Joan811
    Joan811 Member Posts: 2,672
    edited February 2017

    Hi all, and welcome to the new groupies!
    Munnybunni, what a scare waiting for the results.  I am so glad to hear that the report is not bad.  You can still hop in and join here any time Smile

    Oh Anne, your heart must be breaking.  I know about that wall that goes up when it hurts too much to feel the pain.  I have no grandkids nearby.  I was so close with the New Jersey daughter's kids and they were 2 hours...but they moved away and now are five hours.  I have no idea what they do each day....I used to go to NJ for all their activities.  I miss them terribly.  I do not hear from them and I call them once in awhile.  My DD is getting divorced so when I call they are sometimes with their Dad.  And DD has a boyfriend with a daughter so now I must always incorporate this new child.  She is sweet, but it isn't the same. 
    Most of all, Anne, you have a right to be concerned for your grandkids.  I hope they get to spend lots of time with you and feel your love and guidance.  I am also happy to hear your other DD is cooling it with the boyfriend.  She will know it is not right, given her history. 
    As for your brother's kidney stone, my brother has had one for many months.  It seems the latest approach is to "let it pass".  If it doesn't then surgery occurs.  He had a lot of pain and I think just had surgery.  I hope your brother finds out he can travel and have his medical insurance.  Sending prayers your way, Anne.

    Carole, I hope the weather is favorable for your golf outings.  It is so nice to hear that you are giving your mom a chance to get out and spend time with her daughters. 

    Jackie so nice to hear you had some days off.  It feels good to have a day at home to just relax a little then catch up on many things.  And thanks again for being here each day!

    Of course we need a Ducky around here...hope to see you soon!


  • bonnets
    bonnets Member Posts: 769
    edited February 2017

    Good morning Ladies. It's a balmy 16 here this morning. Most of our snow is gone, had so little. Weird winter!

    Reading about grand kids living near. If you have them you are lucky. My son is in Vegas with no kids, the others live in MAryland and Texas , with one in Washington state , in the Army! My daughter who passed, used to say, "you raised us to be independent and now you are complaining! " I responded , "that was before I had grand kids!" We are lucky to see them once a year. Used to be we went to see our Grandparents, now it seems to be the reverse! With DH sleep apnea we are driving less, which my daughter doesn't seem to understand. Was closest to my daughter, who died, and the others I mostly keep up with on Facebook posts, if they post. So if you got em close and hear from them, count your blessings!

  • cliff
    cliff Member Posts: 290
    edited February 2017

    I was 68 when diagnosed and operated on back in 2016. found lump (hurt) march and operated on april 1st. from what I have been able to learn, men are suseptable to breast cancer between 65 and 70 years old, when the bodys fat starts turning testosterone to estrogen. Yes, I am a guy, a guy with stage 4 breast cancer.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2017

    Observing the lives of people who have mastered adversity, I have repeatedly noted that they have defined their visions, established their goals, and, irrespective of obstacles, committed themselves to their achievement.The moment they fixed an objective in their mind and decided to concentrate all their energies on that objective, they began to surmount the most difficult odds.If you acknowledge that your dreams and hopes are worth working for and focus your thoughts on achieving them, your chances of empowering your life will exponentially increase. - Ari Kiev

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2017

    Oh gosh, that good old sun is out again this morning. Despite it all I'm not a sun 'worshiper' but need it to avoid grayness outside which so bothers me. I do enjoy at times getting the pure VIT D from the sun though I am told that only works if you are nude -- Really !!! At my age that certainly is highly un-likely. I liken this to when I finally developed an actual taste/desire for lettuce salad --- only to find that JUST lettuce only produced roughage, not the vitamins and minerals of the wide range of lettuce-type darker greens that we have. SIGH !!!! Life has some complications, but we all keep going.

    Knock on wood all of our troubles are light -- especially in that my view-point is that challenges/troubles have a way of helping us grow though it may take time to be able to recognize that our biggest growth periods seem to happen in heavy stress and confusion. So hope we can all take a few minutes in the day to sit down, take a few deep breaths and count our blessings -- those we already have and maybe think on a few we'd like to receive.

    Hoping you all have a good day -- with some nice deep breathing.

  • Wren44
    Wren44 Member Posts: 8,585
    edited February 2017

    Cliff, Welcome to our group. All the attention goes to women with BC, but a large number of men get it as well. Maybe if everything wasn't pink, people would be more aware. And being stage 4 sucks no matter age or gender. Will you be having chemo? Come back any time.

  • cliff
    cliff Member Posts: 290
    edited February 2017

    no chemo, I was setup with a "power port" and told I would be on chemo and radiation after my surgery, but I am on tamafloxin and a monthly exgiva shot. I got quite a few strange looks in the womans centers where I was sent for tests and scans. probably the biggest and harriest on the surgery table too.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited February 2017

    Men have a number of hurdles to overcome with this disease cliff. I can see you've posted elsewhere on BCO and I hope you can draw on the strength and wisdom of the people here to help you through treatment.


  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited February 2017

    Welcome to the club nobody wants to join, cliff. Traveltext and fiddleman are great mentors and can guide you through the issues specific to male patients, but we’re all here for you.

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited February 2017

    Hi all,

    Cliff, Sorry for the reason you joined in with us, but happy to have you on board. Most of us, as women, have realized that there are some parts of this tough journey that only someone who has experienced those moments can understand. Being a male with BC, I am sure it is even tougher to find people who have walked in your shoes. While none of us have had all your experiences, I am pretty sure we can relate to most of the emotions and/or your physical and medical issues. Please visit often, and jump in on any topic raised here.

    They were not able to use the laser on my brother's kidney stone, because the stone had progressed to the urethra. So he had it removed yesterday. He texted me that it was done, and he was tired. They had to put some kind of stent or something in where the stone was for a few days to trick the kidney into thinking that the stone is still there, so it doesn't release another one. They are removing that on Mon, and he says he will be here by Wed. Last time we talked, his daughter was going to drive down with him so he is not alone on the 9-11 hr drive.

    Haven't seen or heard from the crew moving to Lake Placid since Tues. To say I am totally devastated doesn't even come close. The parents bothborder on being emotionally abusive, especially with their 8 yr old son. Enough at least that he thought running away was his only option last week. What child runs away and goes to their school to just walk around the empty halls? I am sure, in his eyes that I have failed him totally-I know that's how I feel. I have abandoned him when I told him I loved him and would always be there for him. Empty promises! I don't even know where they are- the warehouse or Lake Placid? I have no idea what their address is in Lake Placid. I am trying to let go and let a God, but not being very good at that.

    Hope you all have a peaceful weekend.

    Anne

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2017

    Welcome Cliff -- don't know how I missed your entry. I posted right under it. I hope you will come often. I am a lurker on another Breast Cancer site and there is also a male there --- so I have been used to seeing a male poster. At one time it would have surprised me to find out that men got breast cancer too. My dh ( darling husband ) like most men has concerned himself with hoping to avoid prostrate cancer so I think for many yrs. a lot of us heard that word and only associated it as 'male' cancer --- never thinking that if you have the right parts, you could fall heir to something usually attributable more so to females. We are glad to have your company and commiserate with you on your journey. We hold hands pretty good here.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited February 2017

    Richard (“Shaft”) Roundtree and KISS drummer Peter Criss are both bc survivors.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2017

    You are here to evolve and make your consciousness high
    You are here to dance, sing and celebrate life.
    You are here to help others to make their life happy.
    We are here not to compete, but to learn, evolve and excel.
    We are not here to make divisions in the name of prophets and religions.
    We are here to encompass the world with love and light.
    - Amit Ray

  • carolehalston
    carolehalston Member Posts: 6,887
    edited February 2017

    Best of luck, Cliff. You're welcome to hang out here. Do you like to cook? We have a male member on the What's for Dinner discussion forum. His wife is a BC survivor.

    Anne, hope your brother does well with his recovery and also hoping you get some peace of mind about your relocated grandchildren.

    Wishing everyone a good Saturday. I stayed in bed until 7:45 and will skip the gym this morning. I played golf yesterday and am not feeling energetic. I do plan to visit my mother this afternoon at the nursing home

  • Teka
    Teka Member Posts: 10,052
    edited April 2017

    GrammaSue and cliff, Hi and Welcome!!

    Hugs all around for those in need.Hug


  • sandra4611
    sandra4611 Member Posts: 2,913
    edited February 2017

    Hi everyone. Missed you all very much. i logged in and had 4 pages of posts to read. That's what happens when you don't visit regularly anymore. I used to be here every day, for several years in fact. My own fight with BC stopped being so important once my husband was diagnosed with cancer two years ago.

    A sincere welcome to all the newcomers. You will find a wealth of support here. Feel free to post about anything...not just cancer, although I know how the diagnosis becomes your whole world at the beginning.

    My husband Mike is still alive and kicking in spite of a number of setbacks in the past year that nearly claimed his life. He is one tough guy! We realized that in 2016 he survived 7 "situations" that could easily have gone the other way. That leaves him with only two more of his nine lives so here's hoping 2017 is kinder to him. (Mike had a bone marrow transplant March 1st for Myelodysplastic Syndrome, MDS - a type of blood cancer. It failed in June, then progressed to Acute Myeloid Leukemia in July. With weeks to live and no more options from our local doctors, we were went to MD Anderson Cancer Center in Houston. They started "salvage" chemo and 69 days later, after living through an awful paralytic ileus complication, he was in remission. We came back to San Antonio October 1st. Mike had lost 110 lbs and couldn't do much of anything for himself due to extreme deconditioning. Two weeks later he was back in the hospital after having syncope episodes which for him was immediate unconciousness with no warning. On Oct. 22nd, home again, he fell and ended up with broken facial bones and a brain bleed, a subarachnoid hemorrhage in the speech portion of his brain. This time the hospitalization was for two months during which he developed severe intestinal complications related to the bone marrow transplant and critical low blood pressure and heart issues which sent him to ICU several times.) I finally got him home two days before Christmas.

    Exhausted yet? I sure am. Mike gets physical therapy, occupational therapy and a visiting nurse at home twice a week and he was accepted into the Traumatic Brain Injury Program at our local hospital. There he gets more physical therapy and much needed speech therapy each week.He is seen three times a week in the Bone Marrow Transplant clinic for blood tests and IV meds as needed. We've started going back to MD Anderson Cancer Center in Houston also. When he had the brain hemorrhage, the local doctors took him off the clinical trial chemo because they didn't know if it was contributing to the syncope. His leukemia doc at Anderson put him back on it but put him in the hospital for awhile to monitor his heart. Mike also had a state of the art cardiac monitor placed in his chest. It delivers real time reports to his Anderson cardiologist who is trying to figure out why Mike had the syncope. The leukemia doc was delighted to tell us that the bone marrow biopsy showed he was still in remission. We were so afraid that it had returned since his local doc (whom we now call Dr. Doom N'Gloom) thought the AML was back. Since Mike wasn't able to return to Anderson due to his hospitalization here, he missed three months of monthly 5 day IV chemo "boosters" as well as being taken off the study drug. But Hallelujah the remission held fast!

    We are home for the next week, but head back to Houston for 4-5 days two more times in February for follow up appointments and testing. Fortunately we are home for SuperBowl. The Houston traffic was awful in the days leading up to it. Tomorrow we will go to our friends house and enjoy some much needed social time while we watch the game.

    I can't promise I will do better checking in with you, dear friends, but I will do my best as time allows.


  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited February 2017

    Sandra, it won't be a surprise to you that we all think you are such an incredible person. Then again as I am so fond of saying -- it is not so surprising what you can do when you have no choice !! You may fall down as we all do, but you find what it takes to get yourself back up and moving. I hate that you have had such seemingly un-ending burdens, but I do think those who watch you, are around you, and know you must benefit so much by the inspiration that you are to them.

    I do feel many among us -- maybe even the least of our acquaintances, and perhaps a stranger to two in the near vicinity wondering if THEY can go on, see you and suddenly realize yes -- we are made to keep going and if one can find the way, it is so much more likely that most can find the way. So, the services you do, and the shinning light you are, while it may seem very much like it, are not always just for you and Mike --- but is an expression of love and hope for many whom you may not even know. We don't know all the why's and how's but someone up there directs it all. The spiritual meshing of mankind occurs and we all become more than we were even, if we may be less at the moment then we will be later.

    I know you struggle daily, but I do hope you have learned to see some peace in quiet times and that you don't really walk alone.

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