Actions we can take to protect our access to health care

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  • Luna52
    Luna52 Member Posts: 147
    edited January 2017

    cp - did you get the email that you have to respond to in order to verify your signature?

  • cp418
    cp418 Member Posts: 7,079
    edited January 2017

    No - I did not get the email to respond.....

  • peggy_j
    peggy_j Member Posts: 1,700
    edited January 2017

    Maybe check your spam folder? I got the email and clicked on it but the number of signatures has never gone up. Hmmm...

  • reflect
    reflect Member Posts: 576
    edited January 2017

    I also signed and verified by email and shared it on FB with people who also signed and the number never changed. Probably a glitch...but maybe not.

  • pupmom
    pupmom Member Posts: 5,068
    edited January 2017

    BB, sorry but I don't believe that ever happened.

  • pupmom
    pupmom Member Posts: 5,068
    edited January 2017

    Well, I'm a Democrat and I support nem's petition. Most of the petitions I sign, literally every day, have to do with animal rights, but I will sign political ones, if I believe they are important. Happy that we both support the ACA! There is common ground!

  • peggy_j
    peggy_j Member Posts: 1,700
    edited January 2017

    Let's TAKE ACTION! Please share the actions you are taking, so we can all be inspired.

    Yesterday I sent an email to 60 friends (I know, I feel like a spammer). The NCCS webinar said that some people aren't aware that the ACA repeal can impact everyone, even people who get insurance through their jobs or who buy Medicare. I asked everyone to contact their reps, GOP or Dems, and if they can to forward to the info to their friends. I've had about 8 people reply and *thank me* for sending it.

    The GOP is pointing to High Risk Pools, which have failed. This is the body of my message to my reps (I open/close with my BC survivor plea):

    The GOP has said it will protect people with pre-existing conditions. This is what we need:

    • the same rates for all patients, male and female, and those with pre-existing conditions.
    • no High Risk pools. Those have failed.
    • no annual caps.
    • no lifetime caps.


    High Risk pools have been tried in 35 states and failed. Problems:

    • prohibitively high rates, effectively denying coverage.
    • waiting periods after signing up—but cancer doesn't wait; treatment must start right away
    • waiting lists just to sign up.
    • annual caps and lifetime caps.
    • government funding shortfalls. Even the Federal pool ran out of money.


    If high risk pools worked, we wouldn't have needed the ACA.

  • peggy_j
    peggy_j Member Posts: 1,700
    edited January 2017

    nem126 started a new petition in the BC.org advocacy section. Here's the thread

    https://community.breastcancer.org/forum/110/topic...


  • pupmom
    pupmom Member Posts: 5,068
    edited January 2017

    BB, I think we have more in common than not!

  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2017

    Madonna doesn't speak for me. I speak for me.

  • pupmom
    pupmom Member Posts: 5,068
    edited January 2017

    BB, I would not do that! I just posted that I think we have more in common than we don't have in common! Hugs, girlfriend!

  • Luna52
    Luna52 Member Posts: 147
    edited January 2017

    I don't think Madonna spoke for me any more than many conservatives think David Duke spoke for them (when he spoke for Trump)

    I had this poem on my wall in my 30's and 40's... and now that I'm old AND a breast cancer patient, I relate to it even MORE!

    I don't give a darn if the government wants to track me...


    When I am an old woman I shall wear purple

    With a red hat that doesn't go, and doesn't suit me,
    And I shall spend my pension
    on brandy and summer gloves
    And satin sandals,
    and say we've no money for butter.
    I shall sit down on the pavement when I am tired,
    And gobble up samples in shops and press alarm bells,
    And run my stick along the public railings,
    And make up for the sobriety of my youth.
    I shall go out in my slippers in the rain
    And pick the flowers in other people's gardens,
    And learn to spit.

  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2017

    It really sickened me to read responses by hateful people against the march. The fat, ugly lesbians are out in full barnum and bailey force. Just sick people labeling based on what they think will make us cower. I don't care what your sexual orientation is, what your weight is, etc... The real and good people were marching.

  • peggy_j
    peggy_j Member Posts: 1,700
    edited January 2017

    Could I make a request? I was hoping to keep this thread focused on actions that we can take (and to cheer each other on for taking action). There's that other long discussion thread.

    Anyone have anything to share? What have you been doing to help us protect our access to health insurance

  • Luna52
    Luna52 Member Posts: 147
    edited January 2017

    Meow... that is the mud the rightwing has always thrown at the feminist movement. FOR YEARS!

    They do not define us


  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2017

    I think the march and the sheer numbers of people was effective. Would another march be helpful? I also wear my pink hat around town, just doing errands I like the idea of a visual symbol.

  • Luna52
    Luna52 Member Posts: 147
    edited January 2017

    Sorry Peggy!

    I do read this thread to find out actions to take. And I appreciate that you post specifics!

    I've signed the first petition which seems to be stuck at '1'

    Also the newest iteration.. Please keep posting actions we can take

    Luna





  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2017

    My neighbor just said Seattle is planning monthly marches.

  • rainnyc
    rainnyc Member Posts: 1,289
    edited January 2017

    Peggy, in answer to your question, I called my state senator today. There is a bill that has been introduced in my state's (Democratic controlled) assembly these last couple of years advocating a single-payer system for insurance in our state. It has never cleared the state senate, which is Republican controlled. But it is to be re-introduced this year. Do I think it will pass? No, of course not. But I do think, with a governor who has national aspirations, that we may see some positive action on health care. It is not likely to be enough, but my hope is that movements that start with the states (MA, CA, NY?) may one day indeed lead to a more permanent health care solution at the national level.

    Hoping that the Indivisible Guide and the track record of those who fought for gay marriage may provide some help to all of us fighting for our health care.

    Thank you for keeping this thread focused!

  • Pinkwashmenot
    Pinkwashmenot Member Posts: 13
    edited January 2017

    This info is from a friend who works in Washington D.C. I hope it helps:

    1. DO NOT BOTHER WITH ONLINE PETITIONS (which are mostly used for list-building by organizations) OR EMAILING. The best way to get your congressperson to pay attention is to GET FACE TIME. If they hold Town Halls, GO TO THEM. Go to their local offices also. If you're in DC, find a way to go to an event of theirs. Go to the "mobile offices" that their staff hold periodically. All this information is available on each congressperson's website. And when you go, ASK QUESTIONS. LOTS OF THEM. And push for answers. The more vocal and present you can be at these, the better.

    2. In-person events don't happen every day, so the absolute most important second thing you can do is CALL YOUR REPRESENTATIVES, EVERY DAY IF POSSIBLE.
    Plan to make 6 calls a day: 4 to your two Senators (DC and local offices), 2 to your Representative (DC and local office).
    The staffer was very clear that ANY SORT OF ONLINE CONTACT BASICALLY GETS IGNORED LIKE SPAM. Even letters pretty much get thrown in the trash, unless you have a particularly strong emotional story. But EVEN THEN, the time spent crafting the letter is better spent making calls. Calls are what all the congresspeople pay attention to.
    EVERY SINGLE DAY the Senior Staff and the Senator get a report of the THREE MOST-CALLED ABOUT TOPICS that day at both their DC and local offices !!! AND EXACTLY HOW MANY PEOPLE SAID WHAT ABOUT EACH TOPIC. So ...
    A) When you call the DC office: Ask for the Staff member in charge of whatever you're calling about ("Hi, I'd like to speak with the staffer in charge of Healthcare, please"). Local offices won't always have specific ones, but they might. If you get transferred to that person, awesome. If you don't, that's ok - ask for their name, and then just keep talking to whoever answered the phone. DON'T LEAVE A MESSAGE (unless the office doesn't pick up at all) It's far better to talk to the staffer who first answered than leave a message for the specific staffer in charge of your topic.
    B) Calls are sorted by zip code and area code, so GIVE THEM YOUR ZIP CODE. They won't always ask for it, but make sure you give it to them, so they can mark it down. Extra points if you live in a zip code that traditionally votes for them, since they'll want to make sure they get/keep your vote.
    C) If you can make it personal, make it personal. "I voted for you in the last election and I'm worried/happy/whatever" or "I'm a teacher, and I am appalled by whatever," or "as a single mother" or "as a white, middle class woman," or whatever.
    D) Pick 1-2 specific things per day to focus on. Don't go down a whole list - they're figuring out what 1-2 topics to mark you down for on their lists. So, focus on 1-2 per day. Ideally something that will be voted on/taken up in the next few days, but it doesn't really matter - even if there's not a vote coming up in the next week, call anyway. It's important that they just keep getting calls.
    E) Be clear on what you want - "I'm disappointed that the Senator..." or "I want to thank the Senator for their vote on..." or "I want the Senator to know that voting in _____ way is the wrong decision for our state because..." Don't leave any ambiguity.
    F) They may get to know your voice/get sick of you - it doesn't matter. The people answering the phones generally turn over every 6 weeks anyway, so even if they're really sick of you, they'll be gone in 6 weeks.
    IF YOU FEEL AWKWARD/HATE BEING ON THE PHONE (which is a lot of people) don't worry about it. There are a bunch of scripts on issues floating around online these days. Work from the ones that suit your issues. After a few days of calling, it starts to feel a lot more natural.
    TO STREAMLINE THE PROCESS, put the 6 numbers in your phone (all under P – Politician. An example is McCaskill MO, Politician McCaskill DC, Politician Blunt MO, etc...). This makes it really easy to click down the list each day.

  • MargaretEleanor
    MargaretEleanor Member Posts: 42
    edited January 2017

    Since the White House has stopped taking our phone calls, emails, letters, petitions, and generally discouraged any and all communication with the people that the government, and that includes you Mr. President, works for, I wanted to share a website with y'all that will allow us to communicate with his "organization." The website is whitehouseinc dot org. I tried it. It works! I've added it to my list of senators and house reps.

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited January 2017

    While I agree that personal contact with your representatives and senators is important, the "Improved Medicare for All" petition is still on the White House home page and needs additional signatures desparately. It currently has only 317 signatures. Another 99,683 are needed before February 19th.

    The Petition can be read (and hopefully signed!) "here. "

    It still is on the web, and can still be signed.

    Hope to see that total reached soon enough.

    LisaAlissa

  • peggy_j
    peggy_j Member Posts: 1,700
    edited January 2017

    Icietla, that's brilliant, calling Trump hotels to ask if he's still the owner.

  • Icietla
    Icietla Member Posts: 1,265
    edited January 2017

    Ask whoever answers the phone if they work there. Then ask about the health care benefits for working there. Then talk about our health care coverage concerns.

  • peggy_j
    peggy_j Member Posts: 1,700
    edited January 2017

    This was just sent from NHELP, the National Health Law Program. They are asking for actions TODAY, tomorrow and Wed.


    New Paper Details Nine Things You Need to Know About the ACA 'Replacement Bill' by Sens. Cassidy and Collins

    Call In Days on Rep. Price Nomination to Head HHS and Medicaid/ACA

    Senators Cassidy (R-La.) and Collins (R-Maine) introduced the so-called "Patient Freedom Act" (PFA) as one alternative to replace the ACA. NHeLP's Director of Health Policy, Leonardo Cuello, authored a new paper, "Nine Things to Know About the Cassidy-Collins Replacement." His takeaway, the senators' bill is "a totally inadequate substitute for the ACA."

    Please share Leo's paper widely with networks and on social media.


    We're likely to see more potential "replacement" bills over the coming weeks. But right now, it's important to continue to register your concern about attempts to repeal without replacement as well as to oppose Rep. Tom Price for Secretary of HHS. See below for two action alerts.

    Action Alerts:

    Monday - call senators on Senate Finance Committee to oppose the nomination of Tom Price to lead HHS

    Tuesday & Wednesday - call senators and representatives to oppose ACA repeal, Medicaid and Medicare cuts

    1. No on Rep. Tom Price to Head HHS

    The Senate Finance Committee is slated to vote Tuesday, January 31 on the confirmation of Rep. Tom Price (R-Ga.) to head the Department of Health and Human Services. If you are from CO, DE, FL, GA, IA, ID, KS, LA, MD, MI, MO, NC, NJ, NV, OH, OR, PA, SC, SD, TX, UT, VA, WA, WY, you have a senator on the Finance Committee so please urge your senator to VOTE NO on Tom Price.

    (PJ comment: Here's the list of Senators on the finance committee
    https://www.finance.senate.gov/about/membership)


    Call the U.S. Capitol switchboard at (202) 224-3121 on Monday, January 30 (or early on Tuesday, January 31).

    Fact sheets and talking points:

    2. No to ACA Repeal, Medicaid & Medicare Cuts

    Please call your senators and representative on Tuesday 1/31 and Wednesday 2/1 to oppose repealing the ACA without a replacement and to oppose any cuts or restructuring of Medicaid. The call-in number is 866-426-2631 (Thanks to SEIU for providing the toll-free call-in number; those who call will hear a brief overview of the issues and will be asked to enter their zip code before being transferred to their members of Congress.)

    Below are talking points you might use for the calls:

    • No repeal of the ACA without simultaneous replacement - If Congress votes to repeal the ACA, a replacement package that provides equivalent or improved access to comprehensive, affordable, quality health coverage must be included in the same legislation.
    • No cuts to and restructuring of Medicaid - More than 100 million individuals rely on Medicaid over the course of each year. Program cuts, along with block grant or per capita cap proposals, would hurt people who have no alternative means of paying for essential services. See our "Protect Medicaid" series for more information.
    • Preserve Medicare for current and future seniors and people with disabilities - Premium support and other restructuring proposals to shift more costs onto beneficiaries would make health care far less affordable and accessible to seniors and people with disabilities.
    Mara Youdelman

    Managing Attorney (DC Office)

    National Health Law Program

    1444 I Street NW, Suite 1105

    Washington, DC 20005

    youdelman@healthlaw.org

    healthlaw.org

    NHeLP advocates for the rights of low-income and underserved people to access quality health care.

    www.healthlaw.org



  • peggy_j
    peggy_j Member Posts: 1,700
    edited February 2017

    I just got off the phone with my dad. He said in his small Midwestern town, there was a group of people protesting outside their GOP Congressman's office, protesting the Muslim Ban and the repeal of the ACA. He said it was "a pretty good size crowd," surprising because this county votes predominantly GOP. So this is something else we can try. Maybe connect with local orgs (local Democratic Party? Indivisible? Others) and see if any local protests are planned?

  • peggy_j
    peggy_j Member Posts: 1,700
    edited February 2017

    This is from Emily Ellsworth, the former congressional staffer who famously sent those tweets that said it better to call your elected reps than send email.

    How do you know if you're calling too often?

    http://preview.mailerlite.com/i6k0b5/5534926934355...


    You can get more info on her website (including download her guide to calling, and subscribe to her email list. She doesn't send messages too often)

    http://www.emilyellsworth.com/



  • pupmom
    pupmom Member Posts: 5,068
    edited February 2017

    "Trump dump?" Isn't he the one who wants to end the ACA? If not, why is everyone freaking out? I think we would all be safe right now if Hillary had been elected, but that is just me.

  • peaches1
    peaches1 Member Posts: 137
    edited February 2017

    There were rallies that strictly focused on retaining the ACA five days before the inauguration took place. Bernie Sanders was at one of those rallies. I am sure there was one in the Philadelphia area too. I know there was one in Chicago that had a large turnout.

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