Travel while on Chemo?
How realistic is travel in between treatments.
I told my son we would take him to Lego Land for his birthday before I found out I had BC but now I am worried that I won't be able to go the distance. I want to be there for him but I am thinking it will be too much for me and plus I prob shouldn't go on any rides and should just let my husband take him and I stay home. Anyone go to a theme park on chemo?
I signed up for a camping trip before I found out I had BC. It is a luxury campground so I am not worried about bugs or the elements but it is right after my second treatment. I think it will be relaxing since the trip is hosted by the dad's/husbands for their families so I would be pampered. Anyone ever go camping on chemo?
My husband's company is asking him to attend a cruise in April. This will be after 4 treatments. I am extremely worried about going on a cruise within close proximity of germs with no escape. I don't want to go on this cruise and my husband completely understands but just in case I am overthinking the germs here I wanted to know if anyone went on a cruise while on chemo?
Please share your thoughts and experiances, thanks!
Comments
-
Hi!
I traveled during chemo. I visited my parents in CT and their lake house in MA. I didn't get sick. During chemo, it helps to keep a diary of side effects and to see whether there are any patterns. For me, infusion day was Wednesday, and I felt fine because I was pumped up on steroids (part of the pre-meds). By Friday, though the steroid fog was starting to lift, and I began to feel less energetic. I crashed during the weekend, but by Monday, I was feeling more like my old self.
Are you getting Neulasta shots the day after your infusions? Neulasta is supposed to boost your white cell production and thus your immune system. I worked through chemo and I only got sick once, from a stomach virus my sons brought home from school (whole family got it).
Best of luck!
-
My MO was open to my doing a lot of things but he would not have let me go on a cruise. His thinking was that if something happened, I would not be close enough to a hospital. Could be dehydration or your RBCs tanking or an allergic reaction, or....
You have ambitious plans. I had chemo on Thursdays & Neulasta on Fridays. I spend most of the weekends recovering - frankly sitting on the pot with extreme diarrhea. You just don't know what your side effects will be at this point. If you're lucky, they may be minimal. When you have your stats & plans, it would be helpful to post it on My Profile so we could give better answers.
-
I think what you are planning is not realistic. Firstly, is this travel within your own country or overseas. If overseas it is unlikely you will be able to get travel insurance. Personally, if I can't get travel insurance I don't travel. Secondly, it is possible you will be perfectly fine and able to travel but you won't know until you have completed a cycle and worked out when you feel well and when you don't. Complications can arise at any time and change your plans at a moments notice.
I felt unwell for a few days after the first type of chemo which was AC and a week after the second type which was Taxol. I was getting dose dense which was every two weeks. By the time I felt better it would take me the next week to get on top of the house, groceries, kids and medical appointments just in time for the next treatment.
Camping in itself would be fine unless you are permanently attached to the toilet or so wiped out you can't lift your head off the pillow in which case you would be more comfortable at home. Like others I doubt your oncologist would permit a cruise due to the germs but that would depend on your neutrophil levels which you wouldn't know until the time so a bit difficult to plan ahead.
-
I completely agree with xxyzed's comments. Also, we have a cousin who is an infectious disease doc, and he said that the most dangerous place for me to go while on chemo is a cruise. It is a floating Petri dish, with really good food
-
I managed to arrange my chemo schedule around some work/fun travel that I really wanted to attend. I had 4 T/C treatments, 3 weeks apart. The third week post treatment was the best for travel time for me. Of course, that meant that my hair fell out while I was at a conference-Awkward! Your energy level may not be what you would like it to be between chemos. Keep that in mind. I would be less worried about camping than I would be about travel in any common carrier. I did not fly until I was done with chemo.
Good luck!!
-
I agree with the others, you need to see how your body deals with the treatment. You may breeze through or get hit with bad SE's.
stephincanada love the petri dish with good food description. A cruise I would definitely pass on while having treatment. The other trips you may be able to work around.
-
I personally wouldn't go anywhere during chemo. If you develop an infection, you need to get to the hospital FAST, and you're better off at the hospital where you're being treated. I did develop an infection after my 3rd treatment, and my husband had to take me to the ER late one night. I really would not recommend a cruise. Too many germs, and if you get sick they might have to send a helicopter in to get you off the ship (I was on a cruise some years ago where they had to do that for someone who became ill). It isn't easy to land a helicopter on a ship and it costs a lot of money. It will probably be very difficult and expensive to obtain trip insurance when you're in treatment for BC. As for camping, if it's close to home I might consider if it is two weeks after treatment, but you usually feel pretty sick the week following. I also experienced severe diarrhea, and I would not want to deal with that while camping. I would also avoid planes and theme parks due to exposure to germs.
I know that all this sucks, and you don't want to miss out. Could you delay treatment until after these trips? When I was diagnosed, my doc asked if we had any vacation to work around before she scheduled surgery. She assured me tha a couple of months would not make a difference in outcome.
-
My MO didn't want me to be around groups of children.
-
Thank you ladies for your honest thoughts and stories. I know this is going to be hard on my body. I need to be prepared for all of this. My co-workers and friends seem to think I will be "just fine" but I know I will have a hard road and you ladies have been going through it and know exactly what to prepare me for. I haven't started chemo yet, so I am living in this "I feel fine" bubble and at any moment after this Wednesday I am about to experience the realities of fighting cancer because up to this point I have only been preparing for it!
-
SH, There is a period during chemo called NADIR at which time your body's immune system takes a big dive. You may be getting Neulasta shots to help with that, after each chemo TX. I did travel via Amtrak (with my own sleeping compartment) and did fine. You may want to see what your DR. recommends. I washed my hands, sanitized everything, was careful what I ate. A cruise may be a bit more of a challenge. My one regret while doing chemo was missing my GS's 5th bday party...too many kids, in the dead of Winter at a public place. Looking back, I wish I had gone and just worn a mask and been super cautious....of course, now, he doesn't even remember, but it always sticks in the back of my mind. Hard decisions that we never expect to have to make. I remember the fear of getting sick kind of isolated me and I hated that. Best wishes with whatever you decide!:). You can do this!
-
Travel? I had a hard time just getting off the sofa. Terribly fatigued. All food tasted horrible, I truly thought my tastebuds would never be normal again. The steroids made me short tempered and I had the chemo brain fog. I was miserable. I would have one "good" week every cycle, which was still anxiety filled because I knew what was coming. I hope things go better for you, but I wouldn't plan a lot of activities that you'll feel bad about if you can't participate. Most will agree, round 4 is the absolute worst round. Its when I begged my MO to stop. He reduced the dose for the next two rounds and things got better. The effects of chemo are cumulative, it gets a little harder each round.
You will want to avoid crowds and germs. My MO didn't want me eating any fresh fruit or vegatables. You are at risk for illnesses that your body can normally fight off. You don't want to complicate or delay your treatments because of another illness.
I'm not writing this to scare you. You'll get through chemo, but you need to be able to focus on you, your needs. Sleep when you need to sleep, eat what you can eat. As wives and moms, its not something we do well, but for a few months let others take care of you so that your body can heal. My husband was my rock.
-
Another thing to know about chemo is that your schedule can change. You will get blood tests prior to each MO visit and if your counts have not improved enough, your next chemo may be delayed. You cannot predict your chemo schedule. Something for your husband to consider too, if he is going on the cruise without you. Do you have someone else to take you for your treatment if he is away?
-
I worked my full time job at an elementary school through eight rounds of chemo and was fine. Tired some days but did not get sick. Also traveled from TX to KY by plane during my Spring Break and again during the summer.
As others have said, you just don't know how you will feel until you have been through a round, and if you have more than one kind of chemo you might have a different set of side effects. I would hesitate to go on a cruise because I would not want to be that far away from medical care
-
When you are making plans also know there are a lot of appointments to schedule. The week before each round you need blood work drawn and you'll see your MO. The day after chemo you return to your center for a neulasta shot (I think some are doing these at home now?) I also had to return to the center on day 4 for extra fluids. If you are on herceptin you will will be getting mugascans every couple months to check on your heart. I had 4. If your doing rads, surgery or recon there are more appointments. Treatment felt like a full time job to me.
Bootscootin, I'm impressed that you worked all through chemo. I teach highschool. I felt lucky that most of my treatments happened over the summer break because I never would have been able to work. But everyone reacts different.
-
I was pretty fatigued for about 10 days after each chemo. The next 10 days I had pretty good energy. I did not travel during the 4 months of chemo, because I had 2 episodes of high fever that sent me to the ER and 1 episode of sepsis, which could have killed me. That made a believer out of me.
I did however go in the car up to the place where our camper is parked. There is a good hospital there and our camper has all necessities of home, so I could cook my own food and sleep in my own bed and have all my own stuff around me.
Honestly? I would not go to Lego Land during chemo. Amusement parks are full of little germ vectors (ie., children) who drool, sneeze, cough, and vomit. And it doesn't much matter if you wash your hands because they aren't washing THEIR hands. Kids touch everything! I've seen plenty of idiot parents bring kids with flu, stomach bugs, even chicken pox to these places!
I'd definitely skip the cruise, for all of the above reasons. If you get really sick, you may be forced to go to a hospital in a foreign port which may or may not be able to give you appropriate care.
My MO had me severely limit time in crowded places. I went to bible study but not church. I stayed out of malls and did 100% of the Christmas shopping online. I only went places in my car, never planes, taxis, or subways. Maybe if I hadn't had those 3 episodes it would have been different. I don't know. Nobody knows who is going to get really sick and who won't.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team