ILC found in "good" breast

tapwhite
tapwhite Member Posts: 16
edited January 2017 in ILC (Invasive Lobular Carcinoma)

For those who decided on prophylactic BMX, how many of you had cancer in the "good" breast?

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  • dtad
    dtad Member Posts: 2,323
    edited January 2017

    Hi there. I had a BMX and did not have cancer in the other breast. My reasons were due mostly to difficult screening. My ILC was not picked up on 3D mammo or ultrasound. It was only picked up on a pre op MRI I had for IDC. I was a DDD so symmetry was a factor for me. Also there were a few abnormal precancerous changes in the non cancer breast. One more reason was because I knew I would refuse chemo and anti hormone therapy so I wanted the more aggressive surgery. Hope that helps. Good luck making your decision.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2017

    My suspicious cells in the good breast were found after my BMX. But they were found (hyperplasia), and they are gone--good. I refused a UMX simply because I already knew ILC had a tendency to be multi-focal, and the post-surgical pathology report vindicated me: it was good I went both with my knowledge and intuition.

    My breasts were dense, making it even harder for scans to "see" problem tissue. I had 5 "clear" mammos for five years before I found the lump on my own in a self-exam. Because of that, I stopped trusting mammograms completely.

    I'm happy with my decision, but dislike the lack of feeling I'll have to live with the rest of my life because of my BMX/recon. But I disliked the feeling that mammos would not catch any potential recurrence more, so I went with BMX.

    Claire

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  • wallycat
    wallycat Member Posts: 3,227
    edited January 2017

    My left breast was fine. No unusual findings. I had 38D breasts and did a bmx because I did not want scans, dyes and screenings (anxiety provoking for me) every 6 months and I did not want to wear a fake boob to counter the big one I had left.


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  • flowers2
    flowers2 Member Posts: 8
    edited January 2017

    They found LCIS on my good breast after BMX which was not seen on the MRiI, mammogram or ultrasound..My oncologist said it was good that I had a BMX.

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  • Robyn_S
    Robyn_S Member Posts: 197
    edited January 2017

    "They found LCIS on my good breast after BMX which was not seen on the MRiI, mammogram or ultrasound..My oncologist said it was good that I had a BMX."

    Me too....multi-focal LCIS in the "good" breast...and two tumours in my not so good breast! So glad I had a BMX...felt like It was overkill at the time but a UMX asymmetry bothered me...so glad I did

    5 years on...fantastic!

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