Travel while on Chemo?

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samjune79
samjune79 Member Posts: 5

How realistic is travel in between treatments. 

I told my son we would take him to Lego Land for his birthday before I found out I had BC but now I am worried that I won't be able to go the distance.  I want to be there for him but I am thinking it will be too much for me and plus I prob shouldn't go on any rides and should just let my husband take him and I stay home.  Anyone go to a theme park on chemo?

I signed up for a camping trip before I found out I had BC.  It is a luxury campground so I am not worried about bugs or the elements but it is right after my second treatment.  I think it will be relaxing since the trip is hosted by the dad's/husbands for their families so I would be pampered.  Anyone ever go camping on chemo? 

My husband's company is asking him to attend a cruise in April.  This will be after 4 treatments.  I am extremely worried about going on a cruise within close proximity of germs with no escape.  I don't want to go on this cruise and my husband completely understands but just in case I am overthinking the germs here I wanted to know if anyone went on a cruise while on chemo? 

Please share your thoughts and experiances, thanks!

Comments

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited January 2017

    Hi!

    I traveled during chemo. I visited my parents in CT and their lake house in MA. I didn't get sick. During chemo, it helps to keep a diary of side effects and to see whether there are any patterns. For me, infusion day was Wednesday, and I felt fine because I was pumped up on steroids (part of the pre-meds). By Friday, though the steroid fog was starting to lift, and I began to feel less energetic. I crashed during the weekend, but by Monday, I was feeling more like my old self.

    Are you getting Neulasta shots the day after your infusions? Neulasta is supposed to boost your white cell production and thus your immune system. I worked through chemo and I only got sick once, from a stomach virus my sons brought home from school (whole family got it).

    Best of luck!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2017

    My MO was open to my doing a lot of things but he would not have let me go on a cruise. His thinking was that if something happened, I would not be close enough to a hospital. Could be dehydration or your RBCs tanking or an allergic reaction, or....

    You have ambitious plans. I had chemo on Thursdays & Neulasta on Fridays. I spend most of the weekends recovering - frankly sitting on the pot with extreme diarrhea. You just don't know what your side effects will be at this point. If you're lucky, they may be minimal. When you have your stats & plans, it would be helpful to post it on My Profile so we could give better answers.

  • xxyzed
    xxyzed Member Posts: 230
    edited January 2017

    I think what you are planning is not realistic. Firstly, is this travel within your own country or overseas. If overseas it is unlikely you will be able to get travel insurance. Personally, if I can't get travel insurance I don't travel. Secondly, it is possible you will be perfectly fine and able to travel but you won't know until you have completed a cycle and worked out when you feel well and when you don't. Complications can arise at any time and change your plans at a moments notice.

    I felt unwell for a few days after the first type of chemo which was AC and a week after the second type which was Taxol. I was getting dose dense which was every two weeks. By the time I felt better it would take me the next week to get on top of the house, groceries, kids and medical appointments just in time for the next treatment.

    Camping in itself would be fine unless you are permanently attached to the toilet or so wiped out you can't lift your head off the pillow in which case you would be more comfortable at home. Like others I doubt your oncologist would permit a cruise due to the germs but that would depend on your neutrophil levels which you wouldn't know until the time so a bit difficult to plan ahead.
  • stephincanada
    stephincanada Member Posts: 228
    edited January 2017

    I completely agree with xxyzed's comments. Also, we have a cousin who is an infectious disease doc, and he said that the most dangerous place for me to go while on chemo is a cruise. It is a floating Petri dish, with really good food

  • LimnoGal
    LimnoGal Member Posts: 157
    edited January 2017

    I managed to arrange my chemo schedule around some work/fun travel that I really wanted to attend. I had 4 T/C treatments, 3 weeks apart. The third week post treatment was the best for travel time for me. Of course, that meant that my hair fell out while I was at a conference-Awkward! Your energy level may not be what you would like it to be between chemos. Keep that in mind. I would be less worried about camping than I would be about travel in any common carrier. I did not fly until I was done with chemo.

    Good luck!!

  • Freya244117
    Freya244117 Member Posts: 603
    edited January 2017

    I agree with the others, you need to see how your body deals with the treatment. You may breeze through or get hit with bad SE's.

    stephincanada love the petri dish with good food description. A cruise I would definitely pass on while having treatment. The other trips you may be able to work around.

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited January 2017

    I personally wouldn't go anywhere during chemo. If you develop an infection, you need to get to the hospital FAST, and you're better off at the hospital where you're being treated. I did develop an infection after my 3rd treatment, and my husband had to take me to the ER late one night. I really would not recommend a cruise. Too many germs, and if you get sick they might have to send a helicopter in to get you off the ship (I was on a cruise some years ago where they had to do that for someone who became ill). It isn't easy to land a helicopter on a ship and it costs a lot of money. It will probably be very difficult and expensive to obtain trip insurance when you're in treatment for BC. As for camping, if it's close to home I might consider if it is two weeks after treatment, but you usually feel pretty sick the week following. I also experienced severe diarrhea, and I would not want to deal with that while camping. I would also avoid planes and theme parks due to exposure to germs.

    I know that all this sucks, and you don't want to miss out. Could you delay treatment until after these trips? When I was diagnosed, my doc asked if we had any vacation to work around before she scheduled surgery. She assured me tha a couple of months would not make a difference in outcome.

  • ksusan
    ksusan Member Posts: 4,505
    edited January 2017

    My MO didn't want me to be around groups of children.

  • samjune79
    samjune79 Member Posts: 5
    edited January 2017

    Thank you ladies for your honest thoughts and stories.  I know this is going to be hard on my body.  I need to be prepared for all of this.  My co-workers and friends seem to think I will be "just fine" but I know I will have a hard road and you ladies have been going through it and know exactly what to prepare me for.  I haven't started chemo yet, so I am living in this "I feel fine" bubble and at any moment after this Wednesday I am about to experience the realities of fighting cancer because up to this point I have only been preparing for it! 

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited January 2017

    SH, There is a period during chemo called NADIR at which time your body's immune system takes a big dive. You may be getting Neulasta shots to help with that, after each chemo TX. I did travel via Amtrak (with my own sleeping compartment) and did fine. You may want to see what your DR. recommends. I washed my hands, sanitized everything, was careful what I ate. A cruise may be a bit more of a challenge. My one regret while doing chemo was missing my GS's 5th bday party...too many kids, in the dead of Winter at a public place. Looking back, I wish I had gone and just worn a mask and been super cautious....of course, now, he doesn't even remember, but it always sticks in the back of my mind. Hard decisions that we never expect to have to make. I remember the fear of getting sick kind of isolated me and I hated that. Best wishes with whatever you decide!:). You can do this!

  • debiann
    debiann Member Posts: 1,200
    edited January 2017

    Travel? I had a hard time just getting off the sofa. Terribly fatigued. All food tasted horrible, I truly thought my tastebuds would never be normal again. The steroids made me short tempered and I had the chemo brain fog. I was miserable. I would have one "good" week every cycle, which was still anxiety filled because I knew what was coming. I hope things go better for you, but I wouldn't plan a lot of activities that you'll feel bad about if you can't participate. Most will agree, round 4 is the absolute worst round. Its when I begged my MO to stop. He reduced the dose for the next two rounds and things got better. The effects of chemo are cumulative, it gets a little harder each round.

    You will want to avoid crowds and germs. My MO didn't want me eating any fresh fruit or vegatables. You are at risk for illnesses that your body can normally fight off. You don't want to complicate or delay your treatments because of another illness.

    I'm not writing this to scare you. You'll get through chemo, but you need to be able to focus on you, your needs. Sleep when you need to sleep, eat what you can eat. As wives and moms, its not something we do well, but for a few months let others take care of you so that your body can heal. My husband was my rock.

  • debiann
    debiann Member Posts: 1,200
    edited January 2017

    Another thing to know about chemo is that your schedule can change. You will get blood tests prior to each MO visit and if your counts have not improved enough, your next chemo may be delayed. You cannot predict your chemo schedule. Something for your husband to consider too, if he is going on the cruise without you. Do you have someone else to take you for your treatment if he is away?

  • Bootscootin
    Bootscootin Member Posts: 70
    edited January 2017

    I worked my full time job at an elementary school through eight rounds of chemo and was fine. Tired some days but did not get sick. Also traveled from TX to KY by plane during my Spring Break and again during the summer.

    As others have said, you just don't know how you will feel until you have been through a round, and if you have more than one kind of chemo you might have a different set of side effects. I would hesitate to go on a cruise because I would not want to be that far away from medical care

  • debiann
    debiann Member Posts: 1,200
    edited January 2017

    When you are making plans also know there are a lot of appointments to schedule. The week before each round you need blood work drawn and you'll see your MO. The day after chemo you return to your center for a neulasta shot (I think some are doing these at home now?) I also had to return to the center on day 4 for extra fluids. If you are on herceptin you will will be getting mugascans every couple months to check on your heart. I had 4. If your doing rads, surgery or recon there are more appointments. Treatment felt like a full time job to me.

    Bootscootin, I'm impressed that you worked all through chemo. I teach highschool. I felt lucky that most of my treatments happened over the summer break because I never would have been able to work. But everyone reacts different.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited January 2017

    I was pretty fatigued for about 10 days after each chemo. The next 10 days I had pretty good energy. I did not travel during the 4 months of chemo, because I had 2 episodes of high fever that sent me to the ER and 1 episode of sepsis, which could have killed me. That made a believer out of me.

    I did however go in the car up to the place where our camper is parked. There is a good hospital there and our camper has all necessities of home, so I could cook my own food and sleep in my own bed and have all my own stuff around me.

    Honestly? I would not go to Lego Land during chemo. Amusement parks are full of little germ vectors (ie., children) who drool, sneeze, cough, and vomit. And it doesn't much matter if you wash your hands because they aren't washing THEIR hands. Kids touch everything! I've seen plenty of idiot parents bring kids with flu, stomach bugs, even chicken pox to these places!

    I'd definitely skip the cruise, for all of the above reasons. If you get really sick, you may be forced to go to a hospital in a foreign port which may or may not be able to give you appropriate care.

    My MO had me severely limit time in crowded places. I went to bible study but not church. I stayed out of malls and did 100% of the Christmas shopping online. I only went places in my car, never planes, taxis, or subways. Maybe if I hadn't had those 3 episodes it would have been different. I don't know. Nobody knows who is going to get really sick and who won't.

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