Feeling nervous and confused waiting on biopsy of birad 5

Hi Neenie.

You have obviously researched and seen that a Bi-Rads 5 biopsy only comes back benign about 5% of the time. I would be absolutely livid that someone would be minimizing that to me, rather than honestly telling me that I more than likely DO have cancer and that the biopsy will more than likely confirm that. If I asked a specific question after being told odds of 4 out of 5 benign (Birads4) when I had a Birad 5 I would be very angry

Hugs to you neenie311. The waiting is always the hardest. We are routing for benign!! Please keep us posted.

WEEKENDS ARE THE WORST! But we are here with you. One other thing to keep in mind: some insurance companies won't pay for additional tests (e.g. biopsies) unless the radiologist gives it a high score (usually 4 or 5; often doctors take "'wait and see for 1 and 2s and 3s can go both ways, depending, so radiologists can give a higher number in order to get the test ordered. I'm not saying they're lying; I'm saying that some may feel they have to be give high numbers in order to get tests.). So if most biopsies are done on 4s and 5s, then yes, there is still room for a benign finding here. I'm hoping that's what happens for you!

Hugs,

Kelli

Neenie,

I agree with Aven. You need different doctors, especially with the more than likely possibility that you do have cancer, if it was indeed the doctors who told you not to worry. If it was some lay person telling you, "not to worry", than that is a different story.

But no doctor should have told you "not to worry, most biopsies come back B9" with a BIRAD5. That is malpractice IMO

I agree with Melissa, too. I would be LIVID that these professionals were minimizing the situation with a BIRAD5. NOT acceptable.

Is there a breast center in your area? Make sure, if you do have BC, that the surgeon you get is a breast surgeon, not just a general surgeon.

Okay Neenie, take a breath. I'm so sorry for your results and am sending you big hugs.

Here are a few thoughts, I'm sure others will add more. Scheduling an initial appointment with a surgeon is a good next step. You probably also want to schedule an appointment with a medical oncologist (this is the person who determines what types of chemo might work best on your cancer cells and if it is recommended to have chemo first or surgery first). If you choose, and are close to one, a center that has a team that works together can be quite helpful. I did go to "breast day" at Duke Cancer Treatment Center and, amazingly enough, saw my BS (breast surgeon) who was also a PS (plastic surgeon), a Radiologist and then another specialist who did more US (ultrasound) guided biopsies. All in ONE DAY. They then came up with a plan. That kept me from going to one expert, doing whatever diagnostics they needed and then getting a referral to another expert, waiting for an appointment and then going through their diagnostics.

As far as the best boards, maybe start with "just diagnosed" and/or "idc". there are so many knowledgeable women that should information and great support for you. Best of luck!