Mastectomy....5 months later

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Notmyself
Notmyself Member Posts: 30

I am 5 months out from my mastectomy surgery and i find the movements of shutting the car door, reaching around to scratch my lower back, and putting my coat on to still bring a bit of pain (or maybe I feel soreness in my arm duirng these types of movements). My range of motion otherwise is pretty good. Did anyone else find this to be true

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  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited January 2017

    I am 6 weeks out, no issues for movement. Still working on range of motion, but no pain or soreness

  • muska
    muska Member Posts: 1,195
    edited January 2017
    Hi Notmyself, have you been doing post-mastectomy stretching exercises? Havve you seen a physical therapist?

    Best.
  • Falconer
    Falconer Member Posts: 1,192
    edited January 2017

    Hi NotMyself- There is a Facebook group called Surviving Post Mastectomy Pain Syndrome. I joined last week because I've been having issues with my shoulder and neck. Also if you look around this site I think youll find people who are experiencing similar issues. Hope you get back to yourself

  • Notmyself
    Notmyself Member Posts: 30
    edited January 2017

    I haven't done physical therapy but have done the stretches. It seems like it is just that reaching back motion that gives me trouble the most.

    I will check out that Facebook page...thank u!

  • Jumpship
    Jumpship Member Posts: 305
    edited March 2019

    I'm 27 months from mastectomy and 15 months from reconstruction. For me it's been a journey. I did the exercises and I did a 3 month post-cancer fitness program plus daily exercise and two rounds of physical therapy. I am better now but not 100%, maybe 85. I did have shooting pain sometimes. If you have the energy I'd ask for pt and ask for a mastectomy expert. I found varying my exercises helped and adding yoga.

  • Notmyself
    Notmyself Member Posts: 30
    edited January 2017

    thanks, jumpship...I think I will ask for some PT to see if it helps.

  • muska
    muska Member Posts: 1,195
    edited January 2017
    I think every woman should see a physical therapist specializing in post-mastectomy issues soon after mastectomy. This made big difference to me even though I saw PT no more than 3 times total. The first time was very soon after mastectomy, the second time - a month later and a third time another month later. At each appointment she showed me the exercises appropriate for my level of recovery. Strongly recommend a couple of sessions with PT and then "graduation" to a regular fitness class at the gym.
    Best.
  • Notmyself
    Notmyself Member Posts: 30
    edited January 2017

    thanks for those thoughts, Muska. It's a great idea

  • gracie22
    gracie22 Member Posts: 229
    edited January 2017

    Notmyself, I started having the same issues about 5 months out. No swelling or evidence of lymphedema, but my arm and shoulder had mild pain, and I had fairly strong arm pain with movements that involved reaching behind me or to the side as well as less general range of motion than pre surgery, and it hurt to twist the arm (as in the motion you use turning a door knob or tightening a screw). I think the PT idea is a good one. I should have done so myself, but was so sick of doctor's offices and insurance wrangling that I just wanted to get back to normal life. The pain did eventually subside, and within a year post-op I was pain free. I found that doing shoulder rolls (move your shoulder in a circular pattern with arms relaxed by your sides, do a set rolling to the front, then to the back) several times a day, hot showers in the AM and PM, and putting on PAS pads on my shoulder, back, and top of arm before bed really helped. PAS pads are stick-on pain reliever pads available in CVS and other drug stores--they are non prescription and I have always found them helpful. I also stopped picking up anything heavier than a few pounds with the bad arm, and gradually over a couple of months worked myself up to higher weights. Happily, the pain completely resolved.

  • Notmyself
    Notmyself Member Posts: 30
    edited January 2017

    gracie22,

    Thanks for sharing your experience! It is so helpful to me to hear other people's stories to get s sense of what is "normal".


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