What to expect

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Cinderzhere
Cinderzhere Member Posts: 4

hi I'm about to start chemotherapy in about four weeks just got done with surgery so I'm healing up from it but I was just wanting to know if any of you could please tell me the rundown on the time you get your port to the time when you started your first chemotherapy in other words after you had your first chemotherapy treatment how long after did you start not feeling well or started losing your hair or started having stomach aches etc. good and bad experiences are welcome I'm just wondering so that I know ahead of time what I might have to expect thank you

Cindy

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  • sisterhasbc
    sisterhasbc Member Posts: 18
    edited January 2017

    My sister started AC on Thursday and had a neulasta shot on Friday. She felt pretty good Thursday and Friday, not quite as good yesterday and today was having more nausea and just not feeling great in general, but not terribly sick. She also mentioned a headache yesterday and today but she tends to get them anyway.

    She had her port put in December 14 but her chemo was delayed as she had an open area on her breast from surgery and then a bad cold

  • chickensandgoats
    chickensandgoats Member Posts: 64
    edited January 2017

    I started my chemo one week after getting my port placed. I have finished 4 dense dose A/C and am getting ready to start 12 weekly Taxol treatments. I lost my hair between weeks two and three. I cut it short before hand. I have been lucky to not have too much nausea. My worst side effects have been from the accompanying steroids. I have had to start taking Prilosec for severe heartburn. I have been able to keep working through my treatments. I think the not knowing what to expect was worse for me.

  • Freya244117
    Freya244117 Member Posts: 603
    edited January 2017

    My hair started coming out after 10 days, made a mess everywhere so I got out the clippers. It felt much better without the weight of the hair pulling on my scalp as well. I never got sick or felt unwell on my first chemo course, well not quite true. I felt ill once because I got a bit cocky and decided I didnt need to take the anti nausea meds. Much easier to keep it at bay than try and get rid of it.

    Most of my friends found days 5 - 7 was when the fatigue hit. I was very lucky, in some weird way chemo agreed with me. I kept well hydrated, ate small, frequent, light meals and exercised every day, usually just walking for a couple of hours. The chemo regime I was on was FEC - D.

    The last three chemo's I have tried have been a failure due to allergic side effects though, so it can be a bit of a lottery. Best wishes.

  • Midwest_Laura
    Midwest_Laura Member Posts: 168
    edited January 2017

    Hello, Cinderzhere.  I had my port installed on a Friday and started chemo the following Thursday.  The time between the two events can vary for each person.  I have heard of some women receiving their port one day and starting chemo the next day.  Since you have time to schedule these, I suggest that you give yourself at least a week between the two to let the port incisions heal. 

    My AC chemo is on Thursdays.  I felt good on Thursday night (a bit tired, but that was mostly stress plus a few bad nights of sleep.)  I started the anti-nausea drugs at 8:00 p.m.  I felt terrific on Friday during the day.  I kept up with the anti-nausea drugs.  I had the on-body Neulasta shot that went off around 5:00 p.m. on Friday.  I felt okay until around 10:00 p.m.  Had some pain then.  Woke up at 2:00 a.m. with severe pain in my ribs from the Neulasta.  Aleve helps me a lot with that.  Many women claim that starting Claritin the day before and keeping up with it helps them.  Anyway, Saturday was a bad day with the bone pain from Neulasta.  I used 2 Aleve every 12 hours to help.  I also kept up with the anti-nausea meds every 8 hours.  Sunday was better from the pain perspective.  By Monday I was off the anti-nausea meds and was only using 1 Aleve every 12 hours. 

    Regarding the hair: it started coming out in handfuls 2 weeks after the first round of chemo.  I chose to shave it down to 1 inch on day 18 because I was worried about clogging the shower drain.  I think that my choice was right for me.  My scalp was very itchy and irritated.  I think that if I had shaved it all the way down, the irritation under the scarves and caps would be annoying. 

    Conclusion: I am one of the lucky ones to tolerate the chemo well.  The pain from the Neulasta is confined to the few days after the shot.  I'm a bit tired at the end of every day and I have a constant headache without the Aleve; otherwise, all is well.  No nausea or other "sick" feeling. I have been able to continue to work full time throughout treatment.

    Final Recommendation: I believe that part of my success is staying on track with the anti-nausea drugs and staying hydrated.  My chemo treatments make me very thirsty.  I respond with a plethora of bottled water, starting on the day of the chemo infusions.  This goes a long way to flushing the chemo drugs out of your system and getting you on the road to feeling better.  The anti-nausea drugs keep everything down, including nutritious meals.  Lots of water and a good diet reduces the fatigue. 

    You'll find as many variations on side effects as there are women posting their stories.  What chemo drugs will you be taking?  That will greatly influence what side effects may affect you.  I suggest keeping a diary of your symptoms so that you know what to expect for your 2nd round, 3rd, etc....  This was very helpful to me as clear a reminder so that I could prepare my personal and work life in the upcoming rounds of chemo.

  • lisa137
    lisa137 Member Posts: 569
    edited January 2017

    One thing to expect is that everyone is different, and that side effects don't all tend to hit at once (thank heavens) so you'll have this one for a day or two, and then another one for a few days, and so on.

    I had my first chemo just a couple of days after the port placement. It was still swollen--the port area--like a goose egg, but pain from being stuck there with the needle was really minimal and no worse than being stuck with a needle any other time.

    I always took my anti-nausea drugs, or at least one of them, on the way home from chemo, and stuck with them for a couple of days, on schedule. I did not have issues with nausea, probably because I did do that. I *did* have big problems with heartburn starting on the night after my first chemo and continuing now and again until I was done with chemo, five months later. After trying pretty much *everything* to combat it, I finally came up with what I always refer to as my "magic trifecta," which was a Zantac, a Tums (or several,) and a good heaping dose of Maalox, all taken at the same time. Worked for me. May not work for others.

    Biggest issues otherwise were mouth sores, which I got rid of by religiously using a rinse of salt/baking soda/water LOTS of times per day, and brushing my teeth with pure baking soda, and constipation, which hit me because of pain killers to combat pain from taxotere (which was wicked,) and was fixed after following the advice of one of the oncologists in my own oncologist's practice, which was, "Never mind the instructions; every time you take a pain killer, take a dose of Miralax.

    Hair falls out EVERYWHERE. Buy tissues. Your nose will probably run.

    The Claritin worked for me--no pain from Neulasta. Bonus: Helped a lot with the runny nose (duh,) so I just went ahead and took the stuff full time.

    Fatigue sucks, so sleep if your life allows you to.

    Chemo brain is real. Don't be surprised if you feel like you're losing IQ points, because you probably are. Don't worry. They come back. Well, most of them do.

    You might be hot and then cold and then hot and then cold. Plan ahead for it with both light covers and heavy covers on your bed, and warm hats for your naked head, and PJs you can layer and get easily in and out of.

    My first chemo was the day before Thanksgiving, in 2013. Not wanting to wind up throwing up on the turkey, I went ahead and took all three of my anti-nausea meds before going. Result: I nearly fell asleep in the turkey. Lesson learned: anti-nausea meds can make you really drowsy. Plan accordingly.

    None of it is really all that horrible, honestly. It's like having the flu, and not even a really bad case of flu. For five months. There will be moments that seem really awful at the time, but in retrospect, the worst moments of your life will most likely not be because of chemo, and you actually *might* get a few truly cherished memories out of the whole experience. So, best advice, prepare for the worst, but expect the best.

  • Tinyfrog
    Tinyfrog Member Posts: 91
    edited January 2017

    Thanks for asking this question and for the responses. I will probably start chemo in a week or two.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2017

    Below is a link for chemo tips & tricks that has been complied by many women here. Hopefully you all will find it helpful.

    https://community.breastcancer.org/forum/69/topics...


  • Goincrzy8
    Goincrzy8 Member Posts: 387
    edited January 2017

    I have a question about med for nausea etc. I have the one pill I need to take on day 0 (day before chemo) then day 2, 3. Is this done at nite before bed? Dr didnt say when to start it. Also one nausea every 8 hours one every 4 hours. How did you work your nausea meds?

    Still waiting on Port referal. I want to start next week.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2017

    GoingCrazy - Probably the first pill you're talking about is a steroid - like dexamethazine. That is usually given: the day before chemo, the day of chemo, the day after chemo. My doc ordered 2 pills each of those days - am & pm. The first chemo infusion started with benadryl in case there were any allergies. Then a Kytril infusion - that is an anti nausea drug. I had several other prescriptions in my bag in case I got nausea, but it was never a problem for me. It is important to keep on top of nausea just like pain, but I never took anything else. I got the Big D from the other end instead.

  • FightingTheFight
    FightingTheFight Member Posts: 75
    edited January 2017

    I got my port put in 2 days before I started chemo. But like someone else mentioned, having it used wasn't worse than a regular needle. For me, days 4-6 post chemo were the worse. The symptoms after each round were always a bit different, but increasing fatigue/muscle weakness, along with dry mouth/throat, were persistent ones. For the dry mouth, I use Biotene mouthwash.

    Also, I just finished my last chemo less than a week ago, so this is fresh on my mind, but chemo also ruined my sense of taste. I never before appreciated what a simple pleasure eating a good meal is, until I had trouble tasting my food. So this may seem silly, but for anyone reading this thread that hasn't started chemo yet, one piece of advice I'd give is try to enjoy your favorite food(s) beforehand. Because fully regaining my sense of taste is definitely one of the things I'm looking forward to most (in the short term - gotta take my enjoyment where I can).

  • Denise-G
    Denise-G Member Posts: 1,777
    edited January 2017

    Hair usually starts to go 10 to 14 days post chemo.  Your head will have a weird hurting sensation that eventually goes away.

    Drink  ALOT of water the day before, the day of, and day after chemo.  One thing I had to do that I never had to do before -wear a Depends or bladder control pad!  My sister and I who both went through chemo had the same problem.  With all the fluids going into you, we couldn't get to the bathroom quickly enough at the chemo area!  


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