Can we have a forum for "older" people with bc?

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017


    "We don't develop courage by being happy every day. We develop it by surviving difficult times and challenging adversity."

    -- Barbara De Angelis

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    Positive, I'm glad ( though there are truly informative sections here at BC.Org ) you are sticking with us. Most of us in one way or the other all started out the same way. Not totally in a state of denial about our diagnosis, but perplexed and overwhelmed. It is a high magnitude sort of disease. Others may have had a different experience, but when I got my dx --- I actually didn't know more than one or two people ( and no family members ) with breast cancer and so it was maybe even harder to accept. I did find that once I ( I think I was still a little sneaky about it ) I REALLY accepted that I had no way out of this dx. but to find out what path I needed to be on and then get started, it became easier. I say sneaky because I stopped worrying and questioning a lot of it and just let a 'flow' sort of take over. I had decisions and choices to make, but I made them and then moved on.

    Maybe for you "starting" will be the catalyst. It is true that if you don't do all you can ( for me that was take the prescribed tx. recommendations ) or go all the way --- and something were to happen, you would question that you had something to do with a negative outcome. That doesn't mean not to question until someone can give you substantial reasons for what they feel is necessary in your case. It is in the end your choice. I decided to think of it as I wanted to save my life and they wanted to save my life so while I had questions one of the biggest was --- what is the 'normal' accepted treatment and am I a candidate for it.

    I hope once you begin ( and I'm mainly talking about the txs. only ) it will be easier to get into the accomplishment and goal of saving your life and your health. We don't know how it will turn out -- no one truly does, but we have to be active and move toward being heavy duty assistants for the professionals that are on our case.

    Rain later and some of our warmth will dissipate, and who knows --- maybe a little sleet or ice tomorrow though I'm banking on that missing us. We will see how it goes. So, I washed my hair today and won't bother to set is. Works for me --- and saves a lot of trouble too.

    Hope you all have a fantastic day and in case you need any I'm sending good healing and hearty positive vibes.


  • MARIONSGIRL
    MARIONSGIRL Member Posts: 59
    edited January 2017

    Positive2strong, I am 65 and a year ago last week finished my 4 rounds of chemo over 12 weeks. Taxotere and Cytoxan. I was sick but it was from the Neulasta shots that I received because my blood counts were so low. I have a great oncologist and the infusion nurses were fabulous. I was tired during chemo and more tired after 6 weeks of daily radiation. My hair fell out during chemo but has come back. I can taste again! I am now on hormone therapy for 10 years taking Aromasin which has its own side effects. Mostly bone pain and trouble sleeping. I live alone and my sister and her dog took good care of me. I was out of work for 3 months but now everything is pretty much back to normal. Good luck and sending positive thoughts. Maryellen

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    Someone would have to back me up on this, but way back when and I'm not sure I totally recall ( but I bet it can be found somewhere ) a lot of the girls who had Neulasta ( which was the newest med at the time ) would take Claritin I believe it was for a day prior to the shot, the day of, and the day after, but you would have to check it out because my memory is not good on that.

    I had Neupogin -- an older medication which did the same thing, and I brought the shots home and gave them to myself for the 7 days after chemo that I needed to be on them. I had to take a fast acting Tylenol about 20 mins. before I gave myself the shot to avoid having a headache afterwards. Always something as they say, eh !!!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2017

    I did not have Chemo so I did not have Neulasta—but was told to take Claritin for a few days before & after my Zometa infusion in order to mitigate bone pain. Worked for me—just about the only short-term side effect of Zometa I didn’t get.

  • Positive2strong
    Positive2strong Member Posts: 316
    edited January 2017

    Marion,

    Thanks,

  • carolehalston
    carolehalston Member Posts: 6,887
    edited January 2017

    Puffin, that must be maddening to have that fluid in your ears. Any problem with the senses is difficult to tolerate. Hope the situation improves without the tubes.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    If you teach people to keep their eyes upon what others think of them, unthinkingly to lead the lives and hold the principles of the majority of their contemporaries, you must discredit in their own eyes the authoritative voices of their own souls. They may be docile citizens; they will never be men and women. It is ours, on the other hand, to disregard this babble and chattering of other people better and worse than we are, and to walk straight before us by what light we have. They may be right; but so, before heaven, are we. They may know; but we know also, and by that knowledge we must stand or fall. There is such a thing as loyalty to one's own better self; and from those who have not that, God help me, how am I to look for loyalty to others?
    image
    Robert Louis Stevenson

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    Oops, another of those days. We are still in the midst of the ice storm. Not horrible here, but not very nice either. We will do okay though I'm sure. I only have to go out once to do my kitties -- and only if the rain is not falling -- so not bad for me as today is a day off. I have picked up something extremely rare ( or has been ) for me. I seem to have a chest cold. Haven't had one for yrs. and yrs. Not to say I didn't have some issues -- one sinus infection which was easy to clear, as well UTI ( not a cold ) which was easy as well. Guess I need to be watchful as 2016/2017 seems to be bringing things I've not had to handle since I returned home in 1997.

    Hope your day is not bad and sending good vibes.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    To the mind that is still,
    the whole universe surrenders.
    - Lao Tzu

  • carolehalston
    carolehalston Member Posts: 6,887
    edited January 2017

    A pretty day here, sunny and in the 70's, but not horribly humid. I took two great nieces and their mother to lunch at Taco Bell and to the movies. We saw Sing. It had a rousing finale but dragged a bit getting there.

    Seven year old Olivia got restless.

    Happy Saturday.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2017

    Watch out, Jackie—Bob’s pneumonia started out in the chest, not from postnasal drip which is the usual precursor of a chest cold. Me, I have PND big-time, dripping down my throat and I’m sure some of it getting into my lungs. Don’t have other cold symptoms, so not sure it’s my respiratory system trying to filter out the dust. Might ask Bob to write me a ‘scrip for one of those Acappella devices so I can get it out of my lungs faster than it goes in.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited January 2017

    Hi Ladies.............Can I come and play...............was thinking of checking out altogether, but decided to find some old fiends...............so can I come and play here..........LOL......my pilot. says he will fly me wherever I want to go.........but for a price..................LOL

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2017

    Oh Ducky - I had forgotten all about your pilot friend. Glad he's still willing to chauffeur you. And glad to see you posting. What are you up to? Fiends is right!!!

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    It need not discourage us if we are full of doubts. Healthy questions keep faith dynamic. In fact, unless we start with doubts we cannot have a deep-rooted faith. One who believes lightly and unthinkingly has not much of a belief. One who has a faith which is not to be shaken has won it through blood and tears--has worked his or her way from doubt to truth as one who reaches a clearing through a thicket of brambles and thorns.
    image
    Helen Keller

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    I'm here very late today. Last night when I went to bed I coughed quite a bit and coughed up some blood. A few more times during the night and this morning as well. MAJOR alarm bells. Rather than go to work Dh and I went to Marion V.A. instead. I checked out fine ( blood tests & chest x-ray. ) and they think it is my sinuses which like to take off at ANY weather change. So, I think I will take my allergy pills for awhile again to get it all dried back up and otherwise behave as usual. I certainly would not have gone to work with my patient with what was going on but can feel all right about it now.

    Glad that was all it was --- I was having some imagination twinges I didn't like at all so good news all around. I do admit I'm exhausted. Long drive ( 150 mile rd. trip ) and it was drizzling and raining all the time. I was thankful we had no sleet or ice which was they said a possibility. So -- safe and sound and doing fine.

    Ducky -- put us in your favorites okay. We would love to see you here more often.

  • bonnets
    bonnets Member Posts: 769
    edited January 2017

    Illinoislady, Glad to hear everything checked out OK! Jean

  • Teka
    Teka Member Posts: 10,052
    edited April 2017

    Ducky, how is sweet Stella?

    January always feels like......ready, set, go!

    image


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2017

    Teka - that is sooooo great. Hard to remember when we're in the middle of taking care of everyone all the time, but really important.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2017

    Ducky, we fellow fiends are always up for a get-together (but not chez moi till the kitchen ceiling demolition & reconstruction dust is all gone). At 81, you're still a young'un—our “Rebbetzin Emeritus" (wife of our oldest rabbi) passed away Friday…on her 102d birthday. (Her husband is 101).

  • carolehalston
    carolehalston Member Posts: 6,887
    edited January 2017

    Good morning ☀️ to everyone. Jackie, good news that you're basically healthy.

    Sunny and mild weather here today.

    Happy Monday

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    Keep your dreams alive. Understand to achieve anything requires faith and belief in yourself, vision, hard work, determination, and dedication. Remember all things are possible for those who believe. -Gail Devers

  • Anneb1149
    Anneb1149 Member Posts: 960
    edited January 2017

    Mornin all,

    Lots going on here as usual. We had 2 of the grandchildren that are moving to Lake Placid overnight both Fri and Sat nights. They are so incredibly different here without Mom. Thurs was an early release day, so I picked my DGS up. When we got home, he immediately saw the 2 dog leashes on the table because the dogs had an appt for the vet that day. He of course wanted to walk them. I said absolutely no because the dogs are too big and strong and they are not leash trained. I ended up on a call about insurance, and when I got off, both dogs and leashes and Kayden were gone. I had to get in my car to find them and they were with a very irate man, who said I should know that a child Kayden's size cannot walk them. I told him I was very clear with Kayden that he was not to take them outside. I don't know if he believed him, but it was true.

    When we got home, I asked him if he thought my saying "no" was to protect him or punish him. He said punish. So I explained again why I had said no, then asked him why he was behaving so badly, and, my eight year old baby burst into real tears. He doesn't want to move. He says the land they are planning to build from containers is on a property that is so large, they have no neighbors. He doesn't want to leave his friends and his school. OMG, my heart broke even more it already was. I fail to see any logical reason for them to go. Neither of them have jobs there, my SIL hasn't even begun to find or make a workshop so he can continue custom painting remotes for video games, much less start on a home for them. They don't have enough containers to build anything that all of them could be comfortable in, but they are moving 2 hrs or more away into a 2 bed 1 bath apt., taking the kids from the only security they have.

    Then on another note, the DD who lives with me started dating someone. First serious relationship since her divorce 12 years ago. He is a devout Jehovah Witness. I know very little about Jehovah Witnesses, except that they don't celebrate any holidays and won't get blood transfusions. I could not and would not make a judgement about all Jehovah Witnesses based on those two facts, so please understand that I am not, in any way, being negative towards that religion. However, this has already become a major issue for them (him more than her). He has broken up with her twice over it already, including Christmas Eve. My daughter is not a practicing Christian at this time, but holidays and birthday are important to her. He was feeling so guilty about seeing her, although they have done nothing more than kiss, that he felt compelled to confess his sinfulness to the governing members of his church. They have excluded him from taking full part in their practices for 90 days.

    So they have had some phone conversations, but no face to face contact since Christmas. She is very clear to him that she does not want him to give up his beliefs for her, because she realizes that the day may come when he "blames" her for that. Then I guess he called last Wed and said he wanted to see her Fri nite. The whole religion part is really just background to the real problem. She agreed to see him Fri night to talk, but meanwhile one of the men that works at her job was in town and was going to be stuck here all weekend, and asked Tracy to go to dinner with him Thurs night, because he is unfamiliar with the area and did not want fast food again. While they were eating, the other guy called. Tracy ignored it. Fifteen minutes later, he called again and again she ignored it. The co-worker she was with went to the bathroom and Tracy texted D that she was out to dinner with the guys from work and would call him as soon as she got home. This is where It gets crazy- he went nuts on the phone, accusing her of cheating, lying, giving away "his" seat in our house. She hung up on him multiple times, but he kept calling back.

    Tracy is like me, not liking confrontations, but when prevoked, watch out! She let him have it, asking what right did he have to question anything she did. He broke up with her! As far as cheating she told him she was the one cheated on in her marriage and would never put that pain on anyone. She also said she was in a very controlling marriage and was not going there again. When she made herself very clear, he backed way down, and brought her flowers. Anybody else ever see or read about abusive men? My radar is screaming get away from him, but like I said, it is her first relationship in 12 years, so she is going to see what happens from here.

    That's my life at the moment. Thankfully, my brother will be here within a week of today. He just has a way of making me feel safe and sane, even with all the chaos. Hopefully, he'll be staying for a couple of months.

    Anne

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    Anne, I wish your brother would stay longer. I feel so for your grandkids. I realize they are not in charge and sometimes changes just have to take place, but these are such non-traditional changes and somehow I just feel the Dad is being selfish about making 'decisions' for his whole family. I guess it is too much to ask to that the whole family be able to sit talk and discuss pro and cons really carefully and thoroughly. I'm not sure anything would change, but then the 'adults' could get some reality on how much they are asking of the children -- or so one could at least hope.

    As far as religions go -- I'm not overly fond of any of them. I do feel like the Jehovah Witnesses are a fairly rigid group as my sister was of that religion as well. She did not become a part of it until she was in her 40's. I am not against them as such but find it disturbing that just seeing your daughter has made this young man a sinner???? Really. Is that all it takes !!!! As my sister was not quite in that category ( being older and married ) I guess I never knew anything about that part of things. I do recall my sister not giving gifts on holidays as such. I think giving anything was termed a love offering and not therefore specifically for a holiday. In any case it would seem to me -- any sort of relationship between these two people would cause endless friction. Not saying it couldn't or wouldn't work out, but I sure can't quite see it. I'm not sure this man is controlling ( though don't like the part where your daughter can go out to dinner with whom she wants ) but I more wonder if his religion doesn't control him. Guess I also think --- aren't there any 'singles' in his Church that would like to date a nice man.

    Well, obviously Anne, I have more questions than answers for you. I'm pretty much okay with all religions, but I think like is sometimes easier if you don't go outside of your religion to find someone to date or marry. It takes I think very strong people to be successfully connected with their marital life and their spiritual life as well. Got my fingers crossed for your daughter. I'd be careful if I were her.

  • munnybunni
    munnybunni Member Posts: 156
    edited January 2017

    have not been on this site for a long long time

    I had my mammogram and had to go back for another one and they found 5 dots on my right breast which is the one I had the lumpectomy on. I have to go for a stereotactic biopsy on jan 23 and am so so so very frightened.

    had my lumpectomy on 1/13/2012 and my hubbie was here with me to go through all this,,,he died 2015 and I am so afraid to go it alone..

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

    Maybe there is someone here who lives near you and would not might be your support. I think there is also more information listed here on BC. Org so you might want to check there to see if there is something which might bear some relation of your situation. I hope some of the other gals might come on and have some other ideas that may be of some help to you. Sending you hugs.

  • GrammaSue
    GrammaSue Member Posts: 9
    edited January 2017

    i am a month and a half away from 70 and although my biopsy results aren't in yet, the overall picture is not good at all. I'll know for sure in a couple of days according to my doctor. Hello....

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2017

    munnybunny - You can do it!!! I went to the biopsies by myself. I went to every doc appointment by myself, and met docs for first and second interviews to choose providers. I drove myself to & from chemo. I drove myself every day to radiation treatments. I had to have someone drive me to surgery, but that was it. If you're concerned that you won't remember what the docs say, tape record it with your phone. I didn't feel comfortable taking a neighbor with me, so I just put on my big girl panties & got it done. You can too. But yes, it sure is scary. Wishing you the best of luck.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited January 2017

    As I posted on some other threads, our temple’s “Rebbetzin Emeritus” (wife of the older of our two retired rabbis) passed away Friday on her 102nd birthday. (Her husband is 101). She was so beloved that among the pallbearers were nearly every local clergyperson—two Greek Orthodox prelates (St. Andrew’s is down the block), the priests from the two contiguous neighborhood RC parishes, three ministers and an imam.

    One of the many eulogies was delivered by her eldest granddaughter, now in her late thirties. She said that when she was in 3d grade, her grandma told her her very first dirty joke. To honor her memory, here it is, as retold yesterday:

    A rabbi had a very modest and devoted wife. She supported every aspect of her career, led the Sisterhood and every Friday night sat in the first row of the temple, gazing adorably at her husband during the sermon and hanging on his every word. One midweek evening at a meeting of the post-confirmation Youth Group, one of the teens said, “Rabbi, your sermons are so complex and scholarly. But could you please do one on a subject more relevant to us?” He asked, “Such as?” The congregant paused and replied, “…Sex?” The rabbi thought for a few moments and nodded. “Okay. Come to Friday night’s service and you’ll hear it.” Being a thoughtful and tactful man, he thought long and hard while writing the sermon, worrrying as to how his demure wife might react.

    At breakfast Friday, the rabbi told his wife, “Honey, with all due respect I don’t think you’d be comfortable attending services tonight.” When she asked why not, he replied, “My sermon will be on a topic that really wouldn’t interest you, so you wouldn’t like it.” She asked, “What topic is that?” He replied “Water skiing.” The rebbetzin nodded and agreed to stay home.

    Friday night arrived, the rabbi delivered the sermon, and it was indeed a hit. The next Friday night at the after-service Oneg Shabbat (coffee-and-dessert reception), congregants kept coming up to her, telling her it was such a shame that she missed such a terrific sermon the week before. “Really?” she finally asked, “How could he give a great sermon about something he hardly knows?”

    “What do you mean?” one of the women asked, aghast.

    “Well,” said the rebbetzin, “he told me he’s done it only twice…and both times he fell off."

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2017

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