Starting Chemo in Nov 2016
Comments
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Hey guys, I did Taxol 2 today. I'm on dose dense Taxol. Only 2 more to go. I can see the light!!!
Pamela, my liver enzymes were up today and my MO said Taxol is even worse on the liver. I didn't have any issues during AC. After I'm done, I've got a whole body cleanse picked out. Can't wait to get rid of all this crap.
Diana, good job on the weight!!
Marie, how's Taxol treating you?
Aterry, sorry about the C. I'm finally back to normal on Taxol because I don't take nausea meds. That was by far the worst thing I dealt with on AC. Yuck.
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Hey Ladies,
Lots of talk about Taxol! My 1st of 12 weekly starts on Friday. I already have darkening of several of my nail beds from the AC, so maybe I will try the dark polish. I would hate for my nails to get worse or fall out. I am also using Udderly Smooth to help keep my hands and feet moisterized.
Unfortunately, I caught a cold and hope it does not interfere in getting my treatment on Friday. Thankfully, no fever yet. I am taking off the rest of the week to try and rest up. All those little kids at work and their germs aren't helping me...lol.
Has anyone lost their eyebrows or eyelashes? On Monday, I noticed that my eyelids were swollen. I was wondering if that is a precursor to the eyelashes falling out. I have also noticed that my eyebrows look much thinner lately.
At any rate, I guess I will (hopefully) get to see how I react to Taxol on Friday. Good luck and few SE's to all of you!
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Hope88- lost all my eyebrows and have about 8 eyelashes on each eye. Looking like Yoda now especially with the bald head. I noticed a lot of vision changes. Can't see crap. I have heard it gets better around 4 months after stopping treatment. Well I need to see now so going to eye doctor today. Hubby got me a new violin 🎻 and start lessons on Monday. Hoping it helps with my stress and doesn't create more. I see the MO tomorrow before chemo and really need to know the plan when I finish next month. I have not had any scans since before chemo so I am sure she will order one. I really hate the contrast !!!! Does anyone have a plan of action for after chemo
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Dianarose I don't have a set plan of action after chemo yet, but I meet with my breast surgeon on the 27th...so I hope to have a plan for surgery then. I know it will be surgery, radiation, ovaries out, reconstruction...not 100% sure of order
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Bg46- I was exhausted after reading your list. That's a lot coming up. Four years ago I had my surgery first then chemo radiation etc... I had my ovaries out at the same time they exchanged the expander for the implants. One stop shopping. Plastic surgeon did the exchange then surgeon did the ovaries. The exchange was painless but was pretty sore from the ovaries being taken out.
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Thanks LOL I"m exhausted thinking about it all! But I'll just be happy to be done with the poison part :-) Im hoping they can do the ovaries at the same time as something else too.
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BH46- a recliner will be your best opt for sleep when you have your surgery as it is impossible to sleep lying down. I didn't have a recliner and had to prop up lots of pillows and would wake up constantly feeling like I was falling. Once the dam drain tubes are out sleeping in the bed is great. I was lucky to only have them for 6 days as others were over a month. Hoping you don't have to keep them long 👍
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Diana, I think it's great that you are starting violin lessons--what initiative!
I had my second Taxol, yesterday, it was uneventful. The neuropathy from the 4th AC has worn off and the neuropathy from the Taxol hasn't started yet so I'm getting a short reprieve. Also I think my taste buds are improving, a bit. By the 4th week of AC nothing tasted good and I have aversions to a lot of textures--even to bread; during the last week my husband was making soup and asked me to taste it to check the seasoning--I said, "There's no point I won't be able to taste the seasoning." At the infusion center today my nurse passed along a gift bag of natural skin care products. A former patient created the line and she brings gift bags for other patients, every now and then. I think that is so thoughtful and generous. The line is called Violets and I love it.
Nfullblume, I can't believe how many prunes I eat and still needed to take a senna & colace a few nights ago. Luckily I'm OK with the taste of prunes. I'm hoping the C will modify during the Taxol rounds, we'll see.
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Thanks Diana!
We have a sectional couch that has a recliner built in on both ends...but we also have a free standing one...so I guess I would see which is more comfortable and set up shop in the living room LOL
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I always eat a popscicle during infusion and have not lost any of my taste
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KB870 I have the BARD1 gene also....it has some indicators for ovarian cancer, since i"m done having kids and there are no early screenings for ovarian cancer I'm getting them out.
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I did my first Taxol treatment on Tuesday, January 10. I had a little numbness and tingling, but as far as the bone and muscle pain, WOOWEE. I talked with my medical oncologist yesterday. I told him, I didn't know if I could do three more dense doses. I may have to switch to smaller, weekly doses. We will discuss this next week.
Nfullblume - Are you doing anything to present nail lifting? If so, please let me know.
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I had a lumpectomy on my left side with some nodes taken out. The nerve running down that arm has ached the past week, but I was also experiencing painful toes and heels. The feet pain subsided but the arm is still sore, specifically fro the elbow to thumb. Today I noticed my left hand is a bit swollen even after taking my ibuprofen this morning. Has this happened to anyone? I'm praying it's not permanent lymphedema. I had my last infusion in that arm and now I'm worried.
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Pamela I would call your dr about the pain/swelling in your arm...I think they can give you a sleeve or compression thing to wear on your arm for that.
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I just called and they are sending me to get in ultrasound in about 1/2 hr. They need to rule out blood clot....awesome.
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Glad they are looking after you Pamela. Hope it comes back clear!
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Pam keep us updated!
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No blood clot and the dr on call basically said my dr will talk to me next week about it. I looked up lymphedema, hoping this isn;t permanent. One of the first things my MO's nurse asked me was if I had my blood pressure taken in this arm or any blood draws. Well I've had 2 infusions, a Neulasta shot & 3 blood draws from this arm. She said it's recommended not to use the side that you had nodes taken out for anything. Why wouldn't the cancer center tell me this? I even asked the chemo nurse last round if it mattered and she said no. Just hope it's not too late to heal this so it's not a life long problem!
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hi Pamela. Hope your test came back ok.
Hugs.
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Had ninth Taxol yesterday and been doing the count down to number 12. Well MO informed me yesterday she is not taking me off it any time soon. Didn't see this coming. Has anyone been on Taxol for longer then the normal regimen? I am not vain but was so hoping not to be bald forever! There are ten states on our bucket list we wanted to drive to this summer now staying on weekly chemo makes it impossible. I feel bad for my sweet hubby that taking care of me is his retirement 😢. At what point is too much Chemo in our bodies?
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Pamela, it's not right and I'm a little shocked no one has mentioned it to you before. It seems to be BC 1-0-1 to avoid the side of the operation. I mean, I've had a nurse tell me that if for some reason I did have a blood pull done on that side, it's not a big deal (to have ONE done) but overall no, you don't want every needle prick and blood pressure done on that side. I hope your MO has some ideas for you.
Dianarose, did your doctor give you any idea what they meant? Like, did they say I want you do to 20 rounds because....or give you any other reasons for not stopping at 12? I'd be in asking questions before you cancel your summer plans.
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Hello All!
Just found this group and I am glad I did. I stated my chemo regime November 1 2016. I get Taxol, Carboplatin, Herceptin and Perjetta every 3 weeks. I completed round 4 on January 4. I have two more rounds, followed by surgery on March 10 and then I will get herceptin every 3 weeks though November 2017. I have been tolerating the Chemo rather well but have felt more tired this last round and I have caught a cold.
Things have been going well but now I have had a scare. On Thursday I noticed a marble sized painful lump in my good left breast.
I called surgeon and OC (both were out on Friday) but my OC did call me back. He feels it isn't anything to worry about that the Chemo regime should not allow any new cancer to grow. I see the surgeon on Wednesday for an appointment to go over my double mastectomy on March 10. and OC said have surgeon check it out. I have been extrememly positive about this whole thing but I have to admit now I am worried. Anyone know if Cancer can grow in a new area while you are on chemo? Anyone have any thoughts on what it may be? I am hoping that it is a swollen glad or somrthing since I am fighting a cold ....but just don't know. Thanks in advance. Looking forward to talking with you all.
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hi plantchild, welcome. I had this exact discussion with my MO last week . I explained to him I was experiencing pain in my good breast. He said it's very rare to develop a new tumor while undergoing chemo. So I don't think u should worry but def. get it checked out.
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Hi Hopfull2 thanks for your response. My OC said the same thing. I did the bad thing and goggled it ....and I did come across people that said you can get another tumor while on chemo and also came across people that stated that Cysts in your breast can enlarge due to hormone changes. Hopeing this is the case as my cycle has been all wacked out since I started treatment ( after round 2 I had my period for 21 days....because chemo side effects aren't enough lol ) and since then it hasn't come back. So fingers crossed its hormones!!! The lump I found is painful and you can feel it. Unlike the two tumors I didn't know I had in my by right breast except that there was something unusual on my mammogram. Hopefully my visit with my surgeon will ease my mind. Thanks again! How are you doing with your chemo?
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I am gaining weight each week since Christmas and my eating has stayed the same (except Christmas weekend). I can't taste so I don't over eat. I haven't eaten sweets or fried foods. I have kept the same eating regimen I have had since surgery but some how the scale goes up a .5-1 lb every week. I exercise about 5 days a week & lift twice a week(on my good weeks) which is definitely modified because of the fatigue so I'm not sure if it's water retention? I only get steroids in my infusion. I don't take any other ones. Is chemo slowing down our metabolism that much? Anyone have insight? It's REALLY frustrating!
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hey ladies,
I haven't posted in awhile, I hope everyone is getting through treatments well. I've been muddling through, I have 3 more treatments left, I'm up to the Taxol stage which is way better than the Red devil. I wish I had gotten a port, every treatment leaves me feeling like a pin cushion and I think I'm out of veins. I've lost about 20 lbs since being diagnosed, I think it's mainly due to having no appetite and being sick with bronchitis. My biggest worry is low blood count, I don't want to get a blood transfusion
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Hello everyone! I have been completely absent from this site since we open our Facebook group. I keep forgetting that not all of you are there. Taxol has been a challenge for me. The bone pain in my legs is unbearable. But on the bright side, I have only two dense treatments to go. I can see the light at the end of the tunnel.
Hey DianaRose, did the doctor explain why is she keeping you longer on chemo? Hope it is not for the long haul. Hugs!
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Pamela, my understanding is that the chemo drugs promote weight gain and throw you into menopause which promotes weight gain...yeah, I'm screwed. I was up 10 lbs at my last infusion. I bought a treadmill at New Years, just before infusion #4, but honestly #4 took a strip out of me and I've felt crappy since. I NEED to get back on the treadmill today. Also going for groceries today, so more greens, veggies, etc. As you said, Christmas is over, so no more chocolates and sweets in the house. Hopefully getting moving a bit more (while I can) and eating even better will help.
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latinmixy- my cancer is not under control. Tumor marker last checked was 133. There is still something crushing my right ureter so I still need the naphostomy 😢. She made it clear that I will always be on some sort of treatment being I am stage IV and it's in my abdomen. She did say that maybe we can do two weeks on and two off. She said she wants me on it as long as it's working. Can't wrap my head around it yet. I have done nine rounds and today is the first time I have numbness in my hands. Sucks, thought I was not going to get this side effect. Figures it would start today as I start my violin 🎻 lessons this afternoon. The one thing I have is I always feel like I am in a fog. Never quite with it. Anyone else? Some days I am starving and other days have to force myself to eat. Dry mouth is bad first few days too. I am depressed about staying on something that keeps me bald too. I know I should just be thankful I am still alive at this point. Sorry to vent so much. Hope everyone has a good day
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hi plantchild. , this 4th treatment kicked my butt. I'm still in bed with cold symptoms. I have a low running fever. I told my husband I don't know if I can do this 2more times. It's too hard. But then I look at my kids and it breaks my heart not giving it my all.
Pamela, I have gained a little. Not much like 5lbs but def have not lost weight. But I do take steroids day before day of and day after. I'm glad I gained weight actually was getting too thin .
Diana rose. , hope your feeling bett
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