working full time during chemo--how did you manage?
While I don't know for sure I will need chemo, it seems likely since so far I am stage 2a, invasive, ductal/lobular, ER/PR+ HER2 negative, 3 tumors the largest being 2.1 and one of which is in situ. Have not had surgery yet so no info on node status.
So I need to keep working full time if possible during chemo which I hope will be possible. I have a desk job ( sales) and can work from home at times ( if they agree)
Does anyone have any tips on how to deal with this? How was your experience with it?
Thanks:)
Comments
-
Hi!
I worked full time during chemo. This was possible for me because I'm a college professor who only needed to be in class during two days of the week. Also, I talked to my boss and he agreed to reduce some of my service responsibilities. So, I just focused on my teaching and let my committee work slide. I also worked at home a lot, which helped.
Could I have done a 9:00 -- 5:00 desk job? I guess so, if I'd had more help with child care (I have sons with autism who can be difficult to manage). I was also lucky to have an office with a door. If I didn't want to deal with people, I could just close my door!
Best wishes, and I hope you don't need chemo!
-
Hi 9Lives70,
I was able to work full-time while on chemo. I missed the day of chemo, but was able to work the rest of the time. My chemo was TC x 4, three weeks apart. When I was halfway through treatment, I took 2 hours off (in the mornings) for the three days following chemo. I could have worked all day those three days, but this made it easier for me to get some extra sleep.
I didn't have much trouble with side effects. I hope and pray your chemo goes smoothly with few side effects.
-
I worked full time during chemo (middle school teacher). I did 4 rounds of AC, dose dense, two weeks apart. I would do infusions on Friday morning, have the weekend to veg out & be back to work on Monday. Prior to starting chemo, do as many of the upcoming projects etc, as you can, get out of any optional commitments, stock up on groceries, make & freeze food (especially if you have a family), think about hiring a cleaning lady (if you have friends who would be willing to bring in some meals, clean your house, whatever.....take them up on it!). In other words, make your life as simple as possible; also stay hydrated, take anti-nausea medications as directed & try to get a little exercise (which will actually help with fatigue. Chemo (and other treatments) affects each person differently, so be aware of that; but plan for the best.
-
As faculty, I had some latitude. I taught a mostly-online class; attended meetings only when other people agreed that they weren't sick and hadn't recently been exposed to kids with, say, strep; Skyped or phoned in when necessary; taught sitting down rather than standing; and took measures like attending only a presentation I was engaged in rather than an entire professional conference.
-
I have a desk job and my company allowed me to work from home a few days after my injections. I got Wednesday injections early in the morning. I would work from the chemo lab. I worked the rest of Wednesday, Thursday, and Friday from home. My SEs normally started Friday night and then by Sunday, I was back to normal. I would work back in my office until the next injection. I did not miss any work during AC. My first Taxol injection day was very long, 8 hours. So I took a few hours off that day. It's totally feasible to work and I actually think it's good for you. If you're busy concentrating on work, you're not thinking about SEs. You can do this!!
-
I worked full time through chemo; I also have a desk job. I generally skipped work the day of, but not the day after, as I found the steroid 'high' was helpful for getting stuff done (or so it seemed anyway :-)) The timing was such that my worst day (the post-steroid crash day, day four IIRC) was on a weekend.
I attended one professional conference that I could drive to (a two day conference two hours drive from home) during chemo; I had my MO's ok to go to another meeting that would have required a cross country flight, but in the end, I skipped that one: it involved a particularly grueling itinerary, I hate flying even under the best of circumstances, and I decided I wasn't up for it.
I will say that my employer is VERY flexible; I set my work/not work schedule and could have worked from home if I had wanted to.
The biggest factor in feeling well enough to work all the way through, I truly believe, was that I followed the excellent advice that I got from both these boards and from my MO: to exercise all through chemo. I walked every day. It helped so much.
My recommendation is to exercise, plan on working, and see how it goes. For me, working was a great distraction.
Good luck!
Octogirl
-
Hello, 9Lives70
If you have the option to work from home (WFH), you should be good to go. Any reasonable employer will accommodate WFH rather than look for a new employee. With all of the conference call and screen sharing options these days, WFH is an easy option.
I was wondering if anyone can share their stories about their first day back, sans hair? I've have had 2 rounds of AC chemo and have been WFH since during that time. (I normally WFH 2 - 3 weeks each month.) My hair is basically gone now and I'm dreading going back in to the office. I bought a wig, but I don't feel comfortable with it. (My original hair was always quite short and of mixed raced. There are no wigs that truly match.) I have only told a few managers about my BC because they needed to know why I was missing so much work for all of the appointments. I don't know how to face the rest of the office. Go with the wig, and hope they don't notice? Stick with the turbans and scarves and answer questions as they come up? I'm generally a private person. I didn't intend to tell anyone unless absolutely necessary.
Does anyone have some inspiration to help me get through that first day back?
-
Hi, 9Live70. I also worked full time during chemo (desk job). I had AC+T. My infusions were on Thursdays, and I would miss a half day for that. My infusion center was only about 15 minutes from my office. I got lots of rest on the weekends and in the evenings, and really tried to get regular exercise (mostly walking and yoga). It's definitely possible, and in fact my oncologist recommended it!
MidWest_Laura -- I work in a small office (4 people) and my coworkers all knew about my diagnosis and treatment. Still, it was hard to walk through the door that first day without hair. But within a few minutes everything felt normal. What surprised me most was how many people didn't notice (or didn't say anything). I wore scarves or hats, no wigs. Wear whatever makes you feel the most comfortable and maybe have a short answer prepared in case anyone mentions it. "I appreciate your concern, but I don't feel like sharing details at this time" is a perfectly acceptable statement. You can do this!
-
Midwest Laura, I also used hats and scarves, no wigs. The good news, as was true for me, this is a good time of year to have a hat. I had only told a few people (my boss and folks I supervise immediately). Whether they told others or not, I don't know, but only one person actually asked me about the hats, and if I was ok...my response: "thanks for your concern, I am fine" (with a smile). Or consider even just "Thanks for your concern". Repeat as necessary. I am private also....yes the first day back was hard, but I got used to it. Eventually of course more folks figured it out,but they were smart enough to realize that if I hadn't mentioned it, I didn't want to talk about it.
Six months later, a colleague I feel close to, came in my office, closed the door, and said he'd like to discuss personal issues with me because he needed some advice and he thought I could help. Turns out he was facing chemo for prostate cancer and wanted to hear my experiences and thoughts about working through it....He didn't even say, "I know you have had chemo" it was more like "well, I figured you could help me out...and I really need help"...Anyway, talking to him was easy. It felt good, because he wasn't just being morbidly curious, he wanted and needed information. He was the ONLY person at work I ever discussed details with....
It isn't fun, but you can do this!
Hugs!
Octogirl
-
I wore scarves and hats, but I had let people know at work. My first day in after losing my hair I posed for photos during breaks in a meeting. The second day in I was teaching and a student asked how I was. I answered, they wanted to see what I looked like without hair, and I showed them. The consensus was that I have a very nicely shaped head.
-
I wore a wig. Very few people knew that it was a wig (a friend who knew I did chemo but whom I hadn't seen for a long time commented when we got together "At least you didn't lose your hair"). You might to get one totally different from your current hairstyle. It will make the fact that it's a wig less obvious (those not in the know can think you just went wild). Also, you might want to get one in a short style so that it will be a less noticeable transition when you go back to your real hair (I teach & a kind of funny story.....my wig matched my naturally straight hair, but my hair came back in super, super curly. The first day I ditched the wig, one of my very fashion conscious 7th grade girls asked, "WHAT did you do to your hair?" I laughed, threw my hands up in the air and said, "Don't even ask!" And that was the end of that.
-
That is funny about the curls, Ruth: My hair has come back and still is very curly...and I get a LOT of comments on it...including from folks who haven't seen me in a long time and didn't realize that I had chemo. "Wow, love the new style!" "Did you get a perm?" that type of thing. The hardest one for me(that I have gotten from at least five people)..."Are those your natural curls?" (I just smile and say yes).
People never commented on the hats, presumably because they knew what they meant, but the curls....yeah. free game. Even from those who know I had chemo. and the truth is: I don't really enjoy the comments, even when they say something like "Oh your hair is so cute!" It feels like a reminder...and I dislike the curls, even though objectively I know they are in fact cute. I like your response, "Don't even ask!". Might borrow that...
There were a few times I wished I had ksusan's bravery to just take off the hat and show them...but it just wasn't me. It took me two or three weeks to even get up the courage to take off my hats and scarves in front of my husband.
Octogirl
-
Everybody handles it differently and I admire people who can 'go commando' but I really, really couldn't deal with people asking me questions (or worse yet, looking at me sympathetically). I think for me, wearing the wig was one way to protect my mental health. I just wanted things to be as normal as possible and for people to treat me as normally as possible too. I liked it that nobody knew what I was dealing with unless I chose to tell them. It took me a long time to reflect on and work through all my emotions before I was able to talk about it in any (somewhat) objective way at all.
-
Thank you to everyone for their feedback. It really helps me keep things in perspective.
OctoGirl: you stated, "Eventually of course more folks figured it out,but they were smart enough to realize that if I hadn't mentioned it, I didn't want to talk about it." That one really helped me! I had forgotten that I work with adults. No one is going to make a big to-do in the middle of a meeting. And if they do ... I just use my practiced answer of, "Thank you for your concern, but I prefer that the workplace be a Cancer Free Zone. Let's get back to talking about how this company can be successful in 2017!"
I have jumped off my high-horse of worrying about nothing. In the grand scheme of things, hair loss is not on the top of the list.
"Worry is a misuse of imagination." I am better than this!
-
ML, glad this discussion was helpful...but remember that it isn't 'worrying about nothing' and be kind to yourself!
Sending hugs!
Octogirl
-
thank you this gives me hope;)
-
9lives- I have a desk job, 27 years with my current employer and a boatload of sick leave. I don't have the option of working from home. I worked half time through chemo. I took chemo day and the next 5 days off, then worked 4-6 hours per day for the next few days, then full time until chemo day rolled around. Did I need all of hat time off? Probably not. Could I have worked more? Absolutely. On the other hand, as one of our HR folks asked me-what was I saving that sick leave for if not this?? I decided to be kind to myself and take some time. As far as letting people at work know, I told my direct management when I was diagnosed, but asked them to keep it close (which they did). When I had to go through chemo, I sent an email to my staff telling them my diagnosis and asking them to keep their distance if they were sick. My experience was quite positive. People were supportive, but not coddling.
-
I worked all the way through my treatment the first time through. It was a pretty tough chemo regime but I had flexibility with my hours and worked a desk job that did not require a lot of contact with folks when I was at my most immunocompromised. The treatment I was on required that I be on antibiotics for the duration so I had to be very careful about risking infection. I once tried to work after chemo.... not recommended....
I did buy wigs but just couldn't get used to them - more hair than I've ever had in my life! I wore hats to the office and then once I was at my desk I went with bald. I felt it was up to others to deal with it.
This time around I have decided not to work. My job is much more stressful and demanding. While they may say that they will cut me some slack, we tend to work at 110% all the time with very tight deadlines. Quite frankly, I'm older and suspect I won't be as tough as I was in my late 30's. LOL 😂 just started chemo last Friday so we'll see.
-
It's a bit of an old thread but I wanted to chime in. I wanted to be one of those "I worked during chemo" people like my great aunt was, because I think that's impressive and it's not like I don't need the money, but I don't have a desk job or constant access to a restroom, and with my other health issues and some chemo complications, I just couldn't do it. Twice I went out because I thought I was fine and ended up nearly collapsing and had to call for a ride home. Despite my other disability, I walk a lot but during chemo week, flat surfaces feel like hills and a block feels a mile. I thought maybe I could get some hours in the week before my infusion but I would need clearance from my doctor. I had an acute onset side effect a month out from my last infusion that showed up after I exerted myself and my bone marrow is having a hard time keeping up and given my work I doubt my doctor would clear me and she would probably be right not to.
The spirit is willing but the body can't do it.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team