How did you deal with pre surgery anxiety?
honestly I am pretty much terrified of my upcoming BMX and reconstruction. I haven't even picked my surgical team yet but I know it's something I must get taken care of within the next month. I'm relatively anxious by nature (though I don't take any medication or anything for it. ) I'm Just your typical type A personality that tries to be in control of everything, research the hell out of every possible option and complication, and basically does not like the thought of giving up all control to surgeons and anesthesiologists :-)
I am the type that will look at a pilot before I get on a flight to make sure he doesn't look like he's been drinking, or has had a fight with his wife, or so old he might have a heart attack mid flight. LOL.
I want to try to reign in my mind and think more positively before surgery, but in all honesty that's incredibly difficult for me as I always think about the worst case scenario first.
If any of you can relate and have any tips you'd like to share with me on how to best reduce anxiety I am all yours :-)
Please note I am not at all religious.
Comments
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No words of wisdom but my surgery is scheduled for the 17th and I'm getting a bit anxious too. I'm doing a lumpectomy and an oncoplasty. Just letting you know you aren't alone.
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once surgery is over you will realize the worst part is the waiting and what we process in our heads. I like to be in control and I am not in control I have to hand my life over and let the professional take me to the finish line I have grandkids I need to watch grow u
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sending you good thoughts for your surgery;) ox
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I was crazy anxious and took very low doses of lorazepam for the 3 days leading up to surgery, and another 2.5mg of valium on the morning of surgery. worked wonders. I should also mention that I started low dose Lexapro this past summer for a panic disorder. I had no panic pre or post op.
if you are anti-meds, I would try mindfulness meditation. there are zillions of books out there, but my favorite is a free app called 'insight timer' which has guided meditations you can do. they vary in length from 5min - 1 hr and there are tons to choose from. there is also a book called 'the dare technique' you can find on amazon, which walks you through how to tackle a panic attack.
or just try visualization exercises on your own - picture places that have serenity and calm. maybe an oceanfront bungalow. smell the salt air, imagine floating in the water, etc... get really detailed. then when you feel uncomfortable, you can bring up that happy place to settle you down.
good luck!! it is very stressful. find a team you really trust and communicate well with, and they can take the worry burden for you so you can just float through your surgery.
xx
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Valium and meditation (and I'm not usually anxious, but why suffer?). Also, at my first appointment with the surgeon, I watched his hands and was comforted that he didn't have a tremor.
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The waiting just about drove me crazy. The thing that helps me with the anxiety is...are you ready for this?
Housework. Cleaning floors. Scrubbing bathrooms. I'm not even kidding. Anything to keep my hands busy. I love to read, but when I'm anxious it just isn't diverting. Same with watching TV and going to the movies. I have to get something to keep my hands busy--when my hands are busy, my mind is quieted. So, my go-to is cleaning, the more physical the better. I also make little sun dresses for little girls, work on my quilt, rake, bake, and blow the leaves off the driveway. Anything to burn up some energy while paying close attention to something else.
And if push comes to shove, my friend Mr. Xanax is always ready to lend a hand...
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Hi 9lives70, I swear you are describing me, just this side of control freak. Funny thing about this cancer, though - there is no way to control it. No matter how hard I try, no matter how much I've learned I can't control it away. I can, and did, find a great surgery team, educated myself enough to know what were the right choices for me and then I gladly went into surgery knowing I had done everything I could and that the surgery marked the beginning of my healing.
I spent a lot of time preparing for surgery. I bought soft, button up the front jammies, a robe and slippers (I wore them all for my overnight in the hospital instead of those nasty hospital gowns. I felt like I deserved the pampering) I went to the thrift store and bought lots of soft, button up the front shirts. I bought a few front closure sports bras. I bought 2 mastectomy camisoles to hold the drains. I made sure I had plenty of pillows so I'd be comfortable propped up in bed. I made a chart to record all my meds and times and had a clipboard for the sheet to record drain output. I put my Drs numbers on the clipboard in case I got horribly sick so my DH didn't have to look around for contact info and Ibought a thermometer to keep track of my temperature.
I took care of every project around the house that I was afraid I'd be too disabled to do after surgery. I tracked down some tv series I thought I'd like to watch and organized the kitchen so I could reach everything I thought I'd need.
I also discovered guided meditation and found that unbelievably calming. Well, that and the klonopin they gave me the morning of surgery.
Trust me, you will get through this. You will be fine. It took me several months after surgery to stop obsessing about the cancer. Now, after 9 months I've learned to coexist with the uncertainty and life isn't much different than it was pre diagnosis.
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9lives70- As experience has shown you, your deep analysis of every possible situation and scenario has done nothing at all to influence the outcome. I know exactly how you feel, and do the same thing. It is exhausting, saps your energy, and ultimately only causes you stress! After excessive worry and analysis did not cure me, I decided to go with " I am not an MD and cannot carve this out with a melon baller myself!" I wanted it out, and the sooner the better. My surgeon is amazing, and since she is the expert here, I had to let her solve my immediate problem. I did tell her in the OR right before I went out that I did not want to take any cancer home with me that day! That was all I could do, just ask for the best, and hope for it!!
Take this step by step. Analyze each part. Make informed decisions that are best for you. When you can't fix it yourself, find someone on your team you trust to do it for you.
Good luck!
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from variable: "Your deep analysis of every possible situation and scenario has done nothing at all to influence the outcome".
That is so, so true. And so, so hard to accept.
From another control freak, thank you for pointing out the obvious that I always have so much trouble seeing!
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I made a list of questions that I needed answers to before committing to a surgeon and talked to (interviewed) my bs prior to scheduling surgery. His calm and capable demeanor while answering my questions, as well as his patience and desire to be guided by my choices made me feel confident in him. Once I made my decision, I put my confidence in him and let him do his job (he was excellent, by the way). He actually came in on the last Friday before Christmas (his day OFF) to do my lumpectomy as I wanted 'it' out. Do your due diligence, make your decision, and then let it go.
I agree with KSusan and LuckyNumber 47, meditation and or relaxation is really important on this journey. I used some very relaxing music and took it everywhere with me. It was my saving grace in waiting rooms and even in nuclear med while I was waiting for the radio-active dye to be taken up by my sentinel nodes and get their little pictures taken
Good luck!
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I went from heading to my chemotherapy appointment to being rushed to a bilateral mastectomy (tumor grew more than two cm between treatments), so no time to think.
That being said, I think those who say there is a sense of relief after the surgery are right. Yes, it stinks. Yes, I've grieved over losing a breast. However, it is done and you just have to push forward.
You'll have good days and bad days, but the anxiety about it happening seems to be the worst part.
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I was sick and depressed going into my mx. It was easy physically to recover. I was treated so well and made very comfortable in recovery. Emotionally, I was a wreck. I concentrated on the cancer being gone to feel better.
Once I was in treatment the overwhelming fear subsided. When I went for my DIEP I was worried about recovery and going through a 10 hour surgery. I was so excited that I looked normal except for the scars. As the scars got better I was so happy. I feel so much better about my appearance now, it helps to alleviate the memory of having cancer.
Remember 70% or something like that are cured with surgery alone. Just don't know if you are part of that group.
That is why we do chemo, radiation, targeted therapy and hormone therapy to get more people into the "cured" category.
It really helps to know someone who has been through it and is "done". I had one friend in particular, who had the same surgeries that I was about to have. I called her and talked everyday before my surgery. I would feel so much better after talking to her. She was confident and knowledgable. I remember being worried that the drains would be uncomfortable and keep me awake at night. She didn't have any trouble and it turns out I didn't either.
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I am yet to get my surgery scheduled. I'll need to meet with my PS first and then the surgery date will be arranged. Like others have mentioned, I tend to busy myself to keep my mind off of the current cancer situation. I have been burning candles and incense, using essential oils, and cleaning to calm myself. Work keeps me busy too. Taking in some exercise, long walks helps some. This weekend I plan to start setting up some meals to freeze so that my family has something easy to eat on while I recover. I love baking. Maybe I'll do a little of that too. Treat yourself to a nice robe or pajamas for the upcoming surgery recovery. Breathe.
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A sister-in-law gave me a guided imagery CD she had used for surgery. I used it, loved it, and have since given several copies to friends. I highly recommend it. http://www.healthjourneys.com/Store/Products/Succe...
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For me, it was “retail therapy.” Immediately went out to Second Act Boutique and bought the prescribed compression sleeve & gauntlet as well as a few Amoena camisoles with built-in bras. Then. because I was told I would have to sleep in a bra for awhile, I went online and bought a few Leading Lady soft front-close “leisure” bras (not enough support to look good, but enough to keep “Thelma & Louise” secure). I had a drawer full of very expensive European underwire bras in various colors (my size, 38 I, isn’t carried in most department stores) but was warned I might not be able to wear underwires for quite awhile, so I went to Kohls and bought some wire-free Playtexes in the “sister-size” of 44DD or 42DDD, expecting to have to remove a couple of inches from the back bands. I was warned that I wouldn’t be able to pull anything on over my head, so I bought a bunch of button-up shirts and PJs.
Also went to Staples and bought some ARC system punched paper, binding discs, covers, dividers and pocket folders and started a binder with sections for pre-op, post-op, radiation, chemo (if necessary), hormonal therapy, bills, receipts, handouts, after-visit summaries.
Well, I was able to pull off my PJs over my head the next morning after my lumpectomy. so I went back to T-shirts and nighties. 4 weeks post-op I began wearing underwires again, and though I was warned I’d probably have to go braless during and for a while after radiation, such was not the case. I didn’t even get irritation, and the underwire didn’t touch the surgical or biopsy scars nor the radiation field (I had targeted partial-breast rads).
My advice? Buy the bare minimum of what you’re told you will need, and if it turns out you need more, there’s always online. Spend the rest of your “retail therapy” budget on fun stuff you really want, rather than what you think you might need.
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Like ChiSandy, I bought really nice pajamas that could also double as cute outfits. Nice lycra lace camisoles.
My mother bought dvds of old movies so we could watch while I recovered.
Recovery was pleasant for me a break from work and spending time with mom.
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I always feel better after yoga. Or a long walk or bike ride. I have never been super sporty, but I have noted for years that physical movement will always pull me out of a funk or obsessive thinking spiral. I wake up and think "shit! I have cancer and I'm going to have surgery!" but then I start moving around and that anxious feeling dissipates.
I talk to people as well, but hands-down the physical makes the difference for me. I am worried about not having it post surgery. But I guess that time is more about managing pain or discomfort and less about the anxious uncertainty I am working on now.
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Always feel better after cuddling with my cats, or slow dancing with my dh. A good cry helps too.. And of course, coming here and reading.
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you are so right! Moving is good! anything to get me out of my head for awhile :-) waking up in the morning is the worst for me…total dread when I wake up and remember oh yeah I have cancer.
I alsolove getting out into the park with my dog there's nothing more uplifting and watching her run through the trees with a big smile on her face
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animals help so much! Coming here helps too unless I get too caught up in all the horrible side effects many people seem to have;(
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Surgery should give you great relief after it is over. The cancer is gone and for me reconstruction was exciting. To have fantastic results and a flat tummy.
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Meow13, so grateful for your positive vibe!
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Prayer got me through i asked The Lord to go into surgery with me i will Always keep Us All in Prayer. msphil idc stage 2 0\3 nodes Lmast chemo n rads n 5 yrs on Tamoxifen Praise God i am now a 23yr Survivor
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I am not really that religious but praying also helped me. I have a favorite prayer card by my bed.
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