HELP FOR MY MOM: IS IT POSSIBLE THAT SHE HAS A BONE METASTASES?

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Dearest survivors,


I'm just a worried daughter from Brazil. This is the first time I take time to write to you girls, although I read and learn a lot from the threads since my mum was diagnosed with a IIa Stage Breast Cancer back in 2014 (Oncotype DX Score - 8; one lymphonode positive - sentinel).

She's had a quadrantectomy and radiation therapy back at Jan/2014.

She's been under regular examinations ordered by her MO - all clear.

But since last november, she's been experiencing symptoms of a strong migraine on her LEFT eye, which lead her to have a MRI to check what the problem was.

Well, nothing was found regarding her migraine.

Nonetheless, the doctors found a small lesion (1,4 cm on her skull - RIGHT parietal bone) and since then, our nightmare begins.

As the lesion is not correlated to her migraine (she's under treatment now and is much better), doctors decided to investigate this lesion, having said that it was highly suspected to be a bone metastasis.

Since then, she's done the following exams/results:

1) MRI: high suspicion for bone metastasis

2) CT: lesion suspicious of bone metastasis, although MRI should be considered the best exam to rule it out

3) Bone Scintigraphy: High suspicion of bone metastasis

4) PET/CT: No findings of neoplasic activity in her whole body, including the Parietal Bone.

The only suspicious lesion she therefore has is the one found in the parietal bone (according to all exams, except for the PET/CT).

Her MO wants her to undergo a biopsy stating that a metastatic lesion cannot be ruled out without a biopsy; the neurosurgeon disagrees entirely.

Today, we've had a long conversation. He's seen all of her exams and stated that she would have to take a invasive procedure in order to proceed with biopsy (a microsurgery) with a negative PET/CT result and very small lesion.

Therefore, he's recommended that she takes another CT next month to check if the lesion has changed, so that he can take a more secure approach to her case.

MO strongly disagrees, saying she cannot be sure if she really does have a metastatic disease as PET/CT cannot be sensitive to all kinds of metastatic lesions found on the skull.

Long story short: have you ever been through a similar situation? What would you do?

What are your insights on the matter?

Any information would be of great help.

My mom is my everything.

I do apologize in advance for any English mistakes :)

Thanks a million!!!

Comments

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2017

    Simone - sorry your Mother is going through this. I had never heard of a quadrantectomy, so I had to look it up. So she basically still has both breasts with 1/4 removed tissue and she never had chemotherapy.

    Having been through one recurrence already, my ideas may not be as proactive as others might recommend. If she already has mets, there's no way to go backwards - they're already there and she has mets. So what is the harm of waiting another month and having another CT to see if the lesion has grown or changed or is stable? I would choose to wait a month instead of invasive biopsy.

    You don't mention if your Mom is ER/PR+ or if she is on anti-hormonals from 2014. You didn't say but I expect she would already have had chemo if she was HER2+. You also didn't mention your Mother's age but that might impact her decision also.

    I hope others will add their thoughts who have more experience with mets.

  • Simone_SP
    Simone_SP Member Posts: 2
    edited January 2017

    Dear MinusTwo,


    I completely agree with you. That's a good point to discuss with her MO today! Thank you!


    About her type of cancer, she is ER/PR +, HER2 -.

    She is 60 now, was diagnosed at 56.

    She's been no FEMARA since 2014. No Chemo for her based On the low Oncotype Score / 8.

    Thanks a million!

    Have a great day

  • KBeee
    KBeee Member Posts: 5,109
    edited January 2017

    Waiting a month to assess for changes sounds like a good option if she's ok waiting. Sometimes certain scans don't pick up small lesions. Best wishes.

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