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  • jcpriest0469n
    jcpriest0469n Member Posts: 86
    edited January 2017

    congratulations Debra on your five years. That's a big one. Wishing you many more! Your a bright light to us all.

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  • DiV
    DiV Member Posts: 231
    edited January 2017

    Trishyla thank you for the support. So sorry all of us are here and fighting this. My decision on treatment is very hard but i also know i want to live so i will fight with everything i have to beat this terrible disease. I'm trying not dwell on it. I've been watching videos on youtube to see how other people do things for themselves with one arm. Videos are very encouraging. Learned alot from them and their suggestions on tools that can help you button your clothes to homemade cutting boards to cut fruits and vegetables. Thank god for the Internet! Internet is a wealth of information! Keep fighting ladies!

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  • Meadow
    Meadow Member Posts: 2,007
    edited January 2017

    Thank you Mom!

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  • amw5
    amw5 Member Posts: 189
    edited January 2017

    Hi Everyone.

    I haven't posted in a while. I hope everyone is doing ok.

    I get my first Taxol (dense dose - biweekly) on Tuesday, January 10.

    (((hugs))) Thinking of everyone.

    ~Marie

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited January 2017

    happy belated birthday meadow. And Debra congrats on the big 5year mark. That's a beacon of hope for all of us.

    Newbies welcome and make yourselves at home here. The women on this board are great and can help a lot.

    Cocker hope you are ok. Missing you.

    Happy new year all. I have a favor to ask of all of you. Monday I go for my 6 month follow up from my mamo in July that had suspicious areas in my left cancer side. I need as many people in my pocket praying for good results. I can't even think about what if there are suspicious areas again and need a biopsy. I haven't been feeling well over the holidays and am starting to spin myself down the rabbit hole of worry. Plus I see my mo & ro next wed to review mamo results and have my 4mo checkup and also see my bs next Friday about the mamo results. A lot on my plate next week.

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2017

    ((ShopGal)) don't go down the rabbit hole!! Seriously though, try not to worry untill you're given something to worry about. Keep us posted.

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  • Meadow
    Meadow Member Posts: 2,007
    edited January 2017

    Thank you Shopgal

    Marie, hang tough! Keep up the good fight!

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited January 2017

    Shopgal, you and I both need prayers for next week. I'm in your pocket, praying!!

    I went to the doc with lower right sided pain Tuesday as I mentioned already. She did a CBC and Comprehensive Metabolic Panel and said she was sending me for an ultrasound. Blood work and urine were all normal. Radiology place called this morning and said they wanted to schedule an abdominal US and I had to fast. I was like huh? My doc said she thought it was my ovary. So the gal said well call your doc back and confirm. Anyway to make a long story short, she ordered both, so now I'm in a panic! I'm so worried a liver met is going to show up! In the past, I've read about my fair share of people being checked for other things like kidney stones or appendix and it ends up being something bad. Please pray for me! I'll let you all know when they schedule it. I'm coming up on four years since my BC diagnosis and I'm scared it'll be bad news after this. Sorry for the negativity

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  • Valstim52
    Valstim52 Member Posts: 1,324
    edited January 2017

    Luvmydobies and Shopgal, in your pocket. Luvmydobies you can feel however you want and vent here. That is what we are here for. Those pockets will get stuffed.

    Hugs to Amw, and Cocker. Waving at everyone. We are set to get some winter weather here in NC. We are not used to it so things are flying off the shelves.


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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited January 2017

    Luv, - I am sure that most of us know how unnerved you are, - but your blood tests are good, - and I think that the liver #s would show something not right if you had liver mets! TRRRRY not to make yourself crazy! It sounds like a digestive issue to me. HANG IN THERE and dont let your imagination run away!!

    Shopgal, - Sending BE WELL wishes your way, too!

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited January 2017

    ShopGal...DON'T take one step down that rabbit hole‼️ In May they saw something suspicious on my ultra sound. I just went back a few weeks ago and all was fine. The radiologist told me that after surgery and/or radiation your breast will never look the same. But, of course, we all want to know that everything is OK. You're going to have heavy pockets next week because every one of us will be with you. ❤️

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  • ScotBird
    ScotBird Member Posts: 650
    edited January 2017

    Shopgal, Dobies, I'm in both your pockets. Just breathe, and try to keep busy with something to take your mind away from worrying about it. Read, exercise, see friends, go out, whatever you can think of to distract you.

    Meadow I hope you had a very Happy Birthday.

    Lots of Love everyone. X

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2017

    Shopgal and Luvmydobies,

    We are praying for you. Try to minimize your worries and avoid stress. Think happy thoughts as much as possible.


    image

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2017

    For all of us...

    image

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited January 2017

    Luvmydobies...I know it's so hard, but try not project ahead. Once we have breast cancer, it's so easy and natural for us to think the worse. You have my prayers for results that everything is OK. ❤️❤️

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  • Meadow
    Meadow Member Posts: 2,007
    edited January 2017

    Thank you Scotbird, I did!

    Ditto what Cathy said

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited January 2017

    Thanks so much ladies! My u/s is Thursday at 9:00. I didn't schedule it for Monday or Tuesday because the roads may still be slick and Wednesday 12:30 was the earliest appointment and I have to fast.

    Valstim, I'm in NC too near Rocky Mount and Wilson out in the boonies. That was my hubby's idea to move out so far! We were near Chapel Hill, and I loved it there!It's funny how empty the shelves are at the stores because of the snow! Stay safe and warm!

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  • simplelife4real
    simplelife4real Member Posts: 563
    edited January 2017

    Happy New Year to everyone!

    Debra, congratulations on your five years!!! That is wonderful. Thank you for all your support when I first came on this thread. You were so helpful. I couldn't be happier for you.

    Hopefully, I'll be able to make a similar post in 571 days, but who's counting.

    Welcome to the new people going through treatment. It can be hard and scary at the time, but it does get better with time.

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  • avmom
    avmom Member Posts: 324
    edited January 2017

    Research study

    Good morning, all.

    Let's see if I can make this link work

    avmom

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited January 2017

    Thanks for.this Avmom! Hope!

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  • lovesgreenthings
    lovesgreenthings Member Posts: 107
    edited January 2017

    This is great news, thanks for sharing the research news. We are all looking for hope with TN and this sure seems promising.


    Anne

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  • DiV
    DiV Member Posts: 231
    edited January 2017

    Avmom thank you for the information. That is the breast cancer I have Metaplastic Spindle Cell triple negative. This cancer is very aggressive. I am about to have my arm amputated at should due to this cancer.

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited January 2017

    I figured out the source of my pain. My periods have been wonky ever since chemo and last night I started one. I noticed the pain was pretty much non existent yesterday, and then got my period last night. So, I'm going to call my doctor in the morning, because I really don't think I need the ultrasound. She did say it sounded like my ovaries trying to wake up. I'll have a period then nothing for a few months, or sometimes I'll go several months without anything. Anyway, I am sorry for sounding desperate and panicky with my other posts!! I still thank all of you for the prayers from the bottom of my heart! They're always welcome anyway, of course. I'll keep you posted. Thanks again for being here for me!!!

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  • Valstim52
    Valstim52 Member Posts: 1,324
    edited January 2017

    That's why we are here luvmydobies. Any time.

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  • avmom
    avmom Member Posts: 324
    edited January 2017

    DIV, I haven't been posting much for a while, and have just read some of your posts recently. You are in my thoughts as you prepare for surgery.

    At the end of the article, it says that the research team is currently enrolling patients in a phase I study. I wonder if your MO would know about qualifications, etc.? I don't even know if you would be intereste in a trial, but this is aimed directly at metaplastic TNBC, which I understand is a pretty rare thing.

    Gentle hugs to all

    avmom

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  • DiV
    DiV Member Posts: 231
    edited January 2017

    Avmom thanks for responding. I wish i could enroll but tumor is growing too fast and my doctors feel thus is the best treatment for me. There is nothing they can do to save my arm due to tumor wrapped around brachial plexus nerve. During surgery they will damage the nerve getting tumor out thats why i have to have my arm amputated. You have been through alot yourself and i am so sorry that this is happening to all of us.

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  • avmom
    avmom Member Posts: 324
    edited January 2017

    Oh, DIV, I wasn't second guessing your current treatment plan, or imminent surgery. I'm not a doc, or anything close to that, but it looks like this trial is about using a iNOS inhibitor (whatever that is) along with chemotherapy. When I was diagnosed 2 years ago, the standard of care was surgery first, then chemo. Your surgery is daunting, but if that gives you the best shot, I'm with you - go for it. I hope you will have great support after surgery, I imagine recovery will be hard, for everything from self care to balance to surgical healing, to the emotional adjustments that are sure to come. I just wonder if that trial Is for after surgery. I happened upon this yesterday, and hadn't seen it here on BCO.

    This disease isn't easy for anyone. My two year cancerversary was yesterday. That's my sister's birthday, so it isn't a date I'm likely to forget. What a long, difficult journey this is, for everyone affected. I still have some very dark days, but I'm still here, two years in. Right after my first mastectomy, my surgeon wasn't prepared to promise even making it to my birthday that year. I hang on to optimism that my QOL will improve, and some things are better. Some things are not, but I will take the good with the bad. I don't feel particularly courageous or determined, or special. Cancer just sucks, and those of us touched by its icy grip simply get up in the morning and do what we can. Tomorrow, we will get up and do it again. Somehow, I've managed that seven hundred and thirty one days so far.

    Best wishes to all.

    avmom


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  • DiV
    DiV Member Posts: 231
    edited January 2017

    Avmom I know you weren't second guessing my treatment plan and I didn't take it that way. I appreciate any insight given and the support. My Doctors seem to think this is my best chance for remission seeing as cancer hasn't metastasized any where else. I forwarded the article to my niece who is a PA in New York City and works in breast cancer treatment. I hope and pray they clinical trial helps other women with this cancer. Congratulations on your 2 year anniversary that's great! When i was first diagnosed it was on my mom's birthday so i too won't forget.

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  • Meadow
    Meadow Member Posts: 2,007
    edited January 2017

    DiV, just so sorry for your treatment to be this drastic. You are facing it very bravely, and you are amazing and my hero.

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  • DiV
    DiV Member Posts: 231
    edited January 2017

    Meadow thank you so much! Stress isn't good for us so just facing it head on and fighting. I've read your posts and you always have something positive to say to the ladies and show your support. Thank you!


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