Waiting over the weekend for Kidney CT scan results

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pepper43
pepper43 Member Posts: 103
edited January 2017 in Waiting for Test Results

So I've been hit with not just BC...but a post diagnosis PET scan revealed a 6 cm mass in my right kidney. Which was then CT scanned and noted as a 95% chance for renal cell carcinoma. Biopsies for kidneys (particularly those in the center as mine is) are not routinely done for good reason- the needle during removal could spread the cancer elsewhere. Given the size of the mass, it was decided that removal was necessary. Since I had already begun chemo and MO placed BC as priority to treat, we decided to hold off on kidney removal until after chemo & mastectomy was done. My mastectomy was 12/09. Since it has been about 6 months since kidney mass discovery, urologist wanted a CT scan before surgery (which will take place 1/11) prior to surgery so he'd know how things looked before going in. Had CT scan this morning. I've been assured kidney cancer is typically a slow growing beast but I can't help but worry as the 5 year survival rate for stage IV metastatic kidney cancer is 8%.

Urology office closed early today. I have a pre-surgery appointment coming up with urologist on Tuesday and I'm just overcome with worry, anxiety. Not a good way to kick in the new year for sure.

I'm also dealing with possibly deciding against radiation for my breast and armpit on cancer side. I'm seriously leaning towards a no. I'd rather not do anything that would increase my risk for lymphedema (I've had 4 lymph nodes removed sentinel node mapping; 1 was positive but cancer was greatly reduced by chemo- they didn't catch the positive during surgery testing- caught it during final results for path report & my BS didn't think level of cancer remaining called for axillary lymph node dissection). I hate the fact that these painful tissue expanders would need to remain in place for another 6 months during radiation & a recovery period. I've been told it decreases risk for recurrence by 5% and that just doesn't seem worth it to me given potential side effects and everything else.

I'm going to talk with MO at length at our next appointment after kidney surgery regarding radiation. I trust her judgment.

I just wish I could have gotten a call about ct scan results today. I think I'll be buying an expensive champagne for NYE. I'm so ready to be done with 2016. I want 2017 to be awesome.

Comments

  • 208sandy
    208sandy Member Posts: 2,610
    edited December 2016

    I'll wait with you - can you get some Ativan - it'll make you feel a lot better than champagne will. Sorry you're having all these problems but "one step at a time" will make it a tad easier. Sending hugs, S.

  • Emily2008
    Emily2008 Member Posts: 605
    edited December 2016

    Ugh, nothing worse than waiting over the weekend!

    As you know, there's nothing you can do to make time go faster, so you simply must wait. Try to stay busy if you can. I purge and reorganize closets when waiting on test results. You should see how great my upstairs looks these days!

    Best wishes!

  • wonderwoman101
    wonderwoman101 Member Posts: 55
    edited January 2017

    I'm so sorry you have to wait through the weekend. I'm waiting for biopsy results with you! I hope you enjoyed you read champagne. I opted for a bourbon. 🙃

    Cheers to a new year and all that it will bring us. I know I'm going into this year stronger than last and I'm certain you are too!

  • pepper43
    pepper43 Member Posts: 103
    edited January 2017

    Cheers to the New Year to you too wonderwoman! Keep me posted. I'm going to cross post my original in Crazy Town thread...because I'm feeling more and more crazy about it. I have a feeling their office will be closed on Monday and I won't hear boo until I meet with him for an appointment at 11:45 on Tuesday. Boo!

  • wonderwoman101
    wonderwoman101 Member Posts: 55
    edited January 2017

    I'm new to this board. What's the crazytown thread? I'm feeling more and more crazy waiting for my results too! I might not even hear anything until Wednesday.

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