Calling all TNs

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  • Luvmydobies
    Luvmydobies Member Posts: 766
    edited December 2016

    Meadow, thanks for the update and I'm so glad everything went well!!! Rest up and recover! ((((HUGS))))

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  • LRM216
    LRM216 Member Posts: 2,115
    edited December 2016

    (((((Annie))))) Sending prayers, hugs and love......

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  • Batesburg
    Batesburg Member Posts: 199
    edited December 2016

    Holding you in the light, Annie

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  • slv58
    slv58 Member Posts: 1,216
    edited December 2016

    I had to read back to see what was going on, I'm sorry. I feel sick with disbelief, Annie my love and positive thoughts for you. Your a strong wonderful sharing woman who is loved by many on this site.

    I hate this disease.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    Madame Cocker Annie,


    image

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  • DiV
    DiV Member Posts: 231
    edited December 2016

    Hi ladies! I too am triple negative. First diagnosed in 2013 Metaplasic spindle cell triple negative. Chest wall recurrence September 2016. Start rads and chemo January 5. Worst part is the only way my tumor can be removed is to amputate my arm due to tumor entwined in brachial plexus nerve.

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited December 2016

    Oh my, DiV. I'm so sorry. So you're doing chemo and rads at the same time, then amputation? Hugs for you. Keep us posted on your treatment. Off to look up spindle cell.

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  • DiV
    DiV Member Posts: 231
    edited December 2016

    Lovemyvizsla hi! Yes chemo and rads at same time then surgery. Yes my cancer is rare. Also there are only 23 cases of breast cancer arm amputation. Thanks for the support. Sending prayers and hugs your way too!

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  • Shopgal2
    Shopgal2 Member Posts: 649
    edited December 2016

    oh meadow so glad surgery went well. We all needed to hear good news. Ladies happiest of New Years and wishes for health and happiness to all.

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  • VLH
    VLH Member Posts: 1,258
    edited December 2016

    I'm so sorry that you must endure such a daunting surgery, DiV. I hope that your treatment goes as smoothly as possible.

    Lyn

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  • jenlorsim
    jenlorsim Member Posts: 3
    edited December 2016

    Hello everyone,

    This is my first post. I am not sure if I'm in the right place, but I figured "calling all TNs" was a good place to start.

    I am 39 yrs old, happily married with 2 boys ages 9 & 12.

    I was diagnosed with TNBC in the end of November & started neoadjuvant AC +T over a week ago. I am stage 1b, grade 3, and have a very high proliferation rate ( ki67 80%).

    My cancer is basal-like. This has me really freaked out. When you research "basal" and "Triple Negative Breast cancer" I start to feel like I may only have 5-8 years to live. I worry that my surgeon's and MC's positive attitude is a candy coating. I know I shouldn't think like this, but I am not reading random sources. I am reading medical studies & abstracts on pubmed & ncih.

    How do you deal with this? Are they people out there with my diagnoses who are cancer free after 5 years? Or are you all still fighting?

    Thanks,

    Jennifer

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  • JAN69
    JAN69 Member Posts: 947
    edited December 2016

    Jennifer, Sorry you have to deal with TNBC. I know it's scary, really scary. I'll be 6 years cancer free in 2 weeks. I'm doing just fine. And you will too.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    image

    Happy New Year to everyone!

    May our fortunes change for the better this year and enjoy the rest of our lives in love, peace, happiness and prosperity!


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  • Batesburg
    Batesburg Member Posts: 199
    edited December 2016

    Hi Jennifer,

    I have been treated at the Ohio State University and my MO says that stats/studies are confusing and represent groups of people and are never specific to individual prognosis/journey.

    I did not achieve a PCR and I was gloom and doom about that after reading reputable sources but I DO BELIEVE that my own outcome is simply that, MINE.....and to not get wrapped up in what the literature says. So much of this fight is about attitude and belief in a positive outcome. Our minds are very powerful.

    I wish for you to take this one day at a time and to BELIEVE in a CURE! Your staging is GREAT. I know a woman here in my local small town who was diagnosed with TN Stage IIIC (all level 1 and 2 AL nodes were positive) and she is over 15 years out disease free. She told me she didn't even know how serious it was until later......

    God bless- LIVE life.....enjoy your beautiful children!

    Janet

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  • jenlorsim
    jenlorsim Member Posts: 3
    edited December 2016

    thank you. 6 years is wonderful! That is my goal!

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  • jenlorsim
    jenlorsim Member Posts: 3
    edited December 2016

    thank you Janet.

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  • amw5
    amw5 Member Posts: 189
    edited December 2016

    DiV (((hugs))) and love

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  • LRM216
    LRM216 Member Posts: 2,115
    edited December 2016

    Jennifer:

    I am so sorry that you have had to join us, and I recognize all that you are feeling and fear only too well. While I doubt that I will ever totally stop "looking over my shoulder" to see what's coming up behind me (don't think that any of us will ever be what we were prior to diagnose) I do live a life no longer encompassed with the fears that I had earlier on. My stats were very similar to yours and I too had a high Ki of 62% (most TNs ki's are high), but I am still here, healthy and living a good life 8 years come this February.

    Hope this gives you some comfort in knowing that there are many, many of us out here, no longer posting regularly as we are back to just living our lives and there is no reason not to think that you won't as well.

    I wish you nothing but the best.

    Linda

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  • anotherNYCGirl
    anotherNYCGirl Member Posts: 1,033
    edited December 2016

    I am always encouraged by the good updates, and I send my thanks to you, and my best wishes to ALL here, new and old, for a happy, peaceful and HEALTHY 2017!

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  • JAN69
    JAN69 Member Posts: 947
    edited December 2016

    Wishing everyone a beautiful new year, all year long. May we all have fewer doctor appointments and more fun. But take it easy tonight.

    Annie, I hope you are feeling well and can enjoy family time. Sending you my best wishes. Jan

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  • Batesburg
    Batesburg Member Posts: 199
    edited December 2016

    Yes, Happy New Year to all!!

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  • Allydp
    Allydp Member Posts: 520
    edited December 2016

    Happy New Year to you all! Wishing you love, strength, peace and health in 2017.

    Meadow - so glad to hear all went well! Hoping for a great result and quick recovery!

    Jan - 6 years is absolutely wonderful!

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  • VLH
    VLH Member Posts: 1,258
    edited December 2016

    Jennifer, perhaps this calculator based on the records of thousands of women in Great Britain, will help you feel less anxious about your prognosis, which is very good. Symptomatic means you or your doctor felt a lump vs. finding the cancer through routine screening.

    http://www.predict.nhs.uk/predict_v2.0.html

    Although I agree that a positive attitude is important, I worry that implies that women who are unfortunate enough to have a poor outcome will feel that it's their fault and they somehow "failed." That simply isn't true and no one should be made to feel guilty about cancer developing or progressing because they weren't positive enough. I know that's not what you meant, Janet, but women DO sometimes feel that way and I find that heartbreaking.

    Lyn

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  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited January 2017

    Welcome, Jennifer. Sorry you had to join us here, but we are here to hold your hand. You are early stage. That is a GOOD thing, very good. Most TNs are grade 3, so that is normal. Most TNs are also basal type, so that is normal too. "It's believed that most triple-negative breast cancers are of the basal-like cell type." http://www.breastcancer.org/symptoms/diagnosis/tri... Like Batesburg said, take your treatment one day at a time, we are all here if you have any questions or need some reassurance. I finished my treatments in October, but haven't gotten to the point where there isn't a day that I don't think about cancer, YET. But I will. And so will you.

    Happy New Year to us all!

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  • Teka
    Teka Member Posts: 10,052
    edited April 2017

    May the new year bring peace and compassion for all.

    image

    With Love,

    Teka
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  • georgie61
    georgie61 Member Posts: 95
    edited January 2017

    Jennifer,

    This is my 2nd attempt to post, damn computer wiped everything out the first time...grrr...Anyway, so sorry to hear about you joining our group, especially at your age with 2 sweet sons at home. Congratulations for finding it so early , especially at your age where routine mammograms are not the norm. I didn't even notice my golfball sized tumor, that had already spread to my lymph nodes, stage IIB, until it was picked up with my routine mammo. ( then of course I was amazed that I hadn't felt it!) You have every reason to be optimistic, although you will not remember 2017 as one of your more fun years, I'm sure. The chemo shrunk my tumor so fast, it was pea sized (feeling) after first chemo and unpalpable after 2nd. I got aggressive with treatment, because of its stage - but you might not have to do double mastectomy, etc.. This site has a been a great support to me. I started almost 2 years ago, and all of my docs think I'm good, just watch me every 6 months or so now. Supposedly a Pathological Complete Response - PCR None of us come with a expiration date stamped on our forehead, so don't pay too much attention to stats and studies. Our cases are all so different. Once again, congrats! - what ever you did to recognize it so early is amazing. Stay strong!

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  • Lookingforward66
    Lookingforward66 Member Posts: 147
    edited January 2017

    Praying all had a great New Years Eve!

    Annie, special prayers for you. In my prayers always. Meadow, so happy for you.

    December 2016 was my 4 year cancerversary. Had my PET scan earlier in December. NEDS. Such a comforting feeling. Saw my oncologist and surgeon in December also, they both say I'm doing great. I go to counseling every two weeks. It truly helps put my fears & concerns in perspective.

    The last month has been hectic. My daughter, son-in-law and grandson are moving with my husband and me for about eight months. They were renting, and the landlord sold their house. So now they have to look for another house. They want to buy, but in Naples area. No one in this area wants a lease for less than a year. So we're cramming all in here. Have been turning our house upside down to accommodate two more adults, one child, two dogs and a cat. Whew. A storage space is necessary to put in some of my things, so they can move in some of their's. The rest of theirs they have to store also. Have decided living over 30 years in one house you collect too much stuff! On top of all of that, I know this is strange for some to think about, but my air conditioning went out. It's been warm and humid here in Miami. So We have to get it replaced also. As I stated hectic.

    I'm still doing my yoga, but arthritis is getting worse. Both doctors have told me to keep up the yoga.

    I apologize, I don't come on as often as I used to, my counselor says I need to stop being overly concerned about cancer. When I do come on I get caught up. I try and read from the last time I was on. It is hard to remember without taking notes, about everybody. But wish all of us a very healthy happy 2017.

    Much love to all,

    Marsha

    image

    My grandson & daughter at park a few months ago.

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  • ScotBird
    ScotBird Member Posts: 650
    edited January 2017

    Happy New Year everyone. May we all be happy, peaceful and as well as we can be! DiV and Jennifer, so sorry you are having to join us but happy to know you. You will find lovely support here. Marsha good luck with all the extras, it sounds lovely, but I'm sure there will also be challenges.... Meadow, Huzzah for you!

    I agree with Georgie and Linda about the fears. We are all individuals, not statistics. After my PCR my onc told me that he put my chances of recurrence in the next 5 years at 10%, but to me I FEEL like it's 50/50 at best. We are individuals, not statistics, and we are not rational. Just do what we can to improve our chances: don't smoke, reduce alcohol, keep weight low and stable, exercise regularly at a good intensity, and we roll the dice because chance also plays a big big part. So let's be lucky, too. And for those of us who do recur, let's just enjoy each day, each moment, each breath

    Much love to you all my sisters. XX

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  • VLH
    VLH Member Posts: 1,258
    edited January 2017

    Congrats on the NED news, Marsha!

    Lyn

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  • Debwarrior
    Debwarrior Member Posts: 72
    edited January 2017

    DiV, so very sorry to hear that you have to have your arm amputated. Sending you hugs and support for the best possible recovery.

    Jen--I was diagnosed with TN stage 2B when I was 35, in 1998, newly married and pregnant with my now 18 year old daughter. My cancer was very aggressive. I did have a second small primary cancer eighteen years later at age 53, and reluctantly had a double mastectomy at that age. But I am doing great and going strong. This cancer thing is a real beast, but the doctors seem to know how to treat it for most of us, and most of us go on to live productive, happy lives. I have had a harder time accepting my post mastectomy reconstructed body than I have had dealing with fears of recurrence. Over time, the fear dissipates. Especially if you have to deal with it twice! One step at a time. You have a strong sisterhood here and a lot of caring health care professionals out there to get you through it.

    Wishing you and everyone a happy, healthy year and many years ahead.

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