MRI vs Pet Scan. Which is preferred when checking for mets?

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dcdrogers
dcdrogers Member Posts: 115

Hello,

I was diagnosed with IDC approximately 6 weeks ago and have begun my treatment plan. After diagnosis I had to have many tests done to look for any spread of the cancer. This included several MRI's and biopsies. Prior to my diagnosis I had a normal CT Scan of the Abdomen ordered by my rheumatologist, but since it was done without contrast my MO decided to order a MRI of the Abdomen w/contrast to be on the safe side. After reading through many posts it appears that a Pet Scan is normally ordered by MO's to check for cancer spread. Is this because one is preferred over the other? I trust my MO completely, but I am curious now as to why a Pet Scan was not ordered instead.

Thanks

~Dee

Comments

  • Kicks
    Kicks Member Posts: 4,131
    edited December 2016

    Can't tell why your Dr ordered what he/she did - only way to know is to ask him/her why it was preferred.

    When I was DXd, I had a Bone Scan first, then a CT and an MRI (both with contrast). Then a PET which 'lit up' on an area along my lower jaw.(Was immediately biopsied - 'nothing' there.). All of my Scans were full body. PET Scans are very sensitive and will 'light up' on any possible inflammation - cancerous or not.

    Our Drs are each unique with different experiences with TXing different types of BC. Thus, not all will always order exactly the same for each of us individually. We are each unique (as is our DX) with no 2 of us being exactly the same as anyone else - similar yes, but not exactly the same. My TX plan definitely did not follow the protocohol that almost everyone follows for IBC - it worked great for me though (and the way Dr T explained it to me, it made a LOT of sense).

    If you are concerned/questioning - ask your Dr to explain his/her decision. If you don't understand 'something' - keep asking the same question until the Dr puts it in words YOU understand.

  • dcdrogers
    dcdrogers Member Posts: 115
    edited December 2016

    I also had a full body Bone Scan. I'm not so much questioning my Drs decision as I do trust her 100%. I was just curious because I see a lot of people on the forum seem to get Pet Scans vs MRIs.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited December 2016

    Hi Dee!

    I've had 3 MRIs and 3 PET scans, and the latter (in my case) produced a false positive (left hip). So, maybe your MO is trying to avoid false positives.

    Another issue is insurance -- the PET scan is an expensive test, and my insurance requires pre-authorization for it. Maybe your MO is aware of your insurance's tendencies, and orders tests that will definitely be covered.

    I will say that I prefer getting PET scans to getting MRIs, largely because they are peaceful and quiet. But, I can't say that either form of scan has been better at detecting mets for me.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited December 2016

    Elaine, if you don't mind my asking, how was it determined that there was a false positive on the PET scan in the hip bone? I do not hear of that often and am wondering what the cause of a flse postive would be
  • Kicks
    Kicks Member Posts: 4,131
    edited December 2016

    It's not about rather (or not), you trust your DR. It's why your Dr wants you to have an MRI with contrast as opposed to a PET is what is important, not what someone else's Dr feels is needed for them. Only your Dr can tell you the reason for an MRI with contrast is better for you than a PET. Perhaps because it is to be limited to the Abdomen. Don't know.

    Some will have CT/MRI (with or without contrast), some will have PET, some will have all of them.

    Asking for clarification/Why a particular decision/order/TX is what they are telling you/ordering for you, does not mean that 'you' are not trusting them. It is asking for a more thorough understanding of what is going on/why it is best for you. I could not have trusted my Drs more and did everything they offered me - but I still asked a 'whole group' of questions for my better understanding of MY TX plan.

  • leftfootforward
    leftfootforward Member Posts: 1,726
    edited December 2016

    My insurance requires a CT and MRI before it will authorize a PET scan.


    And because I am no evidence of disease my insurance won't pay for PE scan.

    Both of these tests have been accurate when it comes to my cancer status.

    Each test has different sensitivities as to how big of a tumor it can detect etc and what type of tissue it is better at imaging.

    MRIs are loud but don't subject you to the radiation that a CT or PET scan will.

    PET scans can differentiate between active vs necrotic tumor. But are not good for places like your brain because it utilizes glucose so would not give you any information. Also if you are active or eat wrong thing PET scan won't be accurate due to its use of glucose metabolism as indicator of tumor activity.

    These are just my reflections after having had various scans over the past 6 years.

  • dcdrogers
    dcdrogers Member Posts: 115
    edited December 2016

    @Elaine,

    Thank you. My insurance required and pre-auth for my MRI's as well :) I've had the same Open-Access HMO plan for many years and I'm "satisfied" with what they cover. At any rate I'm glad the testing phase is over for now. The last MRI was for a vacuum assisted biopsy and it was horrendous. I hope never to have to experience that procedure again.

    Thanks again

    ~Dee

    p.s. I'm curious about the false positive as well if you feel like sharing. I'm a very curious person in case you hadn't noticed

  • dcdrogers
    dcdrogers Member Posts: 115
    edited December 2016

    @leftfoot

    thanks for your reply. I also had an MRI of the Brain 3 weeks ago. It seemed that I was in that machine forever...way longer than the 45 minutes the technician said it would take. I was so nervous, but thankfully nothing showed up. Out of all of the test I've had done these past few weeks the CT scan was the easiest (other than drinking that barrium) to get through.

    Thanks again

    ~Dee

  • Kicks
    Kicks Member Posts: 4,131
    edited December 2016

    Divine - I was told that it is not unusual for a PET Scan to show up (light up) on areas of ANY 'inflammation' - so it is not terribly unusual for 'false positives' to be seen. PET is very sensitive and will 'light up' on any area(s) of 'inflammation'. In my case, an area along my lower right jaw 'lit up' on PET. Immediately had biopsies of the area by ENT Dr. Had path. report next day - there was 'nothing' there. The terms 'positive' or 'false positive' were never used with my Drs - just and area 'lit up' that has to be biopsied now and when path was in next day just some inflammation for totally unknown reason. That was 7+ yrs ago.

    It is my understanding that a PET cannot DX cancer - it only shows area(s) of possible concern - the biopsy confirms the presence or absence of cancer.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited December 2016

    DivineMrsM --

    I had three PET scans, and "something" lit up on my left femoral neck (hip) all three times. My MO would have biopsied it, except it could not be located either on a CT scan or an MRI. At that point, she declared it a false positive. I've never had any pain in my left hip, nor have I had an injury there. Weird!

  • Italychick
    Italychick Member Posts: 2,343
    edited December 2016

    Seems like everybody has different experiences. I had a PET and bone scan following surgery when it was determined I would need chemo. Insurance paid for it as a pre-chemo staging scan. My MO said my chemo treatment plan could be different if cancer was found anywhere else. Made sense to me. The surgeon did a breast MRI before surgery to determine the extent of the disease which she said allowed her to know how much breast tissue to take, and the other scans came after it was determined I would need chemo.


  • stephilosphy00
    stephilosphy00 Member Posts: 386
    edited December 2016

    I had PET scan and breast MRI right after dx.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2016

    divine - I had a pre-surgical MRI that was a false negative, as there was a positive lymph node that was large enough to have been seen, but was not. Imaging has been problematic for me - mammography missed my palpable 2.6cm tumor, and had previously missed a 3cm ovarian mass prior to hyst/ooph. I had a pre-chemo PET, a post-chemo PET, and a routine PET a couple of years later - all normal. I had a PET this past May, about a week prior to a scheduled surgery to exchange a left tissue expander and swap my existing right implant for a smaller one. This PET lit up like a Christmas tree, bilaterally. Turned out to be a false positive, and this was caused by avid uptake due to loads of inflammation caused by metaplasia, a 3cm suture granuloma at the site of my original tumor, and generalized inflammatory response to the tissue expander. We went ahead with the surgery and the suture granuloma was removed, and other areas biopsied - all normal. I had this PET done in response to results from my BCI test that showed I am high risk for recurrence but receive low benefit from anti-hormonals.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited December 2016

    Wow, Special K, when you had the lit up PET, were you worried or did you have an idea that inflammation was the cause? It is surprising to hear your story, as well as others who have told there experiences with false positive PETs

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