Newly diagnosed--one mx or both

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  • maryny16
    maryny16 Member Posts: 19
    edited November 2016

    Hi - new to this forum -- or any forums.....

    I was diagnosed in Sept. -- 1 CM invasive lobular nuclear grade 2 (onco type 13) and another invasive .5cm nuclear grade 1 (oncotype 15). and DCIS nuclear grade 2/3. 10 year history of LCIS. Double mastectomy. I am on Lupron and just starting taking Arimidex --- am 47 and premenopausal....

    I am worried about the studies that show the benefits of chemo on the hi-end of the low Oncotype scores (above 11) and asked my Oncologist to do a Mammaprint to make sure I couldn't' benefit and he said he doesn't believe in the test. Does anyone have any suggestions and how much would it help? Don't want to look back and wish I had done chemo. Also, are there any other genetic tests I should have done to figure out any other targeted therapies (for Luminal A, any other tumor markers, etc).

    Feel behind on the genomics curve.....Any suggestions would be great. Thank you.

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  • tlgio17
    tlgio17 Member Posts: 191
    edited November 2016

    Will do for sure!!

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  • maryny16
    maryny16 Member Posts: 19
    edited November 2016

    I went for double masectomy with pre-pectoral implants. never looked back. it's major surgery but i was tired of getting poked and scanned as there was always suspicious masses over the last 10 years....I did double b/c I had very dense breasts....

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  • OrcaPorkka
    OrcaPorkka Member Posts: 61
    edited November 2016

    I chose BMX for very similar reasons to mdnmmrl

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  • Scwilly
    Scwilly Member Posts: 489
    edited November 2016

    Great to hear your appointment went well. It's so important for us to feel comfortable with our docs and the tx they can offer. Wishing you a speedy and comfortable ecovery from your surgery.

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  • tlgio17
    tlgio17 Member Posts: 191
    edited November 2016

    thanks Scwilly--Good luck and best wishes to you as well with your treatments- I see you started hormonal treatment this month. Will keep you in my thoughts and prayers!

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  • KentRunner
    KentRunner Member Posts: 25
    edited December 2016

    Hi Traci! Just wanted to check in on you and see how you're doing after your surgery. I know I had a lot of peace once it was over. Hopefully you do as well. Wishing you a speedy recovery!

    Donna

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  • tlgio17
    tlgio17 Member Posts: 191
    edited December 2016

    Hi Donna,

    Thank u so much for checking on me. Each day gets better after surgery and I do feel good knowing that it is out.

    Waiting in all the path reports and looking forward to resting, healing and enjoying the holiday.

    Hope your doing well too.

    Traci

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  • Clshep
    Clshep Member Posts: 3
    edited December 2016

    Scwilly, so sorry to hear of your liver cancer.

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  • Clshep
    Clshep Member Posts: 3
    edited December 2016

    im trying to decide which treatment to pursue, a lumpectomy and radiation or mastectomy. I'm leaning towards double mastectomy to erradicate this problem but it seems so drastic at this point. It's helping me to read everyone's experiences and feelings. Thank you for sharing.

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  • Scwilly
    Scwilly Member Posts: 489
    edited December 2016

    Clshep: Thank you for your kind thoughts. I am feeling so much better now the severe pain that lead to my nee dx has subsided, this gives me great confidence in my TX. Thats despite it feeling so much less dramatic than my original chemo.

    I do still feel very happy with my personal surgical decisions. It is so important that we can explore all options and get to make our own personal decision. Getting a BC dx feels like we have lost that chance. BCO a wonderful place for getting your head around things and getting advice from all sides.

    I would suggest you think of what you would want to do for reconstruction, and how you feel about future need for surgery. Lumpectomy might not need any revision.

    I wish everyone peace with their persobal choices, and comfortable and speedy reoveries.

    Best wishes for this festive season.

    Sarah




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