Starting Chemo in Nov 2016

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  • amw5
    amw5 Member Posts: 189
    edited December 2016

    javamamma - I love your attitude. Attitude definitely means everything. Enjoy your celebrating.

  • amw5
    amw5 Member Posts: 189
    edited December 2016

    BG46TN - That is so awesome. Enjoy.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    You're welcome aterry!

    image

  • Sorella
    Sorella Member Posts: 107
    edited December 2016

    I haven't been on in awhile. I had a bad bout of what I call depression with my third a/c over 2 weeks ago. I was so dreading my fourth and final scheduled last Monday. Surprise surprise, I had a fever and my MO said we would have to delay. She did all kinds of tests including a chest xray but all normal so far though on antibiotics just to play it safe. I have been fever free for over 24 hours so our 7 fishes Xmas eve is on! (And Hanukkah and twin friends' 60th) I wish this hadn't prolonged my treatment but happy to be almost free of side effects for holidays. Thinking of you all during this tough time and glad so many of you have great support. I know I have suggested it before but acupuncture has helped me! Happy Holidays!

  • aterry
    aterry Member Posts: 290
    edited December 2016

    I had my fourth round of AC on Wednesday. This is day 3 and I'm totally exhausted. I didn't sleep well last night so that didn't help. Christmas is day 5. I hope to regain some energy by then. Day 5 is usually not too bad. Day 6 is my low point and I start reviving on Day 7.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016
  • aterry
    aterry Member Posts: 290
    edited December 2016

    I hope you all had a good holiday. Did anyone relax? DD sprained her ankle and DH cut his thumb deeply so I had to do first aid and a lot more of the cooking than I planned. I did too much and today I have swelling in my feet and some bruising (called, purpura, or something like that). Today is day 6 for me and that is always my worst day. I'm sure my platelets are low and that's causing my problems. My plan is to relax, eating left overs, read and look forward to day 7 so I can start bouncing back.

  • Annie16
    Annie16 Member Posts: 24
    edited December 2016

    aterry, wouldn't it be nice if the rest of life would hold off so you could rest!? Doesn't seem to work like that! Then again, there is probably something about the rest of life carrying on as usual that somehow keeps this all in perspective! I hope you got some credit for your Flo Nightengale work and that you are enjoying your book!

    Anne

  • Annie16
    Annie16 Member Posts: 24
    edited December 2016

    Javama- I hope your New Year's plans are shaping up to be fun. There is something nice about heading into a new year with the thought that you have taken the best care of yourself possible - including knowing how to pick up the phone and order pizza or get Wegmans (maybe I am remembering wrong, but didn't you mention Wegmans?) cook you a delicious dinner! I think we might all develop some nice lasting self-care habits from this experience!

    Round three of TC for me tomorrow. I have new books to read to help me get through the tough first week


  • Annie16
    Annie16 Member Posts: 24
    edited December 2016

    Sorella - glad you are on the mend and able to enjoy your many holiday celebrations! If cookies boost our immune systems, we should all be good, right?!

    I am glad you mentioned accupuncture. I am going to look into that, especially if the Aromatase inhibitors that I will eventually be on cause me joint pain. I have always intended to try accupuncture, and that might be something for which it is effective.

  • aterry
    aterry Member Posts: 290
    edited December 2016

    Annie16, you are correct that the rest of life carrying on helps keep our situation in perspective. Leading up to Christmas there were many busy days and I thought, well this is keeping my mind off the bc & ac and se's. I hope your 3rd round of TC was uneventful and that you're enjoying your reading.

    I just got scheduled for an ultrasound next Tuesday--the 3rd. My MO will use the results to decide which drugs to use on the 4th, my next infusion.


  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    Hope the ultrasound shows good things aterry!

    I start my DOCEtaxel portion of my chemo plus my first herceptin Jan 4th. I also have an ultrasound that day to check some things. 3 chemo's to go!!!

  • amyemn
    amyemn Member Posts: 25
    edited December 2016

    I had an ultrasound this morning to see if my 4 rounds of AC have had any affect on my tumor. Unfortunately there is virtually no change in my tumor. I'm not sure what I was expecting, but this seems disheartenting. At least it didn't grow I guess.

  • Nanpop
    Nanpop Member Posts: 75
    edited December 2016

    amyemn. I am not a doctor. But I do a lot of research using peer reviewed studies. Many Positive er and pr tumors respond to hormone therapy (AL). Tamoxifen if you are peri menopausal and then another drug after If your negative er and pr, neoadjuvant chemo is recommended and usually shrinks the tumor

  • amyemn
    amyemn Member Posts: 25
    edited December 2016

    Nanpop, I just read that today, as well as that grade 2 also does not usually respond well to chemo. My cancer is highly PR and ER +, 95% if I remember correctly. Now knowing that they do not respond well to chemo, I am wondering why my dr pushed so hard for neoadjuvant chemo. I do have 1 node involved that they know of and I think the thought process was to reduce the amount of nodes they would have to take, but now I'm second guessing that.

  • Nfullblume
    Nfullblume Member Posts: 171
    edited December 2016

    Amy, that stinks. On a positive note, your tumor is very small, so it'll still be easy to remove. Don't second guess your choices. I had my cancer removed prior to chemo and it's easy to let you mind wander. Stay the course, you're doing the right thing. Chemo has always been more of an insurance policy when the tumor is small.

    Big hugs to you.

  • Pamela23
    Pamela23 Member Posts: 510
    edited December 2016

    Amyemn--I am so sorry to hear your news. Must be disheartening but as Nfullblume said, it's an insurance policy. I'm stage 2 and had a high Oncotype DX score. How they explained it to me is that there are many blood vessels that surround the breast tissue and it's possible for cancer cells to go rouge and get into those vessels, traveling to an organ or bone marrow to lay dormant and show up 10 yrs later. So on the bright side, you are decreasing your chances of distant recurrence which is worse than local recurrence.

    Annie, you and I are on the same schedule. Had my 3rd infusion today. Good luck the next few days!

  • Pamela23
    Pamela23 Member Posts: 510
    edited December 2016

    Amyemn--I am so sorry to hear your news. Must be disheartening but as Nfullblume said, it's an insurance policy. I'm stage 2 and had a high Oncotype DX score. How they explained it to me is that there are many blood vessels that surround the breast tissue and it's possible for cancer cells to go rouge and get into those vessels, traveling to an organ or bone marrow to lay dormant and show up 10 yrs later. So on the bright side, you are decreasing your chances of distant recurrence which is worse than local recurrence.

    Annie, you and I are on the same schedule. Had my 3rd infusion today. Good luck the next few days!

  • amyemn
    amyemn Member Posts: 25
    edited December 2016

    Thanks. I knew you guys could help see the bright side of this!

  • javamama
    javamama Member Posts: 119
    edited December 2016

    Annie16- I hope my plans work out well. I had to make dinner reservations at an "early bird special" time because I am unable to stay awake at night. Well, I can, but I have to nap in the late afternoon for a long time in order to build up the stamina to stay up past 8-9pm. So, I told hubby we would celebrate and then come home and go to sleep. Ha! So exciting. Still, my dad and my college aged boys are home so if I can stay awake or somehow wake up again at midnight, I will have almost everyone I love in this world near at hand when the new year rolls in.

    Happy New Year, everyone. I hope this year is FAR better to you than the last.

    amyemm- girl, the way they told it to me is that cancer cells are sneaky and really small. And if they've gone on walkabout via the lymph system in any way, they might've gone walk about via other systems as well- like blood. And they've gone to a sunny destination to chill and stay for a bit. Not showing up on any diagnostics. Fooling us and lulling us into a false sense of security. While they root down and dig in. Chemo is the attack system that roots them out. It travels all the same pathways those sneaky cancer cell bastards have traveled and found those nooks and crannies and crevices. And then it kicks cancer's ass. Radiation is salting the Earth to make the location of the original tumor inhospitable. Like a barren wasteland desert. But chemo? Ninja warriors. Some tumors respond visibly to chemo by shrinking. Other cancer's don't. But chemo stops it from spreading even if the original tumor size isn't affected. And if you are young, they will err on the side of caution and throw the entire- very strong- kitchen sink at you to make sure you're long term results are good. Because that's the end game. Making sure we live LONG lives.

    Kick cancer's ass, all!

  • Hope88
    Hope88 Member Posts: 55
    edited December 2016

    Hey Ladies,

    Amyemn, I am almost right where you are. I am about to have my 4th AC and will be getting checked to see if the tumor has shrunk. However, my MO warned me from the start that the chemo may not shrink the tumor, so I have had awhile to think about it. My tumor is large so this will mean a mastectomy if the tumor is about the same and I am ok with that. To be honest, I have been thinking and rethinking, and rethinking my course of treatment anyway. I will most likely get a bilateral mastectomy for peace of mind.

    Is anyone else struggling with similar thoughts?

    I can't wait to be finished with this AC, but at least my whole body has been treated. Going to a heart specialist later today to see about an irregular EKG. I am hoping it is nothing serious.

    Hope you all had a wonderful holiday.

    Gail


  • Dianarose
    Dianarose Member Posts: 2,407
    edited December 2016

    Amy- I understand your frustration. Chemo kills cancer when it is dividing so the lower the grade the harder it is to kill the little bastards as they are not dividing quickly. When they divide they shed a protein in our blood. That is how they do the tumor marker test. My tumor marker was tested again and went down 30 points. I had finished 6 rounds of chemo and stated at 205 and now down to 132. Finished round 7 of 12 yesterday and worried by the time I finish the 12th it will still be around 100 and the norm is either 36 or 38 so not sure if she will have me stop or do a few more rounds. All my other blood work was normal which is a total miracle considering 2 months ago they didn't think I was going to live through the weekend. Does your doctor do the tumor marker test for you? I would request he does if he doesn't already. Hang in there

  • amw5
    amw5 Member Posts: 189
    edited January 2017

    hope88 - I finished my fourth (and last) A/C on Tuesday, December 27. I will have my tumor checked next week to see if there's any shrinkage (certainly hope there is). I'm a triple negative. Currently, I have decided on a bilateral mastectomy for peace of mind.

  • amyemn
    amyemn Member Posts: 25
    edited December 2016

    Thanks Hope! I will now think of my chemo as ninja warriors!

    I talked to my oncologist today and she said she did not expect a complete response. The most response will be with the hormone therapy. They don't give it in conjunction with chemo, but she said maybe someday they will! I did have a slight response in my lymph node. It was .9 cm and now it's .7. So I guess it is something! My tumor is already small, so I wan't expecting a big reduction. It still was a bit shocking to hear that the tumor had no response. I sure hope it's doing it job getting any outliers!

    As I am writing this I am getting my first dose of Taxol. The benadryl is sure making me groggy!

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    Amw..congrats on finishing A/C!! Good vibes for tumor shrinkage, and I'm happy you have made a decision that works for you. :)


  • amyemn
    amyemn Member Posts: 25
    edited December 2016

    So, to add to my chemo drama, I just found out my husband is having an affair. I think it is just an emotional affair (if I can believe what he says) but that is still an affair. I'm a ball of emotions today. This is the absolute last thing I needed in my life right now.

  • Leslie2016
    Leslie2016 Member Posts: 316
    edited December 2016

    Amyemn, I'm so sorry. I've been through this and I'm here if you need to talk. PM me and I'll help anyway I can. It sucks at the best of times, but to find out while going through treatments for BC is really low. I'm here.

  • Nanpop
    Nanpop Member Posts: 75
    edited December 2016

    Amyemn. I am so sorry to hear that. If you don't have a therapist that your are going to already

    , you may want to seek out one. It will help you sort out your emotions in a way that will be beneficial to you.

    Others have posted similar situations.

  • amw5
    amw5 Member Posts: 189
    edited December 2016

    Amy (((hugs))) I'm so sorry to hear this.

  • Pamela23
    Pamela23 Member Posts: 510
    edited December 2016

    Amyemn--I can't even imagine. This is such a tough battle, you don't need another emotionally draining fight. I hope it's early enough to work out. This experience should be bringing loved ones together, not tear them apart. I know it stresses a family, but he's going about it the wrong way. I hope you guys can find some peace.

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