Anyone completely refuse surgery/conventional treatment?

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  • xana40
    xana40 Member Posts: 4
    edited November 2016

    Yes, It's possible that drinking juice would fill you up and you wouldn't eat as much of the "bad" stuff. :) I get that way if I try to get as many juices in during the day as I'm supposed to. But usually I end up feeling "off" after a couple of days of just juice. There seems to be just as many opinions out there that suggest having bone broth or liver (from a clean grass fed cow of course) is the way to a healthy body. They still want you to get the green juice too.

    My friend asked me to check out glutathione and immunocal. What I learned was that glutathione as a supplement doesn't get absorbed and immunocal is a "specially processed" whey protein isolate that our bodies use to make glutathione. This is of interest because there is a lot of science on whey protein isolates due to the body building industry. I found a 90% pure whey protein isolate on Amazon for about $20. It's important to not get just whey protein. It has to be the isolate. I also wanted no additives or sugar. If this works, it would be a good way to boost the immune system along with a high dose vitamin C regime.

    The money is tight so I'm frugal but cautious about the quality. I spend more time actually checking out the companies that are producing the supplement. Sometimes even the CEO's facebook page ;) So I was happy to find a company in Tennessee that seems pretty good and they produce a modified citrus pectin. They do the manufacturing also. Some nutritional supplement companies purchase from a lab in bulk and repackage with their brand. Their mcp is packaged as a powder in a 16 oz container which, according to the protocol of 5 grams 3 times a day, should last a month. It's around $70. That's a huge savings over the one that I was getting. So I'll give it a try.  https://www.wonderlabs.com/itemleft.php?itemnum=7612 .

    Once you open your eyes to the science of real food, you begin to understand why we are all so sick. I can't ever go back to not knowing the difference. There are so many fruits, vegetables, and spices. Honestly, eating real food is not boring. It's just a little more work because there aren't a lot of prepackaged foods that are done right. I have to say that I have been pleasantly surprised with the recent increase in the organic options at Sam's club and Publix. Even Walmart has the big tubs of organic greens now. :D

  • mapat
    mapat Member Posts: 59
    edited November 2016

    There is actually a local farm here with fields and fields of cranberries.

    I have often used cranberry juice for urinary difficulties, or just to 'clean out' the system. (I used to drink a lot of pepsi, now a lot of tea, though not as much as I used to, and cranberry juice always helped) I have acquired quite a supply of cranberry juice. Perhaps I will try drinking a lot/more of that every day. Just to see if it helps. Even though I am not particularly fond of the taste--I take it like 6-8 ounce 'shots' every 2-3 hours throughout the day. Especially trying to relieve this afternoon pain in my mid/upper back.

    I have found that generic/'cheaper' versions of cranberry juice or 'mixed with' other juices are not as effective as straight Ocean Spray cranberry juice. The fruit itself is likely even better.

    Studies I've read show some anti-cancer activity, but then many of them use 'extracts' rather than the whole fruit or juice.

    the fruit or juice seems to be more effective than 'extracts'

    http://www.phytochemicals.info/abstracts/cranberry...

    Two flavanols found in cranberries are quercetin and ursolic acid. Both have shown to prevent inflammation and inhibit tumors.

    Cranberries also contain anthocyanins and proanthocyanidins (PACs). It's these compounds that give the berry their scarlet color. They are also potent factors in cancer inhibition. Especially PACs.

    Cranberry PACs have a special structure that blocks enzyme activity and pathways leading to cancer.4 They also interrupt cell signaling that could be harmful to the body.

    https://www.institutefornaturalhealing.com/2013/05...

    Cranberry phytochemical extracts induce cell cycle arrest and apoptosis in human MCF-7 breast cancer cells.https://www.ncbi.nlm.nih.gov/pubmed/16377076

  • mapat
    mapat Member Posts: 59
    edited November 2016

    Hope everyone has a great Thanksgiving weekend--count your blessings!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016
  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited November 2016

    If dairy is implicated in breast cancer, it’s only ER+ cancer—and conventional dairy, from cows treated with bovine growth hormone & antibiotics. Organic is fine*—just don’t overdo the amount since it has calories and naturally-occurring sugar (lactose—even lactose-free milk does have a different sugar in it). But grown humans (over age 2) do not need to consume milk or milk products. (My son’s pediatrician liked to say that cow’s milk is meant for baby cows).

    *this from the Cancer Survivorship doctor and nutritionist at our local cancer wellness center.

  • flaviarose
    flaviarose Member Posts: 442
    edited November 2016

    In terms of milk, whether it is organic or whether it has been treated with growth hormones, it stimulates the production of insulin-like growth factor in humans, which is linked to increase risk of cancer;

    From this article: "if you drink cow's milk, you end up with higher levels of IGF-1 in your blood" and "In conclusion, the research shows that nutrition has an important role in determining serum IGF-1 levels. Whether the increase in IGF-1 caused by cow's milk occurs directly (by IGF-1 crossing the gut wall), or indirectly (as a result of the action of other factors), the research is clear. The consumption of cow's milk and milk products is linked to increased levels of IGF-1, which in turn are linked to various cancers. In time, the molecular mechanisms underlying these links will inevitably be teased out"

    http://www.whitelies.org.uk/health-nutrition/insulin-growth-factor-1-igf-1

  • createdonpurpose
    createdonpurpose Member Posts: 27
    edited November 2016

    Hello all! It's been quite a while since I've been on the site. Thought I would give you all an update on my progress thus far. I changed my medical team and went the all natural route with the support of my oncologist refusing treatment until about six months ago. I was going in quarterly for monitoring to make sure the tumor didn't begin to grow differently. I was late on my December exam due to conflicts with work, so didn't get in until the end of January. I kept my regular appointment in March, and discovered that in the two-month period between appointments the tumor had doubled in size and was moving toward my lymph nodes. I finally conceded and decided to have surgery before the cancer spread any further. I had the surgery roughly 30 days later and the tumor had doubled again in size. The tumor was removed by lumpectomy, I also had the seven affected lymph nodes removed which was worse than the surgery for the cancer. Due to the location of the tumor, my oncologist cautioned against radiation because it would radiate my lungs and heart and potentially cause more damage than good. This did not hurt my feelings, because I personally would not have consented anyway. The Onco-scoring of the tumor placed me in the category for chemotherapy, however, I have refused with my oncologist's support. I am currently taking dim supplements in place of tamoxifen. My oncologist just completed A several year study at the U of M on the effectiveness of the supplement and recommended it highly. I am headed back in next week for follow-up exams to see how things are going. I'm glad to see others taking control of their own health on the site. Blessings you as you walk down this crummy path that connects us all!

  • kdtheatre
    kdtheatre Member Posts: 159
    edited November 2016

    createdonpurpose- can you share the name of the supplement and/or the UoM study

  • labelle
    labelle Member Posts: 721
    edited November 2016

    There have been several studies that show DIM may be effective in the treatment of breast cancer. I take DIM and Tamoxifen. The University of Arizona recently completed a study to see if DIM made Tamoxifen more effective, results aren't yet in, but since they are measuring its effectiveness, not its safety, with Tamoxifen, I'd say that worse case it does nothing.

    " Diindolylmethane (DIM) is a metabolite of Indole-3-carbinol (I3C), a compound found in cruciferous vegetables including broccoli, cabbage and cauliflower. It is the most studied of all I3C metabolites and is thought to be superior to IC3 as a chemoprotective compound for breast cancer and prostate cancer (3).

    DIM demonstrated anti-inflammatory (16) (17), antiproliferative (16) and chemopreventive (18) effects in vitro and in animal models. It was also shown to increase bone mass (19), which may have implications for patients with osteoporosis.

    Limited clinical data indicate that daily supplementation with DIM leads to changes in estrogen metabolism in post menopausal women with a history of early stage breast cancer (4), and may benefit patients with castration-resistant prostate cancer by inhibiting androgen receptor (20). But DIM supplementation did not exert any positive effects in women with cervical cell abnormalities (13) although conflicting evidence indicates that it may help reverse cervical intraepithelial neoplasia (21). Additional studies are needed."

    from: https://www.mskcc.org/cancer-care/integrative-medicine/herbs/diindolylmethane Sloan Kettering Cancer Center/ section for healthcare providers

  • Nulyte
    Nulyte Member Posts: 62
    edited November 2016

    I'm interested , it it a supplement you buy and in what dose?

    Thanks

  • mapat
    mapat Member Posts: 59
    edited November 2016

    After I was first diagnosed, I noticed that after eating dairy or chicken, I got little sore/tender/inflamed bumps along the side of my breast (coming from original lump). Not there when I did not eat dairy/chicken. So I stopped eating it. Then I read Jane Plant's book "Your life in your hands", and totally quit dairy (and chicken, and cut way down on other meats). Also continued my research. Next was the China Study and it's studies on cassein (the protein in dairy that seemed to 'turn cancers on and off') Some sites your may be interested in to help you make your own decisions:

    http://www.alkalizeforhealth.net/Library/notmilk6....

    https://www.cancertutor.com/china-study/

    http://freefromharm.org/health-nutrition/21-expert...

    http://www.rense.com/general26/milk.htm

    http://nomilk.com/


  • pipers_dream
    pipers_dream Member Posts: 618
    edited December 2016

    This is a good food blog too-- Anthony William Medical Medium I'm not sure what I think of the medical medium thing but much of what he says rings true and he writes inspiringly enough to get me to eat more fruits and veggies since I tend to fall off the wagon every now and then--no I don't go back to sweets, but bread is the new sweets for me.

  • xana40
    xana40 Member Posts: 4
    edited December 2016

    I am glad that someone else is trying DIM instead of Tamoxifen. I talked to my oncologist but he doesn't know much about supplements. He uses the same websites as the rest of us to look things up when I throw a new one into the mix. I had agreed to try the tamoxifen but when I went home and read the side effect info that they give you from the pharmacy, I put the pills in the cabinet and continued with the DIM and other supplements. I'm going back to talk to him next week and I'd like to be able to find the U of M study results to give him. If you know of something and can post a link that would be great. I'm trying to avoid having drastic surgery until I'm sure that nothing else will work.

  • dtad
    dtad Member Posts: 2,323
    edited December 2016

    Hi everyone. I also take DIM in leu of anti hormone treatment. I also do many other thing to lower my estrogen naturally.Please let me know if you want to discuss this further....

  • wendymk2016
    wendymk2016 Member Posts: 63
    edited December 2016

    I know a friend, she is DX three years ago with stage 2A. no nodes involved. ER+, PR+, HER2-.

    After surgery, she refused all the other adjuvant treatments. She just maintains a regular base workout, eat healthy, travel around the country and enjoy the life. So far she is doing great.

    But if you asked me, I will not do same thing. I will follow the conventional treatment and then do the rest of other things she does.


  • sandcastle
    sandcastle Member Posts: 587
    edited December 2016

    Well, the fact that she is doing good says it ALL......Her journey....Liz

  • kdtheatre
    kdtheatre Member Posts: 159
    edited December 2016

    is the DIM an OTC supplement or a prescription

  • labelle
    labelle Member Posts: 721
    edited December 2016

    Over the counter, but I have no luck finding it locally and order mine from Amazon. I take both Tamoxifen and DIM (and other supplements). Tamoxifen only prevents about 1/2 of expected recurrences and that's not good enough for me. Several preliminary studies seem to show DIM may work with Tamoxifen, boosting its effectiveness. Ditto for melatonin possibly doing the same.


  • NYCexec
    NYCexec Member Posts: 11
    edited December 2016

    Hello, ladies. I'm so glad I discovered this forum! I was feeling like my situation was so unique that my girlfriends couldn't provide me with any feedback that felt "connected". After reading many of these posts, I already get the sense that many of you will understand and empathize.

    After three years on Tamoxifen, I ditched it. I was scared about this decision, but was more afraid of what could happen if I stayed on it (prescribing Onco had me down for 7 more years). 7 years.... that's a long time. When I told her about my decision, she was polite but not very supportive. And that's okay. I've come to realize that my journey of healing is not about the opinion of one doctor or one "expert", and like many of you, needed to get proactive about my health and care. It's only been four months since I started DIM + I3C, but I already feel much more balanced and alive. I started with DIM but eventually switched to a combo supplement. I'm still worried about recurrence, of course, so with my ER+ breast cancer I'm seeking ways to further balance my estrogen. I'm also taking Vitamin D and a host of other supplements. dtad, what other steps are you taking besides the DIM? createdonpurpose, blessings to you, too. I'm completely with you on taking control of our own health. It feels comforting to know others have made similar decisions.

    Wishing you all well.

  • dtad
    dtad Member Posts: 2,323
    edited December 2016

    NYCexec...Hi there. To answer your question I take DIM, melatonin, Vitamin D, and berberine. I have also lost 30 pounds and try to exercise daily. I'm 20 months out from diagnosis and so far so good. Good luck to all navigating this disease.

  • NYCexec
    NYCexec Member Posts: 11
    edited December 2016

    Thanks for the reply, dtad. I appreciate it. So great to hear that you are doing well. Progress of any kind always inspires me. I'm still amazed at the potential of our body's healing abilities when given the tools. DIM and Vit D are in my arsenal; will look into melatonin and berberine. Take care.

  • pipers_dream
    pipers_dream Member Posts: 618
    edited January 2017

    I read something about estrogen the other day that made sense. It said that it's not the body's estrogens that are a problem but the fake estrogens you get from the environment. Said to detox the body b/c those fake estrogens latch onto the receptors and create havoc. Makes sense to me.

  • abigail48
    abigail48 Member Posts: 1,699
    edited January 2017

    the estrogen in fennel which I'd been juicing for a year got me into this fix. breast began hurting a lot but I didn't know why until I finally got a laptop and googled fennel. I stoped immediately but it was too late. pomegranet also is very rich in estrogen

  • NYCexec
    NYCexec Member Posts: 11
    edited January 2017

    I've read the same, pipers_dream. They're called xenoestrogens, and can lead to estrogen dominance. If you've ever felt an increase in PMS symptoms, tender breasts, headaches, etc., these are sometimes manifestations of estrogen overload. Here's a helpful read I stumbled on: http://www.cancersupplements.org/dim

    abigail, I wasn't aware of those qualities in fennel. Always learning.

  • chef127
    chef127 Member Posts: 891
    edited January 2017

    Just curious, anyone know if the AI's eliminate the xenoestrogens as well as natural estrogen? I declined the hormonal tx (and chemo). I just passed the 5 year mark NED. The tumor was 95% ER and 80%ish PR. My logic is that peri menopause caused a total imbalance of estro-proges and caused my BC???, a fibroadenoma gone bad.

    I'm sure there are many of us er pr+ that can't blame hormones for our cancer but who? The drs just throw us all in to the same basket standard of care. They just don't know.

  • dtad
    dtad Member Posts: 2,323
    edited January 2017

    Hi chef127. So happy to hear you are well! I totally agree that most MOs just do not know anything about female hormones. I find that so disturbing because they are prescribing these powerful anti hormone drugs. Just not comfortable about taking these drugs blindly. Good luck to all navigating this disease...

  • gemini4
    gemini4 Member Posts: 532
    edited January 2017

    chef, I've wondered the same about AIs. I get that they block aromatase from converting bodyfat into estrogen, but do they have any effect on other estrogen sources? For that reason I've felt a little more secure with tamoxifen, assuming that it bypasses any estrogen that might attach to a BC cell and "breaks the lock". I'm not yet officially post-menopausal but will ask my MO when I make the switch.

    In the meantime, I'm eating lots of cruciferous/brassica vegetables (broccoli, cauliflower, Brussels sprouts) ... Not only are they delicious and low-carb substitutes for starchy, high-glycemiccarbs, but I've read more than one source explaining that their fiber "sweep aways" excess estrogen. I also eat beans often, and I think their fiber acts similarly.

  • Meow13
    Meow13 Member Posts: 4,859
    edited January 2017

    One thing I noticed was working a full 8 hour day was getting extremely hard for me. My company kind of pushed me into early retirement and one supposed benefit was a contracting agency contacted me to apply for ssdi. Finally after a year of filling out forms I was denied. Listening to others and their side effects I was not alone. I have been off AI over a year now. I feel like maybe I could go back to work. But since I retired from the company I worked for 35 years I can only go back as a contract engineer. I might look into it. I gave my oncologist an earful this is a problem for many. He just shugs, had I known these side effects could be this significant I would have had more information on planning my life. I understand completely that they focused on keeping cancer at bay.

    My biggest complaint beside joint pain was the overwhelming fatigue and sleeping trouble.

  • mapat
    mapat Member Posts: 59
    edited January 2017

    gemini4: --I haven't been feeling quite so good lately, getting over bronchitis and realized I haven't been eating those beans everyday so thanks for the reminder--fiber is a really, really important factor in controlling those estrogen levels.

  • kdtheatre
    kdtheatre Member Posts: 159
    edited January 2017

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