new ILC and looking for lifestyle advice

gypsyrambles
gypsyrambles Member Posts: 2

I'm 1.5 yrs from dx, ILC, stage 2a, node neg, ER/PR +. I had a single mx with DIEP reconstruction. I'm looking for lifestyle advice to lessen the odds of recurrence. I understand ILC is a nasty one but that there is a lot I can do to reduce my risk.

Comments

  • beth1965
    beth1965 Member Posts: 455
    edited November 2016

    Hi I am eating ketogenically the ketogenic diet is low carb no sugar high fat it takes away most of my aches and pains from surgery and past present treatment. It helps with cancer as sugar is cut out of diet. It keeps weight under control and gives you energy as well. You can find all sorts of info on it on the internet. I also take vitamin d and c everyday. I also believe keeping active is important - It doesn't have to mean working out just keeping busy with day to day life.

    I am almost at 5 years now and started with a lot of cancer I will be getting treatment forever but believe the other things are important as well.

    Hugs to you - stay positive

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited November 2016

    Hi, Gypsy. You will probably get all sorts of advice and opinions on this. I will just mention two things that may be especially important for ILC in particular, which is usually a very hormone-driven bc subtype. First, one of the researchers at the recent ILC Symposium in Pittsburgh said that avoiding alcohol is particularly important for ILC, because of its effect on estrogen levels. Second, I have read that exercising helps lower the levels of harmful estrogens in our bodies (I'm sorry, I don't have the reference handy), so exercise is important, too.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Yes. I take a daily aspirin (full strength) and get 4000-5000 IUs of Vit D every day, in drops. My MO checks my Vit D levels yearly and wants them at least above 60. I keep my BMI down around 19-20 so that any estrogen can't hang out for long in fat tissues, causing problems. And I take my Aromasin daily, without fail, and get at least 5-7 hours of cardio (sometimes moderate, sometimes more) a week. There is a nurses study that says exercise (3-5 hours a week) helps dramatically at preventing recurrence.

    Finally, I eat clean--no pesticides, organic 99% of the time, and avoid eating meat except occasional fish. No, meat doesn't seem to cause cancer, but the less I feel I've caused harm to other living things the better my outlook on life is. I try to do a random act of kindness every single day. I practice gratefulness and meditation to relieve anxiety about recurrence and the world in general.

    I would probably say the first paragraph for me is more important than the second, but eating clean, plant based food just makes me feel better overall. So that helps positively with my head and spirit, which is part of my lifestyle too.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Here's the nurses study about exercise. Alcohol is not recommended for ILC dxes, either, as Pony mentioned above.

    "First of all, regular exercise should be a key component of all survivors' lifestyles. The Nurses' Health Study followed nearly 3,000 breast cancer survivors and found that women who exercised regularly had half the chance of dying from breast cancer as women who did not exercise. Furthermore, the only exercise necessary was simply walking at an average pace for 3-5 hours each week. Aside from the numerous cardiovascular and psychological benefits of exercise, the benefits in terms of cancer survival are significant as well."

    http://www.cancerforward.org/survivor-resources/ca...

    This advice is good for anyone who had a bc dx and not simply ILC, either.

  • Momine
    Momine Member Posts: 7,859
    edited November 2016

    All cancer is nasty. ILC is not super-bad in the scheme of things, so don't lose heart. The number one thing you can do for yourself is getting regular exercise and keeping your weight within normal range. There are many studies to back this up.

    In addition, eat your veggies. Aim for nutrient- and fibre-dense foods over empty calories. There is some indication that it can help ward off further cancer, but it will also generally improve your overall health and well-being (which is also true for the exercise).

    Do what you can to get enough sleep and peaceful sleep.

    Actively aim to get your head in a good place. Whether that means changing careers, dumping a useless husband, meditating or making braids in your hair, big or small things, do them if it will make your life more enjoyable. This probably won't do anything to the cancer, but you will have a much better time.


  • dtad
    dtad Member Posts: 2,323
    edited November 2016

    Hi all. I agree exercise and keeping your weight down is very important. Unfortunately anti hormone treatment makes both difficult but hopefully not impossible. Good luck to all navigating this disease.

  • Mgriffiths12
    Mgriffiths12 Member Posts: 22
    edited November 2016

    may I ask did you drink before diagnosis

  • grandma3X
    grandma3X Member Posts: 759
    edited December 2016

    In addition to exercise, avoiding alcohol, and eating healthy, I also try to fast at least12-13 hours a day. This has been shown to reduce recurrence risk (and also helps keep weight off!).

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited December 2016
    I'll add a note about sleep: Keep your bedroom completely dark at night for natural melatonin production, which is anti-cancer. In fact, this may help hormone therapy or chemotherapy to work better.
  • ingersollnic
    ingersollnic Member Posts: 46
    edited December 2016

    Just concurring with the above. I am in Australia and my specialist recommends minimum of 30 minutes exercise a day at a pace you cannot talk, I have done that every day for over a year and it helps a lot with the pain I get from the aromatase inhibitors. My specialist also gets me to keep my Vitamin D level at 100 or above due to the studies regarding premenopausal outcomes with low Vit D, he also gets me to take aspirin and I am on Inderal as I took it before for migraine prevention and he doubled it due to a current study linking it to a lower recurrence rate. I limit alcohol and eat lots of cruciferous veg, include tumeric and lots of veg in my diet and keep my weight down with the 5km run each morning. The nurses study shows exercise to be one of most effective things you can do to lessen recurrence rate, greater than the hormone therapy I take, a professor postulated that the fact is it is not more widely talked about is that no-one is making any money from that advice :)

  • Siciliana
    Siciliana Member Posts: 127
    edited January 2017

    I live in one of the most beautiful places in the world--Anacortes, Washington--and I am able to get out and walk along a scenic coastline several days a week if the weather is halfway decent, which it usually is. They say people come into your life for a reason, and I believe that very much. Last May I was taking pictures of an impossibly spectacular sunset, and met a woman there doing the same thing. We got to talking and she said she was looking for a walking partner. So we have been walking buddies ever since. Not only is the exercise good for our bodies, but the yakking we do on our four mile brisk walk is good for our mental outlook. We have so much fun on those walks, and we always go down on the beach to peek in the tide pools or take pics of ducks, herons, and occasional otters and porpoises. Once we were even blessed with an unusual show of twelve Orcas swimming by!

    I am meeting with a breast surgeon on Tuesday and I am very apprehensive. I had a staging MRI on Thursday and don't know the results of that yet. That test was stressful because the contrast media went into my tissues instead of into the vein. Very painful and then I started to panic and had to stop the test not long after he got it restarted in my other arm. I hope they got enough images to make a proper diagnosis.

    I had somewhat of a meltdown a while ago when I was taking down the Christmas tree and had to ask my son to take over. My husband died right before Christmas 7 years ago, and now to get this DX right before Christmas is weighing heavily on me. But I am really glad I found this group. And Happy New Year to all!

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