Itching

mom8016
mom8016 Member Posts: 6
edited December 2016 in Pain

I already started my 12 rounds of Taxol. I am now on my 7th round, but the only side effect I am having is the itching. Up to 4th round everything was okay only when we started the 5th round that the itching began and was  horrible. I  am now itching all over my body but mostly on my toes and fingers. Sometimes I take Benadryl to overcome the itching but it helps for a while and start right back again. Does anybody know what to do? Is anyone having similar side effects? I am thinking about stop the all treatment, for I I have not even started the AC rounds yet. Please advice.  

Comments

  • Millie11
    Millie11 Member Posts: 7
    edited November 2016

    My daughter started having itching, burning, sharp pains in her feet, toes, and hands about 2 wks after her 2nd Taxol treatment. It gets worse when she's working I think because she's on her feet for 4 hrs. It's causing her major anxiety and I had to call her oncologist 3x in last 4 days. Dr just said she can take benadryl every 6 hrs, this makes her too sleepy to do anytbing but sleep. Got a different Dr tonite and he ordered rx steroid cream. Hoping this helps!

    I read about Hand Foot syndrome w taxol, it causes leakage in the capillarys in hands and feet. I don't know if this can be permanent or temporary. Any info would be greatly appreciated!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited November 2016

    It’s a type of neuropathy (nerve irritation or inflammation). Ask your MO or PCP about drugs like gabapentin (Neurontin) or Lyrica that address neuropathic pain (of which itching is a type).

  • abigail48
    abigail48 Member Posts: 1,699
    edited November 2016

    I have the same problem. unbearable sometimes. I do only natural so what helps? calamine over the counter cools for a bit, a shallow very not bath works when nothing else, takes a long time soak though, last n ight I put in calendula arosole, tea tree, 3 drops, epsome salts, a bit of wintergreen essential oil, (organic. then after dried off could sleep. there's an apricot hand and body lotion, cools well but does dry and flake, forget the name just now........Jason


  • abigail48
    abigail48 Member Posts: 1,699
    edited November 2016

    and rough towling, especially bamboo

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    After Taxol #9, I started getting that itchy feeling in my feet that would turn into a burning feeling (while already on a low dose of Lyrica for sciatica). I started taking Reactine and vitamin B12 (1000 mcg), and it went away. I needed to continue the Reactine for about 5 weeks after chemo or else that itchy feeling would come back. I'm still taking B12.

  • Millie11
    Millie11 Member Posts: 7
    edited November 2016

    Did u ask your Dr. if taking B12 + Reactine was ok to take while on the taxol? My Dr said not to take any vitamins while on chemo. What is Reactine?


  • Millie11
    Millie11 Member Posts: 7
    edited November 2016

    Thank you for the info. Appreciate it!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2016

    Yes, my doctor was OK with it. Reactine is an antihistamine. It's the Canadian equivalent of Zyrtec. It does not make me sleepy like Benadryl. The general rule is to avoid high doses of vitamins A, C, E, and other antioxidants. I was also told to avoid green tea.

  • abigail48
    abigail48 Member Posts: 1,699
    edited November 2016

    a couple of things I've not yet tried but have. too much work? kava kava, and on the rads thread somene said aloe vera jell on a cloth in the freezer. something wonderful to fantasize about

  • snowsogal
    snowsogal Member Posts: 79
    edited December 2016

    Mom8016: My neuropathy started after my fourth treatment of Taxotere. They cut back my dose for the remaining four treatments, but unfortunately the Lyrica, Gabapentin did not do anything for me. This was back in 2014. I have two kinds of neuropathy with two kinds of nerves involved peripheral and sensory. The latter result is itching all over my body. I take a neuropathy supplement, and alpha lipoic acid to regenerate the nerves. I believe mine is here to stay. Nothing really takes the itching 100% away, but it does help take the edge off of it. I also use a cream (homeopathic) Topricin. It is absolutely miserable. There are times that I can't even wear a bra, and certain fabrics in clothes exasperate the itching. This has been a very difficult adjustment for me. Anything with lace, rough seams, embroidery etc.. I can't wear.

    I hope yours goes away.

  • snowsogal
    snowsogal Member Posts: 79
    edited December 2016

    Dear Mom8016: Let your oncologist know what is happening. You could ask them if they could cut the dose down, and see if that works, before you tell them to stop it. It is probably some kind of neuropathy like the other post eluded to.

    Unfortunately the more of these drugs you get in your system, the more it accumulates and the SE's begin to happen.

    I am sorry you are going through this. It is beyond exasperating all the SE that can happen. We pay a high price to kill the cancer in our bodies, but no guarantee that it will not come back.

    I hope you body responds to Neurontin, Cymbalta, or Lyrica. They just drugged me up, and did nothing for the neuropathic pain.

    Keep us posted.

    These are frustrating times. Keep a notebook of your SE each time you call your doctor or see him. Because as time goes on, you may not remember if chemo brain starts to set in.

  • dtad
    dtad Member Posts: 2,323
    edited December 2016

    mom8016...so sorry you are suffering. Just want to let you know that itching can be a symptom of neuropathy. Neuropathy is a common SE of chemo. You might want to talk to your doc about some neuropathy meds. Good luck and keep us posted.

  • snowsogal
    snowsogal Member Posts: 79
    edited December 2016

    Mom8016:

    Because I have such a hypersensitive system, this class of medications produced a "zombie" effect. I refused to live that way. Pain doctor wanted to use pain patches, but I can't wear any patches; I get reactions from them. My choices are limited. I don't have much faith in the medical world of medicines. I do have faith in natural supplements. This is strictly my opinion.

    FYI: The steroids they give you can cause itching too, redness, and flushing on your body parts, but that usually decreases in a about a week. I was given two different steroid creams by a dermatologist. One for my face, and one for the other body parts. It helped some. Keep in mind, it may not be just your Taxol.

    I wonder what our MO would go through if they took the same chemo drugs as us...hm-mm.

    I pray they can truly find a medicine to help you. Hopefully you are not too far along with the Taxol, that they could change the chemo med. Apparently, I was too far along; because all they did is decrease the dose a little every three weeks, hoping to turn my neuropathy around, but that did not work.

    It was my hope that all these SE's would have gone away after treatment, but surprise; they did not for me. I don't think it is this way for everyone.

    Even Benadryl, caused a allergic itching reaction; which was not supposed to be. I had all the opposite SE's of drugs that were the opposite for most people. The MO was very frustrated because everything he gave me to help minimize the SE's did not work. I just say I am special to deal with it that way. Doctors have to treat me so much different than the normal patients. In fact, my GI gave me a drug that was not supposed to cause stomach cramps, but it did for me. It was a surprise to them how sensitive my system is.

    It is my feeling most doctors don't know how to treat patients that have had chemotherapy/radiation side effects. They think all this gets back to normal after treatments. I wish more doctors knew how to treat me.

    Thanks for listening. These forums do help.

  • snowsogal
    snowsogal Member Posts: 79
    edited December 2016

    Mom:

    Yes, I am totally aware that neuropathy causes itching. Sometimes my hands itch, but it goes away, but other body parts itch and continue to. I just try to be thankful I can still walk, get dressed, and use my hands even though they are very numb. I am thankful I can hopefully encourage others with my story.

    Always remember there is something to be thankful for, even in the midst of horrendous SE's from chemotherapy. I personally wanted to take alternative treatments, but could not afford it. I knew the SE's of chemo was going to be horrendous for me, but what I did not know is that they would continue to linger, and now I am on disability because of them.

    People say your life will get back to normal, but it is a "new norm" with many things that you might possible have to deal with longer than you anticipated. I have a hard time just putting behind my 'season of cancer', because everyday I am reminded by my SE's.

    Hope your life does get back to what it used to be, but if your read other forums; you will see that this doesn't always take place.

    Best Wishes!

  • snowsogal
    snowsogal Member Posts: 79
    edited December 2016

    Hi Millie,

    Unfortunately, I think any of these numerous SE's from chemotherapy can be permanent. We pay a high price to get cancer free, more than I realized.

    Hope this cream works.

    Cindy

  • snowsogal
    snowsogal Member Posts: 79
    edited December 2016

    Hi Chi:

    Did you experience neuropathy, and has it reversed itself?

    Regards,

    Cindy

  • Jenwith4kids
    Jenwith4kids Member Posts: 635
    edited December 2016

    I wonder if a steriod would help? Or are you already taking one?

    I also took l-glutamine and vitamin B6 during Taxol - supposed to help with neuropathy - which I didn't suffer from - coincidence or from the l-glutamine/B6?

    Worth a try, no?

  • snowsogal
    snowsogal Member Posts: 79
    edited December 2016

    Hi Jenn:

    So glad you don't struggle with neuropathic pain. It is very hard to deal with. I tried L-glutamine, but I believe it had dairy in it. I could not tolerate it. This itching is all over my body, so I am not sure where they could inject a steroid. I have no rashes, just internal itching with the nerves. I took steroids, but to no avail.

    I did take B vitamins all through my treatments, did not help. I had to stop B6 it is a diuretic. All my B blood levels were way out of range, very high and the neurologist said to stop taking all the B's because that can bring on neuropathy. I quit seeing her, and take a neuropathy supplement now with B vitamins etc..

    Cindy

  • abigail48
    abigail48 Member Posts: 1,699
    edited December 2016

    that's

    what wounds do whether surgical, accidental, complementary conventional therapies, they itch and bleed

  • snowsogal
    snowsogal Member Posts: 79
    edited December 2016

    Hi Abigail:

    I have the scars, but I am talking about my nerve endings. My whole body itches.

    Thank GOD you do not have this.

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