Calling all TNs

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    A Powerful Prayer for all Cancer Patients


    Heavenly Father, we proclaim Your righteousness and praise all the day long. Your faithful love endures forever and Your mercies never cease. Great is Your faithfulness. Who can compare to You? We exalt Your Holy and Righteous Name. You are the Holy One of Israel who sent Jesus, our Lord and Savior, to redeem all mankind from the curse of the law of sin and death.

    Lord, we thank You for watching over those persons who have been diagnosed with cancer. Thank You for Your healing power. Thank You, Lord, for declaring us overcomers by the blood of the Lamb and by the word of our testimony.

    Gracious Father, Your thoughts towards us are of peace and not evil, to give us a future and a hope. We believe that it is Your will that we live free from all diseases.

    Lord, thru your infinite mercy and power, we declare that the infirmity of cancer with its many forms and common types – bladder, breast, colon and rectal, endometrial, leukemia, lung, melanoma, pancreatic, prostate, skin, thyroid and other types—are destroyed, in Jesus' Name.

    We command the primary abnormally deformed cell to die at its root and the metastasizing cells to cease from spreading throughout the body, especially to the lungs, bones, liver and brain. We command the increased production of healthy cells to destroy renegade cells. We declare that abnormal cells will die and not enter into the bloodstream or lymphatic system.

    Lord, as the Body of Christ, we declare that all of those with faithwho have been diagnosed with cancer will not die; but live to tell what You have done.

    Lord, I confess that by the stripes of Jesus, (name the person(s) who need healing from cancer) is healed, redeemed, restored and set free from cancer and its symptoms. I declare that supernatural healing is flowing throughout his/her body, in Jesus Name.

    Amen.

  • Allydp
    Allydp Member Posts: 520
    edited December 2016

    I'm sorry for my late response...I have been battling the flu or a virus. Thank you so much for your well wishes. We are over the moon! Our friend just felt her first kick yesterday. She's been feelings flutters since 12 weeks, but this was a good kick. My heart melted with the news. As we approach 17 weeks tomorrow, there are times I still can't believe it. I appreciate your support and love so very much!

    Annie - you and your Old Feller are an inspiration to all marriages. He sounds like he's taking such good care of you. How funny about the water bottle...I love knowing you're both able to laugh through these most difficult moments. I'm so hoping this first chemo starts blasting that cancer right away and gives you some relief. As you said, only God knows when He will call you home, so keep fighting. I appreciate your love and support with my news so very much. Only you would be able to be as happy as you are for me while facing your own battle. You are so very special. Have you heard back about not being able to swallow the pills? I sure hope so. Please keep us posted. Sending you all my strength, love and prayers. xo

  • aterry
    aterry Member Posts: 290
    edited December 2016

    Cocker_Spaniel, Has your MO suggested Nystatin suspension gargle for the thrush? I've had thrush each infusion and the Nystatin has been a huge help each time.

  • InspiredbyDolce
    InspiredbyDolce Member Posts: 1,181
    edited December 2016

    Hello Everyone,

    Just checking in to see how Annie is doing.  Loved the story about the top coming off the water bottle.  LOL  It reminded me of one time, on the way home from the grocery story, we heard a hissing sound in the car.  It was right around the time where there were a lot of things happening around town, and I was certain there was something very suspect in our car. We didn't know what was going on, pulled over and inspected the car inside and out.  We discovered that a soda bottle had come just a little loose, and that was the air coming out, making the sound.

    Annie, so glad that you have such a wonderful support system, your husband is amazing and sound like he is also a bit of fun!  Glad the first chemo went well and that you like everyone at the center.  Also, in terms of long-term management, I believe having that positive system around you (at the center as well as home) produces the very best environment for health.  I also read that laughter and music strengthens the immune system.

    And sweet Ally, oh my, what a lovely message to read from you!  Congrats on the awesome baby news, truly a dream come true.  It just brings so much joy to hear this wonderful and exciting time for you!  Loved the photos also!

    Love, happiness, and peace to everyone.  Love you all!

    Will check in again soon - back in the pocket for Annie!




  • Valstim52
    Valstim52 Member Posts: 1,324
    edited December 2016

    Annie you are such an amazing and brave person. Your DH sounds so caring and loving. We are all in your pocket.

  • ScotBird
    ScotBird Member Posts: 650
    edited December 2016

    Ally, congratulations. All these babies are super exciting. We recently had the first baby in my family for 11 years, she is super cute, very relaxed and happy. My niece (the new mother) lives in Glasgow which is nearly a 2 hour drive away but I keep finding excuses to go and visit! She is 5 weeks old now and has changed so much already.

    Annie I'm so glad you had a good day and it feels like you have got your great positive attitude up and running again. Do keep nagging your team about the mouth problem there must be something they can give you to help that. So great that you could have a laugh about the water bottle. I promise it wasn't me but it was so crowded in that pocket that anyone could have accidentally knocked it off. We'll have to be more careful in future.

    Much love to every one of you for a peaceful happy and healing holiday. What a year we've had. So grateful for all of you fantastic women, you made it so much easier to bear. nowing that you are all out there is a fabulous support.

    X


  • georgie61
    georgie61 Member Posts: 95
    edited December 2016

    amw...sorry it took me so long to respond, but like most people I found Taxol much easier to tolerate, and I hope you do too. I should have kept a journal, perhaps my recent head injury is to blame, or I just chose not to remember the details. The whole process is a blur to me now. xoxo

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016
  • lovesgreenthings
    lovesgreenthings Member Posts: 107
    edited December 2016

    Hello TN's. I have probably logged well over 150 hours of research since my recent diagnosis of early stage ( 9mm )TNBC. 6 years ago I was diagnosed with early stage (3 mm) E+P+HER- and had a lumpectomy and radiation. It all went very well and I missed only one full day from work for the lumpectomy. I was able to work from home the following day, had a weekend to rest and was traveling at the end of the next week. "Breast Cancer Light" I called it. My maternal grandmother and mother both had BC, but did not die from it and it never came back for as long as they lived. I will not be having BC Light this time around from what I have read, and I want to be as prepared as possible. Wondering if you beautiful people, who I feel I know so well now, would share your thoughts on some of the decisions I have yet to make.


    I am eligible for a lumpectomy due to the size of the tumor. That is certainly the easiest recovery but I think I will worry forever about recurrence and spread. So a bilateral mastectomy is really more logical. I meet with a PS this Friday. I am a tall, muscularly thin, athletic looking woman (56 years old) who practices yoga daily and is very active in general. I am highly considering no reconstruction. I had rads on the right breast and my understanding is this can complicate any reconstruction. I have a pretty high pain tolerance, but I really do not want to be in pain or uncomfortable any more than is necessary. I have also thought about just delaying reconstruction until my head is clearer. Very worried about infection. I have another week to think about this before we start the ball rolling.


    Pretty sure I will get the standard Red Devil + Taxol. Has anyone tried the Penguin Caps with this? It may seem crazy to be worried about hair loss, but my job is a "visible" one and if I can keep some hair going I think it would help me keep up a more positive persona.


    I appreciate any comments, feedback, suggestions that any of you may be able to offer me. Sorry to be joining the club, but so glad that there are others out there to share with.
  • VLH
    VLH Member Posts: 1,258
    edited December 2016

    LovesGreenThings, I'm sorry to hear about your TNBC diagnosis. The red devil has been daunting for me, but I entered treatment with a long-time history of severe Fibromyalgia so don't consider myself typical. I initially booked a bilateral mastectomy due to large breasts & a 100 pound weight loss that would have dictated surgery on the unaffected breast anyway. I changed to a lumpectomy because I live alone & became concerned about caring for myself and two large dogs with both sides of my body impacted. Further, I worried about tissue expander infection & thought the Fibromyalgia might amp up the iron bra pain and tightness. Ironically, I ended up with a nasty infection from having a seroma drained & it delayed my chemo by weeks.

    I will say that, sadly, cancer can still emerge in mastectomy scars, the chest wall, etc., so the surgery isn't a guarantee of no locoregional recurrence. Neither does it preclude distant metastasis, the scourge of TNBC. I've also been surprised that local recurrence doesn't make much of a difference, if any, in overall survival for some TNBC patients (older, early stage). With your slender, athletic build, I would absolutely consider going flat. Best of luck with your treatment and sending the cancer cells packing.

    Lyn

  • jcpriest0469n
    jcpriest0469n Member Posts: 86
    edited December 2016

    I also think you could consider going flat. I wish I would have had both removed instead of one. Good luck

  • lovesgreenthings
    lovesgreenthings Member Posts: 107
    edited December 2016

    Lyn and JCPriest,

    Thank you so much for the fast response to my questions. Lyn, you are spot on with the confusing aspect of the cancer returning. I have seen some posts where it came back despite bx and that would be pretty disappointing. Like you, I happily live alone now with 2 dogs, so the worry of managing a major surgical recovery is adding stress. Appreciate both of you concurring with my thinking of going breast free. I keep thinking of when my mother bought me a padded bra (no breasts at all at 17) for a prom date. Since my breasts have never been a big part of my appearance, this is easier to consider. My friends who are busty are all on the "I would get the perky boobs" bandwagon. You sure learn a lot about your friends and family when something like this happens.

    Thanks again for your thoughts you two!

    Anne

  • amw5
    amw5 Member Posts: 189
    edited December 2016

    I would love to meet everyone in person.

    That would be one awesome Christmas gift.

    (((hugs)))

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016
  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited December 2016

    Lovesgreenthings, I opted for lumpectomy, and had a re-excision 8 months later after chemo. I would absolutely go that way again. The surgery was the easiest part of my treatment plan. You can always go back and have a mastectomy later, but you can't go backwards to a lumpectomy.

    I will say though, that I have large breasts and didn't want to go through reconstruction. I was slightly lopsided to begin with, and more so now, but I don't think it's noticeable to the average person. I have the option of a reduction on the non-affected side to match them up, but I'm not inclined to do that at this date.

    Best of luck to you, come back with any more questions you have.

  • lovesgreenthings
    lovesgreenthings Member Posts: 107
    edited December 2016

    LoveMyVizsla

    I too love those dogs! They are so beautiful and super smart! Thanks for weighing in on this decision. Agreed that lumpectomy is the easiest way to go on this treatment plan and may allow me to focus more on getting through chemo safely. I am very worried about infections from hospital stays. I work in health care and understand how easy it is for this to happen even at the best of facilities. It is the least disruptive surgery and the first suggestion from my BC Specialist, but he wanted to offer up other options too. I will let all of you know the suggestions of the PS, although I am sure that will be from a "it's all wonderful" after mastectomy perspective. So much to consider, but it really helps to have someone who has been there offer their thoughts. Thanks again!


    Anne

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited December 2016

    Lovesgreenthings, just to weigh in, i had a lumpectomy on my other breast 25 years ago. The down time was so much easier. This time a lumpectomy was not in my treatment plan. though chemo was rough at times, it was much more doable than I had imagined. Stay hydrated, follow the thread for your month on BCO starting chemo. Share best tips with others. Remember it's rare for someone to get all of the side effects,but it is smart to do some prep. What worked for me: hydrate, hydrate, hydrate stay ahead of bowl issues, eat what and when you can.

    I've reached one year from dx this month. Looking forward to many more years.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited December 2016

    Oh and no recon for me. I just did not want to have more surgery, plus I'm 57. Yes i'm lopsided but I have a good prosthesis for when I want to have 2 breasts.

  • lovesgreenthings
    lovesgreenthings Member Posts: 107
    edited December 2016

    Thank You Valstim52! All good advice and tips. I definitely will re-read all the tips on chemo that are provided here, went through it once, but last week is a blur now!! So glad you are out of the woods now and happy with your decision. My BS thinks 56 is too young for no reconstruction. But I agree with you on the least amount of surgery as possible. I do think if I was 20 years younger I might feel differently. I admire the women that are doing so much to conquer this and reconstruction is part of that too.

    Thanks again for sharing your information with me, this is so helpful.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited December 2016

    Dear LovesGreenThings,

    Just for your consideration if you decide on MX.

    I initially had a lumpectomy, but based on my second opinion pathology report, got a follow up MRI which discovered more multifocal TN DCIS in other quadrants that had not been discovered or removed. So I then had a MX. My recovery was not that much more difficult than my lumpectomy (although it was not bilateral). I was 38 at the time and took one day off work (followed by the weekend) and was then ready to get back to my office. I wore comfier clothes than usual and was prepared to take additional time if I needed to, but really found going back to work a welcome distraction. I only took daytime pain meds for 2-3 days and thereafter only at night.

    It sounds like you are in great shape and may have an easier recovery than you fear. I found that very gentle post-operative stretching was an amazing recovery tool for me.

    Good luck with your treatment and just know that whatever decisions you make for yourself are surely the right ones!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited December 2016

    hi Ladies

    Just chiming in for support. Have my one year mammogram and ultrasound. Was not nervous until now. Appointment is today Bringing back scary memories

  • lovesgreenthings
    lovesgreenthings Member Posts: 107
    edited December 2016

    Sending good karma your way!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    Valstim, praying for you and sending positive thoughts.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016
  • VLH
    VLH Member Posts: 1,258
    edited December 2016

    Best of luck, Valstim52!

    Lyn

  • LoveMyVizsla
    LoveMyVizsla Member Posts: 813
    edited December 2016

    ((Val))


    Lovesgreenthings, I have a pre-existing autoimmune disorder, so my immune system runs at about 1/3 of what it should be. I didn't have any infection issues with either of my surgeries.

    My PS said he could do a latisimus flap or fat grafting to fill out the affected side. From what I read, there is a higher rate of failure with implants than with self donated tissue. That turned me off right away.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited December 2016

    Val...my mammo is Wednesday. Hope we both get good news‼️

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited December 2016

    Thanks everyone. The radiologist read it right away, did and ultrasound and gave me the all clear. Whew. Hugs to you Cathytoo.

    Love you guys, you have no idea how i have relied on you for my sanity this past year. Thank you so much.

  • VLH
    VLH Member Posts: 1,258
    edited December 2016

    Wishing clear results for you as well, Cathytoo!

    Lyn


  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2016

    Congrats Valstim! Great news for you this Christmas!

    Now my prayers and good thoughts shift for Cathytoo.

    image

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