TC 4 treatments,

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tishabe
tishabe Member Posts: 14
edited December 2016 in Triple-Negative Breast Cancer

Hi

I have had my first TC treatment 8/18/16. Was so sick awful headache, vomiting etc ended up being admitted to hospital for four days. feeling much better now but extremely nervous for next round on 9/8/16. Does anyone know if it gets better or is this what I should expect each time. Also, when should I expect hair loss.

Thanks for you help!

Terri


Comments

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited August 2016

    Sorry you had such a difficult time with your first TC infusion. My first one also landed me in hospital for 4 days though I didn't experience any vomiting at all. In addition to the anti nausea meds with the infusion I took oral meds religiously. I didn't wait until I needed them. Did you take steroids for a couple of days before and after chemo? And did you have Neulasta the day after your infusion? I didn't have Neulasta with the first round but did each round after that. I was still very ill after 2 & 3 and I did end up at the hospital but was able to avoid admission. I required antibiotics for all but the last infusion. Number 4 was my "easiest".

    My hair started to fall around day 14 and by day 17 I couldn't stand it and had my hubby buzz my head. You may experience some tingling on your scalp or some tenderness particularly around the crown. That usually indicates the beginning of "the fall".

    Thinking of you and wishing you the best. Please feel free to private message me if you would like to. Hugs Donna.

  • tishabe
    tishabe Member Posts: 14
    edited August 2016

    Hi Donna,

    Thanks for the candid answer. Yes I received the Nuelasta shot the day after. My MD only gave me steriods through my port on the day of infusion. The gave me compazine for nausea after treatment which did absolutely nothing! I have started with the itchy scalp and my hair feels rough but so far I still have it. I guess its the not knowing which is getting to me. I am so grateful I found this website, now I don't feel so alone. My husband is so wonderful, with all of this I just don't want worry him any more with my fears.

    Thanks so much for listening

    Hugs

    Terri

  • BarredOwl
    BarredOwl Member Posts: 2,433
    edited August 2016

    Hi tishabe:

    Please contact your oncologist's office tomorrow, and remind them of what happened with your first round. Request that your MO review the supportive medications you received before, during, and after the first round of TC treatment, including the prior anti-nausea and/or anti-emetic drug(s), which were not effective. Ask them to take any necessary steps to implement any recommended modification(s) in supportive medication in the next round, to help you avoid a repeat if possible.

    Best,

    BarredOwl

  • Meow0369
    Meow0369 Member Posts: 156
    edited August 2016

    Hi all glad there's a place for us triple negative gals. I'm going in Thursday for my 3rd infusion. Yuk. Lost most of my hair on top and hope it slows down. I'm cold capping results are pending.

    My biggest problem is the SEVERE stomach pain I get starting on day 2, lasts for a week dr gives me Prilosec but doesn't help.Drank mylanta, Zantac nothing helps. I do get a rash in mouth and throat w bumps biut no sores.

    So there's no other option for us but chemo since no estrogen etc receptors .(?)

  • tishabe
    tishabe Member Posts: 14
    edited August 2016

    HI meow0369 that is my understanding chemo and radiation are the only option. Sorry about the stomach pain maybe nexuim might help versus the prilosec. Hope you feel better soon!

  • Meow0369
    Meow0369 Member Posts: 156
    edited November 2016

    Hi ladies just wanted to say hello hope everyone is doing good. I'm 8 wks PFC and for me was a long road to recovery. My stomach pain turned second to horrible muscle pain everywhere nerve damage hopefully I recover from. Can't believe my MO just let me deal with it. Then wondered why I couldn't do 6 cycles. Nothing to help me along. Anyone know of someone getting treatment from Cancer Center of America ? Commercials say they treat the whole person so they can complete their treatment successfully.

  • gsquared
    gsquared Member Posts: 1
    edited December 2016

    Hi, just diagnosed, waiting for my first Chemo treatment on Monday 12/19.  Hoping to get past Christmas before the side effects start...any chance of that..????

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2016

    Hi gsquared and welcome to Breastcancer.org!

    This thread seems to be pretty quiet -- you may want to hop in on the December 2016 Chemo thread to see how others currently undergoing chemo are handling their side effects and the timeline to expect the onset, if you have any! We're hoping you're able to get past Christmas without any side effects too.

    Thanks for joining and posting and we look forward to hearing more from you soon!

    --The Mods

  • Misspriss
    Misspriss Member Posts: 2
    edited December 2016

    Hi Gsquared,

    First of all, I am sorry to hear about your diagnosis. This is a great community to mine for information and it has been hugely helpful just to know what others have experienced. I too am relatively newly-diagnosed. I am getting ready to do my 4th AC treatment on the 19th. I found the first 2 to be better than expected. My nausea was well-controlled with the meds - there is a steroid and anti-nausea med. The main symptoms I had after the 1st session was fatigue and constipation, the latter I controlled with drinking prune juice (yuk! but at least not another drug!). They key is to take the anti-nausea medication if you have even a hint of nausea so you can ward off further progression. The symptoms kicked in around the 3rd day post and by 5 day post I was feeling more normal. I also had some taste changes but not the metal taste everyone warned me about - more just everything tasted very bland. By week #2 that seemed to be normal again. Treatment #3 was harder - I heard it would be - as the med accumulated. Overall, the symptoms have been better than I had anticipated.

    Wishing you a positive first experience. I was given a Xanax to take pre-infusion which helped me feel less anxious. By treatment #2 I didn't feel I needed since I knew what to expect.

    I'm thinking you will be able to enjoy the holiday season even though you are going through this :) Thoughts and prayers for a good treatment process.

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