Who is starting chemo in September 2016?
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Taxol #7 done! 5 more to go. Sunday marks my 100th day of being in chemo with 33 days to go after that. I'm not counting or anything though. I figured it out today during treatment, that by the time everything is done I will have sat in that chair for about 50 hours! Yikes!!! I bet these numbers are typical of all of us that has had to have AC and Taxol. So glad to be on the downhill side now!
Worried about cumulative side effects but so far I have had nothing to speak of. Tiny new hair coming back all over my head except the sides right above and in front of my ears. I'm putting Jamaican black castor oil on about 3 times a week and just started using Nioxin scalp conditioning products for regrowing hair. Not sure if it's a coincidence that it is coming back since I started using this stuff or if it's really working. I'm not going to complain either way.
Have a good weekend everyone.
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complaining alert!!!!!
SE's suck right now. My taste buds are completely gone, somehow I have another cold, the "D" has struck, and I have tingling in my fingers and hands. I want to eat but nothing is doing it for me.
Okay, whining done....
I am alive, my kids are happy, and Christmas is a week away. Always have to look at the positives..
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Hang on Dennyj!!!
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Dennyj~ Hang in there! I am right there with you with the taste buds. I can handle the D and the meds help with the nausea, but not having the desire to eat or even drink anything because takes like crap really sucks when you are trying to keep up your strength to fight! I end up resorting to soups quite a bit, just to have eaten something.
Hope everyone else is doing well! Have a great weekend and if you want to be added to the Jan 2017 surgery group,just head over there or send me your info so that we can be here for each other!
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thanks! I needed a kick in the rear.
My surgery is February 2nd....can I still make the January club?!? I will check it out!
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Dennyj- join the Jan group! I don't have a date for sure yet either....
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I am sorry Dennyj, I feel for you. I hope you are feeling better. Everyone, I hope is feeling better. I really am disliking the taste bud thing myself. It is finally getting somewhat back to normal.
I am in the hospital again. Bad blood numbers. Getting a transfusion right now. They started one last night but stopped because I had chest tightness, thankfully it was just whatever. Cardiac enzymes were good and test to check for a reaction were negative. No one is sure what happened. EKG last night also showed some abnormality, I've had another one today but haven't heard about it yet. I think it will be fine though. I am scheduled for another one tomorrow morning so I hope it is good and numbers are good so I can go home. I am not getting ready for Christmas sitting here lol
Thankfully, other than some weakness and fatigue I am feeling much better. This latest round of blood work does not leave me hopeful that I will finish chemo before the end of the year. I was so hoping to be done. Ah well, we shall see.
Many hopes that the rest of you are doing well.
xoxo
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Dennyj and Angela so sorry about the SEs. I wish you quicker recovery and peaceful Christmas
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Thanks everyone...I have bounced back. I have a mild cold and no taste buds but I am fine.
AngelaKS - Wow, I hope you feel better soon! Take care!!!
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Thank you! I finally had my major breakdown and of course it was when the nurse was in my room hanging blood.
After a few minutes when I was first dx, when all I thought of was a mastectomy, I moved on and pretty much hoped/prayed.etc for a lumpectomy. Today I learned that probably isn't going to be an option and while I know that the genetic tests can come back negative, I don't feel 1. that they will 2. like anything has 'gone my way' triple +, aggressive, large, etc so I am basically planning on it now but I didn't want even one let alone both. I know many of you are planning on it and many have already had it done but this is the first time my MO has even really talked about surgery at all so I guess I just hit my breaking point. I really am one of those people who cries in the movies, at commercials, etc but I have literally cried (now) four times since my dx and twice was today. I cried myself into a bloody nose during my first blood transfusion. I am just about done with the second one now. I am sorry for the lame, whiny, poor me post but I just lost it today. I know that y'all understand and I guess I feel safe here putting my feelings into words. I know my husband married me not my boobs (honestly, I'll probably end up with more than I ever had) but for some reason, I just am having a very hard time with this.
Thank you very much for letting me vent and being such great support!
xoxo
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AngelaKS, from one Angela to another, I know exactly how you feel. I've been putting up a brave front these past few months, but lately I'm losing my composure quite frequently. My poor husband is bending over backwards to make things easy for me, bless his heart, and I love him so for it but half the time I find myself wanting him to stop hovering over everything I do! I've still managed to keep working at least 35 hours a week, and since I have a 45 minute commute each way I take advantage of the alone time to do most of my crying. The shower is another good crying place. The one difference between us is that from the very beginning we discussed and decided on a double mastectomy, even though my tumor was confined to my left breast and was never even palpable. So many people would ask me at the beginning "what stage are you?" and it was such a pain to have to go into the whole explanation of neo-adjunvant therapy. Going through chemo first and then surgery can mess with your head; I've thought so many times that it would have been easier to recover from the mastectomy and go through chemo at the same time. Having surgery looming over my head all these months has been tough and it's being reflected in my emotional state. But we will get through this together - I'm so very grateful for this community of women. First thing I do in the morning and last thing at night is to check these boards to see how everyone is doing. Thank you my friends!!
Angie
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Angela you have every right to cry lady...let it out...we are going through so much right now. mentally and physically..if we hold it in..we would probably go crazy..lol..sometimes I cry in my car when I am on my way home from work...it just comes out of no where..lol....especially if you are like me..never sick before being diagnosed...I just ask the lord sometimes why me lord..you know..but I have to believe it will get better and it could be worse...I am about to cry right now..lol...keep your head up Angela we will all get through this together:)
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Angela
As everyone has stated go ahead and cry and let whatever you need out here or wherever. Im very grateful for this community. It's where we can let it all out. I have so many fears I have to ask God to control my mind because I would drive myself crazy. Trying to stay strong for my kids and family not always easy. When it gets tough I come here look at post and try and find a silver lining. This by far is the toughest battle probably for all of us. Certainly for me. I just ask God to walk with me and to keep me during this time.
Hang in there.
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Thank you all! I appreciate it! I don't usually feel like crying to be honest. I do have days when I think are you kidding me? Really? As I have probably said before, Stroke 6/15 - pulmonary embolism 3/16 and cancer 8/16 when is it enough?
Anyway, thank you all again for the pep talk. I am feeling better today emotionally.
I love this group!
Waiting to see what is going to happen with my levels today and see if I can go home. I hope so!
I hope you are all doing okay with s/e.
xoxo
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Tomorrow will be my last chemo....cannot wait to stop putting so much toxin in my body...I know it is necessary to kill any cancer floaters hiding in my body....and I am so grateful that my experience has not been too bad...but on days when I was not feeling so good I would remind myself that I have to take the bad with the good in order to live the long life I plan to live. I am ready to get off this ride, only to jump on the radiation ride...but once again, it will be to help me live long. Is there a starting radiation in January topic on here? I will have to look for it. Here's to everyone whois leaving chemo in 2016. Goodbye. Good riddance....so looking forward to 2017. This has been the worse year of my life...
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Congrats on ending the chemo ride Ware!
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Ware--Congratulations! I'm right there with you on being ready to be totally DONE with this. I finish chemo on Jan 20 and start radiation Feb 13. This has by far been the worst experience of my life and I just want it to be over even though I had no horrible side effects from the AC or Taxol (so far). I can't wait to see everyone's posts that we are all finished!
Happy Holidays!
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Congrats Ware! Here is to an easy ride on this one!
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Ware - congrats on your last chemo!!!! Best of luck with radiation!
Angelaks....let the tears flow. Being strong is not only tackling the physical stuff but also the emotional stuff!!! I am personally terrified to have a double mastectomy. There are some nights that I lay in bed and just cry
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LAST chemo occuring at this very moment! Thank you blood for cooperating! Merry Christmas to me!
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- Denny j I had the bilateral mx before chemo. The recovery is much easier than chemo. Most women are out quickly with little pain. Those with their final surgeries are happy with beautiful results. I know many who said they were happy they were able to wear outfits and exercise as when they were younger.
Ladies. How much hair loss did you have on AC? Mine is not all gone. I have about 10 percent left. Is it supposed to be all gone
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Nanpop - That is good to know. I am always happy to read positive posts...You definitely give me hope.
Like I said, I am pretty terrified but maybe it is the fair of the unknown that is worse. Just like before starting chemo...I was terrified and now I know that I can survive it (with se's...).
Regarding hair - I am as bald as they come! I am not on AC but I lost my hair about 16 days into treatment. Surprisingly enough (and knock on wood)...I still have eye brows and eye lashes.
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Hooked up to my final DD Taxol! Really not looking forward to this weekend which is so sad... I love all the Christmas moments but have learned not to push it. Got just enough planned that it will still be special for the kids and easy enough on me. I hope.
Getting unhooked now! Done with chemo! I think I'll hold off on celebrating until they take the port out next month. Recovery is easier and will signify chemo is really over!
I'll find out the details on radiation next week... step 2 done on to step 3. (Had a lumpectomy first
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So happy for those that are finishing chemo!!! Congratulations!
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Last chemo done today!
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Congrats to everyone finishing chemo!!! So exciting!!
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Nanpop- I lost a lot but not all hair on AC. Hubs buzzed what was left after my final hair washing and the majority came off. Have channeled Pigpen from Charlie Brown ever since. Eyelashes and eyebrows started thinning towards the end of AC too. Taxol has been weird. I thought I felt stubble in some bald patches for a couple of days but not anymore and think I'm thinning even more. Eyebrows and lashes are thinning more for sure. I never liked eye makeup much beyond mascara so it's been interesting. I rate my outings on whether they are makeup worthy or not. Most aren't;)
Emily - I didn't get a bell to ring! That's so cool! I did get well wishes and a see you in two months.
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Congrats to everyone finishing up their last treatment!!!
Sam13 - what a cool bell! My office doesn't have anything. I saw one woman with a sign saying last chemo.
I cant wait 6 TCHP scheduled for Jan 4.
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Looks like today was the last for a few of us. Congrats to my fellow chemo Enders. I hope you are able to enjoy this Christmas holiday with little and hopefully no SE.
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Hi Ladies-
Wanted to send my congrats to those finishing and that have finished. To those of you still going through the process, please know that this group will stay and support.....I know from being on the August chemo group, it gets hard as it feels like you're left alone....you are not.
Angela's- like others have said- we all deserve times to just be sad with this crap. But I think we all have been good to then pick ourselves up, as we are stronger than maybe we ever thought. I just had a random car cry....1st a Christmas song came on, but then something that made me think of all of us......Titanium by Sia:
I'm bulletproof, nothing to lose
fire away, fire away
Ricochet, you take your aim
fire away, fire away
You shoot me down, but I won't fall,
I am titanium
You shoot me down, but I won't fall,
I am titaniumHave a wonderful weekend ladies.....
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