When do the side effects start?

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poopysheep
poopysheep Member Posts: 40
edited December 2016 in Hormonal Therapy - Before, During, and After

started the Bottle Ol'Tamoxifen last week... 1 down, 519 to go..

Wondering when the side effects generally start....

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  • jojo9999
    jojo9999 Member Posts: 202
    edited December 2016

    I think it is highly variable - I didn't have many until about 4 weeks in. I am at the 2 year mark, and my side effects are constantly changing. Good luck.

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  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited December 2016

    I have been taking Tamoxifen for almost 2 years, and the only SE I have is the occasional hot flash. The majority of folks who take it have little to no SEs

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  • Leydi
    Leydi Member Posts: 146
    edited December 2016

    Just finished my first bottle - 90 days. No noticeable side effects now. Did notice an increase in hot flashes at first but that has already dropped back to my normal. Easiest part of my treatment plan so far by far! Good luck.

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  • wendymk2016
    wendymk2016 Member Posts: 63
    edited December 2016

    I had taken the pill for about three weeks. So far did not notice big SE. Though a little big increase of discharge notices and occasional hot flash.

    I was wondering if we have more SE symptom, does that indicate the medicine is more effective?

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  • wallycat
    wallycat Member Posts: 3,227
    edited December 2016

    If I remember correctly, mine kicked in around the 8-9 month mark.

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  • poopysheep
    poopysheep Member Posts: 40
    edited December 2016

    Two weeks to the day and still holding with basically no side effects... i'm not really sure what to expect hahahahahaha it's like any little thing i overthink and go "ohhhhh maybe this is the tamoxifen" but I'm pretty sure it's not...


    anyone else just starting??

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  • dtad
    dtad Member Posts: 2,323
    edited December 2016

    Sjacobs146...I'm so happy you are doing well on anti hormone treatment. However I have to disagree with your statement that most people have little or no SEs. The fact is that only 50 percent of us complete the 5 years due to SEs. When you add those who stay on it with SE"s from mild to severe, that's a big number. I'm not saying don't take it. I'm just saying we all need to make our own informed decisions. I worry if the SEs are underplayed then better treatment options will not be available in the future. Good luck to all navigating this disease.

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  • tennischick888
    tennischick888 Member Posts: 18
    edited December 2016

    I just took my 25th Tamoxifen pill. 1800 more or 3625 if I have to go 10 years. I take a lot of supplements too and avoid refined carbs, sugar (except from fruit), processed foods. So far, so good. Just had a couple of minor muscle cramps but daily magnesium and occasional potassium supplement helped. It's hard to tell if my occasional fatigue is from tamoxifen or just doing too much

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  • Blueorange
    Blueorange Member Posts: 76
    edited December 2016

    I started 2 months post op and have been taking it for about 6 weeks. My side effects are insomnia, moodiness, exhaustion and now nausea. I'm not sure if the nausea is from the Tomoxifen, or if I'm getting a flu. I take effexor which was prescribed for hot flashes and depression. I haven't had any hot flashes so far. I will continue to take it, though I don't feel great. I like to think that I'm taking something that will help prevent the cancer from coming back. The benefits outweigh the side effects for me.

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